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Re: biopsy

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Hi everyone,

I have been a lurker and not a regular reader since alot has been going

on here and I can't keep up with my mail. I am mom to a 10 yr old NT

daughter and a 5 year old son with autism, numerous food allergies, GI

problems and now possible mito disorder. We have suffered 3 regressions

with our son and the latest was a few weeks ago during his 3.5 week

vacation from school. In this time, we have not only lost all our

receptive language, but he no longer wants to play with toys and only

wants to watch the same video over and over. The worst part though is

that our son has become very aggressive towards us and himself. He is

hitting himself very hard and banging his head into the ground. He no

longer wants to go to school and is hitting and biting us. His dr thinks

his regressions are due to mito since he has elevated lactic, uric, and

pyruvate. We were advised to do a muscle skin biopsy. My question is

that his doctor wants us to do it local (in Boston) as it is very

difficult to fly with him. We have heard that atlanta and cleveland are

better. I am not worried about the surgery, but my son obsesses about

little scratches on his body and picks at them unrelentlessly. How will

we handle a bandage with a wound. He will pick at the stitches until

they are gone and the wound is open. I thought of making him wear long

pants and taping him up, but he would wet his pants. First, is frozen

that unreliable, and second, how do you keep your child from reinjuring

the wound?

Thanks,

Phyllis

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  • 2 weeks later...
Guest guest

Hi all,

We are set to have our biopsy done on Aug 22nd. I am a bit nervous and

am even more nervous about trying to keep him from pulling out the

stitches! WE are doing the frozen sample in Boston because I could just

not stand the wait in Cleveland is now 6 months to get an appt.

Phyllis

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

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