CCSVI correlation with MS

[Guest guest]

Hi ,

My wife has MS and we have both been told by a Kaiser Permanente GP doctor in

So.CA, straight-up, that CCSVI doesn't work. Then a Kaiser Neurologist told us

that CCSVI was 'crap'. My wife had the CCSVI procedure in Nov. 2010 with

wonderful results. Unfortunately her veins closed back up, but even her

temporary wins were enough to make us believers in CCSVI. We are looking at what

we should do next and to be sure the veins will stay open while working on

funding.

There have been at least 3 studies I've found that didn't find a statistical

correlation between CCSVI and MS but it seemed like they didn't have an adequate

diagnosis criteria. I have not seen the actual Newfoundland/Labrador study that

was done in Canada, but I don't know how you can 'report improvements' but 'find

no evidence that it worked'.

I started looking into CCSVI some time ago and collected various CCSVI studies.

I find an incredible correlation between MS and CCSVI. BTW, the FDA 'Warning'

about the CCSVI procedure was that it might be dangerous and they didn't

mentioned the effectiveness of the CCSVI procedure, only suggesting that more

studies need to be done. The professional group of U.S. of Interventional

Radiologists, those trained to perform this procedure, announced at their last

national meeting that the CCSVI procedure was relatively safe. They did their

own study on it.

Here is a brief summary of 14 of the studies I've found, done by people with

hands on experience, showing a high percentage of CCSVI in people with MS. I

have quite collecting statistics in this area because 1) I've found least 14

'pro' findings vs. 4 'con' findings from studies done by people using

questionable techniques 2) I have seen the CCSVI gains in my wife after her

procedure and 3) I have seen and read about gains others have had on YouTube and

many blogs. (CCSVI video: https://vimeo.com/12728938 )

" And I pulled it (the paper by Dr. Zamboni) out and showed him the two places in

the paper where it is laid out that none of those who veins remained open had a

relapse. " from:

http://open.salon.com/blog/duncanthornton/2010/11/10/great_moments_in_science_i

------------------------------------

SUMMARY: Here are 14 widely separate sources below finding about a 95%

correlation with MS and CCSVI, or vein blockage, an incredibly high statistical

correlation. The sources of the information are noted with links.

1) 97% of MS patients have CCSVI in Dr. Simka study in Katowice Poland. from:

http://www.thisisms.com/ftopic-8585-420.html

2) CCSVI Atlanta - email received 20 April 2011, 98% have CCSVI in Atlanta

analysis clinic.

From a personal email:

Hello Again,

Yes, we are still testing for CCSVI, and yes the cost for the complete Doppler

study is $550.

We have scanned about 200 people and find about 98% of those with a diagnosis of

MS test positive for CCSVI. There is an Interventional Radiologist in the area

who has been performing the procedures. Unfortunately some people do re-stenose.

We know that some IRs are using stents when absolutely needed, but we do not get

involved in that end. Our job is to evaluate for CCSVI per Dr Zamboni's

protocols and then give the treating IR the information they would need to

better access the individual situation.

We wish your wife the best!

Sincerely,

CCSVI Atlanta

3) 95 % of MS patients have CCSVI in 2009 study by Dr. Zamboni in Italy. The

following is from:

http://journals.lww.com/neurologynow/Fulltext/2010/07040/This_Way_In__CCSVI_and_\

Multiple_Sclerosis.7.aspx

In Dr. Zamboni's 2009 study, 95 percent of the people with MS had some form of

vein blockage or insufficiency.

4) 100% have CCSVI in Tijuana hospital treatment. Oct. 1, 2010. The following

is from: http://ccsvi-ms.ning.com/profiles/blogs/peeling-potatoes-again-the

In her conversations with the medical staff at the Tijuana hospital, Fullawka

says everything she learned has reinforced the original claims made for the

" liberation " treatment. The doctor who did the procedure, said he has done about

100 since it first became legal in Mexico five months ago. In every case, he has

found narrowed jugular veins. That means MS is caused by a circulation problem

and is not an autoimmune disease.

5) 91% have CCSVI in Belgium screening. Oct. 9, 2010 from

http://www.thisisms.com/ftopic-11029-15.html

From Dr. Roel Beelen, MD, Dept of cardiovascular and thoracic surgery, OLV

Hospital, Aalst, Belgium:

107 patients with confirmed MS were screened for CCSVI, in 97 patients CCSVI

non-invasive. 29 patients are monitored, using Doppler and using an

internationally validated questionnaire (MSQOL-54 instrument) and after

treatment as reported by every individual of these 29 patients, the quality of

life has improved. Statistically, this is even more significant.

6) 98% have CCSVI in Univ. of NIS study. From:

http://english.blic.rs/Society/6924/Nis--world-centre-for-multiple-sclerosis-tre\

atment second paragraph

A group of radiologists, vascular surgeons, neurologists and pharmacologists

from the Clinical Centre in Nis have applied the method of vein expansion in 164

affected by MS since 11 January. Only three patients of the lot did not express

vasoconstriction - the narrowing of veins - which has led the doctors to

associate the method to people with MS. There are 700 patients from Serbia and

almost all countries in this part of Europe on the waiting list for this

breakthrough procedure.

Note: 3 without CCSVI out of 167 total people so 98% have CCSVI. From director

of the Institute of Radiology, Professor. Dr. Petar Bosnjakovic, whose team has

been applying the method of vein expansion. At Facility of Medicine, University

of NIS in Yugoslovica??.

