Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 Is it possible/common for people with Grave's or HyperT to have it along with LOW BP rather than high? I am wondering because my BP has stayed low as always, but I have adrenal and aldosterone/renin problems, plus low blood volume and NMH which are untreated because I can't tolerate florinef. I just wondered if this is why my BP is still low even with Grave's? Thanks, Re: ALA -- link to pubmed article This is dangerous & can lead to mercury messing up your brain further. This is the info from the groups frequent-dose-chelation & the other connected group. I would research further before going down this route. Have a look at this group. Val I have taken them too and have been advised by my chelation doc and biol dentist, that one needs to start chelating before the amalgams come out, to reduce the overall mercury load. They said there is enough mercury in the body from the fillings, for the ALA to chelate, without it going for the mercury in the amalgams. That makes sense to me and I regret not having started before the fillings came out cause I got way more merc contamination since I had too heavy a merc load anyway Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 >>Is it possible/common for people with Grave's or HyperT to have it along with LOW BP rather than high? Hi , I have always struggled with low blood pressure, even with Grave's when I was most hyperT. The only time I even had remotely 'high' blood pressure was when I was taking Licorice. Dahlia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 I have Grave's and never really had low BP, but always had essentially good BP. I think this is because I had low cortisol though. SAMMIE > > Is it possible/common for people with Grave's or HyperT to have it along with LOW BP rather than high? I am wondering because my BP has stayed low as always, but I have adrenal and aldosterone/renin problems, plus low blood volume and NMH which are untreated because I can't tolerate florinef. I just wondered if this is why my BP is still low even with Grave's? > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Dahlia, How long before I can expect to feel better? My endo started me on 5 mgs. methimazole two weeks ago. I don't understand why he only started me on 5 mgs. per day. I've read in Shomon's book that even for mild HyperT the initial starting dose is 5 mgs. 3x day. So he told me when he started me to go get a TSH test in 4 weeks. That would be 2 weeks from today. So far, I have no relief. Re: those here with Grave's >>Is it possible/common for people with Grave's or HyperT to have it along with LOW BP rather than high? Hi , I have always struggled with low blood pressure, even with Grave's when I was most hyperT. The only time I even had remotely 'high' blood pressure was when I was taking Licorice. Dahlia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Thanks so much for her name and this info. I found her website and will order the book. Thanks again Re: those here with Grave's That's essentially correct - The protocol for Graves is to start at higher levels of Methimazole - 30 mgs - to get thyroid levels under control within a few weeks, and then taper down to 5 mgs or so as a maintenance dose. But that depends on your thyroid levels. What are they? Also, I recommend Elaine 's book - she's a Graves expert and patient advocate similar to what Shomon is for hypo. Elaine knows a lot more than about Graves. > > > How long before I can expect to feel better? My endo started me on 5 mgs. methimazole two weeks ago. I don't understand why he only started me on 5 mgs. per day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 BE CAREFUL. 30 mgs is HIGH and you won't be on it for long unless your levels are super high (I've never known someone to do well on this high dose. Been there....been there. It will make you super Hypo and if gone too far, it be difficult to bounce back. Like CAthy said, do you have labs to share? SAMMIE > > > > > > > How long before I can expect to feel better? My endo started me on 5 mgs. methimazole > two weeks ago. I don't understand why he only started me on 5 mgs. per day. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 >>Dahlia, How long before I can expect to feel better? My endo started me on 5 mgs. methimazole two weeks ago. I don't understand why he only started me on 5 mgs. per day. I've read in Shomon's book that even for mild HyperT the initial starting dose is 5 mgs. 3x day. So he told me when he started me to go get a TSH test in 4 weeks. That would be 2 weeks from today. So far, I have no relief. >> Hi , you didn't see the reply I posted to you last week? I felt better almost right away, but unfortunately I can't remember how much I started with. My endo left the dosing to me, and I had my tsh tested frequently so that I could try and figure out the dosing. I suggested you call him and tell him you feel no better and ask him for guidelines for raising. imo, there's