Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 , I agree. I have a hearing impaired child in my classroom, and I am so excited that my room finally gets an amplification system as it will benefit ALL the kids. I am on both sides of the fence as a parent of a HI kid and as a teacher... G > What about a free field system? That's what Kennedy uses.... It's > four > speakers mounted around the room and the TEACHER wears the microphone, > Aubrie doesn't have to wear anything and it benefits all the kids. > Most > teachers love them because it helps other kids focus also. > Weir > Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to > Graeme. > New Brunswick, Canada > Weir homepage: http://ca.geocities.com/weirfamilyrogers > CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca > > help on fm systems > > > Help! Our school district has me in fits about Aubrie's FM unit. > Short > story is that we are going to order something new. The decision is > between a wireless Lexus and a wired/receiver-pack-on-your-body > Solaris. The wireless, of course, is more expensive. However, > Aubrie > is going to be 7 and is beginning to notice her differences. > Wouldn't > it be nice if she didn't have this contraption on to show everyone > just > how different she is? And wouldn't it be nice if a little girl could > not have her outfits mangled by the harness? Ok, I know those are > the > most " appropriate " reasons for the decision. Anyone have experience > with either type of unit and/or making this kind decision that will > help > me in deciding what is really best for Aubrie and how to persuade the > district to get it (whichever it is)? I am leaning towards wireless, > but if there are reasons that it's really not the best choice, I > need to > know them. > > Thanks in advance for the continued support!! > > Michele W > mom to Aubrie 6 yrs -- zombie Robomom is my new name after 3 > sleepless > nights -- I don't know how some of you guys function on little > sleep & > constant stress-- what a nightmare I am! > > > > Membership of this email support groups does not constitute > membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you > may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Hi Michele has the phonic ear...but the service provider ordered the FM and hearing aid combination...it solved the problem of compatability....it is wireless and in the long run it saved money for the school...the whole battery issue...they would have to replace the batteries in his private aides everyday ( runs on a very small battery) where as the FM/ha system runs on a much more powerful battery and lasts almost a week with daily use. They still come in all the cool colors and was able to customize the look. Our school is very particular about what is theirs and what they will pay for...I was concerned if they piggybacked his private aides and some how they were damaged at school if they would pay for replacments...well we went around on that so we agreed that they had their system and we had 's at home...however our attorney was able to point out that needed the FM for use during after school activities...etc so we are able to use for community type activities also... Some things that our school staff and the new service provider did not know about the wireless FM....there is feedback from some school equipment...When teacher is walking about the class and goes by the computer screen and it is on gets a buzzing in his ear and also when she would walk near the PA system.So the staff needs to be aware where they are walking... learned to ask her to move ...it took a year for her to " get it " . Good luck Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Hi Michele has the phonic ear...but the service provider ordered the FM and hearing aid combination...it solved the problem of compatability....it is wireless and in the long run it saved money for the school...the whole battery issue...they would have to replace the batteries in his private aides everyday ( runs on a very small battery) where as the FM/ha system runs on a much more powerful battery and lasts almost a week with daily use. They still come in all the cool colors and was able to customize the look. Our school is very particular about what is theirs and what they will pay for...I was concerned if they piggybacked his private aides and some how they were damaged at school if they would pay for replacments...well we went around on that so we agreed that they had their system and we had 's at home...however our attorney was able to point out that needed the FM for use during after school activities...etc so we are able to use for community type activities also... Some things that our school staff and the new service provider did not know about the wireless FM....there is feedback from some school equipment...When teacher is walking about the class and goes by the computer screen and it is on gets a buzzing in his ear and also when she would walk near the PA system.So the staff needs to be aware where they are walking... learned to ask her to move ...it took a year for her to " get it " . Good luck Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Michele, When Karlee was in 1st grade we purchased our own wireless system because at that time the state provided system had wires. We used that system through 8th grade. Last year the Northern Illinois Association provided a wireless system for us. It has worked great. Is the state providing a system or are you talking about buying one yourself? We are in Illinois, so I would think services would be consistent for the state? from IL (Karlee 16 years) Re: help on fm systems >Yuka - >That's what we're looking for -- no wires or boxes on Aubrie. I hadn't >thought about the extra drain on her hearing aid batteries, but I guess >that would be worth it. Thanks for sharing 's experience. I'm >sorry to hear his has been unreliable. Does he know the brand? Since >Aubrie's in elementary school, she won't have to cart it around too much >-- one classroom and then her therapies, music, PE, etc. > >Michele W > > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter) >please contact marion@... or visit >the CHARGE Syndrome Foundation