Re: Question for others about crabs

[Guest guest]

Hi Jen,

Welcome to the group!

I'd be wary of the CRAB drugs, too.

Here is a website you may find helpful in treating your MS:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Hi Jen,

First off, fatigue and paresthesia may be caused by Chlamydia Pneumoniae or

lingering Lyme disease. Those symptoms alone are not cause for alarm.

Second, Multiple Sclerosis literally means many scars or many lesions. It

describes a collection of symptoms. There has been much speculation, but

researchers cannot prove a single underlying cause for everyone who has been

diagnosed with the condition MS. There could be several causes of " lesions " in

the CNS. (My LLMD calls my condition Lyme-induced MS.)

An MRI will show things like swelling, areas of increased signal activity, or

changes in the size/shape of the tissues like tumors or growths. Any " lesions "

that appear in an MRI cannot conclusively be associated with a specific loss of

function.

These pages explain " lesions " in layman's terms.

Scroll down to DIAGNOSING MS Testing MRIs

http://www.medhelp.org/health_pages/Multiple-Sclerosis/MS-Information-and-Resour\

ces-Index/show/22?cid=36

Third, " lesions " caused by Lyme disease activity can show up on an MRI and be

mistakenly attributed to the condition called MS.

Jumping to the conclusion that " …new lesions all over… " is evidence of disease

progression is not a valid conclusion. You stated that you are " …still

relatively healthy, and able to get around unassisted and work a full time job. "

Let your level functioning be your gauge to appraise your degree of disability.

Therefore, my suggestions are to set fear aside (do not choose to begin taking

any pharmaceutical based on your fear of what could happen if you do not choose

it), and keep treating the identified, underlying infections.

KC

>

> I'm new to the group and need some direction. I was diagnosed in 2009 with MS,

but had my doubts. I spent the next year going to multiple docs, finally

discovering I had Lyme, Cpn, HHV6, and some other nasty bacteria/viruses. I

treated everything with the assistance of my LLMD (or so I thought). I decided

to go completely natural this past March, and have a pretty healthy diet

(eliminated dairy, sugars, white flours).

>

> A follow-up Neuro at the suggestion of my LLMD showed new lesions all over and

disease progression. This of course scared the bejesus out of me and I agreed to

start a CRAB. I have my first avonex injections arriving today. I've read some

stuff by Dr Perlmutter who speaks to avonex being effective against Cpn,

but i still am not convinced.

>

> I'm scared because of the damage, but I'm even more scared to start a crab. I

know this group uses natural methods primarily, so I need some advice. I'm still

relatively healthy, and able to get around unassisted and work a full time job.

Fatigue and parenthesia are my biggest complaints. I'm back on antibiotics to

address the Cpn, and take a ton of supplements.

>

> Anyone have any insights? I don't know what else to do other than overhaul my

diet.

> Jen

>

[Guest guest]

KC, you put this in the best words ever! Love it!

Connected by DROID on Verizon Wireless

Re: Question for others about crabs

Hi Jen,

First off, fatigue and paresthesia may be caused by Chlamydia Pneumoniae or

lingering Lyme disease. Those symptoms alone are not cause for alarm.

Second, Multiple Sclerosis literally means many scars or many lesions. It

describes a collection of symptoms. There has been much speculation, but

researchers cannot prove a single underlying cause for everyone who has been

diagnosed with the condition MS. There could be several causes of " lesions " in

the CNS. (My LLMD calls my condition Lyme-induced MS.)

An MRI will show things like swelling, areas of increased signal activity, or

changes in the size/shape of the tissues like tumors or growths. Any " lesions "

that appear in an MRI cannot conclusively be associated with a specific loss of

function.

These pages explain " lesions " in layman's terms.

Scroll down to DIAGNOSING MS Testing MRIs

http://www.medhelp.org/health_pages/Multiple-Sclerosis/MS-Information-and-Resour\

ces-Index/show/22?cid=36

Third, " lesions " caused by Lyme disease activity can show up on an MRI and be

mistakenly attributed to the condition called MS.

Jumping to the conclusion that " Â…new lesions all overÂ… " is evidence of disease

progression is not a valid conclusion. You stated that you are " Â…still

relatively healthy, and able to get around unassisted and work a full time job. "

Let your level functioning be your gauge to appraise your degree of disability.

Therefore, my suggestion

[Guest guest]

Scary days indeed !

Monitor your time on Avonex. I took walks while carrying my GPS. That is how I

measured Rebif making my walking worse.

>

> I'm new to the group and need some direction. I was diagnosed in 2009 with MS,

but had my doubts. I spent the next year going to multiple docs, finally

discovering I had Lyme, Cpn, HHV6, and some other nasty bacteria/viruses. I

treated everything with the assistance of my LLMD (or so I thought). I decided

to go completely natural this past March, and have a pretty healthy diet

(eliminated dairy, sugars, white flours).

>

> A follow-up Neuro at the suggestion of my LLMD showed new lesions all over and

disease progression. This of course scared the bejesus out of me and I agreed to

start a CRAB. I have my first avonex injections arriving today. I've read some

stuff by Dr Perlmutter who speaks to avonex being effective against Cpn,

but i still am not convinced.

>

> I'm scared because of the damage, but I'm even more scared to start a crab. I

know this group uses natural methods primarily, so I need some advice. I'm still

relatively healthy, and able to get around unassisted and work a full time job.

Fatigue and parenthesia are my biggest complaints. I'm back on antibiotics to

address the Cpn, and take a ton of supplements.

>

> Anyone have any insights? I don't know what else to do other than overhaul my

diet.

> Jen

>

[Guest guest]

I successfully addressed my Cpn and mycoplama co-infections with coconut oil,

curcumin and TOA Free Cat's Claw. But overhauling the diet is critical. We all

must learn the correlation between leaky gut, dairy, beef and of course our

individual food sensitivities. is right. Once the trigger has been

pulled, there is no going back to those foodstuffs. Being male I had to learn

this the hard way, haha. The bible verse, " a fool returns to his folly, as a dog

returneth to his vomit " is now indelibly etched in my brain.

   By following the links, put in the open letter to msers(thank you Dudley

Delaney), I have been successful in rebuilding my body without any drugs. But by

following those links and other sources, I mean DOING it. Digging. Relentlessly.

Zero tolerance of adulterated foods in my house.