no reason to feel bad for this long. Dahlia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I have what Dr. Arem calls " Low grade hyperthyrodism " with a TSH of .20 but normal hormone levels except I'll never know if Free T3 was elevated because this endo doesn't run it. I've experienced for the past year, muscle weakness, extreme fatigue, personality changes, severe anxiety, irritability, heart palps, weight loss without change in diet (25 lbs.) and severe brain fog; difficulty concentrating, focusing, etc. In the beginning, I had a very elevated libido and was somewhat hypomanic. Now after one year of that, I am exhausted and this condition is now disabling certain days I can't do anything at all due to weakness and fatigue. I had to stop work. I could no longer cope with the demands and I was only working 3 days a week/5 hours a day. I also could no longer keep up with my night classes and had to quit that for now. I almost broke up with my beau 4 times in the last year for no reason. He didn't understand what was happening to me or why I had completely changed. I kept telling him he'd changed and was making ridiculous, unreasonable demands and was very irritable and agitated all the time and would break down crying at the slightest sign of conflict and was hypersensitive to any kind of criticism or rejection whatsoever. None of this is me. I am relieved to finally know because it gives me comfort. I cannot wait to be well again and be able to go back to work and school. Right now it's just one hour at a time. I still wonder why he only started me on 5 mgs. methimazole once a day though. It's been two weeks since I started it at this point. Thanks for all the support Re: those here with Grave's BE CAREFUL. 30 mgs is HIGH and you won't be on it for long unless your levels are super high (I've never known someone to do well on this high dose. Been there....been there. It will make you super Hypo and if gone too far, it be difficult to bounce back. Like CAthy said, do you have labs to share? SAMMIE > > > > > > > How long before I can expect to feel better? My endo started me on 5 mgs. methimazole > two weeks ago. I don't understand why he only started me on 5 mgs. per day. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Your Endo is a moron. Using TSH to gauge your thyroid levels or to establigh dosing is horribly bad medicine. You need to be testing Free T4 and Free T3. TSH is useless while on methimazole or thyroid meds. Have you been tested for the antibodies? How did he confirm your Grave's diagnosis? When you say you feel bad, what are your symptoms? Have you joined the Grave's group yet? SAMMIE > > >>Dahlia, > > How long before I can expect to feel better? My endo started me on 5 mgs. > methimazole two weeks ago. I don't understand why he only started me on 5 > mgs. per day. I've read in Shomon's book that even for mild HyperT > the initial starting dose is 5 mgs. 3x day. > So he told me when he started me to go get a TSH test in 4 weeks. That > would be 2 weeks from today. So far, I have no relief. > > >> > > Hi , > > you didn't see the reply I posted to you last week? I felt better almost > right away, but unfortunately I can't remember how much I started with. > My endo left the dosing to me, and I had my tsh tested frequently so that > I could try and figure out the dosing. > > I suggested you call him and tell him you feel no better and ask him for > guidelines for raising. imo, there's no reason to feel bad for this > long. > > Dahlia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Shomon doesn't really know much about Graves. 5mgs is the typical maintenance dose after normal levels are achieved. Do join the Graves group and read Elaine 's book. Also, she has several articles at www.suite101.com. Endos believe that Graves disease is the most difficult thyroid disorder to treat, in fact very few of them know much of anything about it aside from zapping people with RAI and medicating using TSH. When you join the Graves Yahoo Group, you'll see that most people there have fired several endos for the same reason yours is so bad. Many self order lab tests and dose accordingly. Depending on your Ft4 and Ft3 labs, you can feel better in a few weeks if you are on the right dose of ATDs. The problem is your doctor doesn't know how to monitor you properly to make sure you don't go hypo. If you go hypo, antibodies will soar and you'll have all kinds of problems you haven't even thought of yet. Like others noted, you need the following tests: FT4 FT3 TSI (antibody test)positive test is definitive for graves TRab (antibody test)marker of autoimmune thryoid inflammation > > >>Dahlia, > > How long before I can expect to feel better? My endo started me on 5 mgs. > methimazole two weeks ago. I don't understand why he only started me on 5 > mgs. per day. I've read in Shomon's book that even for mild HyperT > the initial starting dose is 5 mgs. 3x day. > So he told me when he started me to go get a TSH test in 