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In a message dated 5/22/2004 3:13:30 PM Eastern Daylight Time,

crcarnevale@... writes:

Is pain like spasms in your back near the kidney area anything to worry about?

Hi Colleen,

I suggest that you call your doctor about this.

hugs

Eunice

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Well... IT could be that you have a back ache. It also could be that you

are having kidney issues. I remember when I got my first kidney infection,

they told me that it was a backache and sent me home from the ER 2 days

later I was back with a temp of 104 and dehydrated, because I wasn't able to

keep anything down. NOT a fun experience. SO, if you feel that it is

kidney related, I would get it checked out. Just to be on the safe side.

Angelia in OR

----- Original Message -----

> Is pain like spasms in your back near the kidney area anything to worry

about?

> Colleen...............

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Yes get it checked out. I had those...before I had my kidney removed

from kidney cancer. But I know they are common, so don't freak out! Let

the dr guide you...

maralee

****> Is pain like spasms in your back near the kidney area anything to

****> worry

****about?

****> Colleen...............

**

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  • 3 years later...

I agree, thank you for speaking up for all of us. My first DR who sent me to the

one who diagnosed my fibro had seet up a follow up appt for me afterwards so I

go to my first DR and take my meds with me to get refills and she told me she

did not write scripts fors any of these meds but we could try and change meds so

I changed DRs instead. Now my DR listens and helps in any way she can but it is

a hard battle to fight when nobody listens to you and thinks that all you are

doing is pill chasing and looking to get high. I get this sinking feeling in the

pit of my stomach when I see the meds I take I am 35 and have about 20 different

types of meds i take to control pain and side effects of meds and the list goes

on and on. And to have someone speak out as you have means a lot not only to me

but to our fellow survivors of fibro and constant pain. THANK

YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

---------------------------------

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.. and the little Tigger bowed her head and said " Amen " . and then.

I'm totally with you. I got some Vicoden the other day from my rheumy. My

brother fought for me to get it and told the doctor that he checks up on me.

I take one in the morning and one at night and in two full days it has made

a huge difference. I can stay on it like that for a week or so, but the doc

wants me to come off for awhile after that.

You are right also about the hospitals. They made sure I wasn't in pain and

that I could sleep. Do we really have to go to the hospital to get the kind

of relief that we need? I hope not.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of lyriczada

Sent: Friday, August 17, 2007 6:17 PM

To: Fibromyalgia_Support_Group

Subject: Pain

I've been reading all the posts about pain medication and doctors that

won't prescribe them. Those of us with fibro and other illnesses have

a right to not be in pain. We have a right to live a normal or

somewhat normal life without pain and if that life includes pain

medication then whose to deny us. I think a few people makeing these

laws and scaring doctors need to have what we have and experience first

hand the pain we go through then maybe they will understand. There

are mornings that when I wake up it takes every ounce of strength I

have just to get out of bed and then I walk around like a 90 year old

lady for a while until the pain goes down. I'm lucky I have a doctor

that does take care of the pain but I did have to sign a pain contract

fine by me as long as he takes care of the pain. When I was last

admitted to a hospital they flat out told me I had the right to ask for

pain medication and I had the right to have my pain relieved. Guess

what they made sure that I was in no pain while I was there. So screw

the government and the doctors that are afraid to treat patients.

Those types of doctors are not following the oath they took to become

doctors. They are doing us all kinds of harm by letting us live with

pain. We have a right to life and to a life without pain.

lyriczada

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I took one a day and it helped.. Lol

Bet

-- Pain

I've been reading all the posts about pain medication and doctors that

won't prescribe them. Those of us with fibro and other illnesses have

a right to not be in pain. We have a right to live a normal or

somewhat normal life without pain and if that life includes pain

medication then whose to deny us. I think a few people makeing these

laws and scaring doctors need to have what we have and experience first

hand the pain we go through then maybe they will understand. There

are mornings that when I wake up it takes every ounce of strength I

have just to get out of bed and then I walk around like a 90 year old

lady for a while until the pain goes down. I'm lucky I have a doctor

that does take care of the pain but I did have to sign a pain contract

fine by me as long as he takes care of the pain. When I was last

admitted to a hospital they flat out told me I had the right to ask for

pain medication and I had the right to have my pain relieved. Guess

what they made sure that I was in no pain while I was there. So screw

the government and the doctors that are afraid to treat patients.

