Re: NEW here with some questons

[Guest guest]

Hi DebraOooh these symptoms do sound like 'MS' don't they? I was dxd in '06 with

the RR form and have been through all that you've mentioned.I started the Best

Bet Diet (BBD) and MSRC recommended supplements in 2009 which gave me back a lot

of energy (B Complex and VitD3 were and still are my highest recommended in

regrads to energy)I had the CCSVI procedure in Scotland in 2010 and have

experienced HUGE improvements.

I know the tingling and eye jumps only too well but am thankful when I say that

since the procedure and changing my diet and nutrient intake, I am over that

hump.When I was tested for CCSVI, the Glasgow centre (Essential Health Clinic)

put me on LDN (Low Dose Naltrexone). That has taken away the night pains I'd

been experiencing for over a year and after my first week of dosing, I had my

first tearless, painlessand restful sleep in 18mths.You should look into that.

Fo the spasms and jerking, try Magnesium Malate - I get mine from iHerb in

Canada and find that they generally have evryth I need to sort myself out whilst

remaining off the Neuro-prescribed toxic 'MS' drugs. I steer well clearof them

because I was forced to have Avonex for 18mths by my first Neuro and the local

MSS. So, now I am part of the internet 'MS' community where we help each other

through shared experiences and shared knowledge.I run a group on Facebook which

people have found helpful - MichelangeloS Angels. Big M and S when/if you search

for it. ;)I hope some of that helps - I know that the majority of the vocal

members are generally a HUGE help too!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: ladybug75901@...

Date: Thu, 22 Mar 2012 02:50:34 -0700

Subject: NEW here with some questons

First let me introduce myself. My name is Debra. I joined a week or so

ago but have not posted. I am almost 48 years old, have two children ages 10

and 15 and I work as a registered nurse of 20 years.

[Guest guest]

Debra,

Consider the possibility of Lyme disease.

Consider the possibility of mercury poisoning.

Consider the possibility of poisoning from artificial sweeteners.

Lyme (and/or its associated co-infections), mercury poisoning, and poisoning

from artificial sweeteners can cause many of the same symptoms you describe.

KC

>

>  First let me introduce myself.  My name is Debra.  I joined a week or so ago

but have not posted.  I am almost 48 years old, have two children ages 10 and 15

and I work as a registered nurse of 20 years.  I was diagnosed with fibromylgia

about 8 years ago and suspect strongly more is going on now.  I would love to

ask some questions if you do not mind.  I know alot of the symptoms of MS but

would love to hear from that who have battled it rather than get all my

information off the net.

>

> I have the following symptoms of which the latest is urinary incontinence

which use to be only when I coughed but has progressed to spontaneous urine

incontinence in a moderate degree.  I guess we could say moderate because it is

not all the time but tonight I woke up and had urinated in my clothes but not

enough to wet the bed but enough to have to get up and change my clothes etc..

>

> Other symptoms are:

>

> Body jerks that happen at night when I lay down and is becoming more

frequent.  Sometimes my entire body has and involuntary jerk to where my limbs

will raise off the bed and at times it is one side of my body normally being the

right side when it is one side.

>

> Dizzy spells and the feeling of being off balance.

>

> Electrical shock sensations in my hands at times when I reach to pick

something up.

>

> Difficutly with memory and thought processes.

>

> STiffness all over so severe that in the mornings when I first get out of bed

I cannot bend to pick up something off the floor.  The stiffness is there all

the time but worse in the morning.

>

> PAIN all over which as been attributed to fibro???

>

> EXHAUSTION to the point it is almost disabling.

>

> Numbness and tingling in the fingers that comes and goes; and at times turns

to burning pain.

>

> Increasing difficulty with handwriting.  Also alot of typing problems with

transversing letters or typing the wrong word when I have been typing for

years.  (will have to type this slow and go back often to change my letters

around).

>

> Very brief bouts of blurred vision lasting only about a second or two. 

>

> At times, involuntary eye movements (not so often and not enough to be a

problem but nevertheless, it is present).

>

>

> The exhaustion is second only to pain for my worst symptoms.  No mater how

much I sleep I wake up exhausted.  NO THROID problems or anemia present.

