Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I just wanted to check in and let you all know I will be going for my "second opinion" at UCSF. <for those of you who I haven't introduced myself too -- I am so sorry and hello I'm Kami -- I don't have an MS diagnosis, I have FMS and RA. When I got a brain MRI for frequent migraines they discovered a 1cm lesion on my right temporal lobe. I think I have been having s/s of MS, but my neuro thinks the white matter lesion is a tumor - yikes.> Okay so last week both my legs went completely weak (new to me) I could barely stand on them. Then after about 6 hrs the strength came back but my left leg remained weak and tingly. I kept having vertigo - but not spinning, I was feeling like I was falling, then I also was having the slurred speech again and tingly chin and left cheek. My emotions have been all over the place .... like I don't know who I am sometimes. So I got an emergency appt with the neuro. Well, during my exam, I was very surprised becuase I thought most of my strength had returned, but I couldn't lift my left leg against her resistance. She asked me why I couldn't lift it.... I was devastated (you see I like to think of my self as superwoman LOL). after the exam she said she thought I was having psychosomatic symptoms because I know that I have a lesion in my brain! Needless to say this hurt my feelings! I DON"T WANT TO FEEL LIKE THIS. she thought that my anxiety over the situation might be causing the symptoms (Challis -- no the next question was not if I was still breastfeeding LOL LOL). But after that lecture (that is how it felt - like a lecture); she proceded to say she wanted to get another brain mri while I'm having symptoms, and she wants me to be seen at the UCSF MS center. But she said she is not sending me there b/c she thinks I have MS, but b/c she thinks having a specialist tell me that nothing is wrong with me will make me feel better... well she IS right there. And just 5 months ago she said she thought I had a tumor. She also wrote on the MRI request that I had left arm and leg weakness, and I asked her about this since I didn't think my arm was weak, and she said that yes my arm was also quite weak. UGGGGGG. So I am just waiting for insurance to authorize the MRI, and for UCSF to get all my records for me to go down there -- it is about a 5 hour drive for me, but my brothers and parents are down there. Any thoughts or advice are greatly appreciated. To all the new people -- welcome to the wonderful group! I just love it here. I recently returned back to work 32 hrs per week, and I'm a single mom -- so I haven't been posting all that often... but I read each and every email Kami Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Kami, I think I'd feel the same way, and almost to the point of saying how dare you! I don't have any advice, since I'm so new to this game I am kind of in my grief mode? if that makes sense, so want to let you know I'm praying for you, do keep us posted, and congrats on getting back to work! ConnieS update and second opinion I just wanted to check in and let you all know I will be going for my "second opinion" at UCSF. <for those of you who I haven't introduced myself too -- I am so sorry and hello I'm Kami -- I don't have an MS diagnosis, I have FMS and RA. When I got a brain MRI for frequent migraines they discovered a 1cm lesion on my right temporal lobe. I think I have been having s/s of MS, but my neuro thinks the white matter lesion is a tumor - yikes.> Okay so last week both my legs went completely weak (new to me) I could barely stand on them. Then after about 6 hrs the strength came back but my left leg remained weak and tingly. I kept having vertigo - but not spinning, I was feeling like I was falling, then I also was having the slurred speech again and tingly chin and left cheek. My emotions have been all over the place .... like I don't know who I am sometimes. So I got an emergency appt with the neuro. Well, during my exam, I was very surprised becuase I thought most of my strength had returned, but I couldn't lift my left leg against her resistance. She asked me why I couldn't lift it.... I was devastated (you see I like to think of my self as superwoman LOL). after the exam she said she thought I was having psychosomatic symptoms because I know that I have a lesion in my brain! Needless to say this hurt my feelings! I DON"T WANT TO FEEL LIKE THIS. she thought that my anxiety over the situation might be causing the symptoms (Challis -- no the next question was not if I was still breastfeeding LOL LOL). But after that lecture (that is how it felt - like a lecture); she proceded to say she wanted to get another brain mri while I'm having symptoms, and she wants me to be seen at the UCSF MS center. But she said she is not sending me there b/c she thinks I have MS, but b/c she thinks having a specialist tell me that nothing is wrong with me will make me feel better... well she IS right there. And just 5 months ago she said she thought I had a tumor. She also wrote on the MRI request that I had left arm and leg weakness, and I asked her about this since I didn't think my arm was weak, and she said that yes my arm was also quite weak. UGGGGGG. So I am just waiting for insurance to authorize the MRI, and for UCSF to get all my records for me to go down there -- it is