NMO Test

[Guest guest]

Sir R did what so many do, he looked for a cure. I did twenty years ago

until a friend of mine, also a general practitioner, told me very sincerely,

" Dan, right now, there is no cure. When a cure comes out, you'll know it.

Quit playing guinea pig. " I had watched one guy who was diagnosed at the

same time as me go through every penny of savings he and his parents had

looking for a cure. He played the bee stings, the colloidal silver, he

played every med a neuro would prescribe. He found no cure.

So, right now, I will repeat, " Right now, there is no cure. When a cure

comes out you'll know it. Quit being a guinea pig. "

Thanks,

Dan

http://danweatherington.com

http://danweatherington.blogspot.com

From: mscured [mailto:mscured ] On Behalf Of

SirR

Sent: Thursday, August 16, 2012 9:51 AM

To: mscured

Subject: Re: NMO Test

Was diagnosed with MS in 2004 and took Rebif for one year. bytaking walks

with my GPS, measured the Rebif meking me weaker. Took Copaxone for one

year. Felt mentally strange / spooked. Quit the Copaxone.

Hired a second neurologist 2006, got a second MS diagnosis. That neuro

sughgested Betaseron. Felt that the active ingredient was so similair to

Rebif, that I decided not to take the Betaseron.

Hired a quack-ish MD, and took LDN for one year. Still losing strength.

Switched to the German intravenous MS drug Calcium ethyl amino phosphate

(EAP) for one year. Still losing strength.

Hired an out of state Lyme Literate Medical Doctor (LLMD) in 2008 and was

diagnosed with Lyme Disease and several co-infections. Had a brief period of

having my normal healthy strength, then I suddenly lost 30 lbs and had to

start using two canes to move about. Stayed wth LLMD #1 for two years. Never

regained any strength.

Hired LLMD #2. Had some brief, yert impressive results with intrumuscualr

Claforan.

A new LLMD, my LLMD #3, that is 20 min from my home, open a new practice.

So, have TWO MS diagnoses and THREE neuroborreliosis, aka Lyme Disease,

diagnoses. I'm still sick :-(

>

> Okay I have a question for eveyone here..... My husband was diagnosed with

MS and Confirmed again this April that he has MS. Now the dr's are doing a

NMO Antibody test. He is actually doing better that we have him all all

drugs (except his insulin for his diabetes). He can actually walk short

distances with assistance now and does more things for himself. Which is

this more indicitave of? This being MS or Neuromyelitis Optica? Or is it

both? We just had his eyes examined and other than age related changes

nothing new. The optomitrist dialated his eyes and checked everything over

well. I'm confused and anxious to say the least.

> Our Neuro by the way is happy with his progress without the drugs (he was

pushing for them but sees more improvement with DH off so 3 months no drugs

unless there is a relapse). So we will keep on with diet and exercise and

keeping him cool and comfy and see how that works but now we are both a bit

stressed with this 9th inning testing....

>

> Donna in SC

> " If you don't like something change it; if you can't change it, change the

way you think about it. "

> ~ Engelbreit

>

>