web page >at http://www.chargesyndrome.org >7th International >CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website >www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Michele, When Karlee was in 1st grade we purchased our own wireless system because at that time the state provided system had wires. We used that system through 8th grade. Last year the Northern Illinois Association provided a wireless system for us. It has worked great. Is the state providing a system or are you talking about buying one yourself? We are in Illinois, so I would think services would be consistent for the state? from IL (Karlee 16 years) Re: help on fm systems >Yuka - >That's what we're looking for -- no wires or boxes on Aubrie. I hadn't >thought about the extra drain on her hearing aid batteries, but I guess >that would be worth it. Thanks for sharing 's experience. I'm >sorry to hear his has been unreliable. Does he know the brand? Since >Aubrie's in elementary school, she won't have to cart it around too much >-- one classroom and then her therapies, music, PE, etc. > >Michele W > > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter) >please contact marion@... or visit >the CHARGE Syndrome Foundation web page >at http://www.chargesyndrome.org >7th International >CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website >www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Michele, When Karlee was in 1st grade we purchased our own wireless system because at that time the state provided system had wires. We used that system through 8th grade. Last year the Northern Illinois Association provided a wireless system for us. It has worked great. Is the state providing a system or are you talking about buying one yourself? We are in Illinois, so I would think services would be consistent for the state? from IL (Karlee 16 years) Re: help on fm systems >Yuka - >That's what we're looking for -- no wires or boxes on Aubrie. I hadn't >thought about the extra drain on her hearing aid batteries, but I guess >that would be worth it. Thanks for sharing 's experience. I'm >sorry to hear his has been unreliable. Does he know the brand? Since >Aubrie's in elementary school, she won't have to cart it around too much >-- one classroom and then her therapies, music, PE, etc. > >Michele W > > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter) >please contact marion@... or visit >the CHARGE Syndrome Foundation web page >at http://www.chargesyndrome.org >7th International >CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website >www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Ellen- Very interesting. I would love to have the FM system available at other events -- like dance class. But I've never stretched it that far. And I never thought about the possibility of her aids being damaged by the FM system-- or the frequent use. How did you get them to pay for the HA batteries? [Anyone else get the school to pay for the frequently replaced batteries??] Sounds like a good solution -- but one I hadn't thought of and we've got the old snowball rolling. Hmmm... Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Ellen- Very interesting. I would love to have the FM system available at other events -- like dance class. But I've never stretched it that far. And I never thought about the possibility of her aids being damaged by the FM system-- or the frequent use. How did you get them to pay for the HA batteries? [Anyone else get the school to pay for the frequently replaced batteries??] Sounds like a good solution -- but one I hadn't thought of and we've got the old snowball rolling. Hmmm... Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Ellen- Very interesting. I would love to have the FM system available at other events -- like dance class. But I've never stretched it that far. And I never thought about the possibility of her aids being damaged by the FM system-- or the frequent use. How did you get them to pay for the HA batteries? [Anyone else get the school to pay for the frequently replaced batteries??] Sounds like a good solution -- but one I hadn't thought of and we've got the old snowball rolling. Hmmm... Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 tim has the same thing--of course it's a deaf school so they are set up for that. maria help on fm systems > > > Help! Our school district has me in fits about Aubrie's FM unit. Short > story is that we are going to order something new. The decision is > between a wireless Lexus and a wired/receiver-pack-on-your-body > Solaris. The wireless, of course, is more expensive. However, Aubrie > is going to be 7 and is beginning to notice her differences. Wouldn't > it be nice if she didn't have this contraption on to show everyone just > how different she is? And wouldn't it be nice if a little girl could > not have her outfits mangled by the harness? Ok, I know those are the > most " appropriate " reasons for the decision. Anyone have experience > with either type of unit and/or making this kind decision that will help > me in deciding what is really best for Aubrie and how to persuade the > district to get it (whichever it is)? I am leaning towards wireless, > but if there are reasons that it's really not the best choice, I need to > know them. > > Thanks in advance for the continued support!! > > Michele W > mom to Aubrie 6 yrs -- zombie Robomom is my new name after 3 sleepless > nights -- I don't know how some of you guys function on little sleep & > constant stress-- what a nightmare I am! > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 tim has the same thing--of course it's a deaf school so they are set up for that. maria help on fm systems > > > Help! Our school district has me in fits about Aubrie's FM unit. Short > story is that we are going to order something new. The decision is > between a wireless Lexus and a wired/receiver-pack-on-your-body > Solaris. The wireless, of course, is more expensive. However, Aubrie > is going to be 7 and is beginning to notice her differences. Wouldn't > it be nice if she didn't have this contraption on to show everyone just > how different she is? And wouldn't it be nice if a little girl could > not have her