knightshotter....yeah that's me

[Guest guest]

Challis recognized my email address….but I did remarry

and change my last name…Adoption should be final in a few weeks. He’s

adopting my son…..

Had gone for my “10th opinion” to a

big MS clinic in Charlotte

a few weeks ago. Dr sent notation for file which stated things like I had a

negative spinal tap…I didn’t and I faxed him a copy stating

otherwise. He went to get the films of the many MRIs vs just the reports. Then

the nurse called a few times and said they would call if they needed a new

appt.

Some of the comments were ridiculous like saying I might

have a psych as primary component…..so then explain the lesions, the

negative evaluation from all the psychiatrists etc…Anyway I was

hoping for a neuro that could handle times when I get worse or need

hospitalization…..and I called his nurse for the 3rd week in a

row and she said Doc had everything he needed and that was that. I again asked

if he could correct the records he wrote for this visit. What bothers me is he

sends his comments to my primary care doc but never sends them the corrections

and I’m constantly having to defend one disease vs another after all

these years.

I have chronic relapsing MS of a progressive type, very

unusual presentation they say….Started having some relapse

symptoms….Husband had me walk about half a mile with him…I was

holding on…was really tiring…then last night, started choking on

water and other food. He said to eat slower. Made a comment that I needed to

exercise on my bike so I could get better. Once again, another night with a man

who doesn’t understand what I am going through but claims I do.

So I am in my frustrating opinion again

for sure…..

in extreme NW North Carolina