Those types of doctors are not following the oath they took to become

doctors. They are doing us all kinds of harm by letting us live with

pain. We have a right to life and to a life without pain.

lyriczada

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I agree %100.

Debra V.

lyriczada wrote:

I've been reading all the posts about pain medication and doctors that

won't prescribe them. Those of us with fibro and other illnesses have

a right to not be in pain. We have a right to live a normal or

somewhat normal life without pain and if that life includes pain

medication then whose to deny us. I think a few people makeing these

laws and scaring doctors need to have what we have and experience first

hand the pain we go through then maybe they will understand. There

are mornings that when I wake up it takes every ounce of strength I

have just to get out of bed and then I walk around like a 90 year old

lady for a while until the pain goes down. I'm lucky I have a doctor

that does take care of the pain but I did have to sign a pain contract

fine by me as long as he takes care of the pain. When I was last

admitted to a hospital they flat out told me I had the right to ask for

pain medication and I had the right to have my pain relieved. Guess

what they made sure that I was in no pain while I was there. So screw

the government and the doctors that are afraid to treat patients.

Those types of doctors are not following the oath they took to become

doctors. They are doing us all kinds of harm by letting us live with

pain. We have a right to life and to a life without pain.

lyriczada

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Yahoo! Answers - Check it out.

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I think we all need to speak out and speak up. I am the same age as you are and

take medication for pain, for nausea, and I'm bipolar. I have fibro,

osteoarthritis in my knee and arthritis in my ankle. I also have four bulged

disks and some other problems with my back. I also have a history of getting

migraines so severe that I have been hospitalized because of the pain and being

so sick to my stomach that I dehydrated. So pain is a constant battle and it

really should not be. I have gone back to school and maintain a 4.0. If I were

a pill seeker I would not be able to keep that grade point average. I would be

too busy looking for pills then studying. I take my medication as prescibed and

I do have good days when I don't need any they are few and far between. But I

treasure those days. I think if we stand together maybe we can make a

difference. If a doctor is not treating your pain then all I can say is run,

run the other direction. Go to a doctor who is not afraid to treat you. My

fibro has been diagnosed four different times by four different doctors. With

three different specialties if that's not proof enough then I don't know what

is. So trust me I know about having soooo many prescriptions. I had someone ask

me how do you do it. Go to school maintain my GPA run errands take care of

myself and my husband while dealing with all the things wrong with my body.

There are times my husband has to take care of me. But I told her that at first

you want to crawl in a hole and stay there. THen you realize that you have to

go on you have to find a way. Where there's a will there's a way. Case in

point our eldest cat (13 yrs) Cleo was diagnosed with lung cancer 8 months ago

but had probably had it for at least 6 months. This is very rare in cats and my

vet said she has only seen 4 cases in her entire career. They thought she would

pass in a month maybe two. She's still with us Cleo is a fighter and I'm

learning from her. She has out lived everyone's expectations and now the vet

has named her the miracle girl. She still has a great appetite and just by

looking at her you would have no clue that she was sick. So no matter how bad

things get. Don't ever give up and fight and if you ever need a friend someone

to talk to I think we are in the same boat I through you a life line. IN other

words I can give you my phone.

LyricZada

Date: 2007/08/17 Fri PM 06:18:17 CDT

To: Fibromyalgia_Support_Group

Subject: Re: Pain

I agree, thank you for speaking up for all of us. My first DR who sent me to the

one who diagnosed my fibro had seet up a follow up appt for me afterwards so I

go to my first DR and take my meds with me to get refills and she told me she

did not write scripts fors any of these meds but we could try and change meds so

I changed DRs instead. Now my DR listens and helps in any way she can but it is

a hard battle to fight when nobody listens to you and thinks that all you are

doing is pill chasing and looking to get high. I get this sinking feeling in the

pit of my stomach when I see the meds I take I am 35 and have about 20 different

types of meds i take to control pain and side effects of meds and the list goes

on and on. And to have someone speak out as you have means a lot not only to me

but to our fellow survivors of fibro and constant pain. THANK

YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

---------------------------------

Shape Yahoo! in your own image. Join our Network Research Panel today!

