Jody and more noncompliance :)

[Guest guest]

Hi Jody,

How are you doing with your eyes and the PTU dose?

Up until 3 days ago, I was also on 75 mg a day. I now feel this is just a bit

too much,

and am trying to figure the next step down. My pills are 50 mg each. So I have

been taking

1/2 a pill, three times a day. Is that what you are doing?

Right now I am experimenting with 1/4 pills, but do not have a plan set in stone

yet.

I also had pretty bad TED or GO, I'm not sure of the difference.

I am very fortunate, in that I did go the long dose of prednisone, but it came

back when

drugs discontinued, as I no longer could tolerate the side effects. I declined

the

radiation treatments, much to the dismay of my doctor. Then later this news

flash about it

not working. Hummm. My eyes have gotten better all on their own. Though I am

sure if I had

done the radiation, I would have been counted as a success.

I do find it a bit disconcerting that my doctor seems surprised at my

improvement. He

keeps mumbling how mother nature does a much better job, he just had several

people do

radiation. ???

So I now am sure it was the PTU...antibodies thing. My eyes did get worse for

some time.

Then stayed the same. Then after about one year, or slightly over, of being

closer to a

more consistent, closer to normal lab range, they look almost right. They have

gone back

into my head. No longer red and gritty. Double vision gone except for late at

night, when

I may not be holding my head right. I think I go back to that thing where I

would do this

strange, holding my head back and looking down, to see something in front of me.

I may not

be explaining this right. People also say that one eye that used to go off in

its own

direction, seems to be looking at them most of the time now.

Night vision is better and I can drive if I really have to. Still light

sensitive, but not

the intense pain. Much easier to control. I can read once again, and can see

this computer

screen without such a battle.

I do so hope this can happen for you. So if it turns out 75 mg. is too much,

lets figure

out how to cut this down, but be consistent. At this point in my life, I do not

think this

is a low dose. But I know I still need it regularly, as my heartbeat goes up

pretty

quickly when I forget to take my pill. I would say within a couple of hours.

Though I

think the good old endo would never believe me. When he had me taking 300 mg in

one dose,

he did not believe that I could not move, much less get my pants on. = :-o And

that was

after having come down from a higher dose.

-Pam- geezzz, I love a day off !