Re: LDN and MS : Convince me Or Not

[Guest guest]

Hi M,

See this site for information about LDN as a treatment for MS:

http://tinyurl.com/intro-to-ldn

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

I am confused why would you want someone else to try to convince you to do

something ?

thats possibly the most bizarre request I have ever heard of.

To convince someone else to do something. How about you

do the research yourself and decide based on what you find

rather than asking someone here to try to sell you on something.

Which is really not what this forum is meant for.

> **

>

>

> Ok

> Challange Convince me that my wife Emma should take LDN.

> History: She has Had MS for 20+ years, and is bed or wheelchair ridden

> A baclofen interthecreal pump, and takes Dilantin for minor seizures.

> Her symptoms are various.

>

> Like I am asking for a convincing or a " dont do it " from all

>

> Personal experiances are also welcome!

>

> M

>

>

[Guest guest]

Hi Have to say that I agree with on this one.How much experience have

you had with 'MS'?I was diagnosed in 2006 and since then have trialled things

and been forced onto drugs by my Neuros during the time since.Since '06 I have

learned that what works for one person will NOT for another. Now, many of we who

are unortunate enough to have had 'MS' written in our medical records, reply to

such questions and posts when we're not busy struggling through our days

handling partners, children, neighbours, our stockings, washing & drying our

hair, making sure we don't break our necks in the shower etc - so weekends and

people's lives maybe have gotten in the way of everyone who can spare the time

to answer you. As an answer, you should see what LDN can do for you. Get rid of

any candida first and then just try it.For me, it stops pain in its tracks and

does help with any fatigue issues but no one can tell YOU what it will do for

you - it may 'fix' you, or it may not do anything for you. *just a note and

suggestion* - I'd probably stop with the underlying tone in your responses as it

really comes across as a bit attitudinal, and whilst you might be extremely

frustrated (which could be understandable were we not all in the same boat from

time to time and manage to continue to be pleasant about standing in line and

waiting our turn), best to be sunshine and flowers in order to get whatever

response it is that you're after! ;)Remember the saying that you catch more

flies with honey? Might be the way to go here I reckon.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: rusbus00@...

Date: Sun, 15 Apr 2012 00:04:17 +0000

Subject: Re: LDN and MS : Convince me Or Not

Well, This is why. I fail to see many people that are willing to go to bat

for a drug they claim to be the best drug ever for MS. I have asked for

responces and get 6 people ( other then site owners and moderators) willing to

stick their necks out.

M

[Guest guest]

I tend to agree with others that this is a decision for you and not our place to

try to convince you it is the right thing to do.

My wife has been on LDN for 8 years and it has stopped all disease progress and

she is a little better that she was 8 years ago. That tends to be the typical

story you will get with LDN but it does not work for everyone and there is only

one way to find out what it will do for you.

It is a patent expired drugs so there is no way under the current system it will

be licenced for MS or anything else but lets face it a licence would not make it

work for those it fails to help so in the end even if it was licenced for MS you

would still have to try it to find out what it would do for you.

All the best what ever you decide to do.

[Guest guest]

