Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Wow...well, it's a start! Big dose of Prednisone! But that ought to jumpstart you in the right direction...or it had better! More nerve conduction tests...I'll say " OUCH! " So, now we wait for 12 March! Relax now, Ed...you deserve a great, big, luscious bar of chocolate! Lynn --- bmcm_eod wrote: > Another day of not doing too well. Saw the > Neurologist again today > and had more nerve conduction tests done. Some from > the neck too. > *OUCH* Still no diagnosis. From all the tests we > still can't rule out > MS. Tomorrow I start on 100mg of Prednisone for 10 > days to be > followed by 40mg for four days. We'll see if the > pred does anything > for my strength. On the 12th of March I see the > Neurologist and the > Rheumatologist again. There is talk of referring me > out. > > Ed > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I hope remembers to bring me some (chocolate). The tests today were really out there. They even ran the electrodes from my neck! Needless to say I did quite a bit of jumping around. I expect I'll be pretty messed up the next few days. Ed > > Another day of not doing too well. Saw the > > Neurologist again today > > and had more nerve conduction tests done. Some from > > the neck too. > > *OUCH* Still no diagnosis. From all the tests we > > still can't rule out > > MS. Tomorrow I start on 100mg of Prednisone for 10 > > days to be > > followed by 40mg for four days. We'll see if the > > pred does anything > > for my strength. On the 12th of March I see the > > Neurologist and the > > Rheumatologist again. There is talk of referring me > > out. > > > > Ed > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I remember an EMG done up into my neck to the base of my skull...golly, did I get sick to my stomach!! Do you have any bruises at the sites of the needles?? I did! What an icky test, but it does give lots of good information. Lynn --- bmcm_eod wrote: > I hope remembers to bring me some (chocolate). > The tests today > were really out there. They even ran the electrodes > from my neck! > Needless to say I did quite a bit of jumping around. > I expect I'll > be pretty messed up the next few days. > > Ed > > > > > Another day of not doing too well. Saw the > > > Neurologist again today > > > and had more nerve conduction tests done. Some > from > > > the neck too. > > > *OUCH* Still no diagnosis. From all the tests we > > > still can't rule out > > > MS. Tomorrow I start on 100mg of Prednisone for > 10 > > > days to be > > > followed by 40mg for four days. We'll see if the > > > pred does anything > > > for my strength. On the 12th of March I see the > > > Neurologist and the > > > Rheumatologist again. There is talk of > referring me > > > out. > > > > > > Ed > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I remember an EMG done up into my neck to the base of my skull...golly, did I get sick to my stomach!! Do you have any bruises at the sites of the needles?? I did! What an icky test, but it does give lots of good information. Lynn --- bmcm_eod wrote: > I hope remembers to bring me some (chocolate). > The tests today > were really out there. They even ran the electrodes > from my neck! > Needless to say I did quite a bit of jumping around. > I expect I'll > be pretty messed up the next few days. > > Ed > > > > > Another day of not doing too well. Saw the > > > Neurologist again today > > > and had more nerve conduction tests done. Some > from > > > the neck too. > > > *OUCH* Still no diagnosis. From all the tests we > > > still can't rule out > > > MS. Tomorrow I start on 100mg of Prednisone for > 10 > > > days to be > > > followed by 40mg for four days. We'll see if the > > > pred does anything > > > for my strength. On the 12th of March I see the > > > Neurologist and the > > > Rheumatologist again. There is talk of > referring me > > > out. > > > > > > Ed > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 What do you mean... " referring you out " ? Never heard that term before, Ed. Annette I'm Joining The Pred Parade!! Another day of not doing too well. Saw the Neurologist again today and had more nerve conduction tests done. Some from the neck too. *OUCH* Still no diagnosis. From all the tests we still can't rule out MS. Tomorrow I start on 100mg of Prednisone for 10 days to be followed by 40mg for four days. We'll see if the pred does anything for my strength. On the 12th of March I see the Neurologist and the Rheumatologist again. There is talk of referring me out. Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Ed, WOW 100mg. Get ready for a ride!! I started 60 last friday and have been wired since. 100 is a lot. then to drop right down to 40. That is drastic isn't it??? Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 The neuro today mentioned referring me to Bethesda Naval Hospital in DC. It's one of the big ones where the President gets seen and such. I'm just wondering how they'll get me there. Ed > What do you mean... " referring you out " ? Never heard that term before, Ed. > Annette > > I'm Joining The Pred Parade!! > > > Another day of not doing too well. Saw the Neurologist again today > and had more nerve conduction tests done. Some from the neck too. > *OUCH* Still no diagnosis. From all the tests we still can't rule out > MS. Tomorrow I start on 100mg of Prednisone for 10 days to be > followed by 40mg for four days. We'll see if the pred does anything > for my strength. On the 12th of March I see the Neurologist and the > Rheumatologist again. There is talk of referring me out. > > Ed > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Ed, Sorry to hear that you are joining the Pred parade but maybe it will give you some relief from the pain. Also, Pred tastes really good with Nestle Crunch bars (small bite sizes) right out of the freezer. That always brings a smile to my face. Melita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Melita said: ****Also, Pred tastes really good with Nestle Crunch bars (small bite sizes) right out of the freezer. That always brings a smile to my face.**** LOL... got to love your sense of humor all right... and I LOVE those Nestle Crunch bars... Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Ed... wow, they really must be baffled by all this if they are willing to send you to Bethesda Naval Hospital in DC. Isn't that where Lynn lives????? You have to know I'm going to laugh if they send you there and it turns out to be PM... I won't be laughing at you.... just your doctors! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Waht's this??? I'm reading my mail backwards! Yes, I live near Bethesda...when the boys were little, i practically lived there! NIH is right across the street...docs told me this is the place to be if you're going to have a peculiar disease, cause they walk across to NIH and consult all the time! Lynn --- anzavic@... wrote: > > > Ed... wow, they really must be baffled by all this > if they are willing > to send you to Bethesda Naval Hospital in DC. > Isn't that where Lynn > lives????? You have to know I'm going to laugh if > they send you there > and it turns out to be PM... I won't be laughing at > you.... just your > doctors! > > Vicki > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I'll be stocking up on Nestles Crunch bars LOL!!! Thanks Melita! Ed > > > Melita said: > > ****Also, Pred tastes really good with Nestle Crunch bars (small bite > sizes) right out of the freezer. That always brings a smile to my > face.**** > > LOL... got to love your sense of humor all right... and I LOVE those > Nestle Crunch bars... > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I'll be stocking up on Nestles Crunch bars LOL!!! Thanks Melita! Ed > > > Melita said: > > ****Also, Pred tastes really good with Nestle Crunch bars (small bite > sizes) right out of the freezer. That always brings a smile to my > face.**** > > LOL... got to love your sense of humor all right... and I LOVE those > Nestle Crunch bars... > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I would be laughing too, but probably not for a few weeks after the biopsy LOL!! Ed > > > Ed... wow, they really must be baffled by all this if they are willing > to send you to Bethesda Naval Hospital in DC. Isn't that where Lynn > lives????? You have to know I'm going to laugh if they send you there > and it turns out to be PM... I won't be laughing at you.... just your > doctors! > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I would be laughing too, but probably not for a few weeks after the biopsy LOL!! Ed > > > Ed... wow, they really must be baffled by all this if they are willing > to send you to Bethesda Naval Hospital in DC. Isn't that where Lynn > lives????? You have to know I'm going to laugh if they send you there > and it turns out to be PM... I won't be laughing at you.... just your > doctors! > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I would be laughing too, but probably not for a few weeks after the biopsy LOL!! Ed > > > Ed... wow, they really must be baffled by all this if they are willing > to send you to Bethesda Naval Hospital in DC. Isn't that where Lynn > lives????? You have to know I'm going to laugh if they send you there > and it turns out to be PM... I won't be laughing at you.... just your > doctors! > > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 That sounds good to me. Maybe you can visit if I end up there. Ed > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 That sounds good to me. Maybe you can visit if I end up there. Ed > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 That sounds good to me. Maybe you can visit if I end up there. Ed > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Lynn, About where do you live? We lived in Waldorf and Laplata MD. When Ed was stationed at Indian Head MD 85-87 and 97-99. > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Lynn, About where do you live? We lived in Waldorf and Laplata MD. When Ed was stationed at Indian Head MD 85-87 and 97-99. > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Lynn, About where do you live? We lived in Waldorf and Laplata MD. When Ed was stationed at Indian Head MD 85-87 and 97-99. > > > > > > Ed... wow, they really must be baffled by all this > > if they are willing > > to send you to Bethesda Naval Hospital in DC. > > Isn't that where Lynn > > lives????? You have to know I'm going to laugh if > > they send you there > > and it turns out to be PM... I won't be laughing at > > you.... just your > > doctors! > > > > Vicki > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Ed... Request a ride on Air Force One! Annette I'm Joining The Pred Parade!! > > > Another day of not doing too well. Saw the Neurologist again today > and had more nerve conduction tests done. Some from the neck too. > *OUCH* Still no diagnosis. From all the tests we still can't rule out > MS. Tomorrow I start on 100mg of Prednisone for 10 days to be > followed by 40mg for four days. We'll see if the pred does anything > for my strength. On the 12th of March I see the Neurologist and the > Rheumatologist again. There is talk of referring me out. > > Ed > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Morning ...I live in Dale City, Virginia...23 miles south of Washington DC...about an hour's drive from Bethesda. I live 5 minutes away from the famous Potomac Mills Mall. For military landmarks, I'm closest to Quantico Marine Base and Fort Belvoir...I work at Naval Sea Systems Command...Ed probably knows it! We build ships! Big whoop, eh? Lynn --- edsmary84 wrote: > Lynn, About where do you live? We lived in Waldorf > and Laplata MD. > When Ed was stationed at Indian Head MD 85-87 and > 97-99. > > > > > > > > > > > > Ed... wow, they really must be baffled by all > this > > > if they are willing > > > to send you to Bethesda Naval Hospital in DC. > > > Isn't that where Lynn > > > lives????? You have to know I'm going to laugh > if > > > they send you there > > > and it turns out to be PM... I won't be laughing > at > > > you.... just your > > > doctors! > > > > > > Vicki > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Seems drastic to me, from what I've learned here. Maybe short term isn't as bad (hoping). Ed > Ed, > > WOW 100mg. Get ready for a ride!! I started 60 last friday and have been > wired since. 100 is a lot. then to drop right down to 40. That is drastic > isn't it??? > > Zanna Quote Link to comment Share on other sites More sharing options...
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