New Member

[Guest guest]

Hi , Welcome to this wonderful group. My name is a B

(a C is the mean one, so beware!). I have been happily married

for 32 years and am the mother of 2 married sons and the grandma of 3

perfect little people. I was fortunate in that even though I was

symptomatic for several years, I wasn't diagnosed with Lupus and

Fibromyalgia until after our boys were grown. I ended up being

unable to work as a nurse because of my illnesses. Even though this

was hard, it was good in that the boys were raised. I know how you

feel about not being able to hold a child on your lap because this is

how it is with my grandchildren...much harder though if you're the

Mom. I have had all of your symptoms- I have lupus headaches

(migraine like)- I have had numbness and visual difficulties - I've

not had problems with blood clotting, but most certainly have had

difficulty with pain in all my joints and muscles. I have seen a ton

of doctors. I hated it, but felt confident when my diagnoses was

made. You will find a lot of support from this group and at least

one and probably several members who have experienced what you are

going through at any given time. Don't hesitate to talk about

anything. has provided us with a lot of great information and

I suggest you read this. I also suggest you educate yourself by

reading about Lupus, etc. online and at the library. Just make sure

what what you read is current information. Hugs - a B.

> Hello everyone

> My name is and I am 22 about to be 23 next month. I am a

stay-

> at-home mother of 2 little girls Avery,3 and Sloan 20 months. I

> joined this group to be able to speak to someone about what I am

> feeling at midnight if need be. My stepmother was diagnosed with

> Lupus about 8 years ago and I can talk to her during the day but I

am

> sure she would appreciate her rest during the night when I need to

> vent. My symptoms started out with a horrible pain at one point in

> my head, they thought that it may have been a tumor at first and

did

> all the test to rule it out. Well that came back negative and then

> they went to MS because my hands fell asleep and my whole left side

> would go numb and then my right eye would go blind for minutes at a

> time. I had terrible dizziness and still do. Well the neurologist

> ruled out MS but in the process did blood work and found that my

> blood was clotting and sent me to a Hematologist. I have been

going

> to my appointments with him for the last 6 months and after being

> poked and proded like a cow, he now wants me to see the

> Rheumatologist. Reason being is that my legs and hip have been

> killing me. I have good circulation he says but to me it feels

like

> someone is stabbing me in the legs and hips. It hurts so bad at

> times I feel like I am going to throw my guts up. GROSS!!!!! So

he

> says that for now he thinks it is Lupus and wants to involve the

> Rheumatologist to start treatment. I am very scared because I have

> heard the outcome of the disease is not so good at times.

Depending

> on the severity. My aunt has fibromalaysia, which I just found out

> and sometimes when I bend over to pick up some toys or stand up

from

> my chair in the living room or get upset over something I can

hardly

> breath, I feel like I just ran 2 blocks. Has anyone else here

> experienced any of this? What can you guys tell me to expect as

far

> as medications for treatment. I am a mom and my girls need me so I

> will do anything. They of course don't understand why mommy can

run

> around or sometimes the can't sit on my lap because my hips feel

like

> they will burst if they do. Thanks for the feedback and support.

> Please don't hesitate to write to me with your venting.

>

[Guest guest]

Hi all. My name is , and I am a type 1 diabetic. I have been a diabetic

for 37 years since I was 2. I've been on the pump for about 4 years. I just

thought I'd join the group and say hi.

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Hope you come back soon!

[Guest guest]

Hi

Thanks for the 'heads up' on Robaxin - I have bought a bottle and will

give it a try...I am always willing to try!!

Thanks

> Hi

> My name is , I am 45 with 4 kids, and I was given the FMS

> diagnosis in 1998 - I went through the anti-depresent and after

> no improvement I gave up and started figuring out for myself what

> worked for me. I developed hip bursitis last year and saw a

> specialist for that and he confirmed the FMS and felt there was no

> help that he could give - such is the state of medicine in rural

> Ontario Canada.

>

> I am interested to know if anyone has experienced ongoing Shingles

> with their FMS - I break out in a rash 2 or 3 times a year.

>

> Thanks

>

>

>

>

>

[Guest guest]

Welcome Brad,

There are several of us type 1's the list. Ihave been type 1 since 1944-I

am now 66 years old. I still have my kidneys, but am blind and have other

cardio-vascular problems

Are you on a pump, or are you no longer diabetic?

