new member

[Guest guest]

Hi , Welcome to the group. I hope you find the the support and

encouragement that I have since I joined about 3 mo. ago. It took a Rheumee to

confirm

my diagnosis 2 wks. ago. He started me on " Robaxin " a guafenisen derivative

muscle relaxer that has taken almost 10 days to work well. I no longer have the

24/7 back ache and the rest of my muscles aren't as stiff in the morning. Keep

coming back there are alot

people ready willing and able to help you find what works best for you. God

bless you......Love

wrote:

Hi

My name is , I am 45 with 4 kids, and I was given the FMS

diagnosis in 1998 - I went through the anti-depresent and after

no improvement I gave up and started figuring out for myself what

worked for me. I developed hip bursitis last year and saw a

specialist for that and he confirmed the FMS and felt there was no

help that he could give - such is the state of medicine in rural

Ontario Canada.

I am interested to know if anyone has experienced ongoing Shingles

with their FMS - I break out in a rash 2 or 3 times a year.

Thanks

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Hi Tesa, Welcome to the group! I hope you find the love,support and

encouragement that I have since I've been a member,about 3 mo. now.

You will find that many of us have other health problems includeing

depression.

God Bless You!.........Love

tesarae74 wrote:

Hello everyone! My name is Tesa, I'm a WAHM. Four daughters, one

step-daughter and one step-son. Yep... 6!! I have alot of questions,

mostly would just like to see that I'm not really crazy and other

people have some of the same things going on as I do. Diagnosed with

fibromyalgia 3 years ago, but was suffering with symptoms since I was

in my mid 20's. 33y/o now.

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Hi ,

Thanks for the welcome! My husband (his name is Bill) tested negative for Lyme,

but I will need to ask what type of test that they used. I did not consider

than the Lyme test could be faulty and will check into it.

Ann

[Guest guest]

Janet,

Thanks for the welcome! I had not heard of CCSVI treatment but I am really glad

to hear that it helped you. You are right about keeping smiling though. I

imagine it would be easier to keep smiling with the addition of medical

marijuana, but we shall just have to see how it goes. We are rather new to all

of this even though it has been going on for a long time. The initial shock was

frightening... I am sure I don’t have to tell you about it. The irony of it

all is that nothing really has changed, we just have a name for it now.

Anyway, thanks for the shout out and I will look forward to learning more each

day.

Ann

[Guest guest]

Good for you Ann....remember if it's a FDA approved Western Blot you need a

retest. Like IgeneX's.

-M

[Guest guest]

---------- Forwarded message ----------

Date: Tue, Dec 6, 2011 at 9:12 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Hi-I'm glad to have found this group! I was diagnosed a year ago with

relapse-remitting MS. I feel that I have been suffering with the disease

for 20 years, when my eye symptoms began. I have been seen at NIH and

Cedar-Sinai, only finally getting diagnosed in October 2010 with over 15

enhancing lesions in my spinal column. My symptoms are visual, a lack of

seeing detail/loss of visual field, drop foot, bladder and bowel issues,

fatigue and some tingling in my face. I am in a clinical trial for

Dacluzimab. I just underwent a 3 day Solumedrol treatment for an

exacerbation which left my legs heavy and my other foot dragging. I don't

think it did much. I am a " foodie " and believe that nutrition is medicine.

I became suspicious of drugs and drug companies when I read that aloe was

counterintuitive to the steroid treatment, that didn't sit well with me. I

looke forward to what this group can teach me!

I am an almost 46 year old single mom to a gorgeous 11 year old son. My

identical twin sister was diagnosed about 15 years ago, and has been a

poster child for Betaseron, having never had symptoms beyond her first 2

presenting episodes.

Thanks for being there!

denise