Possibly misdiagnosed with MS? me too...................

July 7, 2011

Hi all,

So at a recent Cal EAP IV apt I was chatting with a woman who told me she had

been misdiagnosed with MS several years ago after having numbness/tinglinging in

legs/knees. She had also had some routine testing for Lymes that always came

back neg. She sought out an MD that may be considered LLMD who did furter

testing using Igenex Labs and she came back positive for the Lymes.

Having had the same history of MS symptoms and neg results on Lymes testing from

labs (not Igenex) I got the name of the MD she used and called to get a consult

& blood draw. Now I'm not one for fate and divine intervention these days after

having had countless shattered hopes so believe you me that I'm staying as

objective as I can these days. Having said that I called his office

immediately. The first eye opener was when during the call they had a

cancellation and an appointment opened up for the very next day. Had the

cancellation not come in the 1st apt they had was August; so I took the

cancellation faster than a virgin on prom night ;o}

So today I had the apt. and well lets just say that I'm finding it extremely

difficult to stay objective. After discussing my history/symptoms he looked at

me with a straight face and said " I think you have Lymes Disease " .....my jaw

dropped. You have to understand the gravity of that statement and its

implications and I'm not done yet. He next went on to say that since I was into

Homeopathic therepies/testing that he had a Lymes test he could do in the room

just for HaHa's. I held my left arm strait out in front of me and he said

resist as he pushed my hand down. As soon as my arm started to give he said " let

it " . So I did. With my right hand using the nail of my index finger I rested

it on a glass vial that contained a Lymes solution. Based on the movement of my

nail across the vial it signifies whether your pos or neg for Lymes. Now I

don't know if its a strain of Lymes or what's in the vial but he said " 100% of

the patients I've tested with this who test positive also test positive through

Igenex Labs for Lymes " . 100%? I tested positive.

Objectively speaking, that one sentence raised question to my entire MS

diagnosis. I have lots of homework to do to say the least. I'm looking at all

my tests with questions. Starting with " Does anyone know how to interpret a

Spinal Tap (LP) " ? I'll have the Igenex results in 4 weeks. My Medicare only

allows a set amount of tests per visit so when I go back for my results I'll get

the second batch of blood drawn for the remaining tests. Any thoughts?

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