Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Michele, My son has hip surgeries at one and again at 18 months....he was in a spika cast (a cast from the ankles to just above the waist).. was casted in a frog position with a wooden rod between his knees.. Due to this position did not fit safely in a car seat or a stroller...'s physical therapist was able to expedite an order for both...they arrived at the hospital before he went home...There was a fight with the insurance company for the car seat not the stroller...I tried to reason with the insurance company by telling how unsafe it was to ride around without a car seat...Well I finally had enough so I told the they needed to pre approve 10 ambulance transfers because had several doctor's appointments in the next few months and since they would not approve the special seat we would need transportation...Within 20 minutes it was approved and shipped overnight ... 's cast was hard to take care of...it is difficult to keep clean...we were able to keep the rough edges from chaffing by using self stick moleskin ....and we used waterproof tape in areas that were likely to get wet. Good luck...any other question I'll try to answer.. had 4 spika casts. Take care Ellen mom to almost 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 glad you got the extra week if you need it--it helps if you are totoally prepared and wonderful all hte family etc can help. my fingers aren't working to well today --I'm tired but will stock up on caffine today as I am cropping tonight and sunday--yea!!! trying to get the family album caught up before our trip home. I've got a week and a half!!! aughhhhhhhhhhhhhhhhhhhhh!!!!! have a great week-end and take time to relax. maria postponement > > Aubrie's hip surgery has been postponed 1 week until July 29th. I > called Shriners to start working on a hospital bed for home and the > nurse told me they just couldn't find an anesthesiologist. Apparently, > there are more than the usual amt of surgeries coming up and no anesth. > are available that day -- all are busy at the children's hospitals. > So... one week later -- > > Of course, I was worried at first cuz none of us likes sudden changes in > plans. But it's turning out to be a gift. Just this past week I was > feeling overwhelmed and wishing for a week of nothing so I could get > caught up. Well -- here it is. An extra week during which I had > nothing planned. So I'm not planning anything but getting things in > order around the house and doing fun things with my kids. > My mom is able to change her schedule to be there as planned for the > surgery in-hospital week. DJ was able to change his vacation to be off > during the discharge week. My MIL can't change her flights, but her > visit will be the tail end of DJ's vacation thru the following week. So > all is well. The only thing I haven't confirmed is that my mom can > still stay at Youth Bridge (like RMcD house). But I am hoping that will > work out too. Plus we can get in 2 more sessions of CST before the > surgery now. > > For those who've had this hip surgery, did your child have a hospital > bed at home while in the cast? If my ins is willing to pay with a dr > orders, then I don't know why he wouldn't oblige, but I'm waiting to > hear back. > > Michele W > Aubrie's mom 6 yrs > > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Michele, used his regular bed...hospital beds made him sweat...and sweating in a cast is terrible. We got foam blocks from his therapist that helped prop him up and keep him comfortable...I'm not sure how you feel about these but I used a bean bag chair for him ...he was able to watch TV play with friends and the chair molded to him....Just so you know it is very hard to carry your child with the cast on...Are they giving her a " Walking cast " ? there are lots of little do's and don'ts they will give you...I followed each one. I'm here if you think of any questions.... will be 7 on September 29. He's going into first grade. just had his 17th surgery yesterday...the plastic surgeon refined his lip. It hasn't stopped him yet...he's up and running around....eating too! He has always amazed me ... what a trooper. Good luck Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Ellen- Very helpful info! I know that the discharge person at the hospital is working on the carseat and wheelchair for us. I think we get a loaner chair from Shriners. Car seat is a bit of an issue cuz the rules in IL (where we live) have recently changed and are different from MO (where the hospital is). You'd think it had come up already with the number of surgeries they do, but maybe not. I will remember your strategy if I run into any trouble with ins. I have a request in to the dr to authorize a hospital bed. What did you use at home? When is 's birthday? Aubrie will be 7 on Nov 29. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, We've spoken before.... learned to eat by eating ice cream at the local farm. takes all his calories by mouth his tube was removed last November ... rested comfortably in the bean bag chair because it was form fitting..plus it was still cool ..his friends wanted one... I keep remembering little bits and pieces. So my responses may seem a little disjointed. still had his g-tube....it was something the doc forgot about until after was casted....The docs ended up cutting a window before the cast got hard...it was quite comical. How long will Aubrie need to be casted?..Clothing was another challenge. I designed a winter pouch made out of fleece to keep warm in the winter because no winter jacket fit. Hope this helps Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Ellen- I have been wanting to order a huge bean bag for her. Have you seen the new ones on the market? They have children's and oversized ones. They are filled with foam instead of the old pellets. I want a Corda-Roy (www.cordaroys.com). I had seen Lovesacs in a store and was ready to throw out the traditional living room furniture for beanbags! With this surgery, I'm thinking that a bean bag would be more comfortable than anything else. And seems like it would be easy to readjust slightly to shift the weight. The Cordaroys convert into beds (the foam filling is in a bed style bag so you just tuck that inside the chair cover) so I'd love that for guests etc. I'm glad to hear that a bead bag worked well for . Have we've talked about the kids before? I don't recall. There are so many families on the list that I have a hard time keeping everyone straight. Aubrie is also going into 1st grade at our regular school with a 1:1 aid. She's doing great academically and socially. Her biggest obstacle right now is fine motor. Her writing is very poor. We're working on keyboarding and using Handwriting without Tears to help with writing. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi Michele, Danny did not have a hospital bed. He used his regular twin size bed with lots of pillows to prop him in different positions. We also used a beanbag and that really worked great. His cast was angled so that he was in a semi-reclining position with his legs frog spread and his bar was between his ankles. Because of the angle , he could not sit in any regular chair so for example when we had dinner he sat in his beanbag near the table. My husband is handy so he made him a little table that he used-like a laptray. We also had the special carseat-I can't really remember what it looked like but he took up the whole backseat cause I think he was in it on his side somehow, The hospital helped us install it. We also had a loaner wheelchair but didn't use it much except for appts. Our house then was a split level so it didn't work well in our house and was not as comfortable as other positions. I can tell you that both my husband and I lost weight those six weeks from carrying Danny around as the cast is heavy. The time went quickly and we have to struggle to remember the details now!! His Dr's have never mentioned any possibity of his having this surgery repeated as others have mentioned on the list. I am certainly going to ask at his next check-up. We will keep uou and your family in our thoughts these next few weeks. Guess what? Danny and Aubrie have the same birthday only he is older-11/29/90. R.-Mom to Danny,13, Alyssa 16 and Beth,8. on 7/15/04 7:12 PM, Michele Westmaas at momonamission@... wrote: > > Aubrie's hip surgery has been postponed 1 week until July 29th. I > called Shriners to start working on a hospital bed for home and the > nurse told me they just couldn't find an anesthesiologist. Apparently, > there are more than the usual amt of surgeries coming up and no anesth. > are available that day -- all are busy at the children's hospitals. > So... one week later -- > > Of course, I was worried at first cuz none of us likes sudden changes in > plans. But it's turning out to be a gift. Just this past week I was > feeling overwhelmed and wishing for a week of nothing so I could get > caught up. Well -- here it is. An extra week during which I had > nothing planned. So I'm not planning anything but getting things in > order around the house and doing fun things with my kids. > My mom is able to change her schedule to be there as planned for the > surgery in-hospital week. DJ was able to change his vacation to be off > during the discharge week. My MIL can't change her flights, but her > visit will be the tail end of DJ's vacation thru the following week. So > all is well. The only thing I haven't confirmed is that my mom can > still stay at Youth Bridge (like RMcD house). But I am hoping that will > work out too. Plus we can get in 2 more sessions of CST before the > surgery now. > > For those who've had this hip surgery, did your child have a hospital > bed at home while in the cast? If my ins is willing to pay with a dr > orders, then I don't know why he wouldn't oblige, but I'm waiting to > hear back. > > Michele W > Aubrie's mom 6 yrs > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi Michele, Danny did not have a hospital bed. He used his regular twin size bed with lots of pillows to prop him in different positions. We also used a beanbag and that really worked great. His cast was angled so that he was in a semi-reclining position with his legs frog spread and his bar was between his ankles. Because of the angle , he could not sit in any regular chair so for example when we had dinner he sat in his beanbag near the table. My husband is handy so he made him a little table that he used-like a laptray. We also had the special carseat-I can't really remember what it looked like but he took up the whole backseat cause I think he was in it on his side somehow, The hospital helped us install it. We also had a loaner wheelchair but didn't use it much except for appts. Our house then was a split level so it didn't work well in our house and was not as comfortable as other positions. I can tell you that both my husband and I lost weight those six weeks from carrying Danny around as the cast is heavy. The time went quickly and we have to struggle to remember the details now!! His Dr's have never mentioned any possibity of his having this surgery repeated as others have mentioned on the list. I am certainly going to ask at his next check-up. We will keep uou and your family in our thoughts these next few weeks. Guess what? Danny and Aubrie have the same birthday only he is older-11/29/90. R.