My Doctor Update

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Hey Everyone!!!!!

I had my EMG appointment today but they ended up doing a bunch of other tests too.It was a long horrible day

and if I new it would have been so bad I wouldnt have gone.lol.I was ther from 1:20-4:00!!!!! Horrible day.

First they re-did the Ischemic test(according to them they do it more then my cardio) and I got the results while I

was there and the Lactic Acid and Ammonia were ok.One of them did say they were re-doing it because 2 enzymes

showed and that is very very rare.He said it was still possible but not very likely.Weird though how 2 showed but

then today not even one????Makes no sense to me.

I am concerned.He did it alot different then my cardio did.He didnt put a blood pressure monitor on first,and that is to

exercise the arm(I diddnt realize at the time,my mind was full and scared of all the tests they said we were doing) I

am very weak and I think this would make a huge difference.Then he had me squeeze this metal device(to measure

your strength) over and over in a row,then from there the nurse drew my blood 4 times.When my cardio did it it was

soooooo different.He did the IV line,used the b?p cuff,and had me squeeze the device between blood takes.So,

according to the test it is not an enzyme deficiency.I dont know about this,I read about the Ischemic test and I really

dont think this is right.I am going to email my cardio and ask for his help.

Then they did a nerve conduction,only for about an hour and a half!!!! There is something wrong in my foot and

leg area. They were baffled,it was 3 of them.Anyway,

the doc I seen last time in the neuro-musc. clinic kept saying there is something in there,he said it a few times,and

then he told me he thinks its a type of annomoly,maybe something to do with the way my nerves are.

The other doc said it took so long because they havnt quite seen

(why does this keep happening to me?ARGH) something like this before. It really hurt,I have little bruises were

they pushed into my skin to shock me.

After that was the EMG,Finally!!!!!Lol!!! It hurt so bad I screamed and cried like a baby. They did my arm once

and then my legs about 2 maybe 3 times.It was definetly not that bad when my old neuro did it.He says the results for

that one is ok.

Then the docs went and talked (did this alot in the room and hallway) then my doc came back and asked if I was

up for 1 more test.LOL!!! I said NO,why? Lolol.So,he says he was looking in this book and found this test to check

the sympathetic system.I guess it looks at dymelinating and myelinating and also something in the nervous

system for autonomic dysfunction.If only they new what they were doing!LOLOL,Im hoping im wrong!!!LOL! So,that

was a lil shocker thing too but he says it will take a couple days to interpret the results.My doc said he had cleared

the afternoon for me because im special.HarHar.LOL.! He was nice though to say I had the choice but he

thought it would be easier on me so I wouldnt have to keep going back.He was right,cuz if I had known I wouldnt

have gone at all.lol.

I just dont know. I dont really have confidence in this doc.I feel like a guinea pig with him,more so then with anyone

else ever.I was and still am so confident in my cardio,I really trust and respect him.But all this is beyond him so

thats why he sent me there.He did say I was too see a Dr.Mc but I have been seeing a Dr.Hahn instead.I guess

these 2 are the only ones there in the specialty and pretty much for all of my area.He always brings another doc and

also a resident,so at least there is a few more opinions.Well,I think this is about it,until everything I forgot comes back.LOL!!!!

I hope you all are well.I am going to try and catch up a bit before bed.Miss ya guys!!!!!

Luv n hugz,

Cassy

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