4 weeks. That > would be 2 weeks from today. So far, I have no relief. > > >> > > Hi , > > you didn't see the reply I posted to you last week? I felt better almost > right away, but unfortunately I can't remember how much I started with. > My endo left the dosing to me, and I had my tsh tested frequently so that > I could try and figure out the dosing. > > I suggested you call him and tell him you feel no better and ask him for > guidelines for raising. imo, there's no reason to feel bad for this > long. > > Dahlia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I'm sorry to hear all this - your experience is typical of people with Graves. It sounds like you really have 'Graves rage' which is complete irritation at everything! LOL. I did some crazy things when I was hyper, it was terrible! The symptoms you note don't really happen with 'low grade hyperthyroidism'. If you were being properly treated, you wouldn't be having these symptoms. .20 is actually pretty low TSH. Normal range is .50-5.0. and combined with your symptoms, you are in danger of heart problems. Are you taking any beta blockers? > > > > > > > > > > > How long before I can expect to feel better? My endo started > me on 5 mgs. methimazole > > two weeks ago. I don't understand why he only started me on 5 > mgs. per day. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 He diagnosed you with Grave's based on a TSH of .20? Please tell me you are joking. Have you every had a full thyroid panel taken? Grave's or other thyroid antibodies? I wouldn't have given you ANY methimazole with a TSH of .20. That's not even that low. It's barely out of the so-called normal ranges. What are your cortisol labs? These symptoms seem similar to high cortisol - possibly Cushings? Have you had your sex hormones tested? SAMMIE > > I have what Dr. Arem calls " Low grade hyperthyrodism " with a TSH of .20 but normal hormone levels except I'll never know if Free T3 was elevated because this endo doesn't run it. > > I've experienced for the past year, muscle weakness, extreme fatigue, personality changes, severe anxiety, irritability, heart palps, weight loss without change in diet (25 lbs.) and severe brain fog; difficulty concentrating, focusing, etc. In the beginning, I had a very elevated libido and was somewhat hypomanic. Now after one year of that, I am exhausted and this condition is now disabling certain days I can't do anything at all due to weakness and fatigue. > > I had to stop work. I could no longer cope with the demands and I was only working 3 days a week/5 hours a day. > I also could no longer keep up with my night classes and had to quit that for now. I almost broke up with my beau 4 times in the last year for no reason. He didn't understand what was happening to me or why I had completely changed. I kept telling him he'd changed and was making ridiculous, unreasonable demands and was very irritable and agitated all the time and would break down crying at the slightest sign of conflict and was hypersensitive to any kind of criticism or rejection whatsoever. None of this is me. I am relieved to finally know because it gives me comfort. I cannot wait to be well again and be able to go back to work and school. Right now it's just one hour at a time. I still wonder why he only started me on 5 mgs. methimazole once a day though. It's been two weeks since I started it at this point. > Thanks for all the support > > Re: those here with Grave's > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Actually, I disagree somewhat with you (no offense!) The new ranges for TSH are .3-3.0, but mostly people with thyroid issues feel pretty HypoT at 3.0. Here's a link: http://thyroid.about.com/cs/testsforthyroid/a/labs2003.htm So, just knowing you she is at .20 doesn't seem that low to me to put you her on Methimazole. But maybe you are at the beginning stages. I agree that it seems odd that she'd be having these symptoms what a TSH at that level, but this is why you must have Free T4, Free T3 and the other antibodies tested. Maybe your Free T4 and Free T3 are really high and justify it. Also, I misspoke in my earlier post, it sounds like some symptoms of s, NOT Cushings. Sorry about that. Maybe splitting the dose will help - take 2.5mgs twice a day and see if it helps. SAMMIE > > > > > > > > > > > > > > > How long before I can expect to feel better? My endo started > > me on 5 mgs. methimazole > > > two weeks ago. I don't understand why he only started me on 5 > > mgs. per day. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Sorry Dahlia. I must have missed that post. I'm surprised you felt better right away though because everything I've read says that methimazole takes between 2-4 weeks to work. The endo told me I should feel better in about 4 weeks. I will call him though. I was wondering if you noticed whether the physical or mental/emotional effects get better first? Thanks, Re: those here with Grave's >>Dahlia, How long before I can expect to feel better? My endo started me on 5 mgs. methimazole two weeks ago. I don't understand why he only started me on 5 mgs. per day. I've read in Shomon's book that even for mild HyperT the initial starting dose is 5 mgs. 3x day. So he told me when he started me to go get a TSH test in 4 weeks. That would be 2 weeks from today. So far, I have no relief. >> Hi , you didn't see the reply I posted to you last week? I felt better almost right away, but unfortunately I can't remember how much I started with. My endo left the dosing to me, and I had my tsh tested frequently so that I could try and figure out the dosing. I suggested you call him and tell him you feel no better and ask him for guidelines for raising. imo, there's no reason to feel bad for this long. Dahlia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 He told me that he was going to bring my TSH up to 2 and see how I improve. He said there was no reason to do anymore testing because I've got the two types of antibodies against me (which I brought him) and I've got a multinodular goiter and my TSH is too low with lots of symptoms of HyperT and my hands also shake. Re: those here with Grave's Your Endo is a moron. Using TSH to gauge your thyroid levels or to establigh dosing is horribly bad medicine. You need to be testing Free T4 and Free T3. TSH is useless while on methimazole or thyroid meds. Have you been tested for the antibodies? How did he confirm your Grave's diagnosis? When you say you feel bad, what are your symptoms? Have you joined the Grave's group yet? SAMMIE > > >>Dahlia, > > How long before I can expect to feel better? My endo started me on 5 mgs. > methimazole two weeks ago. I don't understand why he only started me on 5 > mgs. per day. I've read in Shomon's book that even for mild HyperT > the initial starting dose is 5 mgs. 3x day. > So he told me when he started me to go get a TSH test in 4 weeks. That > would be 2 weeks from today. So far, I have no relief. > > >> > > Hi , > > you didn't see the reply I posted to you last week? I felt better almost > right away, but unfortunately I can't remember how much I started with. > My endo left the dosing to me, and I had my tsh tested frequently so that > I could try and figure out the dosing. > > I suggested you call him and tell him you feel no better and ask him for > guidelines for raising. imo, there's no reason to feel bad for this > long. > > Dahlia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Yes, I am taking inderal. and yes, everything and everyone has irritated me in the last year plus, and at first, I would have the rage, but as time has gone on, I can no longer cope with any type of conflict so I now avoid it and have withdrawn from everybody. My body doesn't have the strength now to be angry anymore or like I was in the beginning. The high libido comes and goes. I notice that on days like today when I am pumping out more thyorid hormone, I've got the lubrication and high libido but I am much too exhausted to care, let alone act on it. It's now become more of a nuisance than anything else. Re: those here with Grave's I'm sorry to hear all this - your experience is typical of people with Graves. It sounds like you really have 'Graves rage' which is complete irritation at everything! LOL. I did some crazy things when I was hyper, it was terrible! The symptoms you note don't really happen with 'low grade hyperthyroidism'. If you were being properly treated, you wouldn't be having these symptoms. .20 is actually pretty low TSH. Normal range is .50-5.0. and combined with your symptoms, you are in danger of heart problems. Are you taking any beta blockers? > > > > > > > > > > > How long before I can expect to feel better? My endo started > me on 5 mgs. methimazole > > two weeks ago. I don't understand why he only started me on 5 > mgs. per day. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Sammie, I don't have Cushing's. I had adrenal insufficiency and my cortisol levels were borderline 's. I've been on low dose Cortef for almost 2 years and currently only take 7.5 mgs. a day as I have cut back from 15 mgs. in the last 5 months. Dr. Arem states that there is something called " Low Grade Hyperthyroidism " in which TSH drops (His range is anything under .39 is suspect for excess thyroid hormone) and I've had these symptoms going on for over a year now. For me, a TSH of .20 is Hyper and it has made me pretty sick. I have come to believe that it's all very individual. While someone might feel great (who is not on thyroid hormone) with a TSH of .30, that same level in me is hyper. Granted, he wouldn't run free T3 so I don't know what those levels are. Right now, I am looking for relief. I cannot stand this anymore day after day. The anxiety is so severe some days that I am terrified to try and drive. My endo said that regardless of what's causing my HyperT (since I also have a multi-nodular goiter) per ultrasounds, the methimazole is going to correct it and he wants to see how I feel when he