Re: CCSVI and Subdural Hematoma

[Guest guest]

Hi All,

I'm a newbie here, looking for information for a friend in Germany. In

particular, I would like to learn as much as possible about CCSVI. I've

visited several websites, but before I can recommend considering CCSVI, I need

to read at least a couple technical research articles published in reputable

medical journals that describe the basis of the theory and the evidence that

supports it.

Can anyone point me to technical information of this sort?

Thanks.

Glenn.

>

> > **

> >

> >

> > My doctor has been recommending that I look into CCSVI but it seemed a

> > little too invasive for me as I am 63 and still pretty mildly affected. Then

> > five days ago I ended up in surgery with a leakage of venous blood in the

> > brain. It had evidently been going on for some time - possibly a few months.

> > I thought I was having an MS exacerbation brought on by a rare (for me)

> > sinus infection until my kids found me incoherant on the floor. Thankfully,

> > I am doing very well and am back to what used to be normal for me. Now I am

> > wondering if there could be any connection between subdural hematoma and

> > CCSVI. CCSVI no longer seems very invasive as I'm sporting the enstein

> > look right now. Any thoughts? None of the neurologists that I've talked to

> > here have ever heard of CCSVI. This is almost always brought on by a head

> > injury and the neuro says that even people with heamophilia don't generally

> > bleed in the brain. They don't know what brought this on. I'd love to hear

> > any thoughts.

> > Marilyn

> >

> >

> >

>

>

>

> --

>

> " I ask God not for the grace to see what lies ahead but for the grace to

> accept whatever comes. "

>

> -- Merton

>

>

>

[Guest guest]

>

> Hi Glenn,

There is a book on Amazon you can read called Ccsvi As the Cause of Multiple

Sclerosis: The Science Behind the Controversial Theory (Mcfarland Health Topics)

Marie A. , Elaine A.

Sold by: Amazon.com LLC

(I had the procedure 3 x, for me it was beneficial but the benefits faded, in a

few weeks the first time, in 6 months the second time, and then the third time

symptoms had come back but my veins were still open. But I know plenty of

people who got their lives back from CCSVI treatment--go on facebook in the

group Liberation)

> Hi All,

>

> I'm a newbie here, looking for information for a friend in Germany. In

particular, I would like to learn as much as possible about CCSVI. I've

visited several websites, but before I can recommend considering CCSVI, I need

to read at least a couple technical research articles published in reputable

medical journals that describe the basis of the theory and the evidence that

supports it.

>

> Can anyone point me to technical information of this sort?

>

> Thanks.

>

> Glenn.

>

>

>

[Guest guest]

Thanks ,

I ordered the book and will surely have more questions after reading it.

Sorry to hear the CCSVI treatment is no longer working for you, but you are

obviously grateful for the time you had. I'd like to connect with some of the

folks who have had success with the CCSVI treatment.

Best,

Glenn.

> >

> > Hi Glenn,

>

> There is a book on Amazon you can read called Ccsvi As the Cause of Multiple

Sclerosis: The Science Behind the Controversial Theory (Mcfarland Health Topics)

> Marie A. , Elaine A.

> Sold by: Amazon.com LLC

>

>

>

> (I had the procedure 3 x, for me it was beneficial but the benefits faded, in

a few weeks the first time, in 6 months the second time, and then the third time

symptoms had come back but my veins were still open. But I know plenty of

people who got their lives back from CCSVI treatment--go on facebook in the

group Liberation)

>

>

> > Hi All,

> >

> > I'm a newbie here, looking for information for a friend in Germany. In

particular, I would like to learn as much as possible about CCSVI. I've

visited several websites, but before I can recommend considering CCSVI, I need

to read at least a couple technical research articles published in reputable

medical journals that describe the basis of the theory and the evidence that

supports it.

> >

> > Can anyone point me to technical information of this sort?

> >

> > Thanks.

> >

> > Glenn.

> >

> >

> >

>

[Guest guest]

Hi Glenn, there are German language ccsvi forums. csvi-ms.net is in German,

English and French. I also read a lot of the ccsvi threadson thisisms.com but

they are in English only. I have been treated twice--once in furt and once

in NYC.

> >

> > Hi Glenn,

>

> There is a book on Amazon you can read called Ccsvi As the Cause of Multiple

Sclerosis: The Science Behind the Controversial Theory (Mcfarland Health Topics)

> Marie A. , Elaine A.

> Sold by: Amazon.com LLC

>

>

>

> (I had the procedure 3 x, for me it was beneficial but the benefits faded, in

a few weeks the first time, in 6 months the second time, and then the third time

symptoms had come back but my veins were still open. But I know plenty of

people who got their lives back from CCSVI treatment--go on facebook in the

group Liberation)

>

>

> > Hi All,

> >

> > I'm a newbie here, looking for information for a friend in Germany. In

particular, I would like to learn as much as possible about CCSVI. I've

visited several websites, but before I can recommend considering CCSVI, I need

to read at least a couple technical research articles published in reputable

medical journals that describe the basis of the theory and the evidence that

supports it.

> >

> > Can anyone point me to technical information of this sort?

> >

> > Thanks.

> >

> > Glenn.

> >

> >

> >

>