Hi M,

If its LDN testimonials you seek, visit

http://tinyurl.com/201-ldn-testimonials

If its LDN research you seek, visit

http://tinyurl.com/ldn-trials

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

I honestly don't think the person who said " Well, This is why. I fail to see

many people that are willing to go to bat for a drug they claim to be the

best drug ever for MS " has failed to do much research. I'm more than happy

to share what some of us who believe in LDN have done:-

One lady with MS was bedridden, almost blind and deaf who started LDN, got

better (and you wouldn't think she has MS now) and was so pleased she got

her life back she started up a charity LDN Research Trust

http://www.ldnresearchtrust.org/

You have a group of individuals who take LDN for various AI conditions who

benefit from it, set up a political organisation to tackle our government in

the UK who go by the name LDNNow http://www.ldnnow.com/

You have several people who have written books:-

The Promise of Low Dose Naltrexone

http://search.barnesandnoble.com/Promise-of-Low-Dose-Naltrexone-Therapy/Elai

ne-A-/e/9780786437153

Up the Creek with a Paddle http://www.marybradleybooks.com/

Honest Medicine http://www.honestmedicine.com/books/

Google LDN http://www.googleldn.com/

Then there's free online books:-

Those Who Suffer Much Know Much

http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf

201 Reasons Why You Should Know About LDN

http://www.ldnresearchtrustfiles.co.uk/docs/eBook.pdf

The Faces of Low Dose Naltrexone

http://honestmedicine.typepad.com/ebook-sept%2021-2009--The%20Faces%20of%20L

ow%20Dose%20Naltrexone.pdf

One lady set up a blog talk radio station where she interviewed several

users, doctors, pharmacists, including the founder Dr Zagon:-

Boyle Bradley blogtalk radio

http://www.blogtalkradio.com/mary-boyle-bradley

I am sure there's more. There's a heck of a lot of us who have gone to bat

about a drug we believe in. You may wish to start by clicking on the links I

have provided and this should help you reach a decision on what to do. Take

your pick and happy reading!

Jayne Crocker

LDNNow logo the one to use

www.LDNNow.com

LDNNow are a political/pressure group of individuals dedicated to getting

Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the

myriad of uses it shows benefit for.

<

Dr Steele MBE, talking

about LDN

[Guest guest]

Hi M,

This is the site to visit for personal LDN experiences:

http://tinyurl.com/201-ldn-testimonials

Best regards,

Dudley

[Guest guest]

Hi , not trying LDN is a guarantee that you will never know for sure if it

would help your wife. Try it and see if it will. If it doesn't, eliminate it

from your protocol. If it were toxic you wouldn't be getting this advice.

>

> Ok

> Challange Convince me that my wife Emma should take LDN.

> History: She has Had MS for 20+ years, and is bed or wheelchair ridden

> A baclofen interthecreal pump, and takes Dilantin for minor seizures.

> Her symptoms are various.

>

> Like I am asking for a convincing or a " dont do it " from all

>

> Personal experiances are also welcome!

>

> M

>

[Guest guest]

Hey,

I know that, Im just teasing. I have it ordered already. I was after

experiances, but that post somehow disappeared. All that was left was this one.

Is there even a risk of Heart attack at all? Someone said there was, but I went

searching and didnt find but one example.

Respectfully

M

> >

> > Ok

> > Challange Convince me that my wife Emma should take LDN.

> > History: She has Had MS for 20+ years, and is bed or wheelchair ridden

> > A baclofen interthecreal pump, and takes Dilantin for minor seizures.

> > Her symptoms are various.

> >

> > Like I am asking for a convincing or a " dont do it " from all

> >

> > Personal experiances are also welcome!

> >

> > M

> >

>

[Guest guest]

I never heard that. Ask the compounding pharmacist. He would know better than

anyone here.

>

> Hey,

>

> I know that, Im just teasing. I have it ordered already. I was after

experiances, but that post somehow disappeared. All that was left was this one.

> Is there even a risk of Heart attack at all? Someone said there was, but I

went searching and didnt find but one example.

>

> Respectfully

> M

[Guest guest]

Thank you Jayne,

FYI, 3 weeks of 12 hours a day, I guess I will have to do a little more

research. Human experience is a very valuable commodity, Its is a shame most

humans wont share.

