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Re: 42 year old with severe central and cortical atrophy question

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It is possible that your brain may be clear but your spine may have lesions. In

my case, an MRI early on found no lesions so the hunt for my ailment continued

until another doctor ordered spine MRIs with contrast. The MS diagnosis

followed. However, I do not beleive MS is my disease, but is a symptom of

something else - I only wish I knew what was causing my MS.

-Tim

>

> I just received an MRI with and without contrast with this outcome. Can anyone

give me input about what I may have? I was referred for an MRI from a pain

doctor, because I had MS symptoms. No lesions were found on my brain. I live

in a place that most of the Neurologists left town. We may be moving, I am just

too anxious to wait to see a Neurologist. Any information would help! Thanks!

>

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Does Lyme disease cause lesions? Anyone know?

________________________________

To: mscured

Sent: Sat, April 30, 2011 3:19:42 PM

Subject: Re: 42 year old with severe central and cortical atrophy

question

It is possible that your brain may be clear but your spine may have lesions. In

my case, an MRI early on found no lesions so the hunt for my ailment continued

until another doctor ordered spine MRIs with contrast. The MS diagnosis

followed. However, I

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Thank you Tim for your insight. Awaiting my insurance company to approve a

spinal MRI . . . .

> >

> > I just received an MRI with and without contrast with this outcome. Can

anyone give me input about what I may have? I was referred for an MRI from a

pain doctor, because I had MS symptoms. No lesions were found on my brain. I

live in a place that most of the Neurologists left town. We may be moving, I am

just too anxious to wait to see a Neurologist. Any information would help!

Thanks!

> >

>

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Thank you Zoe! I am learning so much through people like you1

>

> According to the MS Society, 5 - 10% of people with MS don't have lesions but

> are eventually diagnosed with MS through symptoms and other tests like lumbar

> puncture and evoked potentials. On the other hand, it could also mean you

don't

> have MS.

>

>

> Like Tim, I don't really feel like I know what " my MS " really is. I think

there

> are different causes in different people and different symptoms and it's all

> called " MS " even though one person may have had " MS " for 20 years and had two

> minor attacks and the next person may have had " MS " for a couple years and be

> highly disabled. It seems to me these are different illnesses being lumped

> together.

>

> Also, there is absolutely no scientific evidence or studies to suggest that

the

> number of lesions correlates with the amount of disability a patient has, so I

> don't know that counting lesions is a great way of assessing illness level.

Yet

> neurologists seem to like to do that anyway. It is something " concrete " in a

> disease that is otherwise highly ambiguous.

>

> I hope whatever you have, that you will get better, as some people are able to

> do.

>

> Zoe.

>

>

>

>

> ________________________________

>

> To: mscured

> Sent: Sat, April 30, 2011 3:19:42 PM

> Subject: Re: 42 year old with severe central and cortical atrophy

> question

>

>

> It is possible that your brain may be clear but your spine may have lesions.

In

> my case, an MRI early on found no lesions so the hunt for my ailment continued

> until another doctor ordered spine MRIs with contrast. The MS diagnosis

> followed. However, I do not beleive MS is my disease, but is a symptom of

> something else - I only wish I knew what was causing my MS.

>

>

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Yes, Lyme disease can be associated with (cause) unidentified bright objects

(UBOs, " lesions " , " scars " ) that appear in MRIs.

>

> Does Lyme disease cause lesions? Anyone know?

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Tim,

After beginning the " disease-modifying " injections recommended by two prominent

neurologists (MD's), my symptoms got worse. It took 4 years and 6 doctors

before I finally stumbled across a doc who could help me. He is a licensed MD

who can write prescriptions, but he has chosen to practice what he calls

nutritional medicine – he believes that the body, given the correct nutritional

and supplemental support, is capable of healing itself – that health is the

natural state for every body. He saw my MS diagnosis (from the head of the MS

clinic at a major university hospital) and immediately suspected Lyme disease.

He was not at all surprised when the blood test through IgeneX came back

positive for Lyme disease and two other tick-borne infections.