7) 100% have CCSVI in University at Buffalo, Buffalo, NY, study. The following

is from: http://www.ncbi.nlm.nih.gov/pubmed/20351672 Buffalo Neuroimaging

Analysis Center, rzivadinov@... and dated April 29, 2010.

CONCLUSION: The findings from this pilot study suggest that CCSVI may be an

important mechanism related to iron deposition in the brain parenchyma of MS

patients. In turn, iron deposition, as measured by SWI, is a modest-to-strong

predictor of disability progression, lesion volume accumulation and atrophy

development in patients with MS.

8) 98% found to have CCSVI at Arizona Heart Intitute in Phoenix. The following

is from . me.

Dr. Diethrich at the The Arizona Heart Institute, in Phoenix, AZ, works in a

program called the Venous Insufficiency Program (VIP) has delivered 61 CCSVI

" liberation " procedures as of Nov 5, 2010. They have turned away 2 MS patients

since beginning the program because they couldn't find any CCSVI to treat. So of

63 MS patients, 61 were found to have CCSVI, or 98%.

9) 95% of MS patients have CCSVI study by Dr. Simka in Katowice Poland. From:

http://www.ms-mri.com/docs/Simka-hamilt ... csvi-1.pdf

Simka et al found 91.4% of patients examined met Zamboni criteria while Zamboni

et al found 100% of patients met Doppler criteria for CCSVI. This difference

could be attributed to Simka et al's inability to assess the 5th Zamboni

criteria since they were using Doppler sonography lacking the special skills and

software needed to assess deep intracranial veins. In review, Zamboni's criteria

include:

10) 89% found to have CCSVI in Univ. of Buffalo study. 18 April 2011 from:

http://frenchtribune.com/teneur/114549-study-links-multiple-sclerosis-blood-flow\

-condition-brain

In the study that recruited some 250 MS patients along with other 250 non- MS

patients it was found that as many as 89% of the subjects with MS were suffering

from a medical condition in which the discrepancies regarding blood-flow in the

brains are observed.

11) 96% of MS patients tested had CCSVI in Kuwait from the video at:

dex=41

Dr. Tariq Sinan, an Interventional Radiologist in Kuwait presented his case for

CCSVI in this lecture Sept. 27, 2010. About 8 minutes and 13 seconds in to the

lecture he mentions testing 100 patients who do not have MS for CCSVI and found

that 7% of them barely had CCSVI, at the lowest level. Then he tested 100

patients with MS and found that 96% of them had CCSVI. They did the procedure on

15 MS subjects and ALL of them reported gains and there were no complications

(11:32 into video).

12) 92% of MS patients tested had CCSVI in Sofia, Bulgaria

From google docs:

https://docs.google.com/viewer?a=v & pid=explorer & chrome=true & srcid=0B0L9MiV9H8KOZ\

GU3NzcwMWEtM2QzZS00MDI3LTgyNDctMTMyYTFiMjM0ZjVl & hl=en_US

CCSVI in Multiple Sclerosis Research from Tokuda Hospital in Sofia, Bulgaria In

500 pwMS tested, 92% have CCSVI. 461 patients are then treated with

venoplasty-many improvements in EDSS and QOL shown. Thanks to Alessandro for

this abstract from the International Phlebology conference in Prague.

https://docs.google.com/viewer?a=v & pid=explorer & chrome=true...

13) 85% MS patients in Slovakia have CCSVI. from

http://www.facebook.com/notes/alessandro-rasman/incidence-of-venous-reflux-in-pa\

tients-with-multiple-sclerosis-a-prospective-stu/299075760106898 Study using a

crude diagnosis techniques finds 34 of 40, . Finally, it can be concluded that

patients with multiple sclerosis have a significantly increased incidence of

venous reflux compared with the control group.

Other sources: http://www.csnn.eu/pdf/CSNN_Supple_hradec.pdf

http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insufficiency-ccsvi-f\

40/topic7797-360.html

14) 88% appeared to have CCSVI in Cleveland Ohio. From

http://blog.nationalmssociety.org/2011/10/ccsvi-research-why-are-results-so.html

Posted Fri. Oct. 21, 2011

Mellen Clinic of the Cleveland Clinic examined actual harvested blood vessels

for abnormalities from people with MS who had died. 6 of 7 had abnormalities

that could create stenosis (blockage) or 88% appeared to have CCSVI in Cleveland

Ohio.

.. This difference in the correlations found by different scientists indicates

that there is a problem with the way the test is being done in various people in

various places. Using different types of imaging technology on different

sections of the veins can easily give vastly different results in the research.

Other factors can also come into play.

The group found a variety of abnormalities in the veins they examined which

could have affected blood flow. However, these abnormalities were found in both

people with MS and the people without MS (4 of 7 MS patients and 3 of 6

controls). However, there were differences in the valves and other structures,

like flaps or membranes, within the veins in more of the people with MS (6 out

of 7) than in the people without MS (2 out of 6), all of which could impair

blood flow. These structures could very well create a stenosis (blockage)

without there being a difference in thickness of vein walls.

This tells us two things: 1) these abnormal structures are very delicate,

meaning some of these abnormalities would probably be missed with certain

imaging techniques, such as magnetic resonance venography, indicating that

Doppler ultrasound might be better; 2) we need to look at more than just the

thickness of the vein walls, as there may be abnormalities inside the veins that

could provide an important part of the puzzle.

Jorj

www.jbdigitalcinema.com

Small study on CCSVI for MSers

http://www.cbc.ca/news/canada/newfoundland-labrador/story/2012/06/07/nl-ms-study\

-607.html

Martha