>

> I honestly don't think the person who said " Well, This is why. I fail to see

> many people that are willing to go to bat for a drug they claim to be the

> best drug ever for MS " has failed to do much research. I'm more than happy

> to share what some of us who believe in LDN have done:-

>

>

>

> One lady with MS was bedridden, almost blind and deaf who started LDN, got

> better (and you wouldn't think she has MS now) and was so pleased she got

> her life back she started up a charity LDN Research Trust

> http://www.ldnresearchtrust.org/

>

>

>

> You have a group of individuals who take LDN for various AI conditions who

> benefit from it, set up a political organisation to tackle our government in

> the UK who go by the name LDNNow http://www.ldnnow.com/

>

>

>

> You have several people who have written books:-

>

>

>

> The Promise of Low Dose Naltrexone

> http://search.barnesandnoble.com/Promise-of-Low-Dose-Naltrexone-Therapy/Elai

> ne-A-/e/9780786437153

>

> Up the Creek with a Paddle http://www.marybradleybooks.com/

>

> Honest Medicine http://www.honestmedicine.com/books/

>

> Google LDN http://www.googleldn.com/

>

>

>

> Then there's free online books:-

>

>

>

> Those Who Suffer Much Know Much

> http://www.ldnresearchtrustfiles.co.uk/docs/2010.pdf

>

> 201 Reasons Why You Should Know About LDN

> http://www.ldnresearchtrustfiles.co.uk/docs/eBook.pdf

>

> The Faces of Low Dose Naltrexone

> http://honestmedicine.typepad.com/ebook-sept%2021-2009--The%20Faces%20of%20L

> ow%20Dose%20Naltrexone.pdf

>

>

>

> One lady set up a blog talk radio station where she interviewed several

> users, doctors, pharmacists, including the founder Dr Zagon:-

>

> Boyle Bradley blogtalk radio

> http://www.blogtalkradio.com/mary-boyle-bradley

>

>

>

> I am sure there's more. There's a heck of a lot of us who have gone to bat

> about a drug we believe in. You may wish to start by clicking on the links I

> have provided and this should help you reach a decision on what to do. Take

> your pick and happy reading!

>

>

>

> Jayne Crocker

>

> LDNNow logo the one to use

>

> www.LDNNow.com

>

> LDNNow are a political/pressure group of individuals dedicated to getting

> Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the

> myriad of uses it shows benefit for.

>

> <

Dr Steele MBE, talking

> about LDN

>

>

>

>

>

>

[Guest guest]

,

Maybe one day , if I can get my hands on some Naltrexone Hydrocloride, I will

compoud it myself. I see no harm or difficulty in making my own. I just need

some Poppys to get started. LOL.

I was thinking that there should at least be a weath of information on the

internet about anything that had to do with Heart attacks and Naltrexone, but,

the internet has 3 enteries that are negative, and several that are possative on

the subject.

Thank you for your reply, most think I am an assine person for rousng them with

words like Convince

M

> >

> > Hey,

> >

> > I know that, Im just teasing. I have it ordered already. I was after

experiances, but that post somehow disappeared. All that was left was this one.

> > Is there even a risk of Heart attack at all? Someone said there was, but I

went searching and didnt find but one example.

> >

> > Respectfully

> > M

>

[Guest guest]

,

I am sorry if I came across, in typed word, as an assine person, or was

percieved as one, it is not my intention. I dont have any experiance with MS,

only as a husband to my wife who has MS. That is my objective. To heal the

problems that MS has caused in our family, thru constant lay offs and finding

work only to do it over and over again and again. I have no experiance at all.

Watching a loved one deteriorate day after day is not frustration, it is darn

right depressing. Repaying evil for precieved evil is not good, and I know it is

in the perception not the intent.

BTW, I tryed to change the subject matter, but, that is one of the things that

didnt go through here. So, I am sorry for your pain, but, I cannot change that,

now

M

>

>

> Hi Have to say that I agree with on this one.How much experience

have you had with 'MS'?I was diagnosed in 2006 and since then have trialled

things and been forced onto drugs by my Neuros during the time since.Since '06 I

have learned that what works for one person will NOT for another. Now, many of

we who are unortunate enough to have had 'MS' written in our medical records,

reply to such questions and posts when we're not busy struggling through our

days handling partners, children, neighbours, our stockings, washing & drying

our hair, making sure we don't break our necks in the shower etc - so weekends

and people's lives maybe have gotten in the way of everyone who can spare the

time to answer you. As an answer, you should see what LDN can do for you. Get

rid of any candida first and then just try it.For me, it stops pain in its

tracks and does help with any fatigue issues but no one can tell YOU what it

will do for you - it may 'fix' you, or it may not do anything for you. *just a

note and suggestion* - I'd probably stop with the underlying tone in your

responses as it really comes across as a bit attitudinal, and whilst you might

be extremely frustrated (which could be understandable were we not all in the

same boat from time to time and manage to continue to be pleasant about standing

in line and waiting our turn), best to be sunshine and flowers in order to get

whatever response it is that you're after! ;)Remember the saying that you catch

more flies with honey? Might be the way to go here I reckon.

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

> To: mscured

> From: rusbus00@...

> Date: Sun, 15 Apr 2012 00:04:17 +0000

> Subject: Re: LDN and MS : Convince me Or Not

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Well, This is why. I fail to see many people that are willing to go to

bat for a drug they claim to be the best drug ever for MS. I have asked for

responces and get 6 people ( other then site owners and moderators) willing to

stick their necks out.

>

>

>

> M

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Or buy Revia from Canada and split the dose.

>

> ,

>

> Maybe one day , if I can get my hands on some Naltrexone Hydrocloride, I will

compoud it myself. I see no harm or difficulty in making my own. I just need

some Poppys to get started. LOL.