Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Hi Dave, Don't call the vet just yet :-) The pain you describe is what I commonly refer to as similar to a dull headache and is called flank pain. It is fairly common with IgAN, and some members suffer with it to a much greater extent with sever pain, and others not at all. As for the third in the lower right abdomen, that one is not characteristic of IgAN, and I don't know what that could be but if it persists, you may want to ring your doctor to ask about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Flank pain grumbling most days...severe others: Check Since my biopsy I have a feeling of pulling internally near the spot it was done...can't lay on my stomach at all for any extended period of time...which stinks because I used to sleep on my stomach prior to this. Funny feeling internally: Check (but only since biopsy and only on that side) Sharp to dull pain in the lower right abdomen a few times a month.: Check I thought appendix at first since it's about in that spot, but nope appendix is fine or so the doctor says. Like Phyllis mine is in line with the pelvic/hip bone. I've noticed lately that having my husband rub my lower back around the spine helps make it go away fairly quickly so I'm now wondering if it has to do with needing a chiropractic adjustment more than anything. So Dave no need to call the vet in yet but I'd mention these things next time you are scheduled to go in. Amy Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Thanks , looks like one or two others have to lower abdomen thing too - strange! Re: Symptoms? Hi Dave, Don't call the vet just yet :-) The pain you describe is what I commonly refer to as similar to a dull headache and is called flank pain. It is fairly common with IgAN, and some members suffer with it to a much greater extent with sever pain, and others not at all. As for the third in the lower right abdomen, that one is not characteristic of IgAN, and I don't know what that could be but if it persists, you may want to ring your doctor to ask about it. ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Thanks Phyllis, I'll bring it up next time I see my Doc ) Re: Symptoms? Yes, the last one: lower right abdomen; mine is in the abdomen just in line with the pelvic or hip bone. I've had exams, can find nothing; well, ever since our son died--off and on. Probably due, in my case, to stress; I believe there is a muscle where the small and large intestine meet. Lately, I've been taking a Primadophilus Bifudus which has helped my colon immensely. But do check out all the medical tests for this area, as my doctor said that some recent study indicated that IgAN could be caused by cancer somewhere in the body-orginally he thought for me lungs or bone; but that was disproved! Just be pro-active and let us hear from you more about these concerns. Take care. Phyllis ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Hi Dave. Call the vet Except for the first one, I don't think these sound like the kind of flank pain commonly associated with the kidneys. Kidney patients are susceptible to digestive problems, but you don't really have enough renal insufficiency for that, to my knowledge. Medication side effects, possibly. Some of the BP meds are really irritating to the intestines, the stomach, duodenum and other parts of the digestive system. One thing about having chronic disease of any kind is that you start paying more attention to your body, and you start noticing pains that you might not have noticed before. But I would certainly ask a pro to check it out. Pierre Symptoms? > Ok, this last week or so I've had three things I've noticed > > - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side > > - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? > > - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible > > Anyone recognise these? Should I call the vet? ) > > dave > ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 And what do you know, I am one of those who have the severe pain!!! But.,.,..this has lessened since I started to take notice of my body more, if I over exert I know it for at least 2 days afterwards. Yes sometimes it is horrid, but with my trusted TENS machine, and my latest find, a sheepskin electric heat pad, I can get some quite nice relief. Either that or a double s (don't tell the docs!) and flank pain...hic hic what flank pain!!!! Best wishes Re: Symptoms? Thanks , looks like one or two others have to lower abdomen thing too - strange! Re: Symptoms? Hi Dave, Don't call the vet just yet :-) The pain you describe is what I commonly refer to as similar to a dull headache and is called flank pain. It is fairly common with IgAN, and some members suffer with it to a much greater extent with sever pain, and others not at all. As for the third in the lower right abdomen, that one is not characteristic of IgAN, and I don't know what that could be but if it persists, you may want to ring your doctor to ask about it. ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Dave Cheaper to go to the ER, you will get charged double time at the vet's this time of year, and they don't numb the site for the needle !!!!!!And I would hate to think where that thermometer may have been LOL!!!! Seriously now, I do suffer from rotten flank pain, as I mentioned earlier. Please do next time you get checked mention it to your doctors, but don't be disappointed if you get no committal answers, seems to be part of the course I am afraid. I work on the premise if I bleat on about it long enough they will take me seriously, but as yet they have all copped a deaf un!!!! I see my Neph and team on 13 Jan 2004 for full work up and evaluation, and if they are right, when they have finished with me my flank pain will be no more...I am keeping an open mind. Re: Symptoms? Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Hi Dave, When I told my neph about my flankpain (very mild), he said that this would have nothing to do with IGaN. The first time I saw, that I'm not the only one with this, was when I began to visit this group. Christoph Re: Symptoms? Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Well there you go, I rest my weary case, unless our flank pain can be medically explained, it has nothing to do with IgA. Now I am no brain surgeon or such like, but the mere fact that so many of us here complain of it, and the fact that I did not have this prior to my diagnosis, ahem, not exactly rocket science to see there may be a connection. Oh well I shall have to keep drudging up that hill until I hear of someone who thinks like I do. Re: Symptoms? Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Not so good ( Mine certainly isn't sore more of a grumble .... bit like me really ) Aye, s warms the cockles! Dooleys isn't bad neither ) Re: Symptoms? Hi Dave, Don't call the vet just yet :-) The pain you describe is what I commonly refer to as similar to a dull headache and is called flank pain. It is fairly common with IgAN, and some members suffer with it to a much greater extent with sever pain, and others not at all. As for the third in the lower right abdomen, that one is not characteristic of IgAN, and I don't know what that could be but if it persists, you may want to ring your doctor to ask about it. ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 , Oh? What have they in mind for the flank pain? Don't think I'll harp on about it at the moment, it's so mild, it's more an irritation, I'll save the harping for anything more important that comes along! Good luck for 13th .... Dave Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Hi Christoph, I'm glad yours is mild too - I'm almost exaggerating to call it a pain if you know what I mean! I'm crossing my fingers that it stays that way! Dave RE: Symptoms? Hi Dave, When I told my neph about my flankpain (very mild), he said that this would have nothing to do with IGaN. The first time I saw, that I'm not the only one with this, was when I began to visit this group. Christoph ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2003 Report Share Posted December 27, 2003 Hello everyone, my name is Lea and I was diagnosed with IGAn by biopsy about 4 months ago. I had high protein in my urine they found it while I was preg. with my 2nd son. I have this flank pain also and have mentioned it to my neph many times, but he come right back with " it has nothing to do with your kidneys, because kidneys don't cause pain " , I hate when he blows this off and I know that the pain is there. It;s defiantly not in my head when it hurts often. I go to him again on the 12 of Jan. and I will again mention it to him. I know that I have also been to my family doc and had a urinalysis done to find that I had a UTI.....are they common with this disease?? She gave me antibiotics to clear it up, but it seems that it never really went away if that makes any sense. Thanks for listening.....looking forward from hearing from you all. Thanks, Lea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Nice to have you back . This is a symptom that my Neph said was to do with the IgA i.e. kidney pain.......he said I'd just have to put up with it or take paracetamol. Sally UK Re: Symptoms? Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Many of us can relate to this Lea..... flank pain DOES exist and is a symptom according to my Neph. Re-occurring UTI's are typical for many of us girls too. Someone said a few posts ago that it is linked with HSP (the systemic form of IgA). Also it is now thought that the loss of tiny particles of blood /heamaturia leaking from the kidneys, irritate the lining of the urinary tract, causing inflammation which in turn makes the body more vulnerable to infection. Have a look through the archives for some of the back posts and you will see the previous conversations about it. Sally UK Re: Symptoms? Hello everyone, my name is Lea and I was diagnosed with IGAn by biopsy about 4 months ago. I had high protein in my urine they found it while I was preg. with my 2nd son. I have this flank pain also and have mentioned it to my neph many times, but he come right back with " it has nothing to do with your kidneys, because kidneys don't cause pain " , I hate when he blows this off and I know that the pain is there. It;s defiantly not in my head when it hurts often. I go to him again on the 12 of Jan. and I will again mention it to him. I know that I have also been to my family doc and had a urinalysis done to find that I had a UTI.....are they common with this disease?? She gave me antibiotics to clear it up, but it seems that it never really went away if that makes any sense. Thanks for listening.....looking forward from hearing from you all. Thanks, Lea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Hi Sally Thank you very much, it is nice to be back, like I say, I am taking each day as it comes, albeit slowly LOL!!! UK Re: Symptoms? Thanks Amy - I haven't had biopsy yet though but it's reassuring that others encounter these things too! Symptoms? Ok, this last week or so I've had three things I've noticed - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible Anyone recognise these? Should I call the vet? ) dave ---------- Outgoing mail is certified Virus Free. Checked by AVG Anti-Virus (http://www.grisoft.com). Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Dave... I have had Igan for 28 years or so I have to deal with kidney (flank) pain everyday.My pain is severe most of the time.Everytime I eat the sharp stabbing pains start.Some of the sharp pains can take my breath away.My kidneys are 3 centimeters larger than normal and may have something to do with my pain.Playing golf or other activities raises the pain levels too! I have tried 2 nerve blocks (numbing solution injected into spinal area) to try and block the pain,with no success. I have been taking pain meds (Lortab) for 8 years 4 times a day. Without it I would not be able to function. My job requires me to work shift work..3 weeks days--3 weeks nights.This is very hard on my system especially my kidneys. This pain is Igan related but any other pain that you spoke of should not be. I cannot complain though because I am still NOT on dialysis.I would have the other pain you have checked out. I hope this helps. > Ok, this last week or so I've had three things I've noticed > > - one a minor grumbling pain in my flank - pain is an exaggeration - more of an irritation, always dull and mostly on the right side > > - two is, in the same place not so much pain - this is difficult to describe but just a feeling there as if something is pushing when I bend a certain way or lie a certain way in bed? > > - last is no where near the kindey area but a short dull pain in lower right abdomen, which against isn't sore but just noticible > > Anyone recognise these? Should I call the vet? ) > > dave > ---------- > > Outgoing mail is certified Virus Free. > Checked by AVG Anti-Virus (http://www.grisoft.com). > Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 On the subject of pain, I know many of you are suffering with it, but the fact remains that there are no pain nerves in the area of the glomeruli, where IgAN does its dirty work. If the pain is from the kidneys, it's not from the nephrons. If the kidneys are inflamed and enlarged, then pain is more likely to be from stretching of the capsule that surrounds the kidneys. Beyond that, I can't think of anything other than perhaps irritation of the urinary tract, or something totally unrelated. I will never forget the one period many years ago now, during which I though I actually was having very bad flank pain. Of course, I was sure it was the kidney, but it turned out to be gallstones, and I eventually had surgery for that. Another time, I had pain which I felt was in my back, on both sides, but that turned out to be a case of pancreatitis. If you do have chronic pain, don't expect a nephrologist to follow that up unless it's clearly from the kidneys. They may express some mild interest in it, but any nephrologist I've ever known is only interested specifically in renal insufficiency. They don't even care very much about the urinary system in general, as that is more of a urologist's concern. There's always a chance it could be something else, and an internist is probably a better doctor to look at the problem. Sometimes to the desperation of the patient, a nephrologist is about as specialized and focussed as it gets - kidney function and dialysis. Pain after eating is really suggestive of something other than the kidneys. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 , I've never heard of TENS being used for flank pain! That one had never occurred to me. I did TENS for a time when I was in physical therapy 15 years ago after getting hit by a car. It is very heartening to hear that something can be offered to patients with flank pain. Cy Re: Symptoms? > > > Hi Dave, > > Don't call the vet just yet :-) The pain you describe is what I > commonly > refer to as similar to a dull headache and is called flank pain. It > is fairly > common with IgAN, and some members suffer with it to a much greater > extent with > sever pain, and others not at all. > > As for the third in the lower right abdomen, that one is not > characteristic > of IgAN, and I don't know what that could be but if it persists, you > may want > to ring your doctor to ask about it. > > > > > ---------- > > Outgoing mail is certified Virus Free. > Checked by AVG Anti-Virus (http://www.grisoft.com). > Version: 7.0.209 / Virus Database: 261.5.4 - Release Date: 26/12/2003 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Pierre, The pain clinic where I was studied suggested that the nerves in this area of the body could be sending false signals.So they tried to nutralize the nerves in that area of my flank. You are right about the nephrologist,they don't give a squat about your pain. Do you think I should have tests for pancreatitis or gallstones? I would do anything to get rid of this pain. > On the subject of pain, I know many of you are suffering with it, but the > fact remains that there are no pain nerves in the area of the glomeruli, > where IgAN does its dirty work. If the pain is from the kidneys, it's not > from the nephrons. If the kidneys are inflamed and enlarged, then pain is > more likely to be from stretching of the capsule that surrounds the kidneys. > > Beyond that, I can't think of anything other than perhaps irritation of the > urinary tract, or