brings my TSH up to 2. I've been on it for 2 weeks now and he wants a TSH test in two weeks. He seems pretty nice and he's listed on Shomon's " top thyroid doc list " Re: those here with Grave's > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I think it might be good for more people to be diagnosed Hypo with the new range, but I don't know about the .30 cutoff for Hyper. I felt quite hyper at ..50, and that was the old range cutoff for hyper. Re: those here with Grave's Actually, I disagree somewhat with you (no offense!) The new ranges for TSH are .3-3.0, but mostly people with thyroid issues feel pretty HypoT at 3.0. Here's a link: http://thyroid.about.com/cs/testsforthyroid/a/labs2003.htm So, just knowing you she is at .20 doesn't seem that low to me to put you her on Methimazole. But maybe you are at the beginning stages. I agree that it seems odd that she'd be having these symptoms what a TSH at that level, but this is why you must have Free T4, Free T3 and the other antibodies tested. Maybe your Free T4 and Free T3 are really high and justify it. Also, I misspoke in my earlier post, it sounds like some symptoms of s, NOT Cushings. Sorry about that. Maybe splitting the dose will help - take 2.5mgs twice a day and see if it helps. SAMMIE > > > > > > > > > > > > > > > How long before I can expect to feel better? My endo started > > me on 5 mgs. methimazole > > > two weeks ago. I don't understand why he only started me on 5 > > mgs. per day. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I'm confused. You felt Hyper at .5 and .2? It doesn't matter though, it matters how you feel which is why the ranges are arbitrary. SAMMIE > > I think it might be good for more people to be diagnosed Hypo with the new range, but I don't know about the .30 cutoff for Hyper. I felt quite hyper at .50, and that was the old range cutoff for hyper. > > > ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 >>I don't have Cushing's. I had adrenal insufficiency and my cortisol levels were borderline 's. I've been on low dose Cortef for almost 2 years and currently only take 7.5 mgs. a day as I have cut back from 15 mgs. in the last 5 months. << ALL your symtoms sound to me like low cortiosl symptoms. I do nto think you have low grade hyperthyroidism but LOW CORTISOL. I hate to see you take those thyrod lowering meds just to find out another theory isn;t going to work, but I feel strongly that you are not on the right track here. how can ANY doctor know what is going on with your thyroid that doesn;t even test T3 which is THEE most important hormone the thyroid makes? -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 >>He told me that he was going to bring my TSH up to 2 and see how I improve. He said there was no reason to do anymore testing because I've got the two types of antibodies against me (which I brought him) and I've got a multinodular goiter and my TSH is too low with lots of symptoms of HyperT and my hands also shake.<, well bringing your TSH up will enlarge your thyroid. Low cortisol causes hands to shake especially if there is low aldosterone with it. TSH will drop with low cortisol too as the T3 can;t get into the cells to work so it sends a message to the pituitary to lower your TSH. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Val, I wish you were right since I could easily increase my Cortef. But that would not explain the rest of my suffering for over one year now. This all started with me having a crazed libido during which time I literally became obsessed. I was 46 years old and before this started my theme was " what sex drive " ? I am a very conservative person and have been in a monogamous relationship for 13 years and all of a sudden, I developed a raging libido and spent time on-line going to porn sites while my beau was at work. This was totally out of character for me and now I am disgusted that I would engage in this kind of behavior. My mind began to race and in the beginning I could do five things at once and I was very speedy. Everybody moved and talked too slow for me. I was also experiencing severe anxiety with panic attacks and lots of anger, irritability and mood swings. I was on 15-20 mgs. of Cortef when all of this was going on and remained on that dose until about 5 months ago. As time went on, it started to change. I became unable to focus or concentrate. I could no longer even write out a check for a bill and I started losing weight. My hands and tongue were trembling and I was having lots of " burning up " and getting lots of shortness of breath. My heart was beating fast and I was experiencing chest pain. They sent me for lung function tests which came out PERFECT and they didn't even believe that I smoked. My stress test and echo were normal except that they showed severe deconditioning. Ever since this all started I cannot exercise as I have become intolerant to it and I fatigue very very easily. Before that, I could walk and walk no problem. A few years ago when I developed