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Tigger,

I am so happy for you! Make sure you document how you feel and what you were

able to do because you took a theraputic dose. It will help the doc understand

why you feel you need it .

Judy

P.S. Maybe we will get to meet in person soon

---- Tigger wrote:

> . and the little Tigger bowed her head and said " Amen " . and then.

>

>

>

> I'm totally with you. I got some Vicoden the other day from my rheumy. My

> brother fought for me to get it and told the doctor that he checks up on me.

> I take one in the morning and one at night and in two full days it has made

> a huge difference. I can stay on it like that for a week or so, but the doc

> wants me to come off for awhile after that.

>

>

>

> You are right also about the hospitals. They made sure I wasn't in pain and

> that I could sleep. Do we really have to go to the hospital to get the kind

> of relief that we need? I hope not.

>

>

>

> Tigger (Ruth) in Rhode Island

>

>

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of lyriczada

> Sent: Friday, August 17, 2007 6:17 PM

> To: Fibromyalgia_Support_Group

> Subject: Pain

>

>

>

> I've been reading all the posts about pain medication and doctors that

> won't prescribe them. Those of us with fibro and other illnesses have

> a right to not be in pain. We have a right to live a normal or

> somewhat normal life without pain and if that life includes pain

> medication then whose to deny us. I think a few people makeing these

> laws and scaring doctors need to have what we have and experience first

> hand the pain we go through then maybe they will understand. There

> are mornings that when I wake up it takes every ounce of strength I

> have just to get out of bed and then I walk around like a 90 year old

> lady for a while until the pain goes down. I'm lucky I have a doctor

> that does take care of the pain but I did have to sign a pain contract

> fine by me as long as he takes care of the pain. When I was last

> admitted to a hospital they flat out told me I had the right to ask for

> pain medication and I had the right to have my pain relieved. Guess

> what they made sure that I was in no pain while I was there. So screw

> the government and the doctors that are afraid to treat patients.

> Those types of doctors are not following the oath they took to become

> doctors. They are doing us all kinds of harm by letting us live with

> pain. We have a right to life and to a life without pain.

> lyriczada

>

>

>

>

>

>

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  • 1 year later...

Thats what my nurse told me after I started taking the pain meds. She said if you keep the level in your blood up then you don't have to take as much. Thats been my experience.

Love and hugs, Jackie, Jaxie, and Aunty J

Subject: painTo: "MSersLife egroup" <MSersLife >Date: Thursday, January 15, 2009, 1:49 PM

 back in the 80's we found out in Hospice if we gave the pain meds on time or a little before the pain didn't have a chance to build up and really hurt = like being on a pain pump and being in control - 95 - 98% of the people do not abuse it

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  • 2 years later...
Guest guest

Hi -

I have experienced great amounts of pain, to the point if Dr Kevorkianwas

around I would of used his assistance. As you know there isn't anything

they can give to relieve the pain.

The whole program (PowerHouse Protocol) may be more then you would

like or may not. The very first step is get your colon moving, my sound silly to

some but once the blockage is out and some don't even get that

far and they start to see some relief. Second step drink plenty of water...

To read more about the PowerHouse go to www.ginascorner.com

 

Make it a Great Day!

Kopera

   

________________________________

To: mscured

Sent: Sunday, June 19, 2011 7:59 AM

Subject: PAIN

 

I have had excruciating pain from my hip are (just below the buttocks), down the

outside of my leg to the knee for about 6 weeks. The last weeks or so, the pain

has radiated down to the calf and sides and front of my lower leg. This morning

I woke with it throbbing so bad, I couldn't go to church. I WAS taking Neurontin

but had to stop because it due to water weight gain and bad tremors. I am taking

Tylenol #4 and Baclofen for it, but it barely takes the edge off. It was SO bad

a few nights that I couldn't lay still for the pounding, throbbing pain and had

to go to ER. NO ONE knows what it is.... Have ANY Of you experienced something

like this and what did you use to help, and did you find out what it was?

Thank you SO much.

sign me...

in horrid pain in Ohio

()

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Guest guest

Hi ,

Instead of trying to directly treat MS-related symptoms, I think your wisest

course of action would be to employ a comprehensive approach that includes a

diet low in saturated fat (like the Best Bet Diet), exercise, detoxification, a

low stress lifestyle, food supplements, glyconutrients, Low Dose Naltrexone

(LDN), and a host of other things that some MSers have found very helpful.

