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Re: OT: asthma

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Yeah. My personal need for all that kind of stuff went away

permanently a few days after I started a sulfur restriction diet. Do

you know his plasma cysteine level?

Andy . . .. . . . . . . . . . . .

> Hi-- off topic, I wanted to ask if anyone has suggestions in terms

of

> safety of different asthma meds. Ethan is having daily asthma

> attacks, which is not a good thing (actually he had TWO today). I

am

> considering putting him on a daily inhaler of cromolyn sodium or

> perhaps a steroid inhaler. Does anyone have any personal experience

> they can offer me to help me in my decision?

>

> M

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,

My 4yo son uses Flovent inhaler twice a day and it has

helped tremendously. He's been on it since 2 1/2.

Before that he was constantly sick and hospitalized

twice for bad attacks. Since he's been on Flovent

he's rarely sick and has had only one mild attack!

--- merrywbee <maryandphilip@...> wrote:

> Hi-- off topic, I wanted to ask if anyone has

> suggestions in terms of

> safety of different asthma meds. Ethan is having

> daily asthma

> attacks, which is not a good thing (actually he had

> TWO today). I am

> considering putting him on a daily inhaler of

> cromolyn sodium or

> perhaps a steroid inhaler. Does anyone have any

> personal experience

> they can offer me to help me in my decision?

>

> W

>

>

>

__________________________________________________

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In a message dated 23/07/2002 19:11:10 GMT Daylight Time,

tavalon@... writes:

> Also, I have a theory about asthma, diabetes, autism, and ADD. I think they

> may all be part of an environmental toxin problem. I know they all have

> autoimmune aspects. Did you know that pediatric asthma is also increasing

> at much the same epidemic rate as autism? So is ADD. I haven't research the

> diabetes so I can't say on that one. I just lumped it in because it's known

> to be an autoimmune disease in childhood. With the asthma, they haven't

> been able to correlate it with environmental pollution which you would

> think would be the biggest indicator. But what if the pollution is internal

> rather than external and actually manifests in the lungs as opposed to the

> brain? Just makes me go, hmmmm.

>

> Terri

>

Hi Terri

Have you had a look at " In Harms Way " - full document availbale on the web

this is the link if you haven't seen it - your theory matches theirs

http://www.igc.org/psr/

Mandi in UK

PS I think we ought to clone you too!

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Does your son have a good pediatrician well versed in Asthma? Flovent and

Cromolyn are very different and yet each can work well. I personally use

flovent. Cromolyn caused me to have a chronic cough. Some people get a chronic

cough from flovent and other corticosteroid sprays, so trying different things

is good. However, with Flovent and other corticosteroids, it is important to use

them for at least a month before deciding if they are helpful. They are not the

drugs you use for an actual attack, they are the drugs you use to avoid future

attacks. Albuterol is one of the best short acting bronchodilators (things to

help open the lungs when the asthma attack is already underway).

One of the biggest mistakes I saw when I was an ER nurse was parents only

treating the attacks and not using the maintenance meds or using them

incorrectly. That's why I think you need to have an MD who specializes in

pediatric asthma management helping you to set up your treatment plan and then

you really need to stick closely to it. It can make a huge difference.

Also, I have a theory about asthma, diabetes, autism, and ADD. I think they may

all be part of an environmental toxin problem. I know they all have autoimmune

aspects. Did you know that pediatric asthma is also increasing at much the same

epidemic rate as autism? So is ADD. I haven't research the diabetes so I can't

say on that one. I just lumped it in because it's known to be an autoimmune

disease in childhood. With the asthma, they haven't been able to correlate it

with environmental pollution which you would think would be the biggest

indicator. But what if the pollution is internal rather than external and

actually manifests in the lungs as opposed to the brain? Just makes me go,

hmmmm.

Terri

Re: [ ] OT: asthma

,

My 4yo son uses Flovent inhaler twice a day and it has

helped tremendously. He's been on it since 2 1/2.

Before that he was constantly sick and hospitalized

twice for bad attacks. Since he's been on Flovent

he's rarely sick and has had only one mild attack!

--- merrywbee <maryandphilip@...> wrote:

> Hi-- off topic, I wanted to ask if anyone has

> suggestions in terms of

> safety of different asthma meds. Ethan is having

> daily asthma

> attacks, which is not a good thing (actually he had

> TWO today). I am

> considering putting him on a daily inhaler of

> cromolyn sodium or

> perhaps a steroid inhaler. Does anyone have any

> personal experience

> they can offer me to help me in my decision?