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

N75,N85

__________ NOD32 4002 (20090411) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

[Guest guest]

No I am not on a pumpNo I am not on a pump and yes I am still diabetic. My

pancreas transplant failed in less then a year after the surgery in April of

'99. The kidney I also received that day also failed but that lasted until

2003. I am now back on insulin.

new member

>

>

>

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

> N75,N85

>

>

>

>

>

> __________ NOD32 4002 (20090411) Information __________

>

> This message was checked by NOD32 antivirus system.

> http://www.eset.com

>

>

>

>

[Guest guest]

Hi Brad,

Welcome to the list. I've had type 1 diabetes since I was 9 and am now 27. I

use an insulin pump and so far have no complications -- and am hoping to

keep it that way!

Jen

[Guest guest]

Thank you. I have been asked why I don't use the pump but am not sure how

accessible any of them really are. I am alone a lot and with no one around

to help not sure if I really want to take the chance of screwing something

up. I have a tendency t odrop like a rock and can have difficulty bringing

it back up.

RE: new member

> Hi Brad,

>

> Welcome to the list. I've had type 1 diabetes since I was 9 and am now 27.

> I

> use an insulin pump and so far have no complications -- and am hoping to

> keep it that way!

>

> Jen

>

>

[Guest guest]

Hello Brad,

Welcome you the lists. My name is have diabetes type 2 and insulin

independent.

O. Gethers

e-mail address : oag1rottie@... or O.Gethers@...

window live messenger: oag1rottie@... aim: durangoadd64 skype: cowboys62

yahoo messenger: OADDISONGETHERS

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03@...

N75,N85

[Guest guest]

Hi Brad

welcome aboard, I am Sugar, and am having a ehem, birthday this May, and I am

both a kidney and pancreas transplanted patient.

kidney in 2001(donated) and pancreas in 2003(mother's day)

I've never been through dialysis, and am glocose tolerant, so know that you fit

in here just fine.

enjoy and hope to know more of you.

sugar

" I would rather walk in the dark with Jesus

than to walk in the light on my

own. "

Be Blessed

Sugar

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03@...

N75,N85

[Guest guest]

Welcome aboard Brad.

Do you know if there is a specific cause for your blindness or kidney losses?

Here to learn,

Harry

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03@...

N75,N85

[Guest guest]

It all relates to the diabetes. The loss of eyesight was caused by Diabetic

Reenopathy and the kidney problems are enstage remel failure.

new member

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since

> 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03@...

> N75,N85

>

>

>

>

>

>

[Guest guest]

Welcome to the list!

Kell

MSN: Kell@...

Skype: KlarssonNY

" I have never been able to find out precisely what feminism is: I only know that

people call me a feminist whenever I express sentiments that differentiate me

from a doormat or a prostitute. " -- West

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03@...

N75,N85

[Guest guest]

yep, me to, but we are here, and alive, and well, at least for me, I'm happy

knowing that I have more years to be with my family.

Sugar

" I would rather walk in the dark with Jesus

than to walk in the light on my

own. "

Be Blessed

Sugar

new member

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since

> 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03@...

> N75,N85

>

>

>

>

>

>

[Guest guest]

I like your quote sugar.

Kell

MSN: Kell@...

Skype: KlarssonNY

" I have never been able to find out precisely what feminism is: I only know that

people call me a feminist whenever I express sentiments that differentiate me

from a doormat or a prostitute. " -- West

new member

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since

> 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03@...

> N75,N85

>

>

>

>

>

>

[Guest guest]

auauauauh, thanks hun, only the truth

sugar

" I would rather walk in the dark with Jesus

than to walk in the light on my

own. "

Be Blessed

Sugar

new member

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since

> 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03@...

> N75,N85

>

>

>

>

>

>

[Guest guest]

It is kind of weird that with everything I have had to go through over the

years I am ok with it and it really doesn't phase me. Nurse says " OK I need

some bl... " and I already have the sleeve rooled up. Can't let it get me

down. I have finally got something good going in my life and am happier then

I have been in almost 15 years.

new member

> >

> >

> >

> >

> >

> > Hello I am a new member of this list. I have been totally blind since

> > 1996

> > and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> > also

> > have had 2 Kidney and 1 pancreas transplants.

> > Brad Keller

> > kellerb03@...

> > N75,N85

> >

> >

> >

> >

> >

> >

[Guest guest]

Amen!

Isn't it funny how all of a sudden, when something tradgic or life changing

occurs in our lives, it is when we get to really know who we really are?

we all have a reason why we are here, though we will never know, and why waste

precious time asking, (I think)

just enjoy the little pleasures that are left?

God is good all the time...and all the time God is good

blessings

Sugar

" I would rather walk in the dark with Jesus

than to walk in the light on my

own. "

Be Blessed

Sugar

new member

> >

> >

> >

> >

> >

> > Hello I am a new member of this list. I have been totally blind since

> > 1996

> > and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> > also

> > have had 2 Kidney and 1 pancreas transplants.

