Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 I just came across the website linked below. Has anyone in our group had a connection with this site, or know anything about the programs that it offers? Thanks! http://www.nakedms.me/ Charmoon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 > > I just came across the website linked below. Has anyone in our group had a connection with this site, or know anything about the programs that it offers? Thanks! > > http://www.nakedms.me/ > > Charmoon > I took a look at the site, and it looks like a very pricey mishmosh of information you can easily obtain elsewhere at far less expense. Carolyn Myss is mentioned. You can buy her books (often used, at very low cost on Amazon or elsewhere) or listen to her CDs. " Why people don't heal and how they can, " for example. Or the CD " Personal healing. " Other authors also have much in a similar veingto offer that would probably be helpful in healing MS, if applied consistently and for a long time. Hamilton, for example, wrote the books " It's the thought that counts " and " How your mind can heal your body. " The latter one actually describes mental processes involving visualization that have helped people with many different illnesses. Other books deal with how to handle emotional hurts, often from early childhood. Stress harms not just the mind but the body as well. There are many others that may be helpful, such as the Silva method. The more I dig into this the more books and CDs I find. I am now forming the opinion that MS may usually need to be healed from the inside out. My own belief is that it is indeed the case that these things CAN work. This is also related to why placebos actually do work in so many cases. Hypnosis and guided imagery help some people with health problems, as well as shamanic journeying and soul retrieval. The mind is very powerful, so the challenge is to harness it in a way that actually helps. But I can't see paying someone $$$$$ to get the info, and maybe a little hand-holding! In my 5 year MS journey I've tried just about everything else----1. pharmaceuticals (Rebif made me worse and Solumedrol didn't help anything at all; Gabapentin for neuropathy was a nightmare to get off of), 2. diet, including supplements and eliminating sensitive foods----(some minor improvements mainly by eliminating gluten and dairy), 3. mercury amalgam replacement and Cutler-style chelation (some improvements in 2.5 years, but I can't be sure it's due to the chelation or diet/ supplements, and I feel I still have a long way to go), 4. LDN (no improvement for well over one year, so I gave up on it), 5. CCSVI treatment (only minor improvements). I still have a hard time walking, which is my main problem. That website gives enough leads to point you in directions of where to look, but I recommend that people save their money! Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Having taken a look and read up a bit on it, all I can say is my usual comment when it comes to things such as this - 'Each To Their Own'! ;)It might suit some people, but won' fit with everyone's situation/thinking.Do whatever suits you best as an individual, after all, it's YOUR body/mind and 'MS' takes a different toll on us all individually. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: alimrobb@... Date: Thu, 25 Aug 2011 22:42:18 +0000 Subject: Re: " Naked MS " > > I just came across the website linked below. Has anyone in our group had a connection with this site, or know anything about the programs that it offers? Thanks! > > http://www.nakedms.me/ > > Charmoon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 > ......> In my 5 year MS journey I've tried just about everything else----1. pharmaceuticals (Rebif made me worse and Solumedrol didn't help anything at all; Gabapentin for neuropathy was a nightmare to get off of), 2. diet, including supplements and eliminating sensitive foods----(some minor improvements mainly by eliminating gluten and dairy), 3. mercury amalgam replacement and Cutler-style chelation (some improvements in 2.5 years, but I can't be sure it's due to the chelation or diet/ supplements, and I feel I still have a long way to go), 4. LDN (no improvement for well over one year, so I gave up on it), 5. CCSVI treatment (only minor improvements). I still have a hard time walking, which is my main problem. Similar results as I have had :-( Was diagnosed TWICE w/ MS. Took Rebif (made me worse), Copaxone, LDN (no effect good or bad). Diagnosed w/ Lyme Disease. Recently started IM antibiotics, which REALLY seems to be having positive effect as evidenced by me being able to partly pick up my right leg versus merely dragging it behind me. I sleep a lot. Feel free to send me a not directly to wake me up :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2011 Report Share Posted August 26, 2011 Your experience is very close to what I am experiencing. My wife was diagnosed with MS in March-2010 after her major symptom of loss of vision in her left eye. After that all sorts of various therapies have had no positive effect. Any new therapy initially gives slight improvement but within a month or two the drug seems becoming ineffective. As you have written, here also in my wife's case, LDN initially gave slight improvement but then no effect at all. I suspect Lyme, as youhave written. What are you taking for Lyme, because here in India no one recognises Lyme disease. What is IM. Thanks a lot for your help in advance. Rajeev Subject: Re: " Naked MS " To: mscured Date: Friday, August 26, 2011, 8:27 AM  > ......