>

> W

>

>

>

__________________________________________________

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Terri,

You are right on with the environmental link to asthma, ADD, diabetes,

autism and many other diseases. I am in the midst of research into the

environmental effects of one of the toxins, xylene, and neurological

disorders. According to the standard literature there is no direct

evidence of this but I think there is a " backdoor " mechanism related to

glycine and the conversion of glycine to serine. It is a long and

convoluted pathway but the evidence is clear. Asthma is tied in very

neatly to this problem also.

In health,

Mark Schauss

www.carbonbased.com

Re: [ ] OT: asthma

Does your son have a good pediatrician well versed in Asthma? Flovent

and Cromolyn are very different and yet each can work well. I personally

use flovent. Cromolyn caused me to have a chronic cough. Some people get

a chronic cough from flovent and other corticosteroid sprays, so trying

different things is good. However, with Flovent and other

corticosteroids, it is important to use them for at least a month before

deciding if they are helpful. They are not the drugs you use for an

actual attack, they are the drugs you use to avoid future attacks.

Albuterol is one of the best short acting bronchodilators (things to

help open the lungs when the asthma attack is already underway).

One of the biggest mistakes I saw when I was an ER nurse was parents

only treating the attacks and not using the maintenance meds or using

them incorrectly. That's why I think you need to have an MD who

specializes in pediatric asthma management helping you to set up your

treatment plan and then you really need to stick closely to it. It can

make a huge difference.

Also, I have a theory about asthma, diabetes, autism, and ADD. I think

they may all be part of an environmental toxin problem. I know they all

have autoimmune aspects. Did you know that pediatric asthma is also

increasing at much the same epidemic rate as autism? So is ADD. I

haven't research the diabetes so I can't say on that one. I just lumped

it in because it's known to be an autoimmune disease in childhood. With

the asthma, they haven't been able to correlate it with environmental

pollution which you would think would be the biggest indicator. But what

if the pollution is internal rather than external and actually manifests

in the lungs as opposed to the brain? Just makes me go, hmmmm.

Terri

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Wow, I'd like to hear more about this, privately, if you would rather not

clutter up the list.

Terri

Re: [ ] OT: asthma

Does your son have a good pediatrician well versed in Asthma? Flovent

and Cromolyn are very different and yet each can work well. I personally

use flovent. Cromolyn caused me to have a chronic cough. Some people get

a chronic cough from flovent and other corticosteroid sprays, so trying

different things is good. However, with Flovent and other

corticosteroids, it is important to use them for at least a month before

deciding if they are helpful. They are not the drugs you use for an

actual attack, they are the drugs you use to avoid future attacks.

Albuterol is one of the best short acting bronchodilators (things to

help open the lungs when the asthma attack is already underway).

One of the biggest mistakes I saw when I was an ER nurse was parents

only treating the attacks and not using the maintenance meds or using

them incorrectly. That's why I think you need to have an MD who

specializes in pediatric asthma management helping you to set up your

treatment plan and then you really need to stick closely to it. It can

make a huge difference.

Also, I have a theory about asthma, diabetes, autism, and ADD. I think

they may all be part of an environmental toxin problem. I know they all

have autoimmune aspects. Did you know that pediatric asthma is also

increasing at much the same epidemic rate as autism? So is ADD. I

haven't research the diabetes so I can't say on that one. I just lumped

it in because it's known to be an autoimmune disease in childhood. With

the asthma, they haven't been able to correlate it with environmental

pollution which you would think would be the biggest indicator. But what

if the pollution is internal rather than external and actually manifests

in the lungs as opposed to the brain? Just makes me go, hmmmm.

Terri

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Terri --Oh I definitely think the pollution is internal as well as

external... I have been told that the lungs is one of the body's

detoxification systems, and so it makes sense that if the other detox

systems are not working well, the lungs cannot do their job, get

inflamed, etc. Our doc also explained that the gut lining, lung, and

skin all came from the same epithelial (?) cell structures in the

embryonic stage, and so that is why kids with gut problems tend to

get asthma, and then may eventually get eczema too. One thing

affects the other.

Yes, I was aware that asthma rates are skyrocketing, so is add/adhd,

and diabetes--well, a little boy we know just got diagnosed and it

scares me to think that it is increasing, too.

My folks are just getting back from a trip to vietnam and I was just

at the grocery store buying some food to stock their fridge... and I

was depressed thinking about our food supply here in the u.s. They

are coming from eating fresh fruits and veggies and meats, etc.--

whole foods, and we eat such junk here. Boxes of " dead " food. Is it

any wonder that we are so sick.

Thanks for your info on the cromolyn/flovent... we have an appt

tomorrow... I don't know if he specializes in it, but he does seem

knowledgeable. I will talk things over with him.

W

> Does your son have a good pediatrician well versed in Asthma?