For more information, visit

http://tinyurl.com/advice-to-msers

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

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Guest guest

I have nerve pain that comes from the lower back and goes down one leg as a

buzzing tingling that drives me crazy and on the other side burns from the groin

down to the foot. It used to get so bad I would cry sobbing due to the severity

and I couldn't sleep for days.

Things that helped was prokarin patches. Yoga and classical stretch from

classical stretch.com Yin yoga by paul griley volume 2 has poses you hold while

sitting on the floor. You hold them for 5 min. each. By the time I was done

with the first session my back was much looser and the pain was greatly

decreased. The next morning I felt beat up very sore like I had gone for a

massage and they were too rough. I did the workout several other times and each

session I felt better. It is supposed to pull the bones apart with traction by

the positions he uses and help with healing of the back and improving the

flexibility. The hips are connected to the back and feel much better after

doing his workout. My hips tend to be very tight, but when I do the workout not

as much. It feels like before one side of my body is so tight that when I lay

down my one side is raised higher and my leg feels shorter next to the other

one. When I am done now things are even and looser. It makes such a big

difference in my whole back and hips.

My spine tends to be itchy deep in the bone, not in the skin. The workout feels

like it helps to get rid of it. At first it increases it and I work with it by

squeezing the muscles along the spine during the workout and releasing them.

Afterwards the itchiness goes away. Supposedly its a form of neuropathy ???

When my back is out of alignment I found out the nerve pain is worse. It goes

away mostly when I do the yin yoga workout. The classical stretch has helped my

hips too when it feels like they are out of alignment. One day my hip was

aching and hurt with each step. She has gentle movements which help realign the

hips into the join and increase joint flexibility.

Again these videos work better than any pill I have taken. I try to do Yin yoga

at least twice a week and classical stretch a few times a week due to all the

therapeutic effect they have. My back has loosened up greatly and my overall

pain is almost completely gone. My flexibility has increased big time. It does

take time to do the workouts. Classical stretch is 25 min. and Yin yoga is an

hour long, but its so well worth it for me. I used to have such out of control

pain that meds would not help.

Benfotiamine has also helped a b vitamin, but it takes awhile to start working.

________________________________

To: " mscured " <mscured >

Sent: Sun, June 19, 2011 6:27:15 AM

Subject: Re: PAIN

Hi -

I have experienced great amounts of pain, to the point if Dr Kevorkianwas

around I would of used his assistance. As you know there isn't anything

they can give to relieve the pain.

The whole program (PowerHouse Protocol) may be more then you would

like or may not. The very first step is get your colon moving, my sound silly to

some but once the blockage is out and some don't even get that

far and they start to see some relief. Second step drink plenty of water...

To read more about the PowerHouse go to www.ginascorner.com

Make it a Great Day!

Kopera

________________________________

To: mscured

Sent: Sunday, June 19, 2011 7:59 AM

Subject: PAIN

I have had excruciating pain from my hip are (just below the buttocks), down the

outside of my leg to the knee for about 6 weeks. The last weeks or so, the pain

has radiated down to the calf and sides and front of my lower leg. This morning

I woke with it throbbing so bad, I couldn't go to church. I WAS taking Neurontin

but had to stop because it due to water weight gain and bad tremors. I am taking

Tylenol #4 and Baclofen for it, but it barely takes the edge off. It was SO bad

a few nights that I couldn't lay still for the pounding, throbbing pain and had

to go to ER. NO ONE knows what it is.... Have ANY Of you experienced something

like this and what did you use to help, and did you find out what it was?

Thank you SO much.

sign me...

in horrid pain in Ohio

()

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Guest guest

Yep! I know the pain which keeps you awake all night and which sears through you

like searing red or white heated flames and which brings you to tears throughout

the night.I started LDN and within 24 hours my pain disappeared - I haven't

exprienced the pain again since starting LDN.....and even when I at fist forgot

to take it, would be pain-free for at least two days/nights.I reccommend LDN to

people to handle the pain because that's what it has done for me. I know that it

may not help others in the same way as it has me, but feel that I must

reccommend it regardless.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: vbooth@...

Date: Sun, 19 Jun 2011 13:50:41 +0000

Subject: PAIN

I have had excruciating pain from my hip

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