Re: LDN or Interferon for MS need advice

[Guest guest]

Hi Orsi,

This site tells where and how to obtain LDN:

http://tinyurl.com/how-to-obtain-ldn

This site has more information about LDN and other alternative MS treatments:

http://tinyurl.com/advice-to-mers

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Make that

http://tinyurl.com/advice-to-msers

[Guest guest]

Thanks Dudley, appreciate your help! All the best to you!

>

> Make that

>

> http://tinyurl.com/advice-to-msers

>

[Guest guest]

I would go with Copaxone rather than

interferon. You can use LDN with it if you

choose. I'm probably prejudiced. I had the

attack that caused my to be terminated by my

employer (dismantling of my life started

here). From what I have read, I believe rebif

combined with stress was the cause. I have been

slowly improving over the last 6 years with a

combination of copaxone, diets, supplements and

exercise. I learned recently that copaxone was

developed from an attempt to give mice eae, but

instead it made them immune. It also does not

cause the side effects of interferons. I have

come to the conclusion that if you have me you

need to do the research and make your own health

care decisions. Ms is a personalized disease,

the idiot dr I saw couldn't figure that out. AND

what I'm doing does not work, he told me not to

bother and can't figure out how or why I'm improving.

Valery

At 10:31 AM 3/23/2012, you wrote:

>

>

>Hi all!

>

>Ive seen my new neurologist , and asked him

>about LDN, he knew a lot about it but he cant

>prescribe it for me on the nhs. Although he

>didnt stop me obtaining it from other sources,

>he would rather recommend interferon on a long

>term. he says its more affective then LDN and

>has more clinical test and proof in the past.

>

>Im confused, please anyone who takes ldn or

>interferon please give me some help here or

>advice i was so desperate to start ldn very soon

>ive been reading about it for four month now but

>i wanted to see my doctor before obtaining it.

>Any suggestions will be appreciated!

>

>Thank you , Orsi

>

>

[Guest guest]

We all paint our own pictures:

My picture :

April 2000 : optic neuritis (20/15 to 20/400+)

April 2004 MS diagnosis by MD PhD MS clinical trial neuroogist. Asked for LDN.

His response was " I've had a doen patients try it. It wasn't a good experience

for anybody " . Took Rebif for one year. By taking walks with my GPS and taking

a one week break from the Rebif, was able to measure Rebif making me weaker.

Neur says " I've never heard of that before, keep taking it " . Dutifully I did.

Whined some more and switched to Copaxone for one year

August 2006 : hire new neurologist who was reputed to think outside of the box.

Got a second MS diagnosis. She reccomended Betaseron. As Betaseron is so much

like Rebif, declined.

Sept 2008 : Hire a physician that had MS himself. Took LDN for one year. Still

losing strength, switched to the German inravenous drug Calcium ethyl amino

phosphate (EAP) for one year. Was still losing strength.

March 2008 : Hired an out of state physician who is a Lyme Literate Medical

Doctor (LLMD). Diagnosed with Lyme Disease and about 6 co-infections. Took

MANY oral antibiotics. Had some very god initial results, then slid back to my

starting point.

Aug 2010 : Hire LLMD #2. Take intramuscular antibiotic. Have some extremely

good positive results, then slide back to starting spot.

Dec 2011 : Have a PICC line installed and start intravenous antibiotics. Now

beginning to see positive results.

Feel that my picture shows two different disease models. Disease model #1 :

confused immune system that is attacking the nerveous system. Profitable drugs

like Rebif are used to throttle back the immunne system. Disease model #2 : A

bacteriological infection is attacking the nerveous system

NONE of the Lyme Disease tests are accurate, especially if we have been sick for

a long time. The standard Lyme Disease is notoriously inaccurate. For

diagnosis, use symptoms. Antibiotics are used for a provoking response to

confirm diagnosis.

Symptoms:

www.CanLyme.com

Diagnosis :

www.IgeneX.com

I sleep a lot. Feel free to send me a note to wake me up :-)

>

> Hi all!

>

> Ive seen my new neurologist , and asked him about LDN, he knew a lot about it

but he cant prescribe it for me on the nhs. Although he didnt stop me obtaining

it from other sources, he would rather recommend interferon on a long term. he

says its more affective then LDN and has more clinical test and proof in the

past.

>

> Im confused, please anyone who takes ldn or interferon please give me some

help here or advice i was so desperate to start ldn very soon ive been reading

about it for four month now but i wanted to see my doctor before obtaining it.

> Any suggestions will be appreciated!

>

> Thank you , Orsi

>