Re: Does this sound like MS?

June 21, 2012

Hi Penny,

Welcome to the group!

It appears you may have MS, but you will need further tests (such as an MRI) to

confirm the diagnosis.

If it turns out you do have MS, here is a website you may find helpful in

treating it:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

June 21, 2012

These things can be a part of 'MS' or any other number of conditions as

well.Have you had an MRI yet?You should look into taking LDN and changing your

diet/supplementation.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: coffeenut5@...

Date: Thu, 21 Jun 2012 01:15:39 +0000

Subject: Does this sound like MS?

Hello everyone, I am new here. I'm concerned after having several symptoms

that I might have MS. Am hoping someone can tell me if they have experienced

these and if they think this sounds like it or not. I'm 50 now. At age 14, I

woke up and couldn't see properly. I have several blind spots in my left eye, to

this day. They said optic neuritis. They did a spinal tap back then, (this was

1977), but said no MS. Much more recently, I have bilateral muscle cramps and

muscle weakness. Most alarming is when, after sitting for a period of time,

(like driving), and then standing up, the weakness overcomes me and I must sit

down again, (right away!) Muscle weakness, after rest! I wake up with this as

well, more often than not, lately. It is accompanied by shortness of breath.

Fatigue, 24/7. I've had that for years. Occasional light-headedness. Past blood

tests reveal an HLA-B27 antigen, significant to autoimmune disease.

Memory/forgetfulness as well. I would like to hear your thoughts, anyone who

would like to respond. I appreciate your reading this.

Penny

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.

June 21, 2012

I have not yet had an MRI. My doctor seems to think this is due to anxiety. What

is LDN?

>

> These things can be a part of 'MS' or any other number of conditions as

well.Have you had an MRI yet?You should look into taking LDN and changing your

diet/supplementation.

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

> To: mscured

> From: coffeenut5@...

> Date: Thu, 21 Jun 2012 01:15:39 +0000

> Subject: Does this sound like MS?

>

> Hello everyone, I am new here. I'm concerned after having several

symptoms that I might have MS. Am hoping someone can tell me if they have

experienced these and if they think this sounds like it or not. I'm 50 now. At

age 14, I woke up and couldn't see properly. I have several blind spots in my

left eye, to this day. They said optic neuritis. They did a spinal tap back

then, (this was 1977), but said no MS. Much more recently, I have bilateral

muscle cramps and muscle weakness. Most alarming is when, after sitting for a

period of time, (like driving), and then standing up, the weakness overcomes me

and I must sit down again, (right away!) Muscle weakness, after rest! I wake up

with this as well, more often than not, lately. It is accompanied by shortness

of breath.

>

> Fatigue, 24/7. I've had that for years. Occasional light-headedness. Past

blood tests reveal an HLA-B27 antigen, significant to autoimmune disease.

Memory/forgetfulness as well. I would like to hear your thoughts, anyone who

would like to respond. I appreciate your reading this.

>

> Penny

>

> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

>

> .

>

June 22, 2012

Penny,

I'm not a doctor but I'd say because your age and the fact that you already had

an MRI that was neg for MS (years ago), look into ruling other things out that

mimic MS. As someone who was improperly diagnosed with MS I will say get tested

for Lyme Disease as a starting point. IgeneX has one of the more sensitive and

definitive Western Blots in my opinion. If you already have one neg MS

diagnosis, it makes sense to see what else you may or may not have. Especially

in terms of things that mimic MS. The last thing you want to do is psych

yourself out about having MS. If you do get another MRI or Spinal tap, your

results could be mistaken for MS. Compounded with the case you may be looking

for that diagnosis you may miss something else that it could be, like Lyme.

Good Luck...........

Mike

June 22, 2012

Hi Penny and Dudley,

Low dose naltrexone works in MS by reducing apoptosis (cell death) of

oligodendrocytes, see here:

http://www.ncbi.nlm.nih.gov/pubmed/15694688

This property of reducing apoptosis, if extended to muscle cells, has been

something I've been searching for. In Feb. I requested a prescription from my

physician to test for LDN's ability to inhibit muscle cell apoptosis...He

refused.

However, I have come across an apoptosis inhibitor that also works for MS in the

same way as LDN only better, cheaper, and without a perscription! See here:

http://www.ctsaip.org/create-pdf.cfm?id=5893

low dose benadryl!

see my post later today for details.

>

> Hi Penny,

>

> Naltrexone is an inexpensive generic pharmaceutical approved by the U.S. Food

and Drug Administration for treating drug and alcohol addiction. In very low

doses (less than 1/10 that approved by the FDA), it is proving to be remarkably

effective in treating multiple sclerosis--with minimal side effects and at a

price anyone can afford.

>

> For more information about Low Dose Naltrexone (LDN), visit

>

> http://tinyurl.com/intro-to-ldn

>

> The above site features links to LDN-related research, case histories,

discussion groups, books, articles, and video clips.