outfits mangled by the harness? Ok, I know those are the > most " appropriate " reasons for the decision. Anyone have experience > with either type of unit and/or making this kind decision that will help > me in deciding what is really best for Aubrie and how to persuade the > district to get it (whichever it is)? I am leaning towards wireless, > but if there are reasons that it's really not the best choice, I need to > know them. > > Thanks in advance for the continued support!! > > Michele W > mom to Aubrie 6 yrs -- zombie Robomom is my new name after 3 sleepless > nights -- I don't know how some of you guys function on little sleep & > constant stress-- what a nightmare I am! > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 tim has the same thing--of course it's a deaf school so they are set up for that. maria help on fm systems > > > Help! Our school district has me in fits about Aubrie's FM unit. Short > story is that we are going to order something new. The decision is > between a wireless Lexus and a wired/receiver-pack-on-your-body > Solaris. The wireless, of course, is more expensive. However, Aubrie > is going to be 7 and is beginning to notice her differences. Wouldn't > it be nice if she didn't have this contraption on to show everyone just > how different she is? And wouldn't it be nice if a little girl could > not have her outfits mangled by the harness? Ok, I know those are the > most " appropriate " reasons for the decision. Anyone have experience > with either type of unit and/or making this kind decision that will help > me in deciding what is really best for Aubrie and how to persuade the > district to get it (whichever it is)? I am leaning towards wireless, > but if there are reasons that it's really not the best choice, I need to > know them. > > Thanks in advance for the continued support!! > > Michele W > mom to Aubrie 6 yrs -- zombie Robomom is my new name after 3 sleepless > nights -- I don't know how some of you guys function on little sleep & > constant stress-- what a nightmare I am! > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 - Our school district is buying it. Who has bought them for you? It'd be awesome if we could get funding to buy it ourselves for use at school and other times when it's needed. As it is, the school will own it and we will not have use for events outside of school. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 - Our school district is buying it. Who has bought them for you? It'd be awesome if we could get funding to buy it ourselves for use at school and other times when it's needed. As it is, the school will own it and we will not have use for events outside of school. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 - Our school district is buying it. Who has bought them for you? It'd be awesome if we could get funding to buy it ourselves for use at school and other times when it's needed. As it is, the school will own it and we will not have use for events outside of school. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 just my $0.02 - when Elliot ('s younger brother) had a hard of hearing boy mainstreamed into his fourth grade class, they used a system like this. There were some problems as it was not set up well. There was feedback and the sound quality was often distorted. It was a loud classroom, and the microphone picked up alot of the environmental sounds and amplified them as well. When we discussed options for , he was already in middle school - and moving a field system around from class to class was impractical. However, I also received a strong endorsement from the audiologist that the fm system offered the best advantage of supplementing his audio input of the information most necessary to him in the learning environment - the teacher - and really, it is the teacher who is the most affected - the microphone is much more of an accessory than the boots on the hearing aids...... best always, yuka RE: help on fm systems > What about a free field system? That's what Kennedy uses.... It's four > speakers mounted around the room and the TEACHER wears the microphone, > Aubrie doesn't have to wear anything and it benefits all the kids. Most > teachers love them because it helps other kids focus also. > Weir > Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme. > New Brunswick, Canada > Weir homepage: http://ca.geocities.com/weirfamilyrogers > CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 just my $0.02 - when Elliot ('s younger brother) had a hard of hearing boy mainstreamed into his fourth grade class, they used a system like this. There were some problems as it was not set up well. There was feedback and the sound quality was often distorted. It was a loud classroom, and the microphone picked up alot of the environmental sounds and amplified them as well. When we discussed options for , he was already in middle school - and moving a field system around from class to class was impractical. However, I also received a strong endorsement from the audiologist that the fm system offered the best advantage of supplementing his audio input of the information most necessary to him in the learning environment - the teacher - and really, it is the teacher who is the most affected - the microphone is much more of an accessory than the boots on the hearing aids...... best always, yuka RE: help on fm systems > What about a free field system? That's what Kennedy uses.... It's four > speakers mounted around the room and the TEACHER wears the microphone, > Aubrie doesn't have to wear anything and it benefits all the kids. Most > teachers love them because it helps other kids focus also. > Weir > Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme. > New Brunswick, Canada > Weir homepage: http://ca.geocities.com/weirfamilyrogers > CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 just my $0.02 - when Elliot ('s younger brother) had a hard of hearing boy mainstreamed into his fourth grade class, they used a system like this. There were some problems as it was not set up well. There was feedback and the sound quality was often distorted. It was a loud classroom, and the microphone picked up alot of the environmental sounds