Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Also check with your hospital. Our diabetes teaching group is based there. There is no charge for those who can't afford it ($25). They also will give you a monitor if you need one and can't buy one. There is also a foot care center at the hospital which costs $20 each visit. If you are on disability, etc. it is free. Of course this is only here but it might be similar in your area. Also look for (hospital again would know) a local diabetes organization. They are a lot of help in all areas. Canadian Lee Newbie This whole thing is new and kind of scary to me and I was wondering if anyone has any advice or words of encouragement that would help with these feelings of helplessness and such. [, Bruce] See about finding a Diabetes Support group in your area; if there isn't one, perhaps you can start one. Your church might be a good starting place. Sue in Lincoln, Ca. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Newbie Should have known that it was coming because I had gestational diabetes with all three pregnancies and a mother that was considered borderline. [, Bruce] That doesn't necessarily follow! My grandmother was diabetic, but of her 10 children, only my father is; those of her daughters who had children all had gestational diabetes and none of them have developed regular diabetes, and the youngest is about sixty, so if it was going to happen it probably would have. [, Bruce] To help during the day, a bunch of us is taking a nearly 2-mile walk (30 minutes) and when I get home I walk up and down the hill when I go to feed and care for our 4 horses. Not sure what else to do; have considered Curves but with hubby out of work the $$ is kind of tight. [, Bruce] Is there a YMCA or YWCA in your area? As they are non-profits, they are obligated to offer reduced-price memberships to those who cannot pay. Also, you might check at your Goodwill or Salvation Army for exercise machines. Try doing something about diet; cut sugars and starches out as much as you can; later, you can add them back to see how much you can tolerate. [, Bruce] This whole thing is new and kind of scary to me and I was wondering if anyone has any advice or words of encouragement that would help with these feelings of helplessness and such. [, Bruce] See about finding a Diabetes Support group in your area; if there isn't one, perhaps you can start one. Your church might be a good starting place. Sue in Lincoln, Ca. Diabetes homepage: http://groups.yahoo.com/group/diabetes/ To unsubscribe to this group, send an email to: diabetes-unsubscribe Hope you come back soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi, Sue. I am fairly new, too. Diagnosed T2 in January. Took the DE classes (18 hours at my local hospital) and am going the Exercise and Diet route. I had my 3 month follow-up A1c test and it was down to a 6!!! Success!!! But it isn't easy. I joined Curves for a year and a half. Went almost every day. I loved it. Well worth the money...$30 a month. They closed and moved to the next town over and it was just too far a drive for me, so I bought a treadmill to use at home. We live rural and I am uncomfortable walking down lonely country roads by myself. (I have a very SMALL dog...no help at all!!! LOL) Email me if you want to talk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Hi .. You will find a lot of help here .. Also when I first found out I put in a search and found a lot of good info.. Especially on medcial sites.. Bet -- Newbie Hi, My name is nicole and im 23 years old. I was just recently diagnosed with fibromyalgia and was just looking for some information since i basically know nothing about it and i dont know anyone else who has it. I have been having these symptoms since october but i finally found a doctor that took me seriously and did all kinds of tests. All the tests came out negative so he gave me the disagnosis of fibromyalgia. Well i look forward to meeting all of you and i need to know what im in store for because i really have no clue. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2007 Report Share Posted August 14, 2007 Welcome .. Glad you can join us.. Husbands.. That is normal. They hate what they cant cure or help.. Mine is like that too Bet -- Newbie Hi I just joined today and I have really enjoyed reading your posts My name is and I live in North Troy Vt where I work a full time job to get my husband through college. I am 36 years old and i have 4 children (14,11,9 & 6). It is extremely difficult to try and be everything you were before and can't be now. I was diagnosed about 2 1/2 years ago and it was great to know that i wasn't nuts that i was losing my strength and the pain i felt was real. People don't understand me where i work they think that I'm normal and complain a lot. I always had a high threshold for pain now that is gone. My husband is now looking for work and planning to transfer to an online college so that the pressure is somewhat off me. He still doesn't understand he wants to " cure " me with natural remedies now. It is difficult now and I'm glad to find a group to understand me. thank you _____________________________________________________________________________ ______ Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search http://search.yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Welcome ! I am Debbie J and live in Round Rock, Texas. This is a great group. Have been a member for a year now. Also have had fibro since late 1988. When I used to work no one understood me either. Do have a very supportive husband and 3 cats. Mostly I just lurk here. soft hugs, Debbie J > > Hi I just joined today and I have really enjoyed reading your posts My name is and I live in North Troy Vt where I work a full time job to get my husband through college. I am 36 years old and i have 4 children (14,11,9, & 6). It is extremely difficult to try and be everything you were before and can't be now. I was diagnosed about 2 1/2 years ago and it was great to know that i wasn't nuts that i was losing my strength and the pain i felt was real. People don't understand me where i work they think that I'm normal and complain a lot. I always had a high threshold for pain now that is gone. My husband is now looking for work and planning to transfer to an online college so that the pressure is somewhat off me. He still doesn't understand he wants to " cure " me with natural remedies now. It is difficult now and I'm glad to find a group to understand me. thank you > > > > > > ______________________________________________________________________ ______________ > Luggage? GPS? Comic books? > Check out fitting gifts for grads at Yahoo! Search > http://search.yahoo.com/search? fr=oni_on_mail & p=graduation+gifts & cs=bz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Welcome, . Your letter reminded me of myself—why I joined and why I love all of the Fibromites. It is wonderful to “be with” people that really understand how I feel. I can no longer work, my son is grown with children of his own in another state, but my husband still thinks that somehow I can be fixed. I try to remind him on a regular basis that it “probably ain’t going to happen.” I think that is one of the hardest parts of being married. A lot of husbands think they have to fix your problems instead of just listening and letting you (me) get it out of your system. I know what you mean about the people at work. I worked in a very large office and I tried not to mention my pain. If I ever did make a comment about hurting, one of the girls that sat by me would start to loudly complain how she hurt all the time. She always wanted to be the center of attention, so any subject that came up turned out to be the one thing that related to her. I hope your husband is able to get work and help you by giving you as much downtime as you need. I also always had a high threshold of pain, then after I was diagnosed with fibro, I read that people with fibromyalgia have a low threshold of pain. I talked to my doctor about it and she said she thought that because we have so much pain, it lowers our ability to cope with it. Here’s a welcoming hug, Ann _____ From: Fibromyalgia_Support_Group [mailto:Fibromyalgia_Support_Group ] On Behalf Of nna Coran Sent: Tuesday, August 14, 2007 10:19 PM To: Fibromyalgia_Support_Group Subject: Newbie Hi I just joined today and I have really enjoyed reading your posts My name is and I live in North Troy Vt where I work a full time job to get my husband through college. I am 36 years old and i have 4 children (14,11,9, & 6). It is extremely difficult to try and be everything you were before and can't be now. I was diagnosed about 2 1/2 years ago and it was great to know that i wasn't nuts that i was losing my strength and the pain i felt was real. People don't understand me where i work they think that I'm normal and complain a lot. I always had a high threshold for pain now that is gone. My husband is now looking for work and planning to transfer to an online college so that the pressure is somewhat off me. He still doesn't understand he wants to " cure " me with natural remedies now. It is difficult now and I'm glad to find a group to understand me. thank you __________________________________________________________ Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search http://search. <http://search.yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz> yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Hope you find comfort and support here! A great group! Write me anytime or to the group. We all can relate to what you are going through. Debra Van Ness nna Coran wrote: Hi I just joined today and I have really enjoyed reading your posts My name is and I live in North Troy Vt where I work a full time job to get my husband through college. I am 36 years old and i have 4 children (14,11,9, & 6). It is extremely difficult to try and be everything you were before and can't be now. I was diagnosed about 2 1/2 years ago and it was great to know that i wasn't nuts that i was losing my strength and the pain i felt was real. People don't understand me where i work they think that I'm normal and complain a lot. I always had a high threshold for pain now that is gone. My husband is now looking for work and planning to transfer to an online college so that the pressure is somewhat off me. He still doesn't understand he wants to " cure " me with natural remedies now. It is difficult now and I'm glad to find a group to understand me. thank you __________________________________________________________ Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search http://search.yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 It gets pretty wild here, Shane. Brace yourself.MS does not have to be "the end of your world."I was diagnosed at age 19 (optic neuritis), butam still here, at age 71.Cheers!n Rojas, in CaliforniaTo: MSersLife Sent: Tuesday, December 30, 2008 3:16:26 PMSubject: Newbie First of all I would like to thank you all for the opportunity to be a part of this group. I appreciate the warm welcome. I go by Shane and I was diagnosed with MS in October. I had my first symptom (optic neuritis) in 2007. I went to see my optometrist and he informed me that this was the first sign of MS and that he wanted me to see a neurologist. I immediately went into denial. The only thing I knew about MS was that Montel has it and Pryor had it. I was a healthy guy, newly married and my wife and I had a baby on the way. I really had a hard time absorbing that type of news and didn't want to deal with it. I was very active so I figured that there's no way I have this. Well guess what? A year later I suffered another