Re: Rebif dilemma - Thanks!

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Connie, Tammy and Jolie,Thanks for your feedback! Don't know yet just how we'll solve the rebif dilemma, but temporarily using saturday as a shot day seems to be a good idea. 's neuro has said that missing one shot is not a big deal - but that one shouldn't make it a habit, and definitely never skip two in a row. It was in the context of explaining that if she would some time remember late at night, on a wednesday or monday, that she has forgot the shot, it would be better to just skip it than to make the time between shots less than 48h (if you take it very late at night on a monday or wednesday, you'd have to wait up to just as late on the next shot, so that it'd still be 48h between). has never skipped it, though. Partly she's worried she might start to make it a habit if she started to allow herself that, and partly the need hasn't really arised since she has her handheld computer (she got that from work as a part of their making accomodations to her MS-diagnosis - it has been a real help) reminding her to take her medications (as well as reminding her to go to meetings etc at work). Do those of you on Rebif get regular blood work done? And if so, do you get instructions on when to take or not take your shot in the time near that? I am asking because had her first of those tests a couple of months ago, and the instruction was that she should be off Rebif (i.e. not take any shot) for at least 48h before the testing. She managed that by wiggling her schedule around a little, but another time she might have to skip a shot to be able to follow that instruction. love/Reb>> Or maybe it's more of a rebif+paracetamol dilemma. > > Anyway, May 30 will mark the 10th anniversary of our wedding, and we> were thinking about visiting the restaurant where we held the wedding> party, and toast in some of that sparkling wine we had at our wedding> reception. So far no dilemma, right? ; ) But the problem is, May 30 is> also a friday, and take her Rebif on fridays (and mondays and> wednesdays), and with it she takes paracetamol (prescribed by the> neuro) to ease the side effects. And since both Rebif and, perhaps> more especially, paracetamol does take it's toll on the liver, she> doesn't want to add alcohol to the mix. Not taking the paracetamol is> not really an option, because then she'll spend the night being really> ill with those flu like symptoms. And she doesn't like to push her> Rebif schedule around - because to always have the same weekdays helps> her remember when to take it. > > But she, or we really..., were wondering if it would be possible to> just skip the friday injection that one time? She doesn't really want> to make skipping injections a habit, and she worries that she might> start doing just that. But on the other hand, a 10 year wedding> anniversary is not an every week event, so perhaps it will be enough> of an exception this one time. > > Have any of you skipped an injection, and was it/is it a medical> problem to do so? (Other than the obvious: If you do it too often> you'll miss out on the effect) Does the body, for instance, react> stronger to the next injection having had a longer break than ususal?> > I really want to make this anniversary special for her, and for us> both, and we both really like the idea of returning to that restaurant> to toast. But then again, it should be "special" in a good way, not in> a "that's what made me really sick"-way...> > What's your experiences and what do you think?> > love> /Reb>