Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 hello all i am so happy just want to share with you i was at a bank yesterday and was id'd and when i showed my license they didnt except it swearing it wasnt me i usually would have been mad but was happy and said thankyou and have a nice day also i went and got a new id also when i went to the bathroom usually for years i been having to put my leg up on the tub or stoll or whatever in order to be able to wipe myself well now i can do it (normally)go figure who would think this would make me so happy also i am so glad to hear from you irish toni ive missed you take care all jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Jeanie, That is funny about the bank. And only us could appreciate the wipeing storie. Pam ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Breath , Breath!!!! I could hear you hyperventilating all the way over here!!! -Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 Hi , I hope you get over the pneumonia real soon so that you can get a surgery date and go forward. As I have several autoimmune problems that prolong recovery from illnesses or make a simple cold go into bronchitis which lasts forever, I know your worry, and it is also my worry for my 1/2/01 surgery that I will get sick and ruin the plans. I will be thinking of you during this time and hoping that things improve. It does bring down the mood. I understand that also. Hang in there. Keep coming here and venting. We are a support group. That is what we are here for as well as to learn about WLS. Sally Dixie22@... wrote: > Hi, > > I too would like to get know people better here. You all are such > wonderful people. I guess I am kind of quiet, and need to learn to > speak up more. As I mentioned in my first post, I am having my > surgery with Dr Munn, and will be meeting with him on Nov 9th, to > schedule my date. I have been sort of depressed, because I got > pnemonia over 3 weeks ago, and can't seem to get rid of it, and it's > very frusterating because I feel it's going to put my surgery off > even longer. I know I need my lungs to be healthy for surgery, but > also wanted to get the surgery done before the end of the year. > I am sorry if I sound like a complainer, it's just I am sure all > you pre op and post op people know, the long road to actually get to > a surgery date, and I am finally at that point and just want to feel > well enough. Thanks for listening, or reading haHa, it feels good > to have a place to express fears, and frustrations. > > Take Care Everyone, > > > > > Would LOVE to be part of this!! I'd love to get to know everybody > > better, as we are all part of a very special family! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 In a message dated 7/31/01 2:06:23 PM Eastern Daylight Time, ddduin@... writes: Yes, some kids can have a hypersensitivity to noises. I remember when my son was in pre-school, the alarm went off, a fire drill. The kids had been told but this was his first experience. This was in a school for deaf children, some of whom did not wear hearing aids so the alarm was LOUD, REALLY LOUD, and at the time it went off, my son had his FM system on and it TERRIFIED him. He was hysterical for a week, wouldn't go back to school! Orla > Question back to Randie, Sheri, Barb, et. al. - > I'm still fidgeting with this idea of SID so forgive the questions... Can > SID be hearing-triggered also? I know it might sound like a silly question > but I recall two specific instances off the top of my head. One time, our > smoke alarm went off (it was malfunctioning) and Demi literally freaked > out -- screaming like someone was torturing her. More recently, the > cordless phone battery started chirping and she immediately called 911 > because the " burgular alarm was going off " -- never mind that we don't HAVE > a burgular alarm. Could these types of auditory tactile and the resulting > drama also be SID-related? > > Orla " Education is not the filling of a bucket but the lighting of a fire " W.B.Yeats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Question back to Randie, Sheri, Barb, et. al. - I'm still fidgeting with this idea of SID so forgive the questions... Can SID be hearing-triggered also? I know it might sound like a silly question but I recall two specific instances off the top of my head. One time, our smoke alarm went off (it was malfunctioning) and Demi literally freaked out -- screaming like someone was torturing her. More recently, the cordless phone battery started chirping and she immediately called 911 because the " burgular alarm was going off " -- never mind that we don't HAVE a burgular alarm. Could these types of auditory tactile and the resulting drama also be SID-related? > Thank goodness Demi likes