attack. This time I had numbness and tingleness in my hands and feet along with lhermitte's sign. This time I took it seriously and went to see a neurologist. After several test that began in Sept, I was ultimately dx'd in Oct with MS. I immediately began a 3 day treatment of steriods and I started Copaxone in Nov. I have had a 100 percent recovery in my feet and left hand from the pins and needles. I still feel slight numbness in my right hand in the fingertips. Also I still suffer from the lhermitte's sign. I must say that this is a scary illness because it is very unpredictable but I remain positive. Again, it's a pleasure to be here and I hope to gain as well as share knowledge about MS. Thanks! -Shane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 It gets pretty wild here, Shane. Brace yourself.MS does not have to be "the end of your world."I was diagnosed at age 19 (optic neuritis), butam still here, at age 71.Cheers!n Rojas, in CaliforniaTo: MSersLife Sent: Tuesday, December 30, 2008 3:16:26 PMSubject: Newbie First of all I would like to thank you all for the opportunity to be a part of this group. I appreciate the warm welcome. I go by Shane and I was diagnosed with MS in October. I had my first symptom (optic neuritis) in 2007. I went to see my optometrist and he informed me that this was the first sign of MS and that he wanted me to see a neurologist. I immediately went into denial. The only thing I knew about MS was that Montel has it and Pryor had it. I was a healthy guy, newly married and my wife and I had a baby on the way. I really had a hard time absorbing that type of news and didn't want to deal with it. I was very active so I figured that there's no way I have this. Well guess what? A year later I suffered another attack. This time I had numbness and tingleness in my hands and feet along with lhermitte's sign. This time I took it seriously and went to see a neurologist. After several test that began in Sept, I was ultimately dx'd in Oct with MS. I immediately began a 3 day treatment of steriods and I started Copaxone in Nov. I have had a 100 percent recovery in my feet and left hand from the pins and needles. I still feel slight numbness in my right hand in the fingertips. Also I still suffer from the lhermitte's sign. I must say that this is a scary illness because it is very unpredictable but I remain positive. Again, it's a pleasure to be here and I hope to gain as well as share knowledge about MS. Thanks! -Shane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 It gets pretty wild here, Shane. Brace yourself.MS does not have to be "the end of your world."I was diagnosed at age 19 (optic neuritis), butam still here, at age 71.Cheers!n Rojas, in CaliforniaTo: MSersLife Sent: Tuesday, December 30, 2008 3:16:26 PMSubject: Newbie First of all I would like to thank you all for the opportunity to be a part of this group. I appreciate the warm welcome. I go by Shane and I was diagnosed with MS in October. I had my first symptom (optic neuritis) in 2007. I went to see my optometrist and he informed me that this was the first sign of MS and that he wanted me to see a neurologist. I immediately went into denial. The only thing I knew about MS was that Montel has it and Pryor had it. I was a healthy guy, newly married and my wife and I had a baby on the way. I really had a hard time absorbing that type of news and didn't want to deal with it. I was very active so I figured that there's no way I have this. Well guess what? A year later I suffered another attack. This time I had numbness and tingleness in my hands and feet along with lhermitte's sign. This time I took it seriously and went to see a neurologist. After several test that began in Sept, I was ultimately dx'd in Oct with MS. I immediately began a 3 day treatment of steriods and I started Copaxone in Nov. I have had a 100 percent recovery in my feet and left hand from the pins and needles. I still feel slight numbness in my right hand in the fingertips. Also I still suffer from the lhermitte's sign. I must say that this is a scary illness because it is very unpredictable but I remain positive. Again, it's a pleasure to be here and I hope to gain as well as share knowledge about MS. Thanks! -Shane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 Sorry I'm behind in welcoming you, Shane! I hope you findour group to be warm, inviting and supportive. I'm Kate fromNY--49, dx'd 12/8/05 with RRMS. Just told recently I haveSPMS (secondary progressive). I think it is wonderful thatyou are remaining positive--that is the best we each can do!hugs from me. NewbieTo: MSersLife > First of all I would like to thank you all for the opportunity > to be a> part of this group. I appreciate the warm welcome. I go by Shane > and I> was diagnosed with MS in October. I had my first symptom (optic> neuritis) in 2007. I went to see my optometrist and he informed me> that this was the first sign of MS and that he wanted me to see a> neurologist. I immediately went into denial. The only thing I knew> about MS was that Montel has it and Pryor had > it. I> was a healthy guy, newly married and my wife and I had a baby on the> way. I really had a hard time absorbing that type of news and didn't> want to deal with it. I was very active so I figured that > there's no> way I have this. Well guess what? A year later I suffered another> attack. This time I had numbness and tingleness in my hands and feet> along with lhermitte's sign. This time I took it seriously and went> to see a neurologist. After several test that began in Sept, I was> ultimately dx'd in Oct with MS. I immediately began a 3 day treatment> of steriods and I started Copaxone in Nov. I have had a 100 percent> recovery in my feet and left hand from the pins and needles. I still> feel slight numbness in my right hand in the fingertips. Also I still> suffer from the lhermitte's sign. I must say that this is a scary> illness because it is very unpredictable but I remain positive. Again,> it's a pleasure to be here and I hope to gain as well as share> knowledge about MS. Thanks!