and amplified them as well. When we discussed options for , he was already in middle school - and moving a field system around from class to class was impractical. However, I also received a strong endorsement from the audiologist that the fm system offered the best advantage of supplementing his audio input of the information most necessary to him in the learning environment - the teacher - and really, it is the teacher who is the most affected - the microphone is much more of an accessory than the boots on the hearing aids...... best always, yuka RE: help on fm systems > What about a free field system? That's what Kennedy uses.... It's four > speakers mounted around the room and the TEACHER wears the microphone, > Aubrie doesn't have to wear anything and it benefits all the kids. Most > teachers love them because it helps other kids focus also. > Weir > Mom to Kennedy 6 yr old with CHARGE, 15, 13 and wife to Graeme. > New Brunswick, Canada > Weir homepage: http://ca.geocities.com/weirfamilyrogers > CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Yuka - That's what I decided after giving it some thought. In a school for the deaf where all rooms are set up for it, that would be good. But in our case, Aubrie needs to take her unit with her from place to place. Michele > just my $0.02 - when Elliot ('s younger brother) had a hard of > hearing > boy mainstreamed into his fourth grade class, they used a system like > this. > There were some problems as it was not set up well. There was > feedback and > the sound quality was often distorted. It was a loud classroom, and the > microphone picked up alot of the environmental sounds and amplified > them as > well. When we discussed options for , he was already in middle > school - and moving a field system around from class to class was > impractical. However, I also received a strong endorsement from the > audiologist that the fm system offered the best advantage of > supplementing his audio input of the information most necessary to him in > the learning environment - the teacher - and really, it is the teacher who > is the most affected - the microphone is much more of an accessory > than the > boots on the hearing aids...... > best always, > yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Yuka - That's what I decided after giving it some thought. In a school for the deaf where all rooms are set up for it, that would be good. But in our case, Aubrie needs to take her unit with her from place to place. Michele > just my $0.02 - when Elliot ('s younger brother) had a hard of > hearing > boy mainstreamed into his fourth grade class, they used a system like > this. > There were some problems as it was not set up well. There was > feedback and > the sound quality was often distorted. It was a loud classroom, and the > microphone picked up alot of the environmental sounds and amplified > them as > well. When we discussed options for , he was already in middle > school - and moving a field system around from class to class was > impractical. However, I also received a strong endorsement from the > audiologist that the fm system offered the best advantage of > supplementing his audio input of the information most necessary to him in > the learning environment - the teacher - and really, it is the teacher who > is the most affected - the microphone is much more of an accessory > than the > boots on the hearing aids...... > best always, > yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Yuka - That's what I decided after giving it some thought. In a school for the deaf where all rooms are set up for it, that would be good. But in our case, Aubrie needs to take her unit with her from place to place. Michele > just my $0.02 - when Elliot ('s younger brother) had a hard of > hearing > boy mainstreamed into his fourth grade class, they used a system like > this. > There were some problems as it was not set up well. There was > feedback and > the sound quality was often distorted. It was a loud classroom, and the > microphone picked up alot of the environmental sounds and amplified > them as > well. When we discussed options for , he was already in middle > school - and moving a field system around from class to class was > impractical. However, I also received a strong endorsement from the > audiologist that the fm system offered the best advantage of > supplementing his audio input of the information most necessary to him in > the learning environment - the teacher - and really, it is the teacher who > is the most affected - the microphone is much more of an accessory > than the > boots on the hearing aids...... > best always, > yuka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Michele, " Isn't it the LD specialists job to make available all of the resources that can help a child? " YES, YES AND TRIPLE YES!!!!!! " The whole team including the parent should be writing the IEP with all needed services, modifications and adaptations . What about IDEA ? The book of parents rights etc. There are laws! It makes me so mad when I hear of situations like this. It gives those of us sp. ed teacher's that do our best to do our job right for our student'a a bad name. That makes me mad. I fight for my student's needs tooth and nail with my system that can't pass school levys and is broke. I will climb down off my soap box now. ) Lynn Re: help on fm systems Lynn- Glad to provide your chuckle for the night :-D Sounds like a great day tomorrow. I look forward to times like that with my adult kids. I got the recommendation letter from the DB specialist. She's great! You know, I forget sometimes to consult her first. She's got the total pic of Aubrie where everyone else considers her from the perspective of any kid. She pointed out the issues with Aubrie's hearing and vision and other difficulties that interfere with moving etc and how the wires and body unit would be an impediment to her where the wireless would allow freedom of movement and less interference. So I think it's going to be fine. Just too bad I have to do so much work to get things done right. Makes you wonder who is the professional here. Aren't they supposed to be figuring out the best thing? I got my hair