Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Hi all, Between the reports of terrible rebound effects should one go off Tysabri; the 2 cases of melanoma, and now the report that both Anne sent to the group, and Sharon sent me privately, that Tysabri is linked with terrible liver disease/complications...I am REALLY between a rock and a hard place. I tried calling my neuro; he is gone on Wed. afternoons, but I left a message on their machine that the FDA has a report out about Tysabri, and I'm quite concerned and perhaps I should have bloodwork done. My neuro, dear Dr. Decker, kindly called me back! In only a bit of time after I had left the message to state he understands my concern, and will send a script for me to have done at his hospital to have liver function/enzyme tests done now, and every 3 months. I was very happy to have had him respond so promptly to my call! If my #'s are ok on this bloodwork, I assume I will stay the course on Tysabri. I suppose if I were to go off Tysabri, I'd more than likely go back on Copaxone. thanks for listening! love to all, kate Quote Link to comment Share on other sites More sharing options...
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