Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 , Welcome. I know this is not where you want to be but it's the best place for anyone who has to face this horrible disease. My situation sounds very similar to yours. My husband was dx 12/02, age 43, never sick a day in his life, we have four children (21,18,16,11). He was on CPT-11, 5FU/lv from December, 02 through 9-03. We were told he would be on CPT-11 as long as it was working. September of '03 CEA began to rise and CT scan showed significant progression. Dale is now on Oxaliplatin/Xeloda, again for as long as it works. Ideally the goal would be to shrink the tumors enough for surgery but that's not happening. Dale's family sounds alot like your husband's family. At first, everyone wanted to send us herbs and remedies, etc. I believe his sisters recognize the seriousness of this, however his parents will not even acknowledge the illness. They will not talk about the disease and rarely even call anymore. I know this makes my husband feel bad sometimes, but I truly think the denial is the only way they can cope right now. I know how difficult it can be to put on the strong, calm face for everyone's sake. However, I must stress that is completely normal to cry and be angry and sad and whatever other emotion attacks you at the time. You must allow yourself these times so that you may gain more strength to face whatever comes next. In this group you will find information, support, and friends. You are not alone! If there is anything I can do or any questions I can answer, please feel free to e-mail me personally, kmi3256694@... Again, welcome to the group and know that we are praying for you, your husband and your children. Kathy M. wife of Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Has your husband gone through surgeries? If so which ones? There are other chemo treatments out there-if there is spread, then I wouldnt consider the chemo to " be working. " I am a 37 year old stage iv patient with lots of treatment behind me. In fact in March it will be 4 years of dealing with this disease. There is never just 1 right answer with this disease. We find it helpful to take everbodies advice-soemtimes we laugh about it, sometimes we research it further. You never know what " answer " may help prolong survival. Please keep posting and read through some of these archives. I think you'll find a group that can be very helpful for both you and your husband in determining what options might best help you next. Peace-Mark > I've been looking through a few of the archives and this looks like a > good group. So, I signed on hoping to at least find someone who > understands how I'm feeling. Briefly, my story is that my husband, > age 52, was diagnosed with stage IV colon cancer the end of July. He > went to the dr for a checkup thinking he'd pulled a muscle because he > had extreme pain in his back. He'd had no symptoms before to indicate > even being ill. He's actually one of those guys who has had a regular > annual physical and had had a complete colonoscopy that was said to > be totally normal just over a year previous. Anyway, it was initially > diagnosed as CUP with multiple metastisis and no clear primary but > after seeing the oncologists at Maris Cancer Center they > determined the colon was the primary site. He's been on chemo since > the middle of August.CPT-11,5FU/Lv weekly, 4 wks on and 2 off. He > just finished his 4th cycle. How long do they do these treatments??? > He has had some positive response in that the tumors have been > shrinking but they have also continued to spread to more areas at the > same time. It's just so frustrating!! I try to be strong for him and > our children(ages 25,22,18 & 12)but find myself falling apart > whenever I'm alone.It seems like no one else understands how serious > this is. His family keeps asking why he isn't cured yet and siting > articles that deal with stage 0 or I prognosis. I could really use > some support from others who have been in my place. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 My nameis Capt. Lighthouse aka Gerry and I'am legally blind and diabetic type 2. Have been diabetic for over 35 years and was exposed to Agent Orange when I was in Vietnam that caused my diabetes. Have been legally blind since 2005 and have been active with the Blinded Veterans Association and hold life membership in the group. I was the founder of Agent Orange Diabetic Victims a yahoo group and no longer run the organization. Thank you for offering me membership into the group and I hope that I can be of some assistance to this group. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.