Guest guest Posted July 20, 2011 Report Share Posted July 20, 2011 July Newsletter Hi Everyone The July Newsletter can be found at: http://www.ldnresearchtrustfiles.co.uk/docs/July%20Newsletter%202011.pdf This year has been very busy indeed. Every year preparations for the International LDN Aware Week take longer as we strive to make it bigger and better than the year before. LDN Aware Week 12th - 18th September 2011 Everyone can be involved in many ways: 1. Request LDN flyers to be posted to you so that you can give them out helping to raise awareness. 2. Taking part in the LDN survey on the forum http://forum.ldnresearchtrust.org/index.php?/topic/1968-ldn-survey-for-the-ldn-a\ ware-week-2011/ you have to first register. The results will be used anonymously. 3. By talking to Ann from the PR Company if you are happy giving your story to the media. 4. Being interviewed over the phone for the LDN Aware Week Audio DVD ? only until the end of July. 5. If you have any free time and would like to become a volunteer. 6. By displaying an LDN car sticker, using an LDN key ring, wearing an LDN wristband, polo shirt, pin badge or one of our NEW badges. These can be purchased at a low price from our shop http://ldnurl.info/ldnshop purchase now ready for the awareness week. 7. Attend the Irish LDN Conference on Saturday 17th September. 8. Call those in Ireland - would you like to attend the Irish Conference and tell your story? If so please reply to this email ASAP. Thank you. 9. For those in the UK?please write to your MP using the template letter : http://www.ldnresearchtrustfiles.co.uk/docs/MP%20Letter%20Template.pdf to find your MP: http://findyourmp.parliament.uk/ The International LDN Aware DVD has interviews from: Jackie Young the widow of Dr Bihari who tells the LDN story so far, scientists, prescribing doctors, pharmacists and advocates. You can pre order your copy now and it will be sent out in approx. 4 weeks? time. Prices include Postage and Packing ?11 in the UK Euro 13.50 in Europe $20.50 outside Europe We will also send out free copies to a medical professional if requested by you. To request a copy for your doctor etc, please send their name and practice address, with your full name and we will be happy to do it. We did this last year and the results were amazing. Many doctors felt comfortable prescribing. However this costs a small fortune in postage alone. Therefore we need to raise funds to cover the costs of the actual DVD plus the postage??Shana Spooner has already started an online email fundraiser, and she would like everyone to take part. Please read page 5. We also have watches, shopping/ beach bags, cards etc in our shop take a look as every little helps. http://ldnurl.info/ldnshop To reach as large an audience as possible we need YOUR help, please email contact@... today, we look forward to hearing from you. NB. The last time I asked for volunteers I had a very kind reply from a lady happy to help with press releases etc. Unfortunately, before I had time to reply, that very day my hard drive died. Everything was backed up but I lost that day?s emails. If it was you, please email me again. Thank You. ------------------------------------- Handy Links ------------------------------------- Board Address: http://forum.ldnresearchtrust.org/index.php Log In: http://forum.ldnresearchtrust.org/index.php?app=core & module=global & section=login Lost Password Recovery: http://forum.ldnresearchtrust.org/index.php?app=core & module=global & section=lostp\ ass ------------------------------------- How to unsubscribe ------------------------------------- Visit your email preferences (http://forum.ldnresearchtrust.org/index.php?app=core & module=usercp) and ensure that the box for 'Send me any updates sent by the board administrator' is unchecked and submit the form Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.