Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 Hi All, My son Bart is 10 and has autism and probable mito (pyruvate dehydrogenase). The Dr. is afraid to put him on any medication for this or anything. Has any of your children been put on medication for obsessive/compulsive behavior. Or in the autism world we call it perseverations. Did it work? Was there side effects? He is driving me crazy. When he comes upstairs he first turn on all of the lights in every room and outside. We have some bright spot lights in the kithcen and outside. Then he wants the porch door open and the air conditioning is on. All heater thermostats are set to 60 degrees. He turn on a fan over our bed and stick his hand in it. We have bright spots in there. Then he wants the sheets off the corners. The toilet seat must be down and the bathroom and bedroon doors have to be shut. But the doors inside the rooms have to be open. Also he is dumping everything. Even my laundry is not safe in the basket. To eat anything he must have a fork and a spoon but he doesn't use it. NOw he insists on the door from the family room to the garage to be open. Well, this is not a safe place to play, especially as he puts anything in his mouth. Boy, do I need a break from him. Thanks for leting me vent. Gotta go deal with his behaviors. Hopefully my husband is watching him. He ran out of the house in his bare feet and I asked him where he was going. " hersheypark " was his answer. Kathy Foley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2000 Report Share Posted July 15, 2000 kATHY: My son takes amitripyline to help suppress migraines (one of his mito sympotms) which also helps suppress compulsive behaviors. I think you need to have his heart checked out first. The amount may need to be found on trial and error. Sue Ellen Picker KAFoley2@... wrote: > Hi All, > My son Bart is 10 and has autism and probable mito (pyruvate > dehydrogenase). The Dr. is afraid to put him on any medication for this or > anything. Has any of your children been put on medication for > obsessive/compulsive behavior. Or in the autism world we call it > perseverations. Did it work? Was there side effects? > He is driving me crazy. When he comes upstairs he first turn on all of the > lights in every room and outside. We have some bright spot lights in the > kithcen and outside. Then he wants the porch door open and the air > conditioning is on. All heater thermostats are set to 60 degrees. He turn > on a fan over our bed and stick his hand in it. We have bright spots in > there. Then he wants the sheets off the corners. The toilet seat must be > down and the bathroom and bedroon doors have to be shut. But the doors > inside the rooms have to be open. Also he is dumping everything. Even my > laundry is not safe in the basket. To eat anything he must have a fork and a > spoon but he doesn't use it. NOw he insists on the door from the family room > to the garage to be open. Well, this is not a safe place to play, especially > as he puts anything in his mouth. Boy, do I need a break from him. > Thanks for leting me vent. Gotta go deal with his behaviors. Hopefully my > husband is watching him. He ran out of the house in his bare feet and I > asked him where he was going. " hersheypark " was his answer. > Kathy Foley > > ------------------------------------------------------------------------ > Wish you had something rad to add to your email? > We do at www.supersig.com. > http://click./1/6810/2/_/368657/_/963687721/ > ------------------------------------------------------------------------ > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.