about a 5 hour drive for me, but my brothers and parents are down there. Any thoughts or advice are greatly appreciated. To all the new people -- welcome to the wonderful group! I just love it here. I recently returned back to work 32 hrs per week, and I'm a single mom -- so I haven't been posting all that often... but I read each and every email Kami Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 hi kami im new here my name is debby defayette wellevryone calls me deb so enyway. i have been to 5 neuros andits been six years and i still havent been diagnosed either even though i have all the symptoms and 12 spots on my brain i still have no answers and its very frustrating especialy when you go to the drs and they dont tell you enything more than you already know. makes you feel like your making this stuff up. so im not happy with drs right now. ill wait till i get really bad before i go again. every day for the past six months i have had numbness in my face and my eyelid keeps twitching it drives me crazy but i just deal with it. i wish you luck on your next neuro appt. take care xoxo deb update and second opinion I just wanted to check in and let you all know I will be going for my "second opinion" at UCSF. <for those of you who I haven't introduced myself too -- I am so sorry and hello I'm Kami -- I don't have an MS diagnosis, I have FMS and RA. When I got a brain MRI for frequent migraines they discovered a 1cm lesion on my right temporal lobe. I think I have been having s/s of MS, but my neuro thinks the white matter lesion is a tumor - yikes.> Okay so last week both my legs went completely weak (new to me) I could barely stand on them. Then after about 6 hrs the strength came back but my left leg remained weak and tingly. I kept having vertigo - but not spinning, I was feeling like I was falling, then I also was having the slurred speech again and tingly chin and left cheek. My emotions have been all over the place .... like I don't know who I am sometimes. So I got an emergency appt with the neuro. Well, during my exam, I was very surprised becuase I thought most of my strength had returned, but I couldn't lift my left leg against her resistance. She asked me why I couldn't lift it.... I was devastated (you see I like to think of my self as superwoman LOL). after the exam she said she thought I was having psychosomatic symptoms because I know that I have a lesion in my brain! Needless to say this hurt my feelings! I DON"T WANT TO FEEL LIKE THIS. she thought that my anxiety over the situation might be causing the symptoms (Challis -- no the next question was not if I was still breastfeeding LOL LOL). But after that lecture (that is how it felt - like a lecture); she proceded to say she wanted to get another brain mri while I'm having symptoms, and she wants me to be seen at the UCSF MS center. But she said she is not sending me there b/c she thinks I have MS, but b/c she thinks having a specialist tell me that nothing is wrong with me will make me feel better... well she IS right there. And just 5 months ago she said she thought I had a tumor. She also wrote on the MRI request that I had left arm and leg weakness, and I asked her about this since I didn't think my arm was weak, and she said that yes my arm was also quite weak. UGGGGGG. So I am just waiting for insurance to authorize the MRI, and for UCSF to get all my records for me to go down there -- it is about a 5 hour drive for me, but my brothers and parents are down there. Any thoughts or advice are greatly appreciated. To all the new people -- welcome to the wonderful group! I just love it here. I recently returned back to work 32 hrs per week, and I'm a single mom -- so I haven't been posting all that often... but I read each and every email Kami Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 hi kami im new here my name is debby defayette wellevryone calls me deb so enyway. i have been to 5 neuros andits been six years and i still havent been diagnosed either even though i have all the symptoms and 12 spots on my brain i still have no answers and its very frustrating especialy when you go to the drs and they dont tell you enything more than you already know. makes you feel like your making this stuff up. so im not happy with drs right now. ill wait till i get really bad before i go again. every day for the past six months i have had numbness in my face and my eyelid keeps twitching it drives me crazy but i just deal with it. i wish you luck on your next neuro appt. take care xoxo deb update and second opinion I just wanted to check in and let you all know I will be going for my "second opinion" at UCSF. <for those of you who I haven't introduced myself too -- I am so sorry and hello I'm Kami -- I don't have an MS diagnosis, I have FMS and RA. When I got a brain MRI for frequent migraines they discovered a 1cm lesion on my right temporal lobe. I think I have been having s/s of MS, but my neuro thinks the white matter lesion is a tumor - yikes.