Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 I have always been a big proponent of the idea that not all MS is the same MS. I know there are different categories but what I mean is that it appears that there are some that are triggered by different things, which makes getting to the bottom of it a nightmare. The things you are doing sound right, if it is working, then it is working. Rebif was not good for me, seemed to make me worse and really, in all reality - how will I really know? It is like taking an aspiring when you get a headache and the headache goes away - was it the aspirin or the water you drank with it - or was it destined to go away anyway? How will a person every really know? I think you are right about being happy, that is so important. I had to rearrange my expectations, desires, needs and wants to get to a happy place. Regardless what happens to me, I know I will be happy, sometimes with a crabby exterior LOL.... but seriously, it is so important! > > After thousands of out-of-pocket dollars spent on alternative > treatments and trying various diets, with no results, I was > progressing. I gave in and got on Rebif several years ago. I've had no > problems with it, and it has stopped progression. I'm also on Ampyra, > which helps me walk better. I haven't thrown the baby out with the > bath water, feeling I should be open to anything that might help. My > integrative doctor believes the same. We did some testing and found > several of my hormones were out of whack, so now I'm on bioidenticals. > It won't be forever because they'll retrain my body to produce them. > Taking them is a whole-body approach, like removing my amalgams: > treatments may not directly relate to MS, but anything that makes me > healthier is a plus. We also did some food testing. I'm okay with > dairy, eggs and soy but not gluten. The Paleo diet hasn't helped me. > (My GP said, You're probably a different subset from Dr. Wahls.) I'm > eating a little of everything, except gluten, and I feel great and > look healthy. I stay positive by not looking at MS as something > horrible or a war to be won. For me, t's an opportunity for learning. > And I've noticed that the happier I feel, the better my body works. > > Martha > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 I agree with you Martha. I'm in the what-ever-it-takes frame of mind myself but I still don't take medications. If I thought they would help, I would! The Terry Wahls diet, with large quantities of berries, is screwing up my adrenal glands. I think the whole endocrine system is involved. I know I have Hashimoto's thyroiditis but I also have adrenal fatigue and the berries are messing with my blood sugar. I am not progressing, I actually feel good while not being able to walk, but I am more in tune with how I react to things. > > After thousands of out-of-pocket dollars spent on alternative treatments and trying various diets, with no results, I was progressing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 There are some interesting comments and observations on the epidemic thyroid-adrenal dysfunction in modern society, as well as danger of soy and gmo foods on this site. I do eat blue green algae, but this is not where I buy it. I'm just putting the link here to share the info they put forth. Eating the aloe I grow at home fixed my sugar metabolism. I had to learn the expensive way....I wasted a lot of money on aloe products. optimumchoices.com/Silent_epidemic.htm#Hidden_Endocrine-Immune_Imbalance I am the epitome of hardcore Whatever It Takes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 My Functional Neurologist recommended an adrenal product called Adrenal Rebuilder by . It's a glandular supplement without the hormones. I have since read 's book " Adrenal Fatigue: The 21st Century Stress Syndrome " and I have employed a few of his ideas (sea salt in water, no fruit at breaskfast, smaller but more frequent meals, etc.). The salt helps remove excess potassium from the kidneys and, as an electrolyte, charges the brain to muscle response. It's also helping settle my electrical field down! My keyboard is not as static and it's not like a ouija board anymore! This is new to me and I don't know if the results are real or caused by innervation. > > There are some interesting comments and observations on the epidemic thyroid-adrenal dysfunction in modern society, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 I was going to suggest 's book " Adrenal Fatigue " . Glad you have it and have read it. 5 points for you! It certainly makes one aware of the synchronisity of the entire endrocine gland system. I did the whole program for 6 months. It helped, but what put me back on my feet was eliminating all gluten, gmo, and especially corn! see cornallergens.com you will be amazed at what corn is in. Most supplements are in magnesium stearate capsules, a gmo corn product. It is a lethal poison now that it has been genetically modified. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 Keep us posted .We'll get there yet!Still up for the race to the top of the stairs?Janet To: mscured From: alpdesigns1@... Date: Tue, 24 Jul 2012 02:07:33 +0000 Subject: Re: The other side My Functional Neurologist recommended an adrenal product called Adrenal Rebuilder by . It's a glandular supplement without the hormones. I have since read 's book " Adrenal Fatigue: The 21st Century Stress Syndrome " and I have employed a few of his ideas (sea salt in water, no fruit at breaskfast, smaller but more frequent meals, etc.). The salt helps remove excess potassium from the kidneys and, as an electrolyte, charges the brain to muscle response. It's also helping settle my electrical field down! My keyboard is not as static and it's not like a ouija board anymore! This is new to me and I don't know if the results are real or caused by innervation. > > There are some interesting comments and observations on the epidemic thyroid-adrenal dysfunction in modern society, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 I don't eat processed food and for the last few months I haven't eaten grains. I think I need to add a few whole grains back into my diet. I also considered adding eggs back because I want to use coconut flour and it takes eggs to make bread out of it. I'm making sourdough bread right now using rice flour and quinoa. It's my first loaf and it will be ready to bake later today. Water kefir is the starter. I'm very conscious of my diet but I do cheat once in awhile! > > I was going to suggest 's book " Adrenal Fatigue " . Glad you have it and have read it. 5 points for you! It certainly makes one aware of the synchronisity of the entire endrocine gland system. I did the whole program for 6 months.