Audrey Hepburn rather than someone you > wouldn't want to hear over and over and over. . . !!! Amen! Thank God for the small things! However, we do have some Brittany Spears days also. > I think the small ones are the hardest to deal > with - you research and choose hearing aids, doctors, schools, IEPs, etc but > the daily traumas that come over and over are the ones that wear you down! > Especially when you think you're the " only one " . This is it exactly! I left our last audiology appointment in tears -- and for the silliest reason. As I was leaving, our dear, sweet audie told me that I was a great mom and was doing wonderfully with all the " stuff " that goes with having a child with a hearing loss. I burst into tears when I left because I felt like such a FRAUD. This lady doesn't see the " real me " -- the one who stomps her feet and yells when she's tired, the one who lets the kids eat " one more " sucker or watch " one more " cartoon because they are being QUIET, etc. etc. It *is* the day to day stuff -- the hearing aids and FM systems and IEP meetings really seem relatively easy next to the meltdowns and highs and lows. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Re: > Question back to Randie, Sheri, Barb, et. al. - > I'm still fidgeting with this idea of SID so forgive the questions... Can > SID be hearing-triggered also? I know it might sound like a silly question > but I recall two specific instances off the top of my head. One time, our > smoke alarm went off (it was malfunctioning) and Demi literally freaked > out -- screaming like someone was torturing her. More recently, the > cordless phone battery started chirping and she immediately called 911 > because the " burgular alarm was going off " -- never mind that we don't HAVE > a burgular alarm. Could these types of auditory tactile and the resulting > drama also be SID-related? I don't know the right answer for this. But I know certain noises causes le to totally freak out too. But she does have SID so I just assummed that it was part of it. > > I think the small ones are the hardest to deal > > with - you research and choose hearing aids, doctors, schools, IEPs, etc > but > > the daily traumas that come over and over are the ones that wear you down! > > Especially when you think you're the " only one " . I couldn't agree with you more. We have so much on our minds daily that the daily traumas are the one's that do wear us down. > > This is it exactly! I left our last audiology appointment in tears -- and > for the silliest reason. As I was leaving, our dear, sweet audie told me > that I was a great mom and was doing wonderfully with all the " stuff " that > goes with having a child with a hearing loss. I burst into tears when I left > because I felt like such a FRAUD. This lady doesn't see the " real me " -- > the one who stomps her feet and yells when she's tired, the one who lets the > kids eat " one more " sucker or watch " one more " cartoon because they are > being QUIET, etc. etc. It *is* the day to day stuff -- the hearing aids > and FM systems and IEP meetings really seem relatively easy next to the > meltdowns and highs and lows. > > Pam I feel the same way at times, everyone states that she wouldn't be doing as wonderfully as she is, if it wasn't for me, but they don't see the real me. They don't see the person that is sometimes praying she takes a nap and feeling horrible for feeling that way. Or for yelling at my son for something that really wasn't a big deal at all. And than crying for yelling at him and telling him I am sorry. We all go through this I think, I know I do. Someday's I can take the world on and other days the slightest thing sets me off. Hang in there, your not alone. Take Care Colleen Mom to 7 year old (hearing,asthma, and allergies,) Mom to le 2 1/2 year old, (moderately-severe hearing loss, etc) > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Sheri, I don't know that I am particularly perceptive but you were describing my daughter who has SI. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 I don't know for sure but I think sounds can also be part of SID. Barb ----- Original Message ----- From: Question back to Randie, Sheri, Barb, et. al. - I'm still fidgeting with this idea of SID so forgive the questions... Can SID be hearing-triggered also? I know it might sound like a silly question but I recall two specific instances off the top of my head. One time, our smoke alarm went off (it was malfunctioning) and Demi literally freaked out -- screaming like someone was torturing her. More recently, the cordless phone battery started chirping and she immediately called 911 because the " burgular alarm was going off " -- never mind that we don't HAVE a burgular alarm. Could these types of auditory tactile and the resulting drama also be SID-related? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Darin, my guess would be that with or without hearing aids on, noises sound differently to the HOH. I remember before we knew my daughter was HOH that she used to overreact and cry with people who laughed loudly. Later, I assumed it was because she didn't hear the little laughs building up, so the louder noises were a surprise, like someone yelling BOO. What did your audiologist say? Randie Reply-To: Listen-Up To: <Listen-UpYahoogroups> Subject: Re: Date: Tue, 31 Jul 2001 12:37:33 -0500 Question back to Randie, Sheri, Barb, et. al. - I'm still fidgeting with this idea of SID so forgive the questions... Can SID be hearing-triggered also? I know it might sound like a silly question but I recall two specific instances off the top of my head. One time, our smoke alarm went off (it was malfunctioning) and Demi literally freaked out -- screaming like someone was torturing her. More recently, the cordless phone battery started chirping and she immediately called 911 because the " burgular alarm was going off " -- never mind that we don't HAVE a burgular alarm. Could these types of auditory tactile and the resulting drama also be SID-related? > Thank goodness Demi likes Audrey Hepburn rather than someone you > wouldn't want to hear over and over and over. . . !!! Amen! Thank God for the small things! However, we do have some Brittany Spears days also. > I think the small ones are the hardest to deal > with - you research and choose hearing aids, doctors, schools, IEPs, etc but > the daily traumas that come over and over are the ones that wear you down! > Especially when you think you're the " only one " . This is it exactly! I left our last audiology appointment in tears -- and for the silliest reason. As I was leaving, our dear, sweet audie told me that I was a great mom and was doing wonderfully with all the " stuff " that goes with having a child with a hearing loss. I burst into tears when I left because I felt like such a FRAUD. This lady doesn't see the " real me " -- the one who stomps her feet and yells when she's tired, the one who lets the kids eat " one more " sucker or watch " one more " cartoon because they are being QUIET, etc. etc. It *is* the day to day stuff -- the hearing aids and FM systems and IEP meetings really seem relatively easy next to the meltdowns and highs and lows. Pam _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Hey Colleen, Shakespeare wrote, " All the world's a stage " . We all show our good sides to the world and are more our normal selves at home. Remember this when you see another mom tat appears to be perfect. I understand your guilt, but your feelings appear pretty normal to me. No one would call DCFS for giving your children an extra lollipop or for wishing them to nap! Randie > > This is it exactly! I left our last audiology appointment in tears -- and > for the silliest reason. As I was leaving, our dear, sweet audie told me > that I was a great mom and was doing wonderfully with all the " stuff " that > goes with having a child with a hearing loss. I burst into tears when I left > because I felt like such a FRAUD. This lady doesn't see the " real me " -- > the one who stomps her feet and yells when she's tired, the one who lets the > kids eat " one more " sucker or watch " one more " cartoon because they are > being QUIET, etc. etc. It *is* the day to day stuff -- the hearing aids > and FM systems and IEP meetings really seem relatively easy next to the > meltdowns and highs and lows. > > Pam I feel the same way at times, everyone states that she wouldn't be doing as wonderfully as she is, if it wasn't for me, but they don't see the real me. They don't see the person that is sometimes praying she takes a nap and feeling horrible for feeling that way. Or for yelling at my son for something that really wasn't a big deal at all. And than crying for yelling at him and telling him I am sorry. We all go through this I think, I know I do. Someday's I can take the world on and other days the slightest thing sets me off. Hang in there, your not alone. Take Care Colleen Mom to 7 year old (hearing,asthma, and allergies,) Mom to le 2 1/2 year old, (moderately-severe hearing loss, etc) > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 You and Dave are in my prayers. Barb This happened around noon and I haven't heard anything else from him. Hugs to all, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 As most of you know I teach special ed preschool. I have had children who would " Over-react " to loud sounds. It is really not that terribly uncommon I don't think. BUT, most parents don't know of the other children who also do it. The fire drill can be real