Re: NMO Test

August 15, 2012

Okay I have a question for eveyone here..... My husband was diagnosed with MS

and Confirmed again this April that he has MS. Now the dr's are doing a NMO

Antibody test. He is actually doing better that we have him all all drugs

(except his insulin for his diabetes). He can actually walk short distances with

assistance now and does more things for himself. Which is this more indicitave

of? This being MS or Neuromyelitis Optica? Or is it both? We just had his eyes

examined and other than age related changes nothing new. The optomitrist

dialated his eyes and checked everything over well. I'm confused and anxious to

say the least.

Our Neuro by the way is happy with his progress without the drugs (he was

pushing for them but sees more improvement with DH off so 3 months no drugs

unless there is a relapse). So we will keep on with diet and exercise and

keeping him cool and comfy and see how that works but now we are both a bit

stressed with this 9th inning testing....

Donna in SC

" If you don't like something change it; if you can't change it, change the way

you think about it. "

~ Engelbreit

August 15, 2012

Hi Donna,

He probably has MS. NMO primarily affects females (4 to 1).

This site presents other possible MS treatment options:

http://www.webspawner/com/users/openlettertomsers/index.html

All the best,

Dudley Delany

http://facebook.com/dudley.delany

August 15, 2012

Thank you Dudley, I have read this before. I'm just a bit concerned because

there were so many attempts to get DH to take the crab drugs. We tried a couple

of them just to try to keep him working and moving around. He was so active

before this struck him including playing soccer and working 12 hours day in the

construction industry as a structural engineer. It has been very hard for him to

be in a wheel chair so we are truely hoping that the diet changes we have made

and the exercise program we are working out (stretches, walking and riding a

recumbant bike) without it being to much for him all while keeping his diabetes

under control has been something of a struggle. There have been alot of stresses

on him. I ended up being diagnosed with Hemiparisis migrains and chronic

migrains (along with a long list of other ailments) and our youngest son was

just diagnosied with Diabetes as well. All in all stressful but we are working

on it and will continue to

progress as best we can.

Donna in SC

" If you don't like something change it; if you can't change it, change the way

you think about it. "

~ Engelbreit

>________________________________

>

>To: mscured

>Sent: Wednesday, August 15, 2012 2:57 PM

>Subject: Re: NMO Test

>

>Â

>

>Hi Donna,

>

>He probably has MS. NMO primarily affects females (4 to 1).

>

>This site presents other possible MS treatment options:

>

>http://www.webspawner/com/users/openlettertomsers/index.html

>

>All the best,

>

>Dudley Delany

>

>http://facebook.com/dudley.delany

>

August 16, 2012

Was diagnosed with MS in 2004 and took Rebif for one year. bytaking walks with

my GPS, measured the Rebif meking me weaker. Took Copaxone for one year. Felt

mentally strange / spooked. Quit the Copaxone.

Hired a second neurologist 2006, got a second MS diagnosis. That neuro

sughgested Betaseron. Felt that the active ingredient was so similair to Rebif,

that I decided not to take the Betaseron.

Hired a quack-ish MD, and took LDN for one year. Still losing strength.

Switched to the German intravenous MS drug Calcium ethyl amino phosphate (EAP)

for one year. Still losing strength.

Hired an out of state Lyme Literate Medical Doctor (LLMD) in 2008 and was

diagnosed with Lyme Disease and several co-infections. Had a brief period of

having my normal healthy strength, then I suddenly lost 30 lbs and had to start

using two canes to move about. Stayed wth LLMD #1 for two years. Never

regained any strength.

Hired LLMD #2. Had some brief, yert impressive results with intrumuscualr

Claforan.

A new LLMD, my LLMD #3, that is 20 min from my home, open a new practice.

So, have TWO MS diagnoses and THREE neuroborreliosis, aka Lyme Disease,

diagnoses. I'm still sick :-(

>

> Okay I have a question for eveyone here..... My husband was diagnosed with MS

and Confirmed again this April that he has MS. Now the dr's are doing a NMO

Antibody test. He is actually doing better that we have him all all drugs

(except his insulin for his diabetes). He can actually walk short distances with

assistance now and does more things for himself. Which is this more indicitave

of? This being MS or Neuromyelitis Optica? Or is it both? We just had his eyes

examined and other than age related changes nothing new. The optomitrist

dialated his eyes and checked everything over well. I'm confused and anxious to

say the least.

> Our Neuro by the way is happy with his progress without the drugs (he was

pushing for them but sees more improvement with DH off so 3 months no drugs

unless there is a relapse). So we will keep on with diet and exercise and

keeping him cool and comfy and see how that works but now we are both a bit

stressed with this 9th inning testing....