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 You betcha! > > Still up for the race to the top of the stairs?Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 > >I think I need to add a few whole grains back into my diet. I also considered adding eggs back because I want to use coconut flour and it takes eggs to make bread out of it. I'm making sourdough bread right now using rice flour and quinoa. It's my first loaf and it will be ready to bake later today. Water kefir is the starter. ... but I do cheat once in awhile! > I'm still trying to figure out the difference between verboten grains and allowed seeds. You plant a rice grain and it grows just like when you plant a sunflower seed. ... I eat eggs and a occasionally legumes, both confirmed " no problem " by testing. I think being rigid is the worst thing I could do, so I experiment to see what works for ME. Good for you, . " Experimentation " is not " cheating. " Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 My bread turned out well but I think it needs some salt. I have been off of ALL grains, nuts and seeds so adding them in one at a time should give me a more accurate picture of what effects me negatively (only I used two and neither of them caused a reaction...so far). I just ate a small piece. I cheated with dark chocolate! My doc approved Coconut Secret sugar substitute and I got it today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2012 Report Share Posted July 28, 2012 There are vegan egg substitutes that work well for making bread. I'm trying to remember what I used when I was vegan. DH is the MS patient. Just like instead of oil you can use unsweetened apple sauce. I tend to use rice flour for any batter/breading of foods. We are working on getting him off all scripts (including those for diabetes). So far with food and exercise he is gaining strength on his left side and is improving. http://vegetarian.about.com/od/vegetarianvegan101/f/eggsubstitute.htm is a nice site about what to use where. HTH take care Donna in SC (was VA) " Stress is the confusion created when one's mind overrides the body's basic desire to choke the living daylights out of some jerk who desperately deserves it. " --Unknown >To: mscured >Sent: Tuesday, July 24, 2012 10:47 AM >Subject: Re: The other side > > > >I don't eat processed food and for the last few months I haven't eaten grains. I think I need to add a few whole grains back into my diet. I also considered adding eggs back because I want to use coconut flour and it takes eggs to make bread out of it. I'm making sourdough bread right now using rice flour and quinoa. It's my first loaf and it will be ready to bake later today. Water kefir is the starter. I'm very conscious of my diet but I do cheat once in awhile! > > >> >> I was going to suggest 's book " Adrenal Fatigue " . Glad you have it and have read it. 5 points for you! It certainly makes one aware of the synchronisity of the entire endrocine gland system. I did the whole program for 6 months.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2012 Report Share Posted July 29, 2012 Some of the egg substitutes are fake food but some seeds (flax and chia) form gelatinous membranes when soaked in water and they might work to bind the flour together. Flax also contains some hormone-like substances that may not be good for my adrenal glands. Eggs never bothered me before (I used free-range eggs) but I'm cautious of trying them now. I may just stick to gluten-free sourdough for awhile. I'm glad your husband is doing better! Thanks, > > There are vegan egg substitutes that work well for making bread. I'm trying to remember what I used when I was vegan. DH is the MS patient. Just like instead of oil you can use unsweetened apple sauce. I tend to use rice flour for any batter/breading of foods. We are working on getting him off all scripts (including those for diabetes). So far with food and exercise he is gaining strength on his left side and is improving. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2012 Report Share Posted July 29, 2012 It was February that I officially started eating nut, grain and seed-free. I got a newsletter from my doctor explaining why he wanted me to do it (other than the one line explanation that it was cross reactive that he sent me earlier). He said that my leaky gut needed to heal or else the large protein containing particles in those foods would continue passing through the porous lining of my intestine and my immune system would attack them. Eating them again is a test since there isn't a medical test that addresses this. I have to go slow but there are some benefits in eating these things and not eating them could be harmful to my health. Fiber in a diet is necessary for the elimination of waste. > > > > I was going to suggest 's book " Adrenal Fatigue " . Glad you have it and have read it. 5 points for you! It certainly makes one aware of the synchronisity of the entire endrocine gland system. I did the whole program for 6 months.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2012 Report Share Posted July 30, 2012 Hi to you all, I hope this finds you well. Please read the attached article on gluten and video done by a doctor diagnosed with MS who REVERSED the disease thru diet. Dr. Mercola's site has more info on MS as well. http://articles.mercola.com/sites/articles/archive/2011/12/23/overcoming-multipl\ e-sclerosis-through-diet.aspx http://www.naturalnews.com/035224_gluten_nervous_system_brain_damage.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 There are plenty of 'MS' Diets which can help us all - we should choose the one which helps us and best matches OUR individual dietary needs. Wahls has been good for some which is great, it just doesn't fit with my individual needs. I stick to the BBD. Each of us just have to choose our own way through it all. Ensuring we get the right nutrients into us is always the best way to start - remember to get an intolerance test done though! 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: indigomagic69@... Date: Mon, 30 Jul 2012 15:32:57 -0700 Subject: Re: The other side Hi to you all, I hope this finds you well. Please read the attached article on gluten and video done by a doctor diagnosed with MS who REVERSED the disease thru diet. Dr. Mercola's site has more info on MS as well. http://articles.mercola.com/sites/articles/archive/2011/12/23/overcoming-multipl\ e-sclerosis-through-diet.aspx http://www.naturalnews.com/035224_gluten_nervous_system_brain_damage.html [ Quote Link to comment Share on other sites More sharing options...
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