Guest guest Posted June 11, 2012 Report Share Posted June 11, 2012 Why on earth would anyone take something that hinders their breathing, give them severe nausea and vomiting? I cannot understand. This site is predominately about how to help MS without the use of drugs; or it used to be. There are plenty of ways talked about here that help and certainly don't give any side-effects.Janet To: mscured From: kbleadon@... Date: Mon, 11 Jun 2012 11:14:01 -0700 Subject: Re: Rebiff Hi I have been on Rebif and not enjoying the side effects but pushing through. But am now having difficulty breathing and read that this could be an allergic reaction. Had severe nausea and vomiting when I started the medication so i pre-treat with anti nausea pills. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 I to am on Rebiff and also think this why I feal so bad. Because of Rebiff I now have Graves. I think at time to stop the Rebiff but so afraid to just not sure if I should. I might get worse if I stop. On the days of my shot I don't feal well. But it was the same when I was on Avonex but the Rebiff is so much more medication. Copaxone was not good for me with bad side affects.I wished my leggs would work like I tell them to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2012 Report Share Posted July 7, 2012 I am not sure if you are new to the list but we talk about alternatives to drugs, so if you have some questions or need advice on treating your ms with alternatives we are here to help but discussing medications isn't what the list is for. > I to am on Rebiff and also think this why I feal so bad. Because of Rebiff I now have Graves. I think at time to stop the Rebiff but so afraid to just not sure if I should. I might get worse if I stop. On the days of my shot I don't feal well. But it was the same when I was on Avonex but the Rebiff is so much more medication. Copaxone was not good for me with bad side affects.I wished my leggs would work like I tell them to. > /mscured/messagitch to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2012 Report Share Posted July 8, 2012 I am enjoying the drug therapy posts too as it gives some comparison. I am open to whatever works. It does give a picture of the pitfalls of drugs that helps me figure things out. Diane From: joseph craig Sent: Sunday, July 08, 2012 11:41 AM To: mscured Subject: Re: Rebiff I'm glad there are a few drug therapy posts here. They point out the futility and the harm they do. We need to repair and rebuild our nervous systems. The nervous system is the very core of our physical being. Learn to nurture and love yourself enough to dig hard and find the right answers. Find out what foods and things harm you, find those things that will rebuild your core. And somehow, in doing this we must be happy and have hope. There is a lot of good info in the messages and files of this group. My sincere thanks to those of you who put all that invaluable info and links there. I'm still doing stairs one at a time, but not even a cane for 2 months now! J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2012 Report Share Posted July 9, 2012 In agreement with what you said! Now, what are you doing that's let you go without the cane?!! I cannot fathom going more than about 2 steps without my cane or other things to lean on (furniture, walls, etc). ~ > > I'm glad there are a few drug therapy posts here. They point out the futility and the harm they do. > We need to repair and rebuild our nervous systems. The nervous system is the very core of our physical being. Learn to nurture and love yourself enough to dig hard and find the right answers. Find out what foods and things harm you, find those things that will rebuild your core. And somehow, in doing this we must be happy and have hope. There is a lot of good info in the messages and files of this group. My sincere thanks to those of you who put all that invaluable info and links there. > I'm still doing stairs one at a time, but not even a cane for 2 months now! J. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2012 Report Share Posted July 11, 2012 Back when I took physiology in college, they still believe that dairy and meat can cause autoimmune diseases. > > I was on Rebif and then Betaseron for about 6 months each right after > diagnosis and I KNOW my body rejected them as I was consistently > getting worse. Wish I could say I was brave enough to go totally med > free though, even though I have yet to see ill effects from those I'm on. > > Why meatless? I know my body does better with protein and as having > married into a cattle family, beef is our staple food in our house. Is > it because of the meds they give most animals? > > Thank you, > > > > > > > Boy does this bring back memories! I had my entire house set up so that > > I could grab onto something from the couch to the bathroom. I even had > > bookshelves back to back in the middle of a room. > > > > I have been on a LONG journey just like everyone on here. Right now, I > > am totally off meds, no gadget to help me get around, I can slip my > > shoes on while standing on one leg. I was dx in 2005 and have gone from > > wheelchair bound to being able to do a lot of things. This doesn't mean > > I dont have other problems though. > > > > I truly believe the rebif and other meds has caused my body to turn > > against itself. That doesn't mean it is so but I do know, my outcomes > > are much higher using natural methods. I have thyroidtoxicosis, > > diabetes, high blood pressure and severe gastro-intestinal issues that > > have yet to be diagnosed - oh and let's not forget the narcolepsy > > (sleeping disease). > > > > I believe the poster who mentioned diet and repairing is totally > > correct, fix the problem, don't add more problems to fix another > > problem. I am starting the McDougall Diet... its a slow process to get > > off of meat and dairy but I am off dairy and now am working toward > > getting totally off of meat. I will let you know if I have a good > > outcome, I am going to give it a year and hopefully keep my thyroid! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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