something totally unrelated. I will never forget the one > period many years ago now, during which I though I actually was having very > bad flank pain. Of course, I was sure it was the kidney, but it turned out > to be gallstones, and I eventually had surgery for that. Another time, I had > pain which I felt was in my back, on both sides, but that turned out to be a > case of pancreatitis. > > If you do have chronic pain, don't expect a nephrologist to follow that up > unless it's clearly from the kidneys. They may express some mild interest in > it, but any nephrologist I've ever known is only interested specifically in > renal insufficiency. They don't even care very much about the urinary system > in general, as that is more of a urologist's concern. There's always a > chance it could be something else, and an internist is probably a better > doctor to look at the problem. Sometimes to the desperation of the patient, > a nephrologist is about as specialized and focussed as it gets - kidney > function and dialysis. > > Pain after eating is really suggestive of something other than the kidneys. > > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 I don't know . I'm sure they must already have looked at all the possibilities. Pancreatitis is easily diagnosed by a simple blood test (at least initially), and gallbladder problems usually by an abdominal ultrasound, and sometimes a nuclear scan to see what happens when you eat. I remember sitting in a hospital corridor eating a hospital meal when I wasn't hungry just for the test Don't get me wrong though. I certainly sympathize with you and everyone else who is having this flank pain. When you eat something, there's really not much different that happens in the kidneys. They just continue filtering your blood 24 hours a day. Pierre Re: Symptoms? > Pierre, > > The pain clinic where I was studied suggested that the nerves in > this area of the body could be sending false signals.So they tried > to nutralize the nerves in that area of my flank. > You are right about the nephrologist,they don't give a squat about > your pain. > Do you think I should have tests for pancreatitis or gallstones? > I would do anything to get rid of this pain. > > > > > > > > > > > On the subject of pain, I know many of you are suffering with it, > but the > > fact remains that there are no pain nerves in the area of the > glomeruli, > > where IgAN does its dirty work. If the pain is from the kidneys, > it's not > > from the nephrons. If the kidneys are inflamed and enlarged, then > pain is > > more likely to be from stretching of the capsule that surrounds > the kidneys. > > > > Beyond that, I can't think of anything other than perhaps > irritation of the > > urinary tract, or something totally unrelated. I will never forget > the one > > period many years ago now, during which I though I actually was > having very > > bad flank pain. Of course, I was sure it was the kidney, but it > turned out > > to be gallstones, and I eventually had surgery for that. Another > time, I had > > pain which I felt was in my back, on both sides, but that turned > out to be a > > case of pancreatitis. > > > > If you do have chronic pain, don't expect a nephrologist to follow > that up > > unless it's clearly from the kidneys. They may express some mild > interest in > > it, but any nephrologist I've ever known is only interested > specifically in > > renal insufficiency. They don't even care very much about the > urinary system > > in general, as that is more of a urologist's concern. There's > always a > > chance it could be something else, and an internist is probably a > better > > doctor to look at the problem. Sometimes to the desperation of the > patient, > > a nephrologist is about as specialized and focussed as it gets - > kidney > > function and dialysis. > > > > Pain after eating is really suggestive of something other than the > kidneys. > > > > Pierre > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Just following on from that, before I was diagnosed and then under a Urologist, he didn't accept the pain as kidney related and sent me to a physio at the hospital. She tested all the areas and pressed in different places and when I yelled when she pressed my 'kidney area', she said, " yes that is not back pain or back related. It is to do with the kidney I wish Doctors listened to their patients more,.....I have had several referrals for this and they are kidney related not back related. " Sally UK Re: Re: Symptoms? On the subject of pain, I know many of you are suffering with it, but the fact remains that there are no pain nerves in the area of the glomeruli, where IgAN does its dirty work. If the pain is from the kidneys, it's not from the nephrons. If the kidneys are inflamed and enlarged, then pain is more likely to be from stretching of the capsule that surrounds the kidneys. Beyond that, I can't think of anything other than perhaps irritation of the urinary tract, or something totally unrelated. I will never forget the one period many years ago now, during which I though I actually was having very bad flank pain. Of course, I was sure it was the kidney, but it turned out to be gallstones, and I eventually had surgery for that. Another time, I had pain which I felt was in my back, on both sides, but that turned out to be a case of pancreatitis. If you do have chronic pain, don't expect a nephrologist to follow that up unless it's clearly from the kidneys. They may express some mild interest in it, but any nephrologist I've ever known is only interested specifically in renal insufficiency. They don't even care very much about the urinary system in general, as that is more of a urologist's concern. There's always a chance it could be something else, and an internist is probably a better doctor to look at the problem. Sometimes to the desperation of the patient, a nephrologist is about as specialized and focussed as it gets - kidney function and dialysis. Pain after eating is really suggestive of something other than the kidneys. Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Yeah yeah Sally, you have done physio rounds as well then!!!! They must have sheet they follow codes on, kidney disease = flank pain=no such thing, so physio or back problem then!!!! My urologist and nephrologist do speak to each other luckily, but they don't seem to agree, which for last year has left me in the middle in pain and thoroughly cheesed off. Pierre you are spot on with your description on Nephs and Urologists, they for the most part, seem to be at odds with each other. I consider I have had to renograms unnecessarily because of this sigh!!! Flank pain maybe a combination of many things, but I have no doubt in my mind at least, that it is related to IGAN, contentious I know, but that is my thoughts. I for one would love to be proved wrong. Hope all is well with you Pierre, we must have a chat soon ! Love Re: Re: Symptoms? On the subject of pain, I know many of you are suffering with it, but the fact remains that there are no pain nerves in the area of the glomeruli, where IgAN does its dirty work. If the pain is from the kidneys, it's not from the nephrons. If the kidneys are inflamed and enlarged, then pain is more likely to be from stretching of the capsule that surrounds the kidneys. Beyond that, I can't think of anything other than perhaps irritation of the urinary tract, or something totally unrelated. I will never forget the one period many years ago now, during which I though I actually was having very bad flank pain. Of course, I was sure it was the kidney, but it turned out to be gallstones, and I eventually had surgery for that. Another time, I had pain which I felt was in my back, on both sides, but that turned out to be a case of pancreatitis. If you do have chronic pain, don't expect a nephrologist to follow that up unless it's clearly from the kidneys. They may express some mild interest in it, but any nephrologist I've ever known is only interested specifically in renal insufficiency. They don't even care very much about the urinary system in general, as that is more of a urologist's concern. There's always a chance it could be something else, and an internist is probably a better doctor to look at the problem. Sometimes to the desperation of the patient, a nephrologist is about as specialized and focussed as it gets - kidney function and dialysis. Pain after eating is really suggestive of something other than the kidneys. Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Yeah yeah Sally, you have done physio rounds as well then!!!! They must have sheet they follow codes on, kidney disease = flank pain=no such thing, so physio or back problem then!!!! My urologist and nephrologist do speak to each other luckily, but they don't seem to agree, which for last year has left me in the middle in pain and thoroughly cheesed off. Pierre you are spot on with your description on Nephs and Urologists, they for the most part, seem to be at odds with each other. I consider I have had to renograms unnecessarily because of this sigh!!! Flank pain maybe a combination of many things, but I have no doubt in my mind at least, that it is related to IGAN, contentious I know, but that is my thoughts. I for one would love to be proved wrong. Hope all is well with you Pierre, we must have a chat soon ! Love Re: Re: Symptoms? On the subject of pain, I know many of you are suffering with it, but the fact remains that there are no pain nerves in the area of the glomeruli, where IgAN does its dirty work. If the pain is from the kidneys, it's not from the nephrons. If the kidneys are inflamed and enlarged, then pain is more likely to be from stretching of the capsule that surrounds the kidneys. Beyond that, I can't think of anything other than perhaps irritation of the urinary tract, or something totally unrelated. I will never forget the one period many years ago now, during which I though I actually was having very bad flank pain. Of course, I was sure it was the kidney, but it turned out to be gallstones, and I eventually had surgery for that. Another time, I had pain which I felt was in my back, on both sides, but that turned out to be a case of pancreatitis. If you do have chronic pain, don't expect a nephrologist to follow that up unless it's clearly from the kidneys. They may express some mild interest in it, but any nephrologist I've ever known is only interested specifically in renal insufficiency. They don't even care very much about the urinary system in general, as that is more of a urologist's concern. There's always a chance it could be something else, and an internist is probably a better doctor to look at the problem. Sometimes to the desperation of the patient, a nephrologist is about as specialized and focussed as it gets - kidney function and dialysis. Pain after eating is really suggestive of something other than the kidneys. Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
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