My health care team today includes this MD, a Lyme disease specialist(also an

MD), a chiropractor, a nutritionist, and a naturopath. At one time I put stock

in the knowledge and experience of MD's and Western medicine in general, but now

I view most of Western medicine with skepticism.

To quote Winston Churchill, " Nev-ah, nev-ah, nev-ah give up. " Keep searching

for your answer. Keep searching for the root cause of your symptoms. If

doctors trained and educated in standard, western medical schools are of little

or no help, seek out alternative or complementary doctors. They may be able to

assess your symptoms without the filters imposed by western medicine.

BTW: Doxy is the first antibiotic MD's prescribe to treat Lyme disease. (There

are other, more powerful antibiotics for later in treatment, especially if the

Lyme disease has gone untreated for several years.)

KC

> > > >

> > > > I just received an MRI with and without contrast with this outcome. Can

anyone give me input about what I may have? I was referred for an MRI from a

pain doctor, because I had MS symptoms. No lesions were found on my brain. I

live in a place that most of the Neurologists left town. We may be moving, I am

just too anxious to wait to see a Neurologist. Any information would help!

Thanks!

> > > >

> > >

> >

>

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Hi KC,

Â

I agree with your post completely and never have trusted the opinion of

traditional western medicine which has offered me nothing. They didn't offer me

the CRAB drugs because the nuero I saw at Cedars Sinai in LA did not think my

lesion pattern looked like MS. I became ill in LA and went back to the Bay Area

and began looking for answers and Lyme occurred to me. I had the Igenex test

done and am going to the LLMD that is the son of the founder of the lab right

now in the Bay Area. He is very intelligent and caring. He has me on Zythromax

(sp) for a month -- one a day 500mg and said it is effective against the

bacteria, but he is trying to fuel it because he wants to retest me and see if I

test differently this time. He also told me to take this supplement that is used

to treat malaria-- evidently it is very effective against Lyme. It is

Artemesinin. I have the phone number of the company he gave me if anyone would

like it.

Â

I agree about Winston's comment and my mom always told me the same thing-- never

give up-- ever.

Â

Best,

Â

Subject: Re: 42 year old with severe central and cortical atrophy

question

To: mscured

Date: Sunday, May 1, 2011, 10:56 AM

Â

Tim,

After beginning the " disease-modifying " injections recommended by two prominent

neurologists (MD's), my symptoms got worse. It took 4 years and 6 doctors before

I finally stumbled across a doc who could help me. He is a licensed MD who can

write prescriptions, but he has chosen to practice what he calls nutritional

medicine – he believes that the body, given the correct nutritional and

supplemental support, is capable of healing itself – that health is the

natural state for every body. He saw my MS diagnosis (from the head of the MS

clinic at a major university hospital) and immediately suspected Lyme disease.

He was not at all surprised when the blood test through IgeneX came back

positive for Lyme disease and two other tick-borne infections.

My health care team today includes this MD, a Lyme disease specialist(also an

MD), a chiropractor, a nutritionist, and a naturopath. At one time I put stock

in the knowledge and experience of MD's and Western medicine in general, but now

I view most of Western medicine with skepticism.

To quote Winston Churchill, " Nev-ah, nev-ah, nev-ah give up. " Keep searching for

your answer. Keep searching for the root cause of your symptoms. If doctors

trained and educated in standard, western medical schools are of little or no

help, seek out alternative or complementary doctors. They may be able to assess

your symptoms without the filters imposed by western medicine.

BTW: Doxy is the first antibiotic MD's prescribe to treat Lyme disease. (There

are other, more powerful antibiotics for later in treatment, especially if the

Lyme disease has gone untreated for several years.)

KC

> > > >

> > > > I just received an MRI with and without contrast with this outcome. Can

anyone give me input about what I may have? I was referred for an MRI from a

pain doctor, because I had MS symptoms. No lesions were found on my brain. I

live in a place that most of the Neurologists left town. We may be moving, I am

just too anxious to wait to see a Neurologist. Any information would help!

Thanks!

> > > >

> > >

> >

>

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