Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 A lot of people have good luck with copaxone. I know our group member Bill is on it and is happy with it. I know there are others here who can give their experiences. Perhaps you just don't respond to interferons--not all people do. I think jumping to Tysabri before trying Copaxone would be a mistake but that is only MY opinion. My neuro called Tysabri a "last resort" medication. Hugs)))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Everyone, Annette, Challis ? on SSDI doctor Well, just got off phone with neuro. It is another attack. He is setting up my IV infustions and will call back later with my schedule. I have an appt with him on 3-17 and he said we will discuss med options then. He wants MRI's, but I can't afford the co-pay right now. Hoping when DH starts that job overseas, the insurance will cover it a little more than my current insurance. Dr. T understands and is not worried as he and I both know that they will show new lesions. He just wants to see where is all. I started a journal yesterday, Annette. I will take it with me if I have to go to SSA doc. I wrote in it, little notes up until about 10am. Rest of day was spent in bed. That's just what I wrote after last note at 9:45am. I stayed in bed from 10am on. It's a pathetic little spiral that won't last long so gonna get a larger one just for journaling as this one has most of my daily notes. I think the journaling should be seperate. I also noted today that last night my husband and discussed not putting out trash can until this morning as it was so windy last night! 30 min later I asked him about the trash and he had to tell me that we already discussed it and decided to put it out this morning. I had no recollection of the first conversation. So, Challis, there is your fav lapse of memory! Or a lack of it anyway because I didn't realize the conversation had already taken place! Ok, spilled enough for now. Love to you all! TammyAnnette Stange <nettieforce1@ yahoo.com> wrote: hi tammy, would keeping a diary help? i also liked the way you summarized your problems in your post-very concise and descriptive. perhaps a narrative describing a typical week in your life with ms?annetteTammy in Texas <tamatha_txyahoo (DOT) com> wrote: Anyone have any advice on how to convince whatever doctor SSA sends me to, that my symptoms, which sometimes have better days, that most of the time it would be impossible to hold a job. I have to take cat naps. I have to stay near my bathroom because there is no warning when I need to go. When I get that "you gotta pee" signal, it is the one that normal people get when they have held it for way too long. Somedays, simple movement is painful due to the FM. You all know what I mean when I say that not every symptom is present 24/7. This last migraine started at 3pm on Saturday and at 1am Monday morning, I am finally up and able to read my email! Just wanted to know if there was a foolproof way to state my ailments so that this doc will see that everyday is a new challenge for me. Tammy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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