Guest guest Posted June 11, 2012 Report Share Posted June 11, 2012 There are also some non-drug treatments for Lyme. A popular one is the herbal protocol developed by Harrod Buhner, in his book " Healing Lyme. " It uses resveratrol, cat's claw, and andrographis, plus possibly a few others. There is a Yahoo discussion group for this. Alice > > Hello Jen, > > My LLMD calls my condition " Lyme-induced MS " or " Lyme with an MS presentation " . He is confident that by treating and subduing the Lyme bacteria and co-infections that my MS symptoms will resolve. > > And, yes, Lyme disease can cause MS-like " lesions " that show up on an MRI. The evoked potentials tests simply tell that there are nerve signal interruptions. They do not identify a cause. They do not mean that nerve damage has occurred. The activity may be consistent with MS, and it may also be consistent with neurologic Lyme disease. > > You said you have an LLMD, but it might be time to find another. A true LLMD would know that Lyme can be misdiagnosed as MS. > > KC in CA > treating Lyme disease for 5+ years and counting > > > > From: Tritherz@ <tritherz@> > > Date: Sun, Jun 10, 2012 at 5:56 PM > > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > > To: mscured Moderator <mscured-owner > > > > > > > Good Evening, > > Thank you for your response. I am a 44 y/o female diagnosed with RRMS in > > 2009 after a second episode of diplopia. After the standard tests, the docs > > diagnosed me with a " mild form of MS " . Never feeling the diagnosis was > > accurate, I began a quest for answers. I read up on alternative treatments, > > and found a Neurologist who would prescribe me LDN. Unfortunately, he was a > > 3 1/2 hour drive. > > > > I kept trying to find answers, and eventually stumbled upon a clinical > > trial at NIH, looking at people with a questionable MS diagnosis. I applied > > and was accepted, so I flew down to Bethesda in March, 2010. After three > > follow up appointments, I was advised that I had a confirmed case of MS, > > and that I should begin a CRAB ASAP. I came home defeated, and called to > > begin Copaxone. Being needle phobic, this was not an easy choice, but the > > other MS drugs all carried the side effect of depression, and with a strong > > family history, I didn't need any help getting depressed! The injections > > never went well, or got any easier. I only gave them three months, but my > > body seemed to be rejecting them with itchy, bruised welts left at every > > injection site. > > > > By my third month, my older sister had been experiencing neurological > > issues and was seeking answers. An extensive search led her to a savvy > > Infectious Disease doc who promptly diagnosed her with Lyme disease. It was > > as if a light bulb went off! I had flu-like symptoms for a good part of > > 2008, prior to my double vision. I started researching Lyme disease like it > > was my job. I started seeing the same Infectious disease doc who started me > > on antibiotics. I reacted within 24 hours. Within a few weeks, the numbness > > that had been spreading to my hands and mid section disappeared. I thought > > I had found my answer. > > > > I switched to an LLMD and continued treatment for my Lyme and my > > co-infections, and learned about CpN and HHV6 for the first time. After a > > little over a year of treatment, I decided to switch gears and go a > > holistic route. I never liked the idea of pumping my body full of drugs, > > even if they were designed to kill off infections. Besides, I had run the > > full Lyme route, subjecting myself to 4 months of Bicillin injections. That > > was in March, 2012. > > > > At the advice of the PA at my LLMD, I followed up with a neurologist. The > > doctor ordered an MRI and a SSEP and VEP. Everything came back abnormal. > > New lesions on my MRI, specifically on my cervix and thoracic spine. > > Everything was amiss. An email from my Lyme doctor advising me to begin MS > > treatment. Apparently, the activity is consistent with MS. I'm back to > > square one. I have no desire to begin MS drugs. I still believe there is a > > cause for this, and that my body didn't just decide to start randomly > > attacking itself for no valid reason. It doesn't make sense to me... MS > > doesn't make sense to me. I've accepted MS as my diagnosis, I have not > > however accepted that this is my fate. I am a fighter at heart, and will > > move heaven and earth to get to the bottom of this. I believe there's and > > answer... I believe there's a cure. I just have to find it. > > Best Regards, > > Jen Fila > > > > > > " Absence of proof is not proof of absence " > > Dr. M. Kissane > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2012 Report Share Posted June 12, 2012 Hi All, I have been through a gamut of tests and docs at this point, and am confident in my LLMD. He is Dr H. in upstate NY and is one of the best in the northeast in my opinion. The lesions on my spine are what changed his mind. I am well aware of the Lyme/MS correlation and believe my MS is Lyme induced as well. I have been bouncing between the two diagnosises for the past 3 years and have no doubt at this point I have MS. trust me, I'd rather not but I can't deny