> In my 5 year MS journey I've tried just about everything else----1. pharmaceuticals (Rebif made me worse and Solumedrol didn't help anything at all; Gabapentin for neuropathy was a nightmare to get off of), 2. diet, including supplements and eliminating sensitive foods----(some minor improvements mainly by eliminating gluten and dairy), 3. mercury amalgam replacement and Cutler-style chelation (some improvements in 2.5 years, but I can't be sure it's due to the chelation or diet/ supplements, and I feel I still have a long way to go), 4. LDN (no improvement for well over one year, so I gave up on it), 5. CCSVI treatment (only minor improvements). I still have a hard time walking, which is my main problem. Similar results as I have had :-( Was diagnosed TWICE w/ MS. Took Rebif (made me worse), Copaxone, LDN (no effect good or bad). Diagnosed w/ Lyme Disease. Recently started IM antibiotics, which REALLY seems to be having positive effect as evidenced by me being able to partly pick up my right leg versus merely dragging it behind me. I sleep a lot. Feel free to send me a not directly to wake me up :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2011 Report Share Posted August 26, 2011 Rajeev, Our imune systems can really kick butt when we are healthy, so getting healthy in mind and body are your best bets to beat MS. In addition to vitamins and minerals, I take garlic and Cayenne liquid gel caps to fight Candida and critters that may be hiding in my gut. I eat raw veggies daily. Praying, positive thinking with personal reinforcement, and keeping busy are great therapies. May I suggest books for you please; 'The Multiple Sclerosis Diet Book' by Roy Laver Swank 'Healing Multiple Sclerosis' by Ann Boroch 'The Healing Codes' by Loyd I made the most progress when I chose not to focus my efforts on PPMS, but on my overall good health. I am not 100% better yet, but I have been in remission for two years and getting better slowly through diet (Swank MS Diet) and exercise. It won't happen overnight, but we will get there! Good luck and God bless. -Tim > > > Subject: Re: " Naked MS " > To: mscured > Date: Friday, August 26, 2011, 8:27 AM > > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > .....> In my 5 year MS journey I've tried just about everything else----1. pharmaceuticals (Rebif made me worse and Solumedrol didn't help anything at all; Gabapentin for neuropathy was a nightmare to get off of), 2. diet, including supplements and eliminating sensitive foods----(some minor improvements mainly by eliminating gluten and dairy), 3. mercury amalgam replacement and Cutler-style chelation (some improvements in 2.5 years, but I can't be sure it's due to the chelation or diet/ supplements, and I feel I still have a long way to go), 4. LDN (no improvement for well over one year, so I gave up on it), 5. CCSVI treatment (only minor improvements). I still have a hard time walking, which is my main problem. > > > > Similar results as I have had :-( Was diagnosed TWICE w/ MS. Took Rebif (made me worse), Copaxone, LDN (no effect good or bad). Diagnosed w/ Lyme Disease. Recently started IM antibiotics, which REALLY seems to be having positive effect as evidenced by me being able to partly pick up my right leg versus merely dragging it behind me. > > > > I sleep a lot. Feel free to send me a not directly to wake me up :-) > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2011 Report Share Posted August 26, 2011 Maybe she has a different parasite if she has one at all. I'm leaning towards the Hashimoto hypothyroid (auto-immune thyroid) aspect since I've seen improvement (stabilizing blood sugar for example) and nothing else has helped so much, not the diets in my past, not the supplements, not Prokarin although all were good initially. I hope I don't have to say that again! > > Your experience is very close to what I am experiencing. My wife was diagnosed with MS in March-2010 after her major symptom of loss of vision in her left eye. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 For Rajeeve and all other confused MS patients; > > Your experience is very close to what I am experiencing. My wife was diagnosed with MS in March-2010 after her major symptom of loss of vision in her left eye. After that all sorts of various therapies have had no positive effect. Any new therapy initially gives slight improvement but within a month or two the drug seems becoming ineffective. As you have written, here also in my wife's case, LDN initially gave slight improvement but then no effect at all. I suspect Lyme, as youhave written. What are you taking for Lyme, because here in India no one recognises Lyme disease. What is IM. Thanks a lot for your help in advance. Rajeev --------------------- -------------------------------------- -------- The name " multiple sclerosis " roughly translates from Latin to English as " a condition of many scars " . The name does not say HOW we got so many scars. The profitable disease model is that the patient has a confused immune system. Our confused immune systems require an expensive patented profitable drug to weaken our immune system so it will allegedly not be able to attack our Central Nervous System (CNS). I feel that my many scars in my CNS have been caused by a bacteriological infection that is called Lyme Disease, or borreliosis. NONE of the Lyme tests are 100% accurate, especially the standard test our front line physicians give us. When asking for a Lyme test, ask for a test from IgeneX. Also get a more standardized test that is called a CD57, or Killer T-cells test. It is best to hire a Lyme Literate Medical Doctor (LLMD)to navigate these treacherous waters. I have TWO MS diagnoses. My first is from a nationally regarded MS clinical trial physician. He really liked Rebif (for his patients). I measured the Rebif making me physically weaker! It took me four years to move towards Lyme Disease. Currently, I say I have a condition of many scars (MS), but Lyme Disease is a better description of HOW I got my many scars in my CNS. For a list of symptoms: www.CanLyme.com A video / news cast " Lyme Disease - MS mis diagnosis http://vimeo.com/2354218 How Lyme Disease and it's Treatments Work - has really cool 3 D animations. Feel this video is a REALLY good description of how the disease works. Don't understand the section on treatment-- Under Our Skin - Theatrical Trailer -- Lyme Disease Documentary -- http://www.youtube.com/watch?v=uSsnMQHIJZk Full 1 hour 44 min Documentary http://www.hulu.com/watch/268761/under-our-skin Quote Link to comment Share on other sites More sharing options...
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