>

> Thanks so much for whom ever answers me.  I plan to get tested soon for an

official answer to whether or not this is ALL fibromyalgia.

>

> Debra

>

> What you can see is not always how I feel.

> learnFMnow

>

>

[Guest guest]

Also consider Hashimoto's thyroiditis, which produces the same symptoms and can

be tested for with a blood test if looking for TPO or TGB antibodies. None of

us has the answer for someone else. We've all been through the wringer looking

for a cure when sometimes relief is better than what we have now.

>

> Debra,

>

> Consider the possibility of Lyme disease.

> Consider the possibility of mercury poisoning.

> Consider the possibility of poisoning from artificial sweeteners.

> --- In mscured , debra van ness <ladybug75901@>

[Guest guest]

I know you might think Im a quack, although Have you had your thyriod tested?

Many of the symptoms of MS and Fibermyo may be the same as Bromide toxicity or

Bromism. This can also be a iodine deficiency. I am aware that most pple are

afraid of Iodine, but, they have not done the research needed to be afraid or

not.

Please look at the symptoms of Bromism, and at least consider a full Thyriod

testing , before jumping in on the so called " catch all " diagnosis of MS.

My Wife has had a diagnosis of MS for over 12 years. It is not a pretty

dis-ease, she remitted for many of those years. After a certian point , 10 years

in her case, MS got her down. She is Bed ridden or wheelchair bound. Her

cognative function declined for 3 years, she started Adding Kombucha tea and a

light went on, then iodine and it is back 2 years in cognative function, the

light is shining brighter. I dont see a ful recovery, only because of all the

broken bones and hip fractures she had had. Put a Husband can hope.

Look into the Iodine, and bromide poisoning idea, please. Also look into the LDN

that is suggested heavily here, and the CCVSI, one thing is not always what it

seems, and one thing doesnt always help all pple with MS ( therefore it might be

more then one Dis-ease), so look at everything u can find. Follow the symptoms,

and look for the answers.

M

>

>  First let me introduce myself.  My name is Debra.  I joined a week or so ago

but have not posted.  I am almost 48 years old, have two children ages 10 and 15

and I work as a registered nurse of 20 years.  I was diagnosed with fibromylgia

about 8 years ago and suspect strongly more is going on now.  I would love to

ask some questions if you do not mind.  I know alot of the symptoms of MS but

would love to hear from that who have battled it rather than get all my

information off the net.

>

> I have the following symptoms of which the latest is urinary incontinence

which use to be only when I coughed but has progressed to spontaneous urine

incontinence in a moderate degree.  I guess we could say moderate because it is

not all the time but tonight I woke up and had urinated in my clothes but not

enough to wet the bed but enough to have to get up and change my clothes etc..

>

> Other symptoms are:

>

> Body jerks that happen at night when I lay down and is becoming more

frequent.  Sometimes my entire body has and involuntary jerk to where my limbs

will raise off the bed and at times it is one side of my body normally being the

right side when it is one side.

>

> Dizzy spells and the feeling of being off balance.

>

> Electrical shock sensations in my hands at times when I reach to pick

something up.

>

> Difficutly with memory and thought processes.

>

> STiffness all over so severe that in the mornings when I first get out of bed

I cannot bend to pick up something off the floor.  The stiffness is there all

the time but worse in the morning.

>

> PAIN all over which as been attributed to fibro???

>

> EXHAUSTION to the point it is almost disabling.

>

> Numbness and tingling in the fingers that comes and goes; and at times turns

to burning pain.

>

> Increasing difficulty with handwriting.  Also alot of typing problems with

transversing letters or typing the wrong word when I have been typing for

years.  (will have to type this slow and go back often to change my letters

around).

>

> Very brief bouts of blurred vision lasting only about a second or two. 

>

> At times, involuntary eye movements (not so often and not enough to be a

problem but nevertheless, it is present).

>

>

> The exhaustion is second only to pain for my worst symptoms.  No mater how

much I sleep I wake up exhausted.  NO THROID problems or anemia present.

