Re: reaching out yet again/LYME

[Guest guest]

Hello,

thanks very much for the reply with your story...

It looks really complicated and tough.

I doubt about the fact that I know what I suffer from as well.

I dont respond to the IV steroids anymore, and doubt that Rebif is doing me any

good as well...

My lyme story in brief:

Having had " weird " results in the past...

Then, jun 2010, a huge red mark on my right leg, not knowing where from. Been

there for a month or so. 2 weeks of antibiotics, Deoxymycoine.

August, September - IgG + IgM positivity for borelia.

October - " MS attack " - lumbar puncture - no borelia found.

In blood, positive IgG + IgM by both Western Blot and . PCR negative. ELM

negative.

A month of antibiotics KLACID.

December - still an attack, consulting a lyme specialist, telling me that while

in an attack of MS, my immunite response is havoc and that I don't have borelia.

PCR for borelia negative.

April: another attack of MS (4th in 6 months)

Blood tests:

EB virus infection

IgM borelia ELISA: positive

IgM + IgG Western Blot: positive

Now, my symptoms are quite managed, apart from tingling in legs, getting

exhausted from minor activities and being generally very weak.

I wonder if I can find any doctor who is going to understand this and actually

help me HEAL. I might have to take it into my own hands again.

If the MRI I am going to have shows no progression, then borelia is highly

suspectious.

Thanks for sharing, it helps a lot to have someone to relate to how I feel.

Wish you the best of health,

> >

> > Thanks. I too am convinced that there is something killing me from the

inside out and our medical community diagnosed me with PPMS on 2/1/08. I don't

know what evil is in me; parasites, bacteria, virus, heavy metals, etc. but I am

on a mission to find out. I have had blood drawn for tests so many times, I'm

sick of it. Lyme was one of the first tests.

> >

>