> Okay so last week both my legs went completely weak (new to me) I could barely stand on them. Then after about 6 hrs the strength came back but my left leg remained weak and tingly. I kept having vertigo - but not spinning, I was feeling like I was falling, then I also was having the slurred speech again and tingly chin and left cheek. My emotions have been all over the place .... like I don't know who I am sometimes. So I got an emergency appt with the neuro. Well, during my exam, I was very surprised becuase I thought most of my strength had returned, but I couldn't lift my left leg against her resistance. She asked me why I couldn't lift it.... I was devastated (you see I like to think of my self as superwoman LOL). after the exam she said she thought I was having psychosomatic symptoms because I know that I have a lesion in my brain! Needless to say this hurt my feelings! I DON"T WANT TO FEEL LIKE THIS. she thought that my anxiety over the situation might be causing the symptoms (Challis -- no the next question was not if I was still breastfeeding LOL LOL). But after that lecture (that is how it felt - like a lecture); she proceded to say she wanted to get another brain mri while I'm having symptoms, and she wants me to be seen at the UCSF MS center. But she said she is not sending me there b/c she thinks I have MS, but b/c she thinks having a specialist tell me that nothing is wrong with me will make me feel better... well she IS right there. And just 5 months ago she said she thought I had a tumor. She also wrote on the MRI request that I had left arm and leg weakness, and I asked her about this since I didn't think my arm was weak, and she said that yes my arm was also quite weak. UGGGGGG. So I am just waiting for insurance to authorize the MRI, and for UCSF to get all my records for me to go down there -- it is about a 5 hour drive for me, but my brothers and parents are down there. Any thoughts or advice are greatly appreciated. To all the new people -- welcome to the wonderful group! I just love it here. I recently returned back to work 32 hrs per week, and I'm a single mom -- so I haven't been posting all that often... but I read each and every email Kami Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 hi kami im new here my name is debby defayette wellevryone calls me deb so enyway. i have been to 5 neuros andits been six years and i still havent been diagnosed either even though i have all the symptoms and 12 spots on my brain i still have no answers and its very frustrating especialy when you go to the drs and they dont tell you enything more than you already know. makes you feel like your making this stuff up. so im not happy with drs right now. ill wait till i get really bad before i go again. every day for the past six months i have had numbness in my face and my eyelid keeps twitching it drives me crazy but i just deal with it. i wish you luck on your next neuro appt. take care xoxo deb update and second opinion I just wanted to check in and let you all know I will be going for my "second opinion" at UCSF. <for those of you who I haven't introduced myself too -- I am so sorry and hello I'm Kami -- I don't have an MS diagnosis, I have FMS and RA. When I got a brain MRI for frequent migraines they discovered a 1cm lesion on my right temporal lobe. I think I have been having s/s of MS, but my neuro thinks the white matter lesion is a tumor - yikes.> Okay so last week both my legs went completely weak (new to me) I could barely stand on them. Then after about 6 hrs the strength came back but my left leg remained weak and tingly. I kept having vertigo - but not spinning, I was feeling like I was falling, then I also was having the slurred speech again and tingly chin and left cheek. My emotions have been all over the place .... like I don't know who I am sometimes. So I got an emergency appt with the neuro. Well, during my exam, I was very surprised becuase I thought most of my strength had returned, but I couldn't lift my left leg against her resistance. She asked me why I couldn't lift it.... I was devastated (you see I like to think of my self as superwoman LOL). after the exam she said she thought I was having psychosomatic symptoms because I know that I have a lesion in my brain! Needless to say this hurt my feelings! I DON"T WANT TO FEEL LIKE THIS. she thought that my anxiety over the situation might be causing the symptoms (Challis -- no the next question was not if I was still breastfeeding LOL LOL). But after that lecture (that is how it felt - like a lecture); she proceded to say she wanted to get another brain mri while I'm having symptoms, and she wants me to be seen at the UCSF MS center. But she said she is not sending me there b/c she thinks I have MS, but b/c she thinks having a specialist tell me that nothing is wrong with me will make me feel better... well she IS right there. And just 5 months ago she said she thought I had a tumor. She also wrote on the MRI request that I had left arm and leg weakness, and I asked her about this since I didn't think my arm was weak, and she said that yes my arm was also quite weak. UGGGGGG. So I am just waiting for insurance to authorize the MRI, and for UCSF to get all my records for me to go down there -- it is about a 5 hour drive for me, but my brothers and parents are down there. Any thoughts or advice are greatly appreciated. To all the new people -- welcome to the wonderful group! I just love it here. I recently returned back to work 32 hrs per week, and I'm a single mom -- so I haven't been posting all that often... but I read each and every email Kami Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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