fun. And yes, I think you can have " degrees " of things, such as with autism, for example, or SIDS. And I think ALL parents are quilty of letting kids do something longer if they are quiet, especially if we have had a long day, are just tired, or they are trying to get something done themselves. You would not believe how many parents ask me that very same thing at school! And I am the first to say I am quilty of it too. Deb Cawley debcawley@... aislinnpapillons@... http://www.geocities.com/aislinnpaps/ PCA Rescue Committee WQRe: > ! > I think the small ones are the hardest to deal > > > with - you research and choose hearing aids, doctors, schools, IEPs, etc > > but > > > the daily traumas that come over and over are the ones that wear you > down! > > > Especially when you think you're the " only one " . > > > to day stuff -- the hearing aids > > and FM systems and IEP meetings really seem relatively easy next to the > > meltdowns and highs and lows. > > > kids eat " one more " sucker or watch " one more " cartoon because they are > > being QUIET, etc. etc. It *is* the day > > I couldn't agree more. I am so thankful for these postings as I have been > feeling alone with these feelings lately. > > My son Bradley is 2 1/2 years old with mild - severe conductive hearing > loss. > > It seems like I can handle anything that comes up medically, but the day to > day things are the most difficult to handle with him or his 2 brothers. > (Thought it was because I am getting older). > > I never thought I'd let my kids eat or buy candy in the isle of the grocery > store until after Bradley was born. If a video is in and they are all happy > I let them watch extra tv too. > > Question for parents with children with enlarged vestibular aqeducts and > SID. My 5 year old son has had his hearing tested at the health dept. as > well with yearly checkups with the pediatrician, and all appears as normal > hearing. > My question is can you have enlarged vestibular aqueducts with no hearing > loss? He has been in speech therapy since he was 2 1/2 years for > articulation/rate of speech. > > My 5 year old sounds alot like your children. At one point his preschool > was concerned because it seemed like his body was moving so fast and the > rest of him wasn't keeping up (i.e. he would move his legs and the rest of > his body followed him eventually - gee, that sounds really weird, but that > is how they described it). > > He also crys or freaks on occassion when the phone rings, answering machine > goes off, or other loud noises. > > Can a child have SID and only have a couple of characteristics of it? Guess > I have better search the net on this one too. > > Rita Westfall > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Re: Hyperbilirubinemia and sensorineural loss (for Debbie) > He was pronounced w/ profound sensoneural loss. He seemed to hear >some things, however had no startle. The speech therapist didn't believe >me and looked at me with those eyes Poor mom...in denial... Hi , My daughter le which is now 3 years old, was diagnosis at birth, while in the NICU. She wasn't aided until 7 months due to conflicting ABR's, and many second opinions. Over the last three years I have received the same response many, many times. Poor mom in denial. I was never in denial just wanted answers that I wasn't getting. I accepted the hearing loss immediately due to other issues she had, that seemed so much worse than hearing loss. I figured that there were many options in communications and that was one of the benefits to us finding out so early on, even though it was still very hard to except. Right way it seems like we get the Poor mom rountine, just because are feelings and thoughts are not justified or explained properly. We all want what's best for our children and that's it. Anyway, >after diagnosis at 6 mo. old, audie wanted to implant. I got another >opinion. At 10 mo, 8 1/'2 adj, they eliminated profound from his >vocabulary!!! We go back after christmas for more abr's. Non sedated. >His hearing seems to be okay, his listening needs work. He also has >developmental delays, I can't seem to find any answers except that I got >a miracle. I wish I had found this website sooner on this info. We enrolled in the Early intervention program when she was two months old and had a wonderful teacher of the deaf and auditory training teacher that came to the house. We were very fortunate. le's listening skills were wonderful. She too never starteld, but heard so much without aids. It was and sometimes is so confusing for us to believe that she actually heard something that they claim she shouldn't hear without aids. When we started questioning this, we were told she may of heard it but how is she hearing it (not the same as us). Okay. It's