-Mom to Danny,13, Alyssa 16 and Beth,8. on 7/15/04 7:12 PM, Michele Westmaas at momonamission@... wrote: > > Aubrie's hip surgery has been postponed 1 week until July 29th. I > called Shriners to start working on a hospital bed for home and the > nurse told me they just couldn't find an anesthesiologist. Apparently, > there are more than the usual amt of surgeries coming up and no anesth. > are available that day -- all are busy at the children's hospitals. > So... one week later -- > > Of course, I was worried at first cuz none of us likes sudden changes in > plans. But it's turning out to be a gift. Just this past week I was > feeling overwhelmed and wishing for a week of nothing so I could get > caught up. Well -- here it is. An extra week during which I had > nothing planned. So I'm not planning anything but getting things in > order around the house and doing fun things with my kids. > My mom is able to change her schedule to be there as planned for the > surgery in-hospital week. DJ was able to change his vacation to be off > during the discharge week. My MIL can't change her flights, but her > visit will be the tail end of DJ's vacation thru the following week. So > all is well. The only thing I haven't confirmed is that my mom can > still stay at Youth Bridge (like RMcD house). But I am hoping that will > work out too. Plus we can get in 2 more sessions of CST before the > surgery now. > > For those who've had this hip surgery, did your child have a hospital > bed at home while in the cast? If my ins is willing to pay with a dr > orders, then I don't know why he wouldn't oblige, but I'm waiting to > hear back. > > Michele W > Aubrie's mom 6 yrs > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi Michele, Danny did not have a hospital bed. He used his regular twin size bed with lots of pillows to prop him in different positions. We also used a beanbag and that really worked great. His cast was angled so that he was in a semi-reclining position with his legs frog spread and his bar was between his ankles. Because of the angle , he could not sit in any regular chair so for example when we had dinner he sat in his beanbag near the table. My husband is handy so he made him a little table that he used-like a laptray. We also had the special carseat-I can't really remember what it looked like but he took up the whole backseat cause I think he was in it on his side somehow, The hospital helped us install it. We also had a loaner wheelchair but didn't use it much except for appts. Our house then was a split level so it didn't work well in our house and was not as comfortable as other positions. I can tell you that both my husband and I lost weight those six weeks from carrying Danny around as the cast is heavy. The time went quickly and we have to struggle to remember the details now!! His Dr's have never mentioned any possibity of his having this surgery repeated as others have mentioned on the list. I am certainly going to ask at his next check-up. We will keep uou and your family in our thoughts these next few weeks. Guess what? Danny and Aubrie have the same birthday only he is older-11/29/90. R.-Mom to Danny,13, Alyssa 16 and Beth,8. on 7/15/04 7:12 PM, Michele Westmaas at momonamission@... wrote: > > Aubrie's hip surgery has been postponed 1 week until July 29th. I > called Shriners to start working on a hospital bed for home and the > nurse told me they just couldn't find an anesthesiologist. Apparently, > there are more than the usual amt of surgeries coming up and no anesth. > are available that day -- all are busy at the children's hospitals. > So... one week later -- > > Of course, I was worried at first cuz none of us likes sudden changes in > plans. But it's turning out to be a gift. Just this past week I was > feeling overwhelmed and wishing for a week of nothing so I could get > caught up. Well -- here it is. An extra week during which I had > nothing planned. So I'm not planning anything but getting things in > order around the house and doing fun things with my kids. > My mom is able to change her schedule to be there as planned for the > surgery in-hospital week. DJ was able to change his vacation to be off > during the discharge week. My MIL can't change her flights, but her > visit will be the tail end of DJ's vacation thru the following week. So > all is well. The only thing I haven't confirmed is that my mom can > still stay at Youth Bridge (like RMcD house). But I am hoping that will > work out too. Plus we can get in 2 more sessions of CST before the > surgery now. > > For those who've had this hip surgery, did your child have a hospital > bed at home while in the cast? If my ins is willing to pay with a dr > orders, then I don't know why he wouldn't oblige, but I'm waiting to > hear back. > > Michele W > Aubrie's mom 6 yrs > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, I will now pray for you on the 29th. 