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Re: Re: AMPYRA status?

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KC you are right in that noone should ever have to go through what we went

through. Dr.'s make mistakes and patients suffer for that. My husband has

Diabetes and we beleive that uncontrolled diabetes (he was stubborn) along with

alot of stress is what brough this on. He has had a couple of Abscesses that

have had to be drained (that actually got the diabetes diagnosis) so it has been

a roller coaster. The hospital actually tested him for every possible bacterial,

microbial and any other type of causes that 3 different labs could come up with.

One of the test was for lime disease. These test were done by 2 different

hospitals and sent to three labs (including Hopkins). He has a

delaminiating disorder (aka MS).  There was only one other possibility and that

would have been cancer so under those circumstances I'll take MS. Our

Neurologist that we go to (both of us have neuroligical issues) is 2 states

away. We travel 9 hours one way to see him as we

are not comfortable with the level of medical care here where we are. He was

very carefull to not jump up and scream MS. He actually thought it could have

been lime disease as well but after looking at all the test results he has come

back with MS that is exaserbated by his diabetes (that is our conclution that

it's exaserbated). We have been monitoring his symptoms and when his glucose is

elevated or drops he has more symptoms. It's all frustrating and confusing at

times.

Oh and one of the reasons I trust this dr is because when others wanted to lable

me with MS he did all the tests to rule out everything else. I have servere

migrains And I have one sclerosis on my brain.

Hugs

Donna in VA

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