still confusing and very difficult for us to this day. We (my husband and I) sometimes look at each other and shake our heads. But we are finally just got the answers we were searching for, for so long just two months ago, when we switched audies once again. It has taken us three years but you have to go with your own instinct and gut feeling, regardless what they think. Keep pushing until you get the answers your looking for. My daughter also has developmental delays, in both gross and fine motor skills, sensory issues, etc., her language is great, but her speech is difficult to understand due to it being so nasally. I also feel that I was blessed with a miracle, thank god every night for what we have. We have beated so many odds and we just keep on going. My days are full with school and therpay every day but it has paid off to the fullest. It's what we need to do right now to get her where she needs to be. This list has helped me tremedously and don't know where I would of received the information and the wisdom that is given here. Try and keep your chin up and keep questioning until you get the answers you need as a mom. Take care. Colleen Mom to 7 year old (hearing,asthma, and allergies,) Mom to le 3 year old, (moderately-severe hearing loss, etc) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 > Here's the kicker! ALL > of the above problems have been covered in our A.R.D. > with the school, and everyone attending the A.R.D. > meetings agreed to conform to these rules we all > agreed on regarding out son. If it were me and these things were in my son's IEP (ARD), then I would write a letter to the principal (sent it certified mail so there is a record of him receiving it), stating that I understand such and such is happening which clearly goes against what is in my son's IEP, and that if the school is not in full compliance with my son's IEP in 10 school days, I will have no choice but to file a formal complaint with the state. Hey, wait......I did do this. ;-) Within 2 school days my son's IEP was being fully implemented. One thing I always did when we had IEPs for our son was to always make sure they put in the IEP exactly who is responsible for ensuring that all teachers are aware of the accommodations spelled out in the IEP, and that they comply with them. Then I knew who to go to when there were problems, and I had 1 person who was responsible for working out any problems. Kay kay@... Listen Up Web http://www.listen-up.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Alas, the new boots can be a little more than $50. Patty's were $1025 each for the Claros (so $2050 total). The boots for the Picoforte analogs were not compatible with the Claro digitals, even though they are both Phonak brand aids. I know because I got the bill by accident, instead of the school. Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 Hi Everyone: What an Excellent idea to have one person spelled out in IEP regarding who's resp. for ensuring accommodations/modifications. We were so thorough about 's IEP last spring - we typed our own accommod. page which was attached to IEP - even stated that everything MUST be in place the 1st day of school. Thought we'd covered our bases. When she started K. this fall I had this overwhelming trust and blind faith that the team would take initiative to get eveything in place. HA! What a joke! In mid-Oct. I was in the classroom volunteering and low and behold the only accommodation in place was the FM - because we supply. Worst yet, I didn't even know who to go to and kept getting the run-around. Thank you for this great suggestion and I encourage other parents to do it. Missy mom of 6 severe-profound - Clarion 8/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Hi - Just a quick question. Did you go so far as to determine that your son had a growth hormone deficiency before you made your decision? Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Dear Debbie, We went for the growth testing to see how much Nick would be expected to grow.....and they were way off..Nick grows...but slower and at his own time....Nick runs about 3 years behind what would be expected ....in other words at 5 he looked like 2 or 3...8 he was the size of a small 5 yr old. Now he looks like about 10 at 13..about 4'9 " ..which fits him. He is very small boned and delicate but he also has facial dysmorphia...If we had given him any GH it would've exerbated his facial anomalies. I can't speak for any other situation but for us this is by far the best decision. The option is still open to me but I won't at this point consider it. I wish you the very best in making your decision. I always say " when I knew better I did better " the medical field is a work in progress...nothing is written in stone....and there is a window of opportunity to wait and see. I hope I have helped and not confused you further...... --- debgben@... wrote: > Hi - > Just a quick question. Did you go so far as to > determine that your son had a > growth hormone deficiency before you made your > decision? > Thanks > Debbie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Hi , my daughter was babbling and saying a word babbling some more at 24 months. She has a severe hearing loss. Right after that she started making progress. All at once and continuing from there. It seemed like a lifetime to wait for, but it came. She was ready. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 - this sure sounds like a lot of pain for being five weeks post- op....what does your doctor say? Maybe the pain means that you are getting feeling back in your nerves really early...that's good, in a sense! My doc's assistant told me that my sleeplessness was mainly caused by submerged anxiety....the surgery affects us in ways we don't want to admit....maybe we're afraid to go to sleep and be hurt again ann let me know what your doc says about the pain....this must be a very unpleasant surprise for you -- In orthognathicsurgerysupport@y..., " julesinky2 " <julesinky2@y...> wrote: > Hi, Thanks for writing back. I have been on so many drugs, i don't > even know which way is up. See, I was on Lortab 10 and I went back to > the surgeons office and told them I wanted something a little less > strong. They gave me Darvocet. The pain came back and the Darvocet > did not help at all. I called on Friday and my Dr. was out of town, > so I explained that the Darvocet wasn't working. They prescibed me > Tylenol #3. Well, here it is Monday and I haven't hardly slept a wink > all weekend. And the Tylenol #3 did not help either. I am in such > pain. I am 5 weeks post- op. Shouldn't I be feeling better. I > really want to stop the Narcs all the way, but i don't think I can. > You see, I have been numb on the left side of my face since surgery. > The umbness is starting to wear off now and I am feeling a lot of > pain. What should I do? Should I ask for more drugs? Should I ask > for the Lortab again? If not, what? I don't want my Dr. to think I > am just a drug seeker. I am stuck. Any advice would be nice. Thanks. > > > > Hello everyone!! It's me again. Sorry I haven't been keeping up, > > but > > > I am doing well. Aside from a little pain and (obviously) not being > > > able to sleep, I am well. This sleeping thing is really pissing me > > > off. I have switched to a different medication, and apparently, it > > > doesn't like me too well. It's 6:16 am here. I hope that all is > > well > > > with everyone. If there is anyone out there who is awake and bored > > > and wants to talk, please-please- find me. Talk to you all soon. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 I just think that the sleeplesness is due to all the different meds I have been on. Who knows, but my Dr. and his assistant are excellent and they will probably be calling me this AM. I am sure things will go well. How about you? How far long are you? Do you have pics posted? Where do you live? I am in Versailles KY. I had my surgery in Lexington KY. If you want, you can check out my pics under " " . Also, if you want to read " MY experience " , it is # 44077. Take care and keep in touch! > > > > Hello everyone!! It's me again. Sorry I haven't been keeping > up, > > > but > > > > I am doing well. Aside from a little pain and (obviously) not > being > > > > able to sleep, I am well. This sleeping thing is really > pissing me > > > > off. I have switched to a different medication, and > apparently, it > > > > doesn't like me too well. It's 6:16 am here. I hope that all > is > > > well > > > > with everyone. If there is anyone out there who is awake and > bored > > > > and wants to talk, please-please- find me. Talk to you all > soon. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Hi you are absolutely gorgeous! no, I don't have a digital camera, so no pics posted.... I live in Clinton, Louisiana and I'm 44.... five kids and a husband and a job teaching English at LSU. my surgery was early June, and I hardly ever had any pain, except for the vicious muscle spasms that were only momentary pains.... I thought we weren't sposed to hurt because of those stretched nerves. you sure got a bum deal! keep me posted on what your doctor says. -- - In orthognathicsurgerysupport@y..., " julesinky2 " <julesinky2@y...