>

> With best wishes,

>

> Dudley Delany

>

> http://profiles.yahoo.com/dudley_delany

>

June 23, 2012

Penny,

The other thing I urge you to consider is Lyme induced MS. People can carry

Lyme for a very long time and not know it. A healthy immune system is capable

of keeping the Lyme in check for years. After years of abuse like a poor diet,

unhealthy living and stress, the immune system gets compromised and things like

the Lyme bacteria/viruses get a foothold allowing them to flourish

uncontrollably. For me, I had years of emotional and self-induced physical

trauma that allowed my body to weaken. After being diagnosed with MS in Oct '06

I thought okay treat the MS. I did that for four years before finally my EBV,

after being dormant for years sprang up. I tried every Epstein Barr

neutralizing therapy to no avail. I read one day how Lyme can allow resident

viruses like Epstein Barr to flourish uncontrollably. It was at that ah ha

moment; not a test, that I knew I had Lyme and not just MS. I followed up my

intuition with a clinical diagnosis

from IgeneX to be certain. I also had a SPMS situation happening but no

clinical evedence of any new or active lesions to say it was active MS.. Lucky

for me because Lyme can cause white matter to show up in an MRI which further

supports MS activity. Don't get me wrong I'm not implying you have Lyme. I'm

merely suggesting the possibility. Often as in my case people can't even recall

having ever been bite or noticed a rash. Good Luck..........

Mike

June 23, 2012

My history:

April 2000 : six day period left eye goes from 20/15 to 20/400+ Diagnosed as

optic neuritis. Few months after, had my family doc test me for Lyme Disease.

Test indicated I did not have Lyme Disease. Saly, these tests are inaccurate.

April 2004 : MS diagnosis, take Rebif for one year, Copaxone for one year.

Aug 2006 : 2nd MS diagnosis by second neurologist.

sept 2006 : hire quack-ish physician and take LDN for one year then the German

intravenous MS drug calcium ethyl amino phosphate for one year

March 2008 : still losing strength, Hire out of state Lyme Doc and diagnosed

with Lyme Disease and about 6 co-ifections

2010 : Hire Lyme Doc #2, neuroborreliosis diagnosis

Dec 2011 : with LLMD #3 start IV antibiotics via a PICC line

Lyme Symptoms:

www.CanLyme.com

>

> Hello everyone, I am new here. I'm concerned after having several symptoms

that I might have MS.

> Penny

>

June 24, 2012

Mike,

If I didn't know better, I'd say that was my life you were telling here. I too

was dx'd in '06 w/MS, had a lot of the white matter on the brain.

Simultaneously I was experiencing severe brain fog, and 'episodes' (dizzy,

headaches, nauseous, weak, 'flashes', etc.) that is so characteristic of RRMS -

but I knew absolutely nothing about Lyme, and did not even suspect it. Mayo

Clinic didn't either - and they had no inclination to look further into it

(another reason I started taking charge of my own health).

After going organic & taking a lot of supps for a couple years I got a lot

better, but plateaued far short of where I was at just 10 years ago as far as

cognitive & physical abilities. So, hearing about so many other MS'rs (I think

it was on this group) that had Lyme, I live on a farm, have been bitten several

times while here, and gotten sick afterwards (although didn't connect the two at

the time), decided to get tested by a competent LLMD (Lyme Literate Med Doc).

Myself and my family (1-2 bands only) all came back positive on Lyme, with my

wife (who has no obvious symptoms) was the only one that had 5 bands - a CDC

positive. She doesn't even herx while going through treatment (I'm jealous).

I've taken abx, salt/C, & am currently rifing for the LYme - all those

treatments seem to produce the same basic 'herx' from killing the Lyme. So, I

feel I'm making progress, continuing to get better - the plateau is now behind

me, though it is a long journey.

I wonder where I'd be today had I started treatment for Lyme 6 years ago

instead.......

So, was my MS caused from my Lyme - I believe so, but hard to tell at this

point. It does amaze me how the symptoms between the two are so similar. I

do know that shortly after getting on the abx I had a few moments of clarity

that made me feel like " I'm back! " (I can think again). Alas, it didn't last

but gave me a lot of hope that I can get better. But, it is also why I started

looking at other methods for treatment (the clarity didn't last), not to mention

that I don't like what abx do the body.

I also believe that my MS symptoms would continue to slowly get worst without

treating my Lyme. So, if you've had symptoms of MS, and really want get well,

you should at least consider testing for Lyme - and you need to have it done

through an competent LLMD (still a regular MD, just educated on Lyme's ways),

regular MD's are not really up on the proper testing procedures & treatments.

If they test you and you fail the 'CDC standard' for LYme, they will say you

don't have it, but you still could, and it will just sit there and wreck havoc

on your immunities.

Just another to back up Mike's response.....

JimT

Sent from my iPad - Sorry for any typos

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June 24, 2012

I second Mike's reply. I had a similar experience; and along with Lyme induced

MS, I found Epstein Barr, Clamidia Pneumonia, HHV6 and some other co-infections

had taken up residence in my body. There are so many bacterial infections and

viruses out there that can wreak havoc on our bodies, and I believe getting

proper testing is crucial. It took me 3 years and more tests and docs than I

care to think about. But knowing your enemy is the only way to prepare for the

battle.

Jen

>

> Penny,

> The other thing I urge you to consider is Lyme induced MS. People can carry