Flovent and Cromolyn are very different and yet each can work well. I

personally

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Mark-- what is xylene found in?

> Terri,

>

> You are right on with the environmental link to asthma, ADD,

diabetes,

> autism and many other diseases.

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Guest guest

> Also, I have a theory about asthma, diabetes, autism, and ADD. I

think they may all be part of an environmental toxin problem. I know

they all have autoimmune aspects. Did you know that pediatric asthma

is also increasing at much the same epidemic rate as autism? So is

ADD. I haven't research the diabetes so I can't say on that one. I

just lumped it in because it's known to be an autoimmune disease in

childhood. With the asthma, they haven't been able to correlate it

with environmental pollution which you would think would be the

biggest indicator. But what if the pollution is internal rather than

external and actually manifests in the lungs as opposed to the brain?

Just makes me go, hmmmm.

>

> Terri

Hi Terri,

I think you would really enjoy reading Cave's book:

What Your Doctor May NOT Tell You About Children's Vaccinations.

There is a chapter about autoimmune issues--- not sure what to

say about it --- interesting? horrifying? Well, definatly

more info to add to your theory!

/files/Books_about_autism

best wishes,

Moria

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  • 7 years later...
Guest guest

I don't know of a group, but two of my children have it. We have the

plastic covers for the mattress, wash ALL bedding once a week in hot

water for dust mites. We even yanked out our carpets and put in wood

floors. ( I know that is drastic) There are allergy shots. And not all

allergists/ pulmonologisrs are the same. Ask around and get to the

best. Use a spirometer. And at the first sniff of a cold, start the

inhalers or prednisone. One sniff and begin. No delay.

Sent from my iPod

On Apr 27, 2010, at 8:23 PM, ajaomom@... wrote:

> Looking for a good support group for kids with asthma and allergies

> any

> suggestions? Although Holly has asthma too, its actually that I

> am

> needing support for. Found out today when we took him to the

> pulmonologist in

> Feb, he was breathing like a 50 year old smoker, at 14 and a non

> smoker

> ever, its not a good thing. Also found out today he is severely

> allergic to

> dust. Help friends!!!!

>

>

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Guest guest

I also joined the group that Beth is mentioning (thanks, Beth!) and it's a great

one to find resources and crucial advice on treating asthma. My son has

moderate persistant since he was 19 months old and it's a daily issue around

here to figure out meds and especially during pollen season :(. -Hadley

>

> There is an awesome group for this:  I am very active in that group as

well.  It's called Families_ Dealing_With_ Asthma.  They discuss both

allergies and asthma and have been extremely helpful to me over the years.

>  Beth

> " We cannot direct the wind, but we can adjust our sails "

>

>

>

>

> ________________________________

> From: " ajaomom@... " <ajaomom@...>

>

> Sent: Tue, April 27, 2010 10:23:20 PM

> Subject: OT: Asthma

>

>  

> Looking for a good support group for kids with asthma and allergies any

> suggestions? Although Holly has asthma too, its actually that I am

> needing support for. Found out today when we took him to the pulmonologist in

> Feb, he was breathing like a 50 year old smoker, at 14 and a non smoker

> ever, its not a good thing. Also found out today he is severely allergic to

> dust. Help friends!!!!

>

>

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Guest guest

Hey Hadey;

I was wondering how things were going with .  I was hoping no news is

good news.

 Beth

" We cannot direct the wind, but we can adjust our sails "

________________________________

From: hadley_messner <hmessner@...>

Sent: Wed, April 28, 2010 10:40:51 AM

Subject: Re: OT: Asthma

 

I also joined the group that Beth is mentioning (thanks, Beth!) and it's a great

one to find resources and crucial advice on treating asthma. My son has

moderate persistant since he was 19 months old and it's a daily issue around

here to figure out meds and especially during pollen season :(. -Hadley

>

> There is an awesome group for this:  I am very active in that group

as well.  It's called Families_ Dealing_With_ Asthma.  They discuss

both allergies and asthma and have been extremely helpful to me over the years.

>  Beth

> " We cannot direct the wind, but we can adjust our sails "

>

>

>

>

> ____________ _________ _________ __

> From: " ajaomom@... " <ajaomom@... >

> @group s.com

> Sent: Tue, April 27, 2010 10:23:20 PM

> Subject: OT: Asthma

>

>  

> Looking for a good support group for kids with asthma and allergies any

> suggestions? Although Holly has asthma too, its actually that I am

> needing support for. Found out today when we took him to the pulmonologist in

> Feb, he was breathing like a 50 year old smoker, at 14 and a non smoker

> ever, its not a good thing. Also found out today he is severely allergic to

> dust. Help friends!!!!

>

>

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