> wrote: > I just think that the sleeplesness is due to all the different meds I > have been on. Who knows, but my Dr. and his assistant are excellent > and they will probably be calling me this AM. I am sure things will > go well. How about you? How far long are you? Do you have pics > posted? Where do you live? I am in Versailles KY. I had my surgery > in Lexington KY. If you want, you can check out my pics under > " " . Also, if you want to read " MY experience " , it is # 44077. > Take care and keep in touch! > > > > > > Hello everyone!! It's me again. Sorry I haven't been keeping > > up, > > > > but > > > > > I am doing well. Aside from a little pain and (obviously) not > > being > > > > > able to sleep, I am well. This sleeping thing is really > > pissing me > > > > > off. I have switched to a different medication, and > > apparently, it > > > > > doesn't like me too well. It's 6:16 am here. I hope that all > > is > > > > well > > > > > with everyone. If there is anyone out there who is awake and > > bored > > > > > and wants to talk, please-please- find me. Talk to you all > > soon. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 You poor thing! I went through the same thing. Surely it was the massive anxiety we suppressed during the day. You KNOW there must be a lot of suppressed anxiety....there's a lot of suppressed anxiety even in our friends when they honestly say, " I couldn't do it! " THINK what you've gone through...what you are still going through! Hardest experience of my life, for sure...and I've had five sections! Get the doc to give you some valium. I don't know why, but it took care of the sleeplessness problem immediately. And when you get some sleep, lots of other problem subside too! ann > If you find something that works for you sleep-wise then please let > me know. I would love to know what I should have done. From about > day 5 til somewhere around day 20 or so I couldn't sleep but maybe 2 > hours a night. It was like torture! I was wide awake. If I fell > asleep I would wake up in a panic because I was breathing through my > nose. And my mind just couldn't handle that. I now breathe mostly > through my mouth at night. But those couple of weeks were horrible. > I would get on the computer & my hand would literally fall off the > mouse pad out of sheer exhaust & I would be totally asleep for a > second but then that would wake me up & if I tried to lay down & go > to sleep that wouldn't work. > It finally went away on it's own. The sleeping pills just made me > feel dizzy & make my heart race. > Good luck, > Georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Thanks Ann: I'm over 2 months now & sleep slowly came back around 3 weeks, right before I had to go back to work. I think my sleeplessness was from sheer panic attacks. I've never been able to breath through my nose until after surgery. But my brain couldn't handle it. I now breathe through my mouth to sleep at night. I no longer feel as if I'm getting the same air flow as right after surgery. But I can now sleep so I'm not complaining. And my mouth doesn't hang open as wide anyway. I think they gave me Xanax but I would have been willing to try the Valium. Thanks for the info. Hopefully I'll never have that problem again(absolute torture!) but I will definitely keep the Valium in mind if it does. Thanks again, Georgia In Orthognathicsurgerysupport@y..., " AnnHingle " <annhingle@y...> wrote: > You poor thing! I went through the same thing. Surely it was the > massive anxiety we suppressed during the day. You KNOW there must be > a lot of suppressed anxiety....there's a lot of suppressed anxiety > even in our friends when they honestly say, " I couldn't do it! " > THINK what you've gone through...what you are still going through! > Hardest experience of my life, for sure...and I've had five sections! > Get the doc to give you some valium. I don't know why, but it took > care of the sleeplessness problem immediately. And when you get some > sleep, lots of other problem subside too! > ann > > > > If you find something that works for you sleep-wise then please > let > > me know. I would love to know what I should have done. From about > > day 5 til somewhere around day 20 or so I couldn't sleep but maybe > 2 > > hours a night. It was like torture! I was wide awake. If I fell > > asleep I would wake up in a panic because I was breathing through > my > > nose. And my mind just couldn't handle that. I now breathe mostly > > through my mouth at night. But those couple of weeks were > horrible. > > I would get on the computer & my hand would literally fall off the > > mouse pad out of sheer exhaust & I would be totally asleep for a > > second but then that would wake me up & if I tried to lay down & go > > to sleep that wouldn't work. > > It finally went away on it's own. The sleeping pills just made > me > > feel dizzy & make my heart race. > > Good luck, > > Georgia Quote Link to comment Share on other sites More sharing options...
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