done today. My hairdresser's son is LD in reading. Years ago I pointed out that books on tape, having tests read to him, etc were options. Of course, she didn't know that. She had just talked with another person with a child in the same situation. Isn't it the LD specialists job to make available all of the resources that can help a child? Instead, they just do the few things the district offers easily and negates to educate the students and parents of other options. Argh! Michele W Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Michele, " Isn't it the LD specialists job to make available all of the resources that can help a child? " YES, YES AND TRIPLE YES!!!!!! " The whole team including the parent should be writing the IEP with all needed services, modifications and adaptations . What about IDEA ? The book of parents rights etc. There are laws! It makes me so mad when I hear of situations like this. It gives those of us sp. ed teacher's that do our best to do our job right for our student'a a bad name. That makes me mad. I fight for my student's needs tooth and nail with my system that can't pass school levys and is broke. I will climb down off my soap box now. ) Lynn Re: help on fm systems Lynn- Glad to provide your chuckle for the night :-D Sounds like a great day tomorrow. I look forward to times like that with my adult kids. I got the recommendation letter from the DB specialist. She's great! You know, I forget sometimes to consult her first. She's got the total pic of Aubrie where everyone else considers her from the perspective of any kid. She pointed out the issues with Aubrie's hearing and vision and other difficulties that interfere with moving etc and how the wires and body unit would be an impediment to her where the wireless would allow freedom of movement and less interference. So I think it's going to be fine. Just too bad I have to do so much work to get things done right. Makes you wonder who is the professional here. Aren't they supposed to be figuring out the best thing? I got my hair done today. My hairdresser's son is LD in reading. Years ago I pointed out that books on tape, having tests read to him, etc were options. Of course, she didn't know that. She had just talked with another person with a child in the same situation. Isn't it the LD specialists job to make available all of the resources that can help a child? Instead, they just do the few things the district offers easily and negates to educate the students and parents of other options. Argh! Michele W Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 7th International CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information will be available at our website www.chargesyndrome.org or by calling 1-. In Canada, you may contact CHARGE Syndrome Canada at 1- (families), visit www.chargesyndrome.ca, or email info@.... Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 and , As a sp. ed. teacher who sometimes has HI students and parent of a HI kid , tell me more about the room amplification system. I have never heard of it. Our public school only sees a handful of HI kids now. When went through she was the ONLY HI kid the whole time. She was lucky not to need an FM system. Preferencial seating worked for her. Lynn help on fm systems > > > Help! Our school district has me in fits about Aubrie's FM unit. > Short > story is that we are going to order something new. The decision is > between a wireless Lexus and a wired/receiver-pack-on-your-body > Solaris. The wireless, of course, is more expensive. However, > Aubrie > is going to be 7 and is beginning to notice her differences. > Wouldn't > it be nice if she didn't have this contraption on to show everyone > just > how different she is? And wouldn't it be nice if a little girl could > not have her outfits mangled by the harness? Ok, I know those are > the > most " appropriate " reasons for the decision. Anyone have experience > with either type of unit and/or making this kind decision that will > help > me in deciding what is really best for Aubrie and how to persuade the > district to get it (whichever it is)? I am leaning towards wireless, > but if there are reasons that it's really not the best choice, I > need to > know them. > > Thanks in advance for the continued support!! > > Michele W > mom to Aubrie 6 yrs -- zombie Robomom is my new name after 3 > sleepless > nights -- I don't know how some of you guys function on little > sleep & > constant stress-- what a nightmare I am! > > > > Membership of this email support groups does not constitute > membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you > may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 There is a way to become an advocate....through grants. I am working with an individual who had a three year grant to advocate and create " plans " to take special needs kids/teens/young adults through adulthood. She is helping me with 's ARD's and she is awesome--just the " fight " in her and how she reasonably and firmly states how our kids have rights, (like playing on a safe playground) just like everyone else. So much of local/state benefits are who you know and my advocate knows the process and how to work through it. It is definitely a needed role. Lori Myers -------------- Original message -------------- > That's what I thought. So -- I wish there was a way to be an advocate > for families and get paid. I wouldn't feel right charging families > direct cuz I know family resources are already stretched. And there is > limited state funding for advocates. I'd be a great job. Could I start > my own not-for-profit? -- Just dreaming... add it to all the other > zillion things I'd like to do " when I grow up " . > > Michele W > Aubrie's mom > > > > > > > " Isn't it the LD specialists job to make available all of the > > resources that can help a child? " > > > > YES, YES AND TRIPLE YES!!!!!! " > > > > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. Information > will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may contact > CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > Quote Link to comment Share on other sites More sharing options...
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