RE: Re: [MS_Community] Montel discusses controversi al MS treatment - CTV News

[Guest guest]

, could you tell me more about CCSVI, such as what to expect? There is a

doctor here in Tampa, FL at the Moffit Cancer Center that does this, and I'm

about to make an appointment with them to have my veins tested. I know this is

not supposed to cure, but maybe stop progression? Any info would be greatly

appreciated. Also, if anyone has done CCSVI in Tampa, please let me know how it

went. I'm nervous about trusting doctor's I don't know. Thanks!

----- Re:

[MS_Community] Montel discusses controversial MS treatment - CTV

News<br><br>interesting, yet again what works for some doesnt work for others,

and at a cost, not a one-off, third party choice, never ever for me<br><br>good

luck/peter/london/ppms<br><br><a

href= " http://www.ctv.ca/CTVNews/Health/20111023/montel-williams-ms-111023/ " >http\

://www.ctv.ca/CTVNews/Health/20111023/montel-williams-ms-111023/</a>

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[Guest guest]

Hi I can't tell you definitively what to expect as results can be

different for everyone.Both Janet and I who have had the procedure had similar

but also differing results.It's important for you to ease back into exercise and

to just rest/relax for a couple of weeks after the procedure (my surgeon's

recommendation) and then after the healing period has passed, to start your

physical exercise routine ensuring that you do not push yourself too much and

that you remain sensible about how much and what you do.It is thought to stop

progression. I would also recommend that you stay committed to the BBD or

similar diet as it is hugely important to stick to it in order to stop

restenosis. I'm a big believer in the BBD and steering clear of dairy in order

to stop restenosis.*shrugs* This is just what I experienced and what I think -

things with the procedure are different for everyone, but it's important to keep

calm and stay away from stress and worrying about it.I hope this helps

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: tazeeyore@...

Date: Wed, 26 Oct 2011 12:29:07 +0000

Subject: RE: Re: [MS_Community] Montel discusses controversi

al MS treatment - CTV News

, could you tell me more about CCSVI, such as what to expect? There

is a doctor here in Tampa, FL at the Moffit Cancer Center that does this, and

I'm about to make an appointment with them to have my veins tested. I know this

is not supposed to cure, but maybe stop progression? Any info would be greatly

appreciated. Also, if anyone has done CCSVI in Tampa, please let me know how it

went. I'm nervous about trusting doctor's I don't know. Thanks!

[Guest guest]

, You ask what to expect. In non-scientific words -1) The tests - all

straight forward. For the Doppler they just put gel on you and wire you up to

get the ultrasound machine to read your insides. They'll do it with you sitting

and lying down. Usually there is an MRI too and I had blood tests and an

ecocardiogram in Poland and a few other little routine tests.2) The procedure -

nothing to be worried about. They get you to shave the pubic area, give you a

local anaesthic at the point of catheter entry, usually in the groin - a tiny

little nick. You lie down on the couch and, certainly in my case, can watch it

all on a screen. Run a catheter up the vein in the leg, usually the right, and

into the offending internal jugular veins and/or azygous. Some places, notably

some in the States, are also doing the iliacs and renal veins. When they get to

an offending place where the blood is not flowing correctly due to a malformed

or twisted vein, they insert a tiny balloon and inflate it then remove it once

clear. Stents are an infrequent option (not advisable unless there is no other

way). You feel the ballooning which is merely a little uncomfortable rather

than painful. All in all it generally takes in the region of half to one

hour.3) Post procedure - you have to lie flat on your back. In Poland this was

for 6 hours plus a further 6 hours where movement was allowed if necessary.

Some places let you go virtually as soon as they have finished.I was advised not

to exercise at all for 2 weeks, drink plenty of water, and to stand or lie more

than to sit (which I didn't do, being in a wheelchair but I'm still

here).Exercise after that should be tempered but is necessary to get all the

parts of the body working properly again.I (like ) am still on the BBD

which I believe has helped me not re-stenose.4) What you get varies from person

to person, the length and severity of the " MS " , size and situation of the

problems in the offending vein/s, general health and diet.Go into it expecting

that you might get some benefit but do not tell yourself this is a given, just

be pleased with whatever you get and that it is probably stopping progression. I

celebrated my 1st " angioversary " yesterday. A year on I feel amazing. It was

well worth doing. All my symptoms have gone apart from still not being able to

balance, and therefore not walk. I continue daily exercises and the healthy

diet and feel that it will take a while longer to 100% reverse 16 years of

PPMS.Good luck!Janet

To: mscured

From: tazeeyore@...

Date: Wed, 26 Oct 2011 12:29:07 +0000

Subject: RE: Re: [MS_Community] Montel discusses controversi

al MS treatment - CTV News

, could you tell me more about CCSVI, such as what to expect? There is a

doctor here in Tampa, FL at the Moffit Cancer Center that does this, and I'm

about to make an appointment with them to have my veins tested. I know this is

not supposed to cure, but maybe stop progression? Any info would be greatly

appreciated. Also, if anyone has done CCSVI in Tampa, please let me know how it

went. I'm nervous about trusting doctor's I don't know. Thanks!