the latest MRI results. Plus, I have been actively addressing the Lyme with diet, supplements, and abx since 2010, dobro have more damage means there's disease activity not consistent with MS. I actually didn't realize I was posting to the entire group so a big " whoopsie " on my end! But regardless, I'm glad to have found a group of like-minded people for support. I want to find my way through this. I'm wondering what folks think of the Cpn and HHV6 connection? Has anyone else explored this? There's a group on " This is MS " that have followed the Stratton protocol with some great success. I still believe there is something I can do. Jen > > > > Hello Jen, > > > > My LLMD calls my condition " Lyme-induced MS " or " Lyme with an MS presentation " . He is confident that by treating and subduing the Lyme bacteria and co-infections that my MS symptoms will resolve. > > > > And, yes, Lyme disease can cause MS-like " lesions " that show up on an MRI. The evoked potentials tests simply tell that there are nerve signal interruptions. They do not identify a cause. They do not mean that nerve damage has occurred. The activity may be consistent with MS, and it may also be consistent with neurologic Lyme disease. > > > > You said you have an LLMD, but it might be time to find another. A true LLMD would know that Lyme can be misdiagnosed as MS. > > > > KC in CA > > treating Lyme disease for 5+ years and counting > > > > > > > From: Tritherz@ <tritherz@> > > > Date: Sun, Jun 10, 2012 at 5:56 PM > > > Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! > > > To: mscured Moderator <mscured-owner > > > > > > > > > > Good Evening, > > > Thank you for your response. I am a 44 y/o female diagnosed with RRMS in > > > 2009 after a second episode of diplopia. After the standard tests, the docs > > > diagnosed me with a " mild form of MS " . Never feeling the diagnosis was > > > accurate, I began a quest for answers. I read up on alternative treatments, > > > and found a Neurologist who would prescribe me LDN. Unfortunately, he was a > > > 3 1/2 hour drive. > > > > > > I kept trying to find answers, and eventually stumbled upon a clinical > > > trial at NIH, looking at people with a questionable MS diagnosis. I applied > > > and was accepted, so I flew down to Bethesda in March, 2010. After three > > > follow up appointments, I was advised that I had a confirmed case of MS, > > > and that I should begin a CRAB ASAP. I came home defeated, and called to > > > begin Copaxone. Being needle phobic, this was not an easy choice, but the > > > other MS drugs all carried the side effect of depression, and with a strong > > > family history, I didn't need any help getting depressed! The injections > > > never went well, or got any easier. I only gave them three months, but my > > > body seemed to be rejecting them with itchy, bruised welts left at every > > > injection site. > > > > > > By my third month, my older sister had been experiencing neurological > > > issues and was seeking answers. An extensive search led her to a savvy > > > Infectious Disease doc who promptly diagnosed her with Lyme disease. It was > > > as if a light bulb went off! I had flu-like symptoms for a good part of > > > 2008, prior to my double vision. I started researching Lyme disease like it > > > was my job. I started seeing the same Infectious disease doc who started me > > > on antibiotics. I reacted within 24 hours. Within a few weeks, the numbness > > > that had been spreading to my hands and mid section disappeared. I thought > > > I had found my answer. > > > > > > I switched to an LLMD and continued treatment for my Lyme and my > > > co-infections, and learned about CpN and HHV6 for the first time. After a > > > little over a year of treatment, I decided to switch gears and go a > > > holistic route. I never liked the idea of pumping my body full of drugs, > > > even if they were designed to kill off infections. Besides, I had run the > > > full Lyme route, subjecting myself to 4 months of Bicillin injections. That > > > was in March, 2012. > > > > > > At the advice of the PA at my LLMD, I followed up with a neurologist. The > > > doctor ordered an MRI and a SSEP and VEP. Everything came back abnormal. > > > New lesions on my MRI, specifically on my cervix and thoracic spine. > > > Everything was amiss. An email from my Lyme doctor advising me to begin MS > > > treatment. Apparently, the activity is consistent with MS. I'm back to > > > square one. I have no desire to begin MS drugs. I still believe there is a > > > cause for this, and that my body didn't just decide to start randomly > > > attacking itself for no valid reason. It doesn't make sense to me... MS > > > doesn't make sense to me. I've accepted MS as my diagnosis, I have not > > > however accepted that this is my fate. I am a fighter at heart, and will > > > move heaven and earth to get to the bottom of this. I believe there's and > > > answer... I believe there's a cure. I just have to find it. > > > Best Regards, > > > Jen Fila > > > > > > > > > " Absence of proof is not proof of absence " > > > Dr. M. Kissane > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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