the adrenal insufficiency, there was no such thing as a sex drive. I know what low cortisol feels like. I've also been complaining to doc about my eyes for the last year. They are puffy on the lids and red and sore. I also sit and stare a lot and rarely blink. People say I have intense eye contact (whatever that means). In the last month I lost 15 lbs. and I was ravenous and eating a lot. Before that I lost 25 lbs. in one year without changing anything in my diet. That's when I was on plenty of cortisol. I am getting desperate for relief. I suppose it wouldn't hurt to increase Cortef back up to 15 mgs. and just see if it makes any difference. Thanks, Re: Re: those here with Grave's >>I don't have Cushing's. I had adrenal insufficiency and my cortisol levels were borderline 's. I've been on low dose Cortef for almost 2 years and currently only take 7.5 mgs. a day as I have cut back from 15 mgs. in the last 5 months. << ALL your symtoms sound to me like low cortiosl symptoms. I do nto think you have low grade hyperthyroidism but LOW CORTISOL. I hate to see you take those thyrod lowering meds just to find out another theory isn;t going to work, but I feel strongly that you are not on the right track here. how can ANY doctor know what is going on with your thyroid that doesn;t even test T3 which is THEE most important hormone the thyroid makes? -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Yes, I misspoke earlier and corrected myself earlier by saying your symptoms sound more like s. I'll say it again, you do NOT know what your thyroid levels are based on TSH. I don't care how highly recommended he comes or how nice he is. This is not adequate care in ANYONE's opinion who knows a damn about thyroid levels. TSH is a pituitary hormone NOT thyroid. Why he'd want to get your TSH up to 2 and not know your Free Ts is insanity. What 2 antibodies do you have that you are talking about? It sounds like he's going to make you HypoT, which will make everything 1000% worse. Certainly it will make your adrenals worse. You can trust your doctor and continue to be confused, or you can demand all the tests we've suggested to CONFIRM what is going on. The goiter is confusing too. Are you eating a lot of iodine? This can disrupt thyroid levels/TSH test results. And if you are still eating high protein/low carbs, you may want to re-think it. I've said it a few times, but when I did this, a few months later I was diagnosed with Grave's. I still think there is a possible connection there, as confirmed in Broda's book. Try and find a doc recommendation from the Grave's group. Most Endos specialize in diabetes and very few that specialize in thyroid disease have a clue about Grave's. It sounds like you need more cortisol for sure. 7.5mgs is a very low dose. SAMMIE > > Sammie, > > I don't have Cushing's. I had adrenal insufficiency and my cortisol levels were borderline 's. I've been on low dose Cortef for almost 2 years and currently only take 7.5 mgs. a day as I have cut back from 15 mgs. in the last 5 months. Dr. Arem states that there is something called " Low Grade Hyperthyroidism " in which TSH drops (His range is anything under .39 is suspect for excess thyroid hormone) and I've had these symptoms going on for over a year now. For me, a TSH of .20 is Hyper and it has made me pretty sick. I have come to believe that it's all very individual. While someone might feel great (who is not on thyroid hormone) with a TSH of .30, that same level in me is hyper. Granted, he wouldn't run free T3 so I don't know what those levels are. Right now, I am looking for relief. I cannot stand this anymore day after day. The anxiety is so severe some days that I am terrified to try and drive. My endo said that regardless of what's causing my HyperT (since I also have a multi-nodular goiter) per ultrasounds, the methimazole is going to correct it and he wants to see how I feel when he brings my TSH up to 2. I've been on it for 2 weeks now and he wants a TSH test in two weeks. He seems pretty nice and he's listed on Shomon's " top thyroid doc list " > > > Re: those here with Grave's > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I stand corrected - I looked at the new range and then typed in the old one. > > > > > > > > > > > > > > > > > > > How long before I can expect to feel better? My endo > started > > > me on 5 mgs. methimazole > > > > two weeks ago. I don't understand why he only started me on > 5 > > > mgs. per day. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Th e high libido is from soaring estrogen. Low cortiosl creates an excess of estrogen when it goes on long enough. ESTROGEN is the libido maker in women. Often we have low thyroid WITH low corisl which cancels out the libido so many do not get this symptoms. BUT if you have almost enough thyroid I can see where libido could easily become a problem wiht low cortisol. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
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