>

> Thanks so much for whom ever answers me.  I plan to get tested soon for an

official answer to whether or not this is ALL fibromyalgia.

>

> Debra

>

> What you can see is not always how I feel.

> learnFMnow

>

>

[Guest guest]

Debra you could be describing me (fibro and migrains) or my husband (ms patient

and diabetic). We have so many of the exact same symptoms but I only have one

lesion on my brain from migrains many years ago. I get an mri every year to

insure nothing is changed (although lately I've had like 10 of them). Long story

but I would first look at keeping the fibro under control and see if things

improve or stay the same. If you know the fibro is under control and you are

still having symptoms absolutely get tested. Just realize that there can be

false negatives and positives. The dr's told us dh had brain cancer for almost 2

months until a dr at Hopkins said other wise. Then it was up to our Neuro

to confirm actual MS. There were all sorts of testing done on him including

spinal taps, MRI's (that show active lessions and non active lessions), a brain

biopsy to collect samples to rule out cancer (there were both T-Cells and MS

cells in the spinal tap fluid

so that's where the confusion began).

It is a long processes and can be frustrating but don't give up. It took me a

long time to get a diagonisis for all the things wrong with me and I will hope

that you are like me and just have several non-life-threating ailments that can

be treated.

hugs

Donna in VA

" Stress is the confusion created when one's mind overrides the body's basic

desire to choke the living daylights out of some jerk who desperately deserves

it. "

--Unknown

>________________________________

>

>To: " mscured " <mscured >

>Sent: Thursday, March 22, 2012 5:50 AM

>Subject: NEW here with some questons

>

>

>

> 

>

> First let me introduce myself.  My name is Debra.  I joined a week or so

ago but have not posted.  I am almost 48 years old, have two children ages 10

and 15 and I work as a registered nurse of 20 years.  I was diagnosed with

fibromylgia about 8 years ago and suspect strongly more is going on now.  I

would love to ask some questions if you do not mind.  I know alot of the

symptoms of MS but would love to hear from that who have battled it rather than

get all my information off the net.

>

>I have the following symptoms of which the latest is urinary incontinence which

use to be only when I coughed but has progressed to spontaneous urine

incontinence in a moderate degree.  I guess we could say moderate because it is

not all the time but tonight I woke up and had urinated in my clothes but not

enough to wet the bed but enough to have to get up and change my clothes etc..

>

>Other symptoms are:

>

>Body jerks that happen at night when I lay down and is becoming more

frequent.  Sometimes my entire body has and involuntary jerk to where my limbs

will raise off the bed and at times it is one side of my body normally being the

right side when it is one side.

>

>Dizzy spells and the feeling of being off balance.

>

>Electrical shock sensations in my hands at times when I reach to pick something

up.

>

>Difficutly with memory and thought processes.

>

>STiffness all over so severe that in the mornings when I first get out of bed I

cannot bend to pick up something off the floor.  The stiffness is there all the

time but worse in the morning.

>

>PAIN all over which as been attributed to fibro???

>

>EXHAUSTION to the point it is almost disabling.

>

>Numbness and tingling in the fingers that comes and goes; and at times turns to

burning pain.

>

>Increasing difficulty with handwriting.  Also alot of typing problems with

transversing letters or typing the wrong word when I have been typing for

years.  (will have to type this slow and go back often to change my letters

around).

>

>Very brief bouts of blurred vision lasting only about a second or two. 

>

>At times, involuntary eye movements (not so often and not enough to be a

problem but nevertheless, it is present).

>

>The exhaustion is second only to pain for my worst symptoms.  No mater how

much I sleep I wake up exhausted.  NO THROID problems or anemia present.

>

>Thanks so much for whom ever answers me.  I plan to get tested soon for an

official answer to whether or not this is ALL fibromyalgia.

>

>Debra

>

>What you can see is not always how I feel.

>learnFMnow

>

>

[Guest guest]

>

> Debra you could be describing me (fibro and migrains) or my husband (ms

patient and diabetic). We have so many of the exact same symptoms but I only

have one lesion on my brain from migrains many years ago. I get an mri every

year to insure nothing is changed (although lately I've had like 10 of them).

