Re: for Jeannie....educating parents and hype,diet and secretin

[Guest guest]

Jeannie,

I've just read your post regarding your visit with your sons pediatric

neurologist's nurse practitioner, and my blood is boiling! Not only is this

woman close-minded, but a little behind the times, too.

When my son was diagnosed with Autism/PDD at 4 years of age, we were told to

go home (180 miles) and get counseling so we could accept the fact that there

was nothing they could do for my child. I went home and accepted the fact

there was nothing they were willing to try, but I've never accepted the fact

that I can't help my child. (and, no I never got the counseling...) I grieve

constantly, too......at the insensitivity of people, the close-minded ideas

that cause parents to feel helpless, and for the many parents who aren't able

to help their children because they've never gotten the information or

support to help carry their hopes and ideas forward. In spite of all this, I

just keep trudging along, and in the process my child has improved a hundred

times over. I know there are hundreds of other parents out there who will

attest to the benefits they've seen with the GFCF diet, but there are a

couple of other points you mentioned in your post where she's dead wrong,

too.....at least regarding my child.

The GFCF diet: We originally put our son on a diet prescribed by a

naturopathic doctor. It had nothing to do with the GFCF diet, but alot of

grains were taken out of his diet including wheat, oats, rye and barley. We

saw dramatic changes (and withdrawal!), but when I did learn about the GFCF

diet, I knew there was something to it and we immediately went GF. He

started sleeping for the first time in years, his appetite and variety of

foods he would eat improved tremendously, tantrumming and behavior problems

greatly diminished. Overall, he was a much happier child. A couple of years

later (after attending a DAN Conference) I took him off dairy, too. Guess

what? An immediate stop to his chronic, one-right-after-the-other ear and

sinus infections! They've never been much of a problem since.

The Secretin " phase " : We're still in this phase, too, and have never been

better ). My son has been receiving Ferring Secretin injections for 18

months. (And he was 9.5 years old when we started!) We saw immediate and

drastic changes, including no more diarrhea, comprehension and expressive

language exploded, better articulation, a big improvement in motor skills, he

was much calmer, and showing much more age appropriate behavior and maturity.

I can only hope that each child would see such great results, but mine has

and continues to do so. There is no doctor or scientist in this world who

will convince me that it doesn't work for some kids.....I'm living with the

proof.

Trouble for nothing: My kind pediatrician (and parent to an adult disabled

daughter) once told me to never let anyone put my child " in a box " and tell

you what they can or can't do, and never to give up on helping my son to

improve his life. He was right,and that's one bit of advice I've taken to

heart and always remembered. I've tried many, many things to help my child.

Fortunately, most of them did help in some way. A few didn't. But , that

didn't mean they weren't worth the trouble of trying....and my son definitely

was worth the trouble!!

Keep your appointment with the DAN doctor, keep trying to improve your sons

life, and avoid that nurse-practitioner in the future! She probably thought

she'd really helped you out by making you cry......

Joan

And PS......my sons prescription for the one med he takes has been reduced by

half since starting the Secretin....

[Guest guest]

Jeannie,

This nurse is an idiot!!!! Never go back to that Dr. and definately find a

Dan Dr. Regardless of the condition that anyone has and is trying to get

better you just do not sit back and accept that, you research and keep

researching until you find something that works. I know how you feel I have

cried a few tears myself but will NEVER give up the fight! I hope you do not

either. This nurse did not have a clue!

Chin up and keep fighting!

Elena

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[Guest guest]

Jeannie,

This nurse is an idiot!!!! Never go back to that Dr. and definately find a

Dan Dr. Regardless of the condition that anyone has and is trying to get

better you just do not sit back and accept that, you research and keep

researching until you find something that works. I know how you feel I have

cried a few tears myself but will NEVER give up the fight! I hope you do not

either. This nurse did not have a clue!

Chin up and keep fighting!

Elena

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Jeannie,

This nurse is an idiot!!!! Never go back to that Dr. and definately find a

Dan Dr. Regardless of the condition that anyone has and is trying to get

better you just do not sit back and accept that, you research and keep

researching until you find something that works. I know how you feel I have

cried a few tears myself but will NEVER give up the fight! I hope you do not

either. This nurse did not have a clue!

Chin up and keep fighting!

Elena

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com