's ear surgery is on the 23rd. She and will be moving into their apartment in two ro three weeks. Lynn postponement Aubrie's hip surgery has been postponed 1 week until July 29th. I called Shriners to start working on a hospital bed for home and the nurse told me they just couldn't find an anesthesiologist. Apparently, there are more than the usual amt of surgeries coming up and no anesth. are available that day -- all are busy at the children's hospitals. So... one week later -- Of course, I was worried at first cuz none of us likes sudden changes in plans. But it's turning out to be a gift. Just this past week I was feeling overwhelmed and wishing for a week of nothing so I could get caught up. Well -- here it is. An extra week during which I had nothing planned. So I'm not planning anything but getting things in order around the house and doing fun things with my kids. My mom is able to change her schedule to be there as planned for the surgery in-hospital week. DJ was able to change his vacation to be off during the discharge week. My MIL can't change her flights, but her visit will be the tail end of DJ's vacation thru the following week. So all is well. The only thing I haven't confirmed is that my mom can still stay at Youth Bridge (like RMcD house). But I am hoping that will work out too. Plus we can get in 2 more sessions of CST before the surgery now. For those who've had this hip surgery, did your child have a hospital bed at home while in the cast? If my ins is willing to pay with a dr orders, then I don't know why he wouldn't oblige, but I'm waiting to hear back. Michele W Aubrie's mom 6 yrs Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, I will now pray for you on the 29th. 's ear surgery is on the 23rd. She and will be moving into their apartment in two ro three weeks. Lynn postponement Aubrie's hip surgery has been postponed 1 week until July 29th. I called Shriners to start working on a hospital bed for home and the nurse told me they just couldn't find an anesthesiologist. Apparently, there are more than the usual amt of surgeries coming up and no anesth. are available that day -- all are busy at the children's hospitals. So... one week later -- Of course, I was worried at first cuz none of us likes sudden changes in plans. But it's turning out to be a gift. Just this past week I was feeling overwhelmed and wishing for a week of nothing so I could get caught up. Well -- here it is. An extra week during which I had nothing planned. So I'm not planning anything but getting things in order around the house and doing fun things with my kids. My mom is able to change her schedule to be there as planned for the surgery in-hospital week. DJ was able to change his vacation to be off during the discharge week. My MIL can't change her flights, but her visit will be the tail end of DJ's vacation thru the following week. So all is well. The only thing I haven't confirmed is that my mom can still stay at Youth Bridge (like RMcD house). But I am hoping that will work out too. Plus we can get in 2 more sessions of CST before the surgery now. For those who've had this hip surgery, did your child have a hospital bed at home while in the cast? If my ins is willing to pay with a dr orders, then I don't know why he wouldn't oblige, but I'm waiting to hear back. Michele W Aubrie's mom 6 yrs Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 - Same birthday?? That's pretty cool! Did Danny have hip dysplasia at birth or did it develop like Aubrie's? I really am a bit confused by why it would recur if we are getting everything lined up. She doesn't get around funny anymore-- in that frog-legged hop -- she walks. So shouldn't she walk with proper alignment now? The only that really concerns me is that she sits in a frog-leg position and rocks and falls asleep. But won't that position by uncomfortable after the surgery? Her resting position should be proper afterwards. Well, we'll see. Thanks for sharing your experience with beds and chairs. I am not looking forward to this at all :-) Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 - Same birthday?? That's pretty cool! Did Danny have hip dysplasia at birth or did it develop like Aubrie's? I really am a bit confused by why it would recur if we are getting everything lined up. She doesn't get around funny anymore-- in that frog-legged hop -- she walks. So shouldn't she walk with proper alignment now? The only that really concerns me is that she sits in a frog-leg position and rocks and falls asleep. But won't that position by uncomfortable after the surgery? Her resting position should be proper afterwards. Well, we'll see. Thanks for sharing your experience with beds and chairs. I am not looking forward to this at all :-) Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 - Same birthday?? That's pretty cool! Did Danny have hip dysplasia at birth or did it develop like Aubrie's? I really am a bit confused by why it would recur if we are getting everything lined up. She doesn't get around funny anymore-- in that frog-legged hop -- she walks. So shouldn't she walk with proper alignment now? The only that really concerns me is that she sits in a frog-leg position and rocks and falls asleep. But won't that position by uncomfortable after the surgery? Her resting position should be proper afterwards. Well, we'll see. Thanks for sharing your experience with beds and chairs. I am not looking forward to this at all :-) Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Ellen- Aubrie will have her cast 6-8 wks. It will be the hottest time of the year here -- August in the midwest. But we plan to stay in the air conditioning and we'll be fine. I'm worried about toileting, keeping the cast clean, and constipation. We fought constipation early on and I don't want to go there again. Did have the cast when he was old enough for school? We're planning on Aubrie attending school. She'll have been in the cast nearly a month when school starts so we should be experts in her care by then. I'm sure she'll be anxious to get out of the house, be with her friends, and get started with 1st grade. You can't do all of the beginning of the year getting acquainted stuff with homebound instruction. I hope we are successful in getting her there. How often did you have to go back for rechecks? Will we not go back until the cast is due to come off? Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Ellen- Aubrie will have her cast 6-8 wks. It will be the hottest time of the year here -- August in the midwest. But we plan to stay in the air conditioning and we'll be fine. I'm worried about toileting, keeping the cast clean, and constipation. We fought constipation early on and I don't want to go there again. Did have the cast when he was old enough for school? We're planning on Aubrie attending school. She'll have been in the cast nearly a month when school starts so we should be experts in her care by then. I'm sure she'll be anxious to get out of the house, be with her friends, and get started with 1st grade. You can't do all of the beginning of the year getting acquainted stuff with homebound instruction. I hope we are successful in getting her there. How often did you have to go back for rechecks? Will we not go back until the cast is due to come off? Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Ellen- Aubrie will have her cast 6-8 wks. It will be the hottest time of the year here -- August in the midwest. But we plan to stay in the air conditioning and we'll be fine. I'm worried about toileting, keeping the cast clean, and constipation. We fought constipation early on and I don't want to go there again. Did have the cast when he was old enough for school? We're planning on Aubrie attending school. She'll have been in the cast nearly a month when school starts so we should be experts in her care by then. I'm sure she'll be anxious to get out of the house, be with her friends, and get started with 1st grade. You can't do all of the beginning of the year getting acquainted stuff with homebound instruction. I hope we are successful in getting her there. How often did you have to go back for rechecks? Will we not go back until the cast is due to come off? Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, I wasn't in a cast, but from my personal experience I would do everything you can to make Aubrie's bed comfortable for her. I purchased a new bed just before my back surgery last year. I was so disappointed when I was sent from the hospital to a nursing home and then after 2 weeks when I finally got to come home, I was put in a hospital bed for 3 months. All three of those beds were the most uncomfortable things I have ever slept on. My husband and Mitch got so tired of trying to help me get comfortable they wanted to run away. I can't imagine being so tiny and in a cast and wanting to sleep in my own bed. Here's wishing Aubrie a successful surgery and a speedy recovery! Sheryl Mom to Mitch 18 & 17 CHARGE > Michele, > > used his regular bed...hospital beds made him sweat...and sweating in a > cast is terrible. We got foam blocks from his therapist that helped prop him > up and keep him comfortable...I'm not sure how you feel about these but I used > a bean bag chair for him ...he was able to watch TV play with friends and the > chair molded to him....Just so you know it is very hard to carry your child > with the cast on...Are they giving her a " Walking cast " ? there are lots of > little do's and don'ts they will give you...I followed each one. I'm here if you > think of any questions.... > will be 7 on September 29. He's going into first grade. > just had his 17th surgery yesterday...the plastic surgeon refined his > lip. > It hasn't stopped him yet...he's up and running around....eating too! He has > always amazed me ... what a trooper. > Good luck > Ellen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, I wasn't in a cast, but from my personal experience I would do everything you can to make Aubrie's bed comfortable for her. I purchased a new bed just before my back surgery last year. I was so disappointed when I was sent from the hospital to a nursing home and then after 2 weeks when I finally got to come home, I was put in a hospital bed for 3 months. All three of those beds were the most uncomfortable things I have ever slept on. My husband and Mitch got so tired of trying to help me get comfortable they wanted to run away. I can't imagine being so tiny and in a cast and wanting to sleep in my own bed. Here's wishing Aubrie a successful surgery and a speedy recovery! Sheryl Mom to Mitch 18 & 17 CHARGE > Michele, > > used his regular bed...hospital beds made him sweat...and sweating in a > cast is terrible. We got foam blocks from his therapist that helped prop him > up and keep him comfortable...I'm not sure how you feel about these but I used > a bean bag chair for him ...he was able to watch TV play with friends and the > chair molded to him....Just so you know it is very hard to carry your child > with the cast on...Are they giving her a " Walking cast " ? there are lots of > little do's and don'ts they will give you...I followed each one. I'm here if you > think of any questions.... > will be 7 on September 29. He's going into first grade. > just had his 17th surgery yesterday...the plastic surgeon refined his > lip. > It hasn't stopped him yet...he's up and running around....eating too! He has > always amazed me ... what a trooper. > Good luck > Ellen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, I wasn't in a cast, but from my personal experience I would do everything you can to make Aubrie's bed comfortable for her. I purchased a new bed just before my back surgery last year. I was so disappointed when I was sent from the hospital to a nursing home and