Guest guest Posted September 16, 1999 Report Share Posted September 16, 1999 kristen- when you increased your intake of fat you lost faster? we've heard that, but i'd like to hear more... what did you eat? mollie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Hi , Sorry you have need to be here, but welcome to the board! <<Wondering just how high his CEA can go before he has to go on morphine>> Did you see post 4963 about CEA? Because of the unreliability and variability (both between patients and within a single patient over time!) of CEA, it cannot really be used to predict anything (survival time, etc.). It can only be used as a trending marker over time in an attempt to assess treatement response. There are patients with CEA near NORMAL having to be on morphine, simply because their cancer does not produce CEA. If your husband has pain, then he should tell his doctor about it. If the pain is not too severe, they will start him off on " milder " painkillers than morphine first ( & work their way up as needed). Best Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hi -- Congratulations on all the research that you have done for your husband. Is your husband's colon cancer in his liver only? Have they considered oxaloplatin through a hepatic artery infusion pump? I am aware of one patient taking that now. His CEA has gone from 200 to 10, so I guess that he is one of the lucky people who has responded well to it. He also had 6 liver mets previously treated by open field radiofrequency ablation. I am also aware of one patient's mother who had a 9 cm liver met shrink to 5 cm on chemo, at which point she had RFA on it. It has been two years without recurrence. Next year Avastin should become available, so any extension of life is helpful. CEAs can go into the thousands, so I don't think that the absolute number is as important as the trend. Best wishes, Barry > Hi, I'm new to this group. My husband was 50 years old last November > when he was diagnosed with stage IV colon cancer. His colon was > almost completely blocked. > > He had emergency surgery to resection his colon and remove some lymph > nodes. During surgery they also checked his liver and found it > completely invaded with tumors. He went on Camptosar + 5FU & LU > (Saltz regimen) until July. His CEA went down from 600 to 200 and > his biggest liver tumor shrank from 8 cm to 5 cm. Then his CEA count > started going back up in July now it is up to 800 and his Dr is > putting him on Xeloda(5 FU in pill form) & Oxaliplatin. > > On the positive side he still has his sense of humor and is in good > spirits. (Dr told him CEA up to 800 today - he replied " When it gets > to 1000 - Sell! " ) It helps me tremendously. I also try to focus on > enjoying our time together rather than dwelling on his future death > keeps me from getting depressed. > > Have spent hundreds of hours online learning about this cancer. Can > almost spell all the latest drugs and their brand equivalents. > > Happy to help any one any way I can. Wondering just how high his CEA > can go before he has to go on morphine. > > Nash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 They removed the one that was blocking his colon. As far as we know it is only in his liver. They don't do the infusion thing because he's got too many to count plus one big one that shrank from Grapefruit to Orange sized. What I have read is that they haven't really shown any advantage to direct infusion over the other kind. I asked the Dr after we found the shrinkage if they could at least take out the big one but they won't because they can't cure him. See the pic I posted - is not his liver but is the shape his is in. They just switched to a new regimen. We applied for Avastin & Erbitux but were denied. I'm thankful for every day we get but not very hopeful. > > Hi, I'm new to this group. My husband was 50 years old last > November > > when he was diagnosed with stage IV colon cancer. His colon was > > almost completely blocked. > > > > He had emergency surgery to resection his colon and remove some > lymph > > nodes. During surgery they also checked his liver and found it > > completely invaded with tumors. He went on Camptosar + 5FU & LU > > (Saltz regimen) until July. His CEA went down from 600 to 200 and > > his biggest liver tumor shrank from 8 cm to 5 cm. Then his CEA > count > > started going back up in July now it is up to 800 and his Dr is > > putting him on Xeloda(5 FU in pill form) & Oxaliplatin. > > > > On the positive side he still has his sense of humor and is in > good > > spirits. (Dr told him CEA up to 800 today - he replied " When it > gets > > to 1000 - Sell! " ) It helps me tremendously. I also try to focus > on > > enjoying our time together rather than dwelling on his future > death > > keeps me from getting depressed. > > > > Have spent hundreds of hours online learning about this cancer. > Can > > almost spell all the latest drugs and their brand equivalents. > > > > Happy to help any one any way I can. Wondering just how high his > CEA > > can go before he has to go on morphine. > > > > Nash Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.