Long story but I would first look at keeping the fibro under control and see if

things improve or stay the same. If you know the fibro is under control and you

are still having symptoms absolutely get tested. Just realize that there can be

false negatives and positives. The dr's told us dh had brain cancer for almost 2

months until a dr at Hopkins said other wise. Then it was up to our Neuro

to confirm actual MS. There were all sorts of testing done on him including

spinal taps, MRI's (that show active lessions and non active lessions), a brain

biopsy to collect samples to rule out cancer (there were both T-Cells and MS

cells in the spinal tap fluid

> so that's where the confusion began).

> It is a long processes and can be frustrating but don't give up. It took me a

long time to get a diagonisis for all the things wrong with me and I will hope

that you are like me and just have several non-life-threating ailments that can

be treated.

> hugs

>

> Donna in VA

> " Stress is the confusion created when one's mind overrides the body's basic

desire to choke the living daylights out of some jerk who desperately deserves

it. "

> --Unknown

>

>

> >________________________________

> >

> >To: " mscured " <mscured >

> >Sent: Thursday, March 22, 2012 5:50 AM

> >Subject: NEW here with some questons

> >

> >

> >

> > 

> >

> > First let me introduce myself.  My name is Debra.  I joined a week or so

ago but have not posted.  I am almost 48 years old, have two children ages 10

and 15 and I work as a registered nurse of 20 years.  I was diagnosed with

fibromylgia about 8 years ago and suspect strongly more is going on now.  I

would love to ask some questions if you do not mind.  I know alot of the

symptoms of MS but would love to hear from that who have battled it rather than

get all my information off the net.

> >

> >I have the following symptoms of which the latest is urinary incontinence

which use to be only when I coughed but has progressed to spontaneous urine

incontinence in a moderate degree.  I guess we could say moderate because it is

not all the time but tonight I woke up and had urinated in my clothes but not

enough to wet the bed but enough to have to get up and change my clothes etc..

> >

> >Other symptoms are:

> >

> >Body jerks that happen at night when I lay down and is becoming more

frequent.  Sometimes my entire body has and involuntary jerk to where my limbs

will raise off the bed and at times it is one side of my body normally being the

right side when it is one side.

> >

> >Dizzy spells and the feeling of being off balance.

> >

> >Electrical shock sensations in my hands at times when I reach to pick

something up.

> >

> >Difficutly with memory and thought processes.

> >

> >STiffness all over so severe that in the mornings when I first get out of bed

I cannot bend to pick up something off the floor.  The stiffness is there all

the time but worse in the morning.

> >

> >PAIN all over which as been attributed to fibro???

> >

> >EXHAUSTION to the point it is almost disabling.

> >

> >Numbness and tingling in the fingers that comes and goes; and at times turns

to burning pain.

> >

> >Increasing difficulty with handwriting.  Also alot of typing problems with

transversing letters or typing the wrong word when I have been typing for

years.  (will have to type this slow and go back often to change my letters

around).

> >

> >Very brief bouts of blurred vision lasting only about a second or two. 

> >

> >At times, involuntary eye movements (not so often and not enough to be a

problem but nevertheless, it is present).

> >

> >The exhaustion is second only to pain for my worst symptoms.  No mater how

much I sleep I wake up exhausted.  NO THROID problems or anemia present.

> >

> >Thanks so much for whom ever answers me.  I plan to get tested soon for an

official answer to whether or not this is ALL fibromyalgia.

> >

> >Debra

> >

> >What you can see is not always how I feel.

> >learnFMnow

> >

> >

[Guest guest]

Debbie,

I'd get myself tested for Lyme Disease if I were you. All your symptoms sound

similar to mine. I was diagnosed with MS 6+ years ago when my entire right side

went numb. I have all the classic MS markers. My spinal fluid, white matter, ,

all your symptoms, etc. They are ALL mimicked by Lyme Disease.

Save yourself some time and just get in touch with IgeneX (1 ) or

http://www.igenex.com to find an md in your area so your blood can be tested

properly.

Good Luck....

-M