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Re: Diagnosing WAS The EMG and children

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In a message dated 8/30/00 2:06:55 PM, jross56922@... writes:

<< First of all an EMG test will only tell doctor if there is a problem with

nerve conduction, and how bad it is, it will not determine what type of CMT

one has, >>

Well, the EMG tells the doctor whether the myelin sheath is being damaged,

type 1 and and others, OR the core of the nerve is being damaged, type 2 and

others.

Examples:

Deylinating = ....Type 1, 1-A, 1-B, 1-C, and, 1-X

Axonal = Types 2, 3, 4, 5, 6, 7

To learn more about diagnosing and types.

http://www.geocities.com/dgosling_rn/diagnosis.html

http://www.geocities.com/dgosling_rn/types.html

http://www.geneclinics.org/profiles/cmt/index.html

http://www.geneclinics.org/profiles/cmt1/index.html

http://www2.mc.duke.edu/depts/medicine/medgen/cmt.html

http://www.neuro.wustl.edu/neuromuscular/time/hmsn.html#ra

Hope this helps.

Kat

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Hi Kat

I am sorry I have to disagree with you, an EMG test is an electrical test of

the nerves. One cannot see the mylen sheath, therefor they cannot give an

accurate diagnosis on what type of problem exists. The only thing they can

tell is if the nerve action is slowed. Does that make sense? If a diagnoses

was made through this method it could have been prior to DNA testing being

available, and then they would at best guess after a process of elimination.

I hope this will help with your diagnoses. A DNA is positive, no room for

error, and less painful. Mind you I am only trying to help, not say you or

anyone else are wrong, God Bless-jr

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-----Original Message-----

From: jross56922@... <jross56922@...>

egroups <egroups>

Date: Thursday, August 31, 2000 1:54 AM

Subject: Re: [] Diagnosing WAS The EMG and children

>Hi Kat

>

>I am sorry I have to disagree with you, an EMG test is an electrical test

of

>the nerves. One cannot see the mylen sheath, therefor they cannot give an

>accurate diagnosis on what type of problem exists. The only thing they can

>tell is if the nerve action is slowed. Does that make sense? If a

diagnoses

>was made through this method it could have been prior to DNA testing being

>available, and then they would at best guess after a process of

elimination.

>I hope this will help with your diagnoses. A DNA is positive, no room for

>error, and less painful. Mind you I am only trying to help, not say you or

>anyone else are wrong, God Bless-jr

>

>>>>>Hi Jr. I am sorry but I have to disagree with you! I have sent 2

e-mails to the list to you to read about CMT and the use of EMG's and NCV's

in diagnosing. One is from a genetic site. http://www.geneclinics.org/

Please check it out and read where it states, " The diagnosis IS based on

clinical AND EMG/NCV caracteristics " ~>Becky M.

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Jr

Lamar here,

I disagree,

DNA testing is only accurate for the types it tests for. In addition the nerve

conduction velocity is slowed by demylenization. It is only slightly decreased

or normal in axonal types. You do not have to see the sheath to test it's

function. The fact remains that there is no one test for CMT. Many were

accurately diagnosed years before the DNA test was available. For an accurate

evaluation you need evaluation of family history (if any), evaluation of

symptoms, NCV, EMG, and DNA tests. DNA tests are often not indicated with

proven family history. For instance: if you have Type 2, there is no need to

test your children for type 1 and X linked.

----- Original Message -----

From: jross56922@...

egroups

Sent: Thursday, August 31, 2000 3:09 AM

Subject: Re: [] Diagnosing WAS The EMG and children

My Groups | Main Page | Start a new group!

Hi Kat

I am sorry I have to disagree with you, an EMG test is an electrical test of

the nerves. One cannot see the mylen sheath, therefor they cannot give an

accurate diagnosis on what type of problem exists. The only thing they can

tell is if the nerve action is slowed. Does that make sense? If a diagnoses

was made through this method it could have been prior to DNA testing being

available, and then they would at best guess after a process of elimination.

I hope this will help with your diagnoses. A DNA is positive, no room for

error, and less painful. Mind you I am only trying to help, not say you or

anyone else are wrong, God Bless-jr

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In a message dated 8/31/2000 12:09:58 AM Pacific Daylight Time,

jross56922@... writes:

<< A DNA is positive, no room for

error, and less painful. Mind you I am only trying to help, not say you or

anyone else are wrong, God Bless-jr >>

I had a bad DNA test . It was called a linkage test.

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In a message dated 8/31/2000 4:41:24 PM Pacific Daylight Time,

rmax@... writes:

<< Hi , can you explain a linkage test? Not sure I've heard of that and

I

want to know more about what it is. Thanks, ~>Becky M.

>>

Ya know Becky I wish I could explain it. I was very young like 17 when it was

done. When I was 29 they (childrens hospital) told me it was a bad test. Had

something to do with linking chromosomes I think?

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-----Original Message-----

From: jacee17@... <jacee17@...>

egroups <egroups>

Date: Thursday, August 31, 2000 3:51 PM

Subject: Re: [] Diagnosing WAS The EMG and children

>

>In a message dated 8/31/2000 12:09:58 AM Pacific Daylight Time,

>jross56922@... writes:

>

><< A DNA is positive, no room for

> error, and less painful. Mind you I am only trying to help, not say you

or

> anyone else are wrong, God Bless-jr >>

> I had a bad DNA test . It was called a linkage test.

>

>

Hi , can you explain a linkage test? Not sure I've heard of that and I

want to know more about what it is. Thanks, ~>Becky M.

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Hey there Lamar,

Boy am I ever getting it! I did not mean that CMT could only be tested that

way. In fact I agree with all of you. I was only stating DNA testing is

very positive, however there are only a few DNA tests available for CMT.

Say Lamar, what part of this world are located in? I live in north, ID in the

middle of the Rocky Mountains and it is beautiful here. Stay in touch and

thanks for the info, you " guys " here at are terrific! jr

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Hi , I can't say I have heard that term but would like to know more

about it. Would you be willing to share that with the rest of us? Thanks a

lot for your reply, see ya soon in the funnies :) jr (this is an old saying

when I grew up, meant to be a friendly or brotherly greeting)

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In a message dated 9/1/2000 1:14:35 PM Pacific Daylight Time,

jross56922@... writes:

<< Hi , I can't say I have heard that term but would like to know more

about it. Would you be willing to share that with the rest of us? Thanks a

lot for your reply, see ya soon in the funnies :) jr (this is an old saying

when I grew up, meant to be a friendly or brotherly greeting)

>>

What was I talking about?

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-----Original Message-----

From: jacee17@... <jacee17@...>

egroups <egroups>

Date: Friday, September 01, 2000 6:02 PM

Subject: Re: [] Diagnosing WAS The EMG and children

>

>In a message dated 9/1/2000 1:14:35 PM Pacific Daylight Time,

>jross56922@... writes:

>

><< Hi , I can't say I have heard that term but would like to know more

> about it. Would you be willing to share that with the rest of us? Thanks

a

> lot for your reply, see ya soon in the funnies :) jr (this is an old

saying

> when I grew up, meant to be a friendly or brotherly greeting)

> >>

>What was I talking about?

>

>

>>>>>>LOL. , CMT brain fog, happens to me all the time, have a great

Labor day! ~>Becky M.

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