> > Brad Keller

> > kellerb03@...

> > N75,N85

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you for that. In the last 6 months I have had my life pushed in a new

direction that has led me back to who I really am and I am enjoying every

second minute hour day week and month of it. (Thank you Rebel Princess)

new member

> > >

> > >

> > >

> > >

> > >

> > > Hello I am a new member of this list. I have been totally blind since

> > > 1996

> > > and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> > > also

> > > have had 2 Kidney and 1 pancreas transplants.

> > > Brad Keller

> > > kellerb03@...

> > > N75,N85

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

While your losses are due to diabetes, do you think running high bs levels or

high spikes in your bs had any thing to do with diabetic complications?

just curious,

Harry

new member

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since

> 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03@...

> N75,N85

>

>

>

>

>

>

[Guest guest]

Oh absolutely it does. The occaisional high I don't think really matters to

much but it's the overall A1C over time that will tell. Experience talking

here.

new member

> >

> >

> >

> >

> >

> > Hello I am a new member of this list. I have been totally blind since

> > 1996

> > and have been a Type 1 diabetic since the age of 4 and I am now 37. I

> > also

> > have had 2 Kidney and 1 pancreas transplants.

> > Brad Keller

> > kellerb03@...

> > N75,N85

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Brad,

I am also a 2 kidney pancreas transplant patient. I received my first

pancreas transplant 11 years ago when I was 26 and needed a second kidney

transplant in 2003. My fiancé donated his kidney to me and for the moment

everything is going well. Where did you receive your transplants?

Becky

_____

From: blind-diabetics

[mailto:blind-diabetics ] On Behalf Of Brad Keller

Sent: Wednesday, April 15, 2009 1:14 PM

To: Blind Diabetics

Subject: new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

N75,N85

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.287 / Virus Database: 270.11.57/2060 - Release Date: 04/15/09

06:34:00

[Guest guest]

I had them done at Chicago's Northwestern Memorial Hospital. The first one

was a Kidney/Pancreas in April 1999 and the 2nd Kidney Transplant was in

July 2007. Back on insulin but the 2nd Kidney is doing good.

new member

Hello I am a new member of this list. I have been totally blind since 1996

and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

have had 2 Kidney and 1 pancreas transplants.

Brad Keller

kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

N75,N85

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.287 / Virus Database: 270.11.57/2060 - Release Date: 04/15/09

06:34:00

[Guest guest]

Heya,

I was 20 when my too precious for words mother donated a kidney to me.

It’ll be 3 years come this June, and although many things have

happened as a result, (becoming an insulin-dependant diabetic being

one of them) I wouldn’t give up my last years on this plane for

anything in the world.

Good to have you here,

Nef

> I had them done at Chicago's Northwestern Memorial Hospital. The first one

> was a Kidney/Pancreas in April 1999 and the 2nd Kidney Transplant was in

> July 2007. Back on insulin but the 2nd Kidney is doing good.

> new member

>

>

>

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

> N75,N85

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.287 / Virus Database: 270.11.57/2060 - Release Date: 04/15/09

> 06:34:00

>

>

>

>

>

[Guest guest]

Thank you. Did you ever get rid of that 6682?

new member

>

>

>

>

>

>

>

>

> Hello I am a new member of this list. I have been totally blind since 1996

> and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

> have had 2 Kidney and 1 pancreas transplants.

> Brad Keller

> kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

> N75,N85

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.287 / Virus Database: 270.11.57/2060 - Release Date: 04/15/09

> 06:34:00

>

>

>

>

>

[Guest guest]

For reasons unbeknownst to me, your question made me laugh-out-loud.

This is hardly the place to discuss such a thing but I’ll tell you

that I’m pretty close to having it recycled.

> Thank you. Did you ever get rid of that 6682?

> new member

>>

>>

>>

>>

>>

>>

>>

>>

>> Hello I am a new member of this list. I have been totally blind since 1996

>> and have been a Type 1 diabetic since the age of 4 and I am now 37. I also

>> have had 2 Kidney and 1 pancreas transplants.

>> Brad Keller

>> kellerb03gmail (DOT) <mailto:kellerb03%40gmail.com> com

>> N75,N85

>>

>>

>>

>> No virus found in this incoming message.

>> Checked by AVG - www.avg.com

>> Version: 8.5.287 / Virus Database: 270.11.57/2060 - Release Date: 04/15/09

>> 06:34:00

>>

>>

>>

>>

>>