Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Thanks for that Martha - there are many such reports from all over the world which we're sadly seeing every day. I just hope that the members of this Yahoo group are smart enough to realise what is REALLY going on with these 'studies'.I also hope their memories are still functioning well enough to remember the successes which many of us who have actually had the procedure done have experienced and are still experiencing in most cases. In relation to the beliefs of each individual regarding CCSVI and its merits or failings, it should always be based on intelligent thought and intelligent research and never solely on the supposings of the media and the fraudulent orders of the 'researchers' who have ties with the companies and heads of the 'Medical Industry'.Any help to we 'MS'ers which is not pharmacutically based will never earn their Industry money and will never, as a result, be backed or 'proven' or applauded by them. The papers and TV Media are never well versed in the true realities of a situation and so the many articles which are repeating what the heads of BIG Pharma and the 'learned' heads of all things 'MS' tell them to report are generally of no real use to us all as they're not telling the REAL truth.Sad, but unfortunately true. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: mburton.akod@... Date: Fri, 8 Jun 2012 12:59:13 +0000 Subject: Small study on CCSVI for MSers http://www.cbc.ca/news/canada/newfoundland-labrador/story/2012/06/07/nl-ms-study\ -607.html Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Most CCSVI studies are being over-ridden by vested interest groups (Big Pharma, FDA). The fact that they, the opposition, are fighting so hard to have it discredited says to me that it works, and they know it. If not, they would sit back and it would just go away. If I hadn't been caught up in this whole big mess I would never have believed everything I now know about Big Pharma. CCSVI treatment has worked for me, 19 months on and I have everything back except balance and the use of one leg. That to me is amazing as an 18 year diagnosed PPMS.I shall probably return in the Autumn as the clinic I attended are now treating the iliacs and renals. I have done my own research (as too believes) and am a firm advocate of CCSVI treatment. The other day I read these Canadian statistics which you may find interesting:QUOTEThe tragic deaths associated with CCSVI treatment keep being dredged up, year after year. Part of the ongoing Neuroland® campaign of disinformation and fear-mongering. They are using this as a weapon to try and block angioplasty treatment, hoping this blood flow discovery will simply go away. Yes these numbers are very sad, but how do the risks of CCSVI treatment compare to other things?... Maybe a reality check is in order? For example, there are roughly 35,000 taking the new Gilenya MS pill. In a 6-month period 15-people died within roughly 24-hours after taking that pill. This works out to be a death rate of about (43/100,000) Tysabri is another approved MS treatment. Roughly 250 have developed disabling PML and 52 sadly passed away. I read that there are about 95,000 taking Tysabri around the globe. This works out to be a death rate of about (55/100,000) In Canada, 400 out of 75,000 lose their grip on life, dealing with this MS monster. That works out to a death rate of about (533/100,000) Many groups are saying that somewhere between 30,000 and 40,000 have received CCSVI angioplasty treatment in the last 4 years. Tragically 4 died. If you pick the low end of the scale, this works out to be about (12/100,000) If you based it on 40,000 treatments, then the rate would be roughly (10/100,000) Lets look at a wide range of mortality numbers, to put all of this into perspective. Here is a mortality rate list, in descending order: 533/100,000 - Canadian MS death rate 92/100,000 – Logging Workers 92/100,000 – Aircraft Pilots 86/100,000 – Fishing Workers 55/100,000 – Tysabri MS Drug 47/100,000 – Structural Steel Workers 43/100,000 – Garbage Collectors 43/100,000 – Gilenya MS Drug 37/100,000 – Farmers 35/100,000 – Roofers 30/100,000 – Electrical Powerline Workers 28/100,000 – Travelling Sales Workers / Truck Drivers 24/100,000 – Taxi Drivers / Chauffeurs 12/100,000 – CCSVI Angioplasty Treatment ly, when anyone brings up the fact that CCSVI angioplasty is so dangerous, they really need to do their homework and look at the facts. Government officials, and members of the media keep saying that angioplasty is killing people. They also say that we can't do angioplasty trials in Canada, because of the risks involved. You got to wonder what is going on, when you look at the death rate numbers? Then you have those Neuroland® Doctors. I guess we assume too much from them? They don’t seem to understand anything about angioplasty. An accepted standard of care to correct blood flow abnormalities in all parts of the body. A minimally invasive treatment that is being done millions of times each year, around the globe. In the last few weeks, the FDA made headlines talking about how deadly CCSVI treatment is! Are they not able to read the peer-reviewed and published studies on this CCSVI treatment? It also seems ironic that the death rate of the Taxi Driver taking you from the clinic to your hotel, or your travelling Big Pharma CRAB Drug Sales Rep, has double the potential risk of death doing their job, as compared to a person who just received their CCSVI angioplasty treatment. " It's all about politics and dollars. Doctors can and do perform the procedure here at home provided their patients don't have MS. It should be available at home.” - Sheila Clements, Chair Chatham-Kent Chapter, MS Society of Canada (Chatham Daily News - September 2010) So there you have it. The reality is crystal clear. So many things we do on a daily basis are far more dangerous than CCSVI angioplasty treatment. Since November 2009 when W5 aired their show on CCSVI, over 1,000 Canadians have run out of time. From what I see, the ongoing Neuroland® campaign of fear-mongering has only resulted in a senseless delay of treatment in Canada. Their delay tactics have done more harm than good.END QUOTEJanet To: mscured From: rachael.m.thomas@... Date: Fri, 8 Jun 2012 22:54:40 +0930 Subject: RE: Small study on CCSVI for MSers Thanks for that Martha - there are many such reports from all over the world which we're sadly seeing every day. I just hope that the members of this Yahoo group are smart enough to realise what is REALLY going on with these 'studies'.I also hope their memories are still functioning well enough to remember the successes which many of us who have actually had the procedure done have experienced and are still experiencing in most cases. In relation to the beliefs of each individual regarding CCSVI and its merits or failings, it should always be based on intelligent thought and intelligent research and never solely on the supposings of the media and the fraudulent orders of the 'researchers' who have ties with the companies and heads of the 'Medical Industry'.Any help to we 'MS'ers which is not pharmacutically based will never earn their Industry money and will never, as a result, be backed or 'proven' or applauded by them. The papers and TV Media are never well versed in the true realities of a situation and so the many articles which are repeating what the heads of BIG Pharma and the 'learned' heads of all things 'MS' tell them to report are generally of no real use to us all as they're not telling the REAL truth.Sad, but unfortunately true. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: mburton.akod@... Date: Fri, 8 Jun 2012 12:59:13 +0000 Subject: Small study on CCSVI for MSers http://www.cbc.ca/news/canada/newfoundland-labrador/story/2012/06/07/nl-ms-study\ -607.html Martha Quote Link to comment Share on other sites More sharing options...
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