Re: Re: Rebif/ and Paleo diet

[Guest guest]

I ended up on rebif first thing also. Sent home

with a stack of books half as tall as me with

less than 2 weeks to look at the stuff. Working

60-70 hour weeks at the time. I was not given

the opportunity to do the research required for a

valid choice. Less than 3 months later I lost use

of my hands (among other symptoms) and was

terminated by my employer because I became

disabled. Checking into new neurologists and was

told by 1 that rebif should not even be offered after a first attack.

The new guy may be ok, I hope. I have been

desperately seeking a competent neurologist for

nearly 7 years. I did not choose the first guy

and in order to change I would have needed to

find a new office and convince the pc to give a

referral. One thing, I am done with the first

jerk and am considering a report to the ama.

Valery

At 11:39 AM 7/10/2012, you wrote:

>

>

>

>

>I'm another one who was basically frightened by

>the neuro into using Rebif shortly after

>diagnosis. I could only tolerate it for 7

>months, partly due to the side effects, and

>also, I think it caused a rapid worsening of my symptoms.

>

>I'm currently exploring the whole Paleo

>paradigm, and have found some people whose MS

>symptoms have much improved with it. Here's an example:

>

><http://www.nutrisclerosis.com/>http://www.nutrisclerosis.com/

>

>With Paleo eating, you want to definitely eat

>meats, but avoid meats that contain any hormones

>or antibiotics, and also avoid animals that were

>grain fed. So, we're looking for grass fed beef, wild fish, etc.

>

>In addition to avoiding grains, dairy, sugar,

>etc., it is suggested that people with

>autoimmune illnesses avoid additional food

>types, such as nuts and seeds, eggs, nightshade

>plants, and others. It certainly doesn't look easy!

>

>Alice

>

>

> > >

> > > Boy does this bring back memories! I had my entire house set up so that

> > > I could grab onto something from the couch to the bathroom. I even had

> > > bookshelves back to back in the middle of a room.

> > >

> > > I have been on a LONG journey just like everyone on here. Right now, I

> > > am totally off meds, no gadget to help me get around, I can slip my

> > > shoes on while standing on one leg. I was dx in 2005 and have gone from

> > > wheelchair bound to being able to do a lot of things. This doesn't mean

> > > I dont have other problems though.

> > >

> > > I truly believe the rebif and other meds has caused my body to turn

> > > against itself. That doesn't mean it is so but I do know, my outcomes

> > > are much higher using natural methods. I have thyroidtoxicosis,

> > > diabetes, high blood pressure and severe gastro-intestinal issues that

> > > have yet to be diagnosed - oh and let's not forget the narcolepsy

> > > (sleeping disease).

> > >

> > > I believe the poster who mentioned diet and repairing is totally

> > > correct, fix the problem, don't add more problems to fix another

> > > problem. I am starting the McDougall Diet... its a slow process to get

> > > off of meat and dairy but I am off dairy and now am working toward

> > > getting totally off of meat. I will let you know if I have a good

> > > outcome, I am going to give it a year and hopefully keep my thyroid!

> > >

> > >

> > >

> >

>

>

[Guest guest]

The good neurologists are few and far between. I have been through 5 and

looking for the 6th. They are taught that drugs are the only answer and it’s

just pathetic how they don’t even discuss nutrition, diet, physical therapy,

etc. You have to practically pull everything out of them and none of them have

the time to deal with your problems. If I wasn't a nurse and didn’t know

better, I would have been on those nasty meds too. You basically do what the

doctor tells you and trust him. It’s just sad.

From: saqqaraby1@...

Sent: Tuesday, July 10, 2012 11:26 AM

To: mscured

Subject: Re: Re: Rebif/ and Paleo diet

I ended up on rebif first thing also. Sent home

with a stack of books half as tall as me with

less than 2 weeks to look at the stuff. Working

60-70 hour weeks at the time. I was not given

the opportunity to do the research required for a

valid choice. Less than 3 months later I lost use

of my hands (among other symptoms) and was

terminated by my employer because I became

disabled. Checking into new neurologists and was

told by 1 that rebif should not even be offered after a first attack.

The new guy may be ok, I hope. I have been

desperately seeking a competent neurologist for

nearly 7 years. I did not choose the first guy

and in order to change I would have needed to

find a new office and convince the pc to give a

referral. One thing, I am done with the first

jerk and am considering a report to the ama.

Valery

At 11:39 AM 7/10/2012, you wrote:

>

>

>

>

>I'm another one who was basically frightened by

>the neuro into using Rebif shortly after

>diagnosis. I could only tolerate it for 7

>months, partly due to the side effects, and

>also, I think it caused a rapid worsening of my symptoms.

>

>I'm currently exploring the whole Paleo

>paradigm, and have found some people whose MS

>symptoms have much improved with it. Here's an example:

>

><http://www.nutrisclerosis.com/>http://www.nutrisclerosis.com/

>

>With Paleo eating, you want to definitely eat

>meats, but avoid meats that contain any hormones

>or antibiotics, and also avoid animals that were

>grain fed. So, we're looking for grass fed beef, wild fish, etc.

>

>In addition to avoiding grains, dairy, sugar,

>etc., it is suggested that people with

>autoimmune illnesses avoid additional food

>types, such as nuts and seeds, eggs, nightshade

>plants, and others. It certainly doesn't look easy!

>

>Alice

>

>

> > >

> > > Boy does this bring back memories! I had my entire house set up so that

> > > I could grab onto something from the couch to the bathroom. I even had

> > > bookshelves back to back in the middle of a room.

> > >

> > > I have been on a LONG journey just like everyone on here. Right now, I

> > > am totally off meds, no gadget to help me get around, I can slip my

> > > shoes on while standing on one leg. I was dx in 2005 and have gone from

> > > wheelchair bound to being able to do a lot of things. This doesn't mean

> > > I dont have other problems though.

> > >

> > > I truly believe the rebif and other meds has caused my body to turn

> > > against itself. That doesn't mean it is so but I do know, my outcomes

> > > are much higher using natural methods. I have thyroidtoxicosis,

> > > diabetes, high blood pressure and severe gastro-intestinal issues that

> > > have yet to be diagnosed - oh and let's not forget the narcolepsy

> > > (sleeping disease).

> > >

> > > I believe the poster who mentioned diet and repairing is totally

> > > correct, fix the problem, don't add more problems to fix another

> > > problem. I am starting the McDougall Diet... its a slow process to get

> > > off of meat and dairy but I am off dairy and now am working toward

> > > getting totally off of meat. I will let you know if I have a good

> > > outcome, I am going to give it a year and hopefully keep my thyroid!

> > >

> > >

> > >

> >

>

>