> > -Shane> > Please visit: http://www.bicycleman.comawesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 at times we are crazy - just short of commitment - at times we are pushed to freak out - we are always there because we walk in each others shoes- houseshoes- moccasins - and we are either there - coming out of it - or seeing coming attractions. we are a bit slow on the uptake sometimes - mind spasms - then we all remember we do have the same things going in our lives - when we have wood problems - the humor comes out - sometimes with interesting comments - sorry you are here - know you are welcome NewbieTo: MSersLife > >First of all I would like to thank you all for the >opportunity > to be a> part of this group. I appreciate the >warm welcome. I go by Shane > and I> was diagnosed with MS >in October. I had my first symptom (optic> neuritis) in >2007. I went to see my optometrist and he informed me> that >this was the first sign of MS and that he wanted me to see >a> neurologist. I immediately went into denial. The only >thing I knew> about MS was that Montel has it and > Pryor had > it. I> was a healthy guy, newly married >and my wife and I had a baby on the> way. I really h ad a >hard time absorbing that type of news and didn't> want to >deal with it. I was very active so I figured that > there's >no> way I have this. Well guess what? A year later I >suffered another> attack. This time I had numbness and >tingleness in my hands and feet> along with >lhermitte's sign. This time I took it seriously and went> >to see a neurologist. After several test that began in Sept >, I was> ultimately dx'd in Oct with MS. I immediately >began a 3 day treatment> of steriods and I started >Copaxone in Nov. I have had a 100 percent> recovery in my >feet and left hand from the pins and needles. I still> feel >slight numbness in my right hand in the fingertips. Also I >still> suffer from the lhermitte's sign. I must say that >this is a scary> illness because it is very unpredictable >but I remain positive. Again,> it's a pleasure to be here >and I > hope to gain as well as share> knowledge about MS. >Thanks!> > -Shane> > Please visit: >http://www.bicycleman.comawesome guy, fantastic site. All >types of bicyles, many recumbents; perfect for an MS Bike >Tour! > > >[Attachment: katelloydkidz.vcf] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Hello everybody, I just joined here. I have lots of experience with alternative medicine, but lyme and ms are new to me. My son, 21, hates needles, so we cant make a blood test. The MD has him on amoxacillin right now, to see if he has lyme. He says that his legs hurt him more right now, which may be a herx reaction. We searched the net extensively, and failed to find any disease where constant and painful leg cramps were the only symptom. MS, Lyme, and diabetes were the only similar ones. So, we did try lots of stuff, but he has been suffering from them for seven months now. Before that, he had a brief time free from pain, and going backwards in time, it was; stomach pain, stomach migraines, and head migrains. We got through the migrains ok, with a tremendous study program, various med people, and convinced we were better off doing it alone( people have such pre-concieved notions that it can be hard to work with them). Anyway, your thoughts on this will be appreciated. statueofmotherhood.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Check out AnkylosinSpondilties. My oldest son has that. He started with pain in his neck then in his legs. He lost abitility to walk for a few days then needed help for a while. He's fine now. Its a condition where the spinal cord fuses together. My son had this at 22 years old. He's 28 now. He got remecade treatments and is going to try to get them again as they improved his mobility. It's an autoimune disorder and takes a bit of testing to get a diagnosis. I know you said your son hates needles but sometimes its an evil necessity. hope you find an answer. Donna in SC (was VA) " Stress is the confusion created when one's mind overrides the body's basic desire to choke the living daylights out of some jerk who desperately deserves it. " --Unknown >To: " mscured " <mscured > >Sent: Saturday, April 14, 2012 8:51 AM >Subject: newbie > > > >Hello everybody, I just joined here. I have lots of experience with alternative medicine, but lyme and ms are new to me. >My son, 21, hates needles, so we cant make a blood test. The MD has him on amoxacillin right now, to see if he has lyme. He says that his legs >hurt him more right now, which may be a herx reaction. >We searched the net extensively, and failed to find any disease where >constant and painful leg cramps were the only symptom. MS, Lyme, and diabetes were the only similar ones. >So, we did try >lots of stuff, but he has been suffering from them for seven months now. > >Before that, he had a brief time free from pain, and going backwards in time, it was; stomach pain, stomach migraines, and head migrains. >We got through the migrains ok, with a tremendous study program, various >med people, and convinced we were better off doing it alone( people have such pre-concieved notions that it can be hard to work with them). >Anyway, your thoughts on this will be appreciated. > >statueofmotherhood.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Hi , Welcome to the group! If your son has MS, this site may be of help in treating it: http://tinyurl.com/advice-to-msers If he has Lyme disease, this site may be of help: http://tinyurl.com/lyme-alternatives With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
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