>

> Donna in SC

> " If you don't like something change it; if you can't change it, change the way

you think about it. "

> ~ Engelbreit

>

August 16, 2012

Sure can relate Dan. I do best with no drugs and with a good attitude. I think

I have made peace with it all and am happy anyway. For years I doctored so much

but found it an inexact science. So many I know get so many different

diagnoses. It is what it is, whatever one calls it? One can still have a great

life even without the drugs or with them too if one chooses. Your words are

good words to remember . Thanks, Diane

From: Dan Weatherington

Sent: Thursday, August 16, 2012 7:12 AM

To: mscured

Subject: NMO Test

Sir R did what so many do, he looked for a cure. I did twenty years ago

until a friend of mine, also a general practitioner, told me very sincerely,

" Dan, right now, there is no cure. When a cure comes out, you'll know it.

Quit playing guinea pig. " I had watched one guy who was diagnosed at the

same time as me go through every penny of savings he and his parents had

looking for a cure. He played the bee stings, the colloidal silver, he

played every med a neuro would prescribe. He found no cure.

So, right now, I will repeat, " Right now, there is no cure. When a cure

comes out you'll know it. Quit being a guinea pig. "

Thanks,

Dan

http://danweatherington.com

http://danweatherington.blogspot.com

From: mailto:mscured%40yahoogroups.com [mailto:mailto:mscured%40yahoogroups.com]

On Behalf Of

SirR

Sent: Thursday, August 16, 2012 9:51 AM

To: mailto:mscured%40yahoogroups.com

Subject: Re: NMO Test

Was diagnosed with MS in 2004 and took Rebif for one year. bytaking walks

with my GPS, measured the Rebif meking me weaker. Took Copaxone for one

year. Felt mentally strange / spooked. Quit the Copaxone.

Hired a second neurologist 2006, got a second MS diagnosis. That neuro

sughgested Betaseron. Felt that the active ingredient was so similair to

Rebif, that I decided not to take the Betaseron.

Hired a quack-ish MD, and took LDN for one year. Still losing strength.

Switched to the German intravenous MS drug Calcium ethyl amino phosphate

(EAP) for one year. Still losing strength.

Hired an out of state Lyme Literate Medical Doctor (LLMD) in 2008 and was

diagnosed with Lyme Disease and several co-infections. Had a brief period of

having my normal healthy strength, then I suddenly lost 30 lbs and had to

start using two canes to move about. Stayed wth LLMD #1 for two years. Never

regained any strength.

Hired LLMD #2. Had some brief, yert impressive results with intrumuscualr

Claforan.

A new LLMD, my LLMD #3, that is 20 min from my home, open a new practice.

So, have TWO MS diagnoses and THREE neuroborreliosis, aka Lyme Disease,

diagnoses. I'm still sick :-(

>

> Okay I have a question for eveyone here..... My husband was diagnosed with

MS and Confirmed again this April that he has MS. Now the dr's are doing a

NMO Antibody test. He is actually doing better that we have him all all

drugs (except his insulin for his diabetes). He can actually walk short

distances with assistance now and does more things for himself. Which is

this more indicitave of? This being MS or Neuromyelitis Optica? Or is it

both? We just had his eyes examined and other than age related changes

nothing new. The optomitrist dialated his eyes and checked everything over

well. I'm confused and anxious to say the least.

> Our Neuro by the way is happy with his progress without the drugs (he was

pushing for them but sees more improvement with DH off so 3 months no drugs

unless there is a relapse). So we will keep on with diet and exercise and

keeping him cool and comfy and see how that works but now we are both a bit

stressed with this 9th inning testing....

>

> Donna in SC

> " If you don't like something change it; if you can't change it, change the

way you think about it. "

> ~ Engelbreit

>

August 16, 2012

I agree with all of you. I refused to go on any of the DMDâ€™s after reading

all the negative info and blogs about them, ( thanks to all of you). All they

do is destroy your immune system and give you other problems. The lumbar

puncture nearly killed me and I believe I am worse because of it.

I think the best thing you can do is know your body and do everything you can to

eat better and take supplements that make you feel healthier. I am on LDN and

many supplements and I research things very carefully. Basically doctors have

a set plan on what they are suppose to do when you get X.... you do X. They

have no idea what we go through. Nobody does until you have been through it.

Even my friends say well, you should just exercise more... duh, they just

donâ€™t get it.

From: DIane Rauch

Sent: Thursday, August 16, 2012 8:46 AM

To: mscured

Subject: Re: NMO Test

Sure can relate Dan. I do best with no drugs and with a good attitude. I think I

have made peace with it all and am happy anyway. For years I doctored so much

but found it an inexact science. So many I know get so many different diagnoses.

It is what it is, whatever one calls it? One can still have a great life even

without the drugs or with them too if one chooses. Your words are good words to

remember . Thanks, Diane