Guest guest Posted September 15, 2011 Report Share Posted September 15, 2011 I think it's pretty clear by now, after all theses years and stories of people taking LDN that it works great for some, moderately to mildly for some, not at all for some, and some occasionally feel worse. I don't think we need to debate or prove this because: The proof is in the pudding, in the variety of responses from people who take it. Again, it works great for some, either stopping/slowing progression or even generating great improvements in some. Whereas some get no results or moderate or mild or poor results. The response difference is really no different from what we hear about CCSVI and Prokarin, to name a couple of other examples, of treatments with a wide variety of reactions in people diagnosed with MS. So please lets not get into a debate. The group has been running rather smoothly without too much friction lately. Thank you, Zoe > > I sent the below message but it failed as I attached a file. I'm re-sending > the message and if anyone wants a copy of the file mentioned, please send me > your email address. Thanks. > > > > Pete, with regards to your comment > > > > My partner Margot has advanced secondary progressive MS. > > She has taken 4.5mg LDN for six months and she has had NO benefit at > all from it. > > When you say 'no benefit', can I ask what it was you were expecting and has > Margot got any worse? My partner too has SPMS but it didn't get him out of > a wheelchair running marathons and those 'make believe' stories are few and > far between. It is annoying when I hear them too. From my experience being > on LDN forums for a few years now, it doesn't reverse the disease at all, > just stops it from progressing. And if Margot hasn't got any worse in the > last six months I would without a shadow of doubt keep her on LDN. > > > > Dr Zagon has some excellent studies coming out and I am attaching one which > shows how LDN works on autoimmune diseases, cancer and inflammation. > > > > I also have Dudley to thank for initially getting me interested in LDN and > helping me. > > > > For a factual site on LDN, may I recommend you look at www.ldnscience.org? > > > > Jayne Crocker > > LDNNow logo the one to use > > www.LDNNow.com > > LDNNow are a political/pressure group of individuals dedicated to getting > Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the > myriad of uses it shows benefit for. > > < Dr Steele MBE, talking > about LDN > > <http://www.ipetitions.com/petition/ldnnow/> Important! Please sign our > LDN petition to the European Parliament by clicking here > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2011 Report Share Posted September 15, 2011 One can see from this site that the benefits of taking LDN vary rather widely, and are not limited to just slowing or stopping the progression of MS: http://tinyurl.com/201-ldn-testimonials For additional, balanced information about LDN, visit http://tinyurl.com/intro-to-ldn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2011 Report Share Posted September 15, 2011 Actually, Zoe, I think debate about LDN, and any other therapy that may help people on this list is a good thing. We learn from each other by sharing our experiences and even debating, heck even a polite, well mannered argument can be a healthy and productive thing. We are all here to learn from and share our research with others. I for one, am very interested in what Jayne, Dudley and many others here have to say. Yvette (moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2011 Report Share Posted September 16, 2011 > > Actually, Zoe, I think debate about LDN, and any other therapy that may help > people on this list is a good thing. > > We learn from each other by sharing our experiences and even debating, heck > even a polite, well mannered argument can be a healthy and productive thing. > > > We are all here to learn from and share our research with others. I for > one, am very interested in what Jayne, Dudley and many others here have to > say. > > Yvette > (moderator) > Do think it's good to see responses to LDN where people aren't the ones that are only sharing positive experiences. I was nearly run out of Patients Like Me for reporting that LDN did not work for some people, like me. One person even came back with about a dozen web links. Like the person expected me to go read the 12 links? The Yahoo LDN board is the group that helped me escape the clutches of the medical-industrial-complex. Will always speak highly of the group. Even sent PLMers asking about LDN to the Yahoo LDN board. When I was taking LDN and not experiencing any benefit, was really confused. Spent time mining the Yahoo LDN database. Will share a stories I mined from the Yahoo LDN database: LDN website 26 April 07 author : Debora Wade LDN, Crohn's, not working Are there only three of us with Crohn's disease here? And am I the only one that LDN is not working for? I had to go off my other medication sulfasalazine a month ago, since the LDN probably contributed to me suddenly becoming allergic to it. The numb hands and dizziness has now gone away (5 weeks off of it) but also, the last 2-3 weeks, my Crohn's has steadily declined, and I am back to pre-LDN days of mucus, urgency, blood, looser stools, and pain, sometimes nausea. Obviously the sulfasalazine was doing something, and together with the LDN after the first month on the non lactose formulation, I was feeling great Crohn's wise, but had those nasty side effects. Now I'm starting with 1 sulfasalazine a day and sitting with that for a few days, and then I'll add another and another to see what my threshold is before the symptoms return. I never did well with another Crohn's med, and I was hoping the LDN alone would do the trick, but it's obviously not. It's very disapointing to have LDN negate my other drug (which wasn't great on its own) but not be enough to hold me. I substituted boswellia (which is supposed to have similar efficacy to sulfasalazine) but it's not helping, obviously. I take tons of probiotics, am on the Specific Carbohydrate Diet, (no starch, no sugar, dairy only in the form of 24 hour fermented yogurt and the occasional goat cheese). I'm getting very discouraged. I'm into the 3rd month of LDN, so it should be working by now, if I go on the Crohn's studies. How long do I give LDN before I give up? Debora > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2011 Report Share Posted September 16, 2011 You can not share other people's stories here. It is a violation of copyright law. I will report all copyright violations. I have no problem with people sharing their personal stories here. You can not copy someone else's post repost it elsewhere. That is illegal, unless you have that person's permission in writing. Furthermore, there is a difference between sharing your story and being negative. You are being negative. It is true that LDN does not work for every person. But you can not steal someone else's post to prove your point. Yvette Moderator. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2012 Report Share Posted April 14, 2012 Someone recently ask about experiences with LDN. I'm sorry, I don't remember who it was. I've been on LDN for about 5 years now. I use LDN along with diet changes, herbs, supplements, and an exercise program. I've seen a dramatic reduction in ms related fatigue and pain. along with improvement in my vision, balance, speech and brainfog. 6 years ago I couldn't see well enough to drive, read or write. My balance was bad enough that I needed an electric scooter in the grocery store. I stuttered, I had ms fatigue so severe that I slept a good chunk of my days away. Brain fog led to things like forgetting where I was and/or where I was going. Once I even forgot the name of one of my children. (Said child was standing right in front of me... I knew who she was, but could not for the life of me remember her name.) I made drastic diet changes, added specfic supplements and herbs, and started LDN. I started to improve. I immediate improvement in dizziness, vision and stuttering. The balance, and brain fog improved over the next several weeks. Now, 6 years later I only experience ms symptoms if I eat something that my system reacts to. I homeschool 5 kids, run 2 small businesses, play sax in a local orchestra and have written 2 books, 400 articles for magazines and the web, have finished my Bachelor's degree in Natural Health, earned certifications in Herbalism Reiki, Healing Touch and Aromatherapy. I am 4 or 5 classes away from certs as a Traditional Naturopath. yes. LDN works for me. Yvette -- Yvette , RMT, HTP-C BS - Natural Healing, Reiki Master and Teacher, Certified Healing Touch Practitioner Natural Health Consultant, Herbalist www.msquill.com yvette@... Quote Link to comment Share on other sites More sharing options...
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