then after 2 weeks when I finally got to come home, I was put in a hospital bed for 3 months. All three of those beds were the most uncomfortable things I have ever slept on. My husband and Mitch got so tired of trying to help me get comfortable they wanted to run away. I can't imagine being so tiny and in a cast and wanting to sleep in my own bed. Here's wishing Aubrie a successful surgery and a speedy recovery! Sheryl Mom to Mitch 18 & 17 CHARGE > Michele, > > used his regular bed...hospital beds made him sweat...and sweating in a > cast is terrible. We got foam blocks from his therapist that helped prop him > up and keep him comfortable...I'm not sure how you feel about these but I used > a bean bag chair for him ...he was able to watch TV play with friends and the > chair molded to him....Just so you know it is very hard to carry your child > with the cast on...Are they giving her a " Walking cast " ? there are lots of > little do's and don'ts they will give you...I followed each one. I'm here if you > think of any questions.... > will be 7 on September 29. He's going into first grade. > just had his 17th surgery yesterday...the plastic surgeon refined his > lip. > It hasn't stopped him yet...he's up and running around....eating too! He has > always amazed me ... what a trooper. > Good luck > Ellen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, was not school age but he had were the post surgery brace at school. Try as I might they did not get the hang of it until it was time to get the brace off....While casted did not have a check up...when the cast was removed..for the first year we went every three months...the following year it was every 6 months..the following year it went to 1 time a year and at last check up the doctor said it was in looked great see you in 18 months...as much as I really like this doctor I was thrilled to hear him say that.I did ask the school to use the bean bag chair so he could be with his friends at circle time..the teacher was great she requested the purchase of bean bag chairs for all the kids so wasn't the only one... Another thing had minimal PT after surgery...the doctor felt that the " normal kid activity " was enough therapy... already had so much structured therapy...he did not run right away but did walk Are you going to the NTAC/NFADB conference in St. Louis...I'll be there..and I'm bringing pictures... Talk to you soon Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, was not school age but he had were the post surgery brace at school. Try as I might they did not get the hang of it until it was time to get the brace off....While casted did not have a check up...when the cast was removed..for the first year we went every three months...the following year it was every 6 months..the following year it went to 1 time a year and at last check up the doctor said it was in looked great see you in 18 months...as much as I really like this doctor I was thrilled to hear him say that.I did ask the school to use the bean bag chair so he could be with his friends at circle time..the teacher was great she requested the purchase of bean bag chairs for all the kids so wasn't the only one... Another thing had minimal PT after surgery...the doctor felt that the " normal kid activity " was enough therapy... already had so much structured therapy...he did not run right away but did walk Are you going to the NTAC/NFADB conference in St. Louis...I'll be there..and I'm bringing pictures... Talk to you soon Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Michele, was not school age but he had were the post surgery brace at school. Try as I might they did not get the hang of it until it was time to get the brace off....While casted did not have a check up...when the cast was removed..for the first year we went every three months...the following year it was every 6 months..the following year it went to 1 time a year and at last check up the doctor said it was in looked great see you in 18 months...as much as I really like this doctor I was thrilled to hear him say that.I did ask the school to use the bean bag chair so he could be with his friends at circle time..the teacher was great she requested the purchase of bean bag chairs for all the kids so wasn't the only one... Another thing had minimal PT after surgery...the doctor felt that the " normal kid activity " was enough therapy... already had so much structured therapy...he did not run right away but did walk Are you going to the NTAC/NFADB conference in St. Louis...I'll be there..and I'm bringing pictures... Talk to you soon Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Way to go Ellen!!! It seems insurance companies think we ask for things just because we have nothing better to do. You brought to their attention just how things were. I love your approach. I know you were fighting for the best for your son and you did great!!! WAY to GO!!!! I am very glad you got the needed equipment and I will think of you if I have to fight insurance. Carolyn Tanis 2 CHARGE and Denny 3 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Way to go Ellen!!! It seems insurance companies think we ask for things just because we have nothing better to do. You brought to their attention just how things were. I love your approach. I know you were fighting for the best for your son and you did great!!! WAY to GO!!!! I am very glad you got the needed equipment and I will think of you if I have to fight insurance. Carolyn Tanis 2 CHARGE and Denny 3 months Quote Link to comment Share on other sites More sharing options...
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