Re: How do you keep on smiling?

[Guest guest]

I think you haven't found the right pain doctor yet. (Maybe one that prescribes

pain medication is what you need.)  Don't settle for this, there are doctors who

want to help us live with less pain.  

Once you get the pain under control it's easy to find things to smile about. 

Also, if you aren't being treated for depression, you may want to be evaluated

for depression that needs treatment.

Jennette

Tessa wrote:

> 

>Happy Valentines Day friends,

>

>I'm going to the Injection doctor on the 16th. She is also a pain management

doctor. At this time she is not taking new clients, but, might be in the near

future. Is this a good road to go down?

[Guest guest]

((((((((Tessa))))))

Try not to take your dad's reaction too personally. When those who love us feel

frustrated at being unable to help, those feeling surface. Just explain to your

dad that you just are looking for venting time. If he could just listen, that

would be very helpful. that may make it easier for him.

I cope by taking it a day at a time. I don't know how I will feel when I get

up. I set 1 or 2 goals for the day and take it as the day comes. I recongize

that I have good days and bad. On the bad ones, I remind myself that it will

ease up again for a while.

I find a purpose to keep going and I give myself permission to feel exhausted.

I try to find a balance between my pain and loving my life.

It is hard to be chronicly ill. It takes a chunk of energy away from day to day

activites. But I would rather struggle than sit and have nothing but my

depression and pain.

Big hugs, Tami

--- " word1asset " wrote:

>

>> How do you keep on going? Keep on smiling? Pain management idea?

> I need some help. My dad, who I am very close with, is tired of hearing about

it. He wants me to snap out of it. This really hurt a lot when he said this a

few days back.

[Guest guest]

If you are in pain, you NEED pain medicine. When pain first hits you, there is a

period of time when you go exploring for a doctor or clinic where you can get

the help you need. You will in a short time find the right place. You can not

give up. The help is there. You will find it.

[Guest guest]

>Tessa wrote:

> The injection at L-5/S-1 lasted maybe a month and during the month I had a 22

day static migraine. I knew it might work, might not. I knew it would be

$4,500.00 I just want this pain to go away or just ease up even.

>

> How do you keep on going? Keep on smiling? Pain management idea?

> I need some help. My dad, who I am very close with, is tired of hearing about

it. He wants me to snap out of it. This really hurt a lot when he said this a

few days back.

Tessa,

Just realize that injections are an invasive procedure thus intervention and the

pain docs that do this are usually anesthesiologist that go in the pain

management field for the income.

Go to spine universe and research about injections. Mine caused me to get

extensive scarring and Arachnoiditis. The injection material is a neurotoxin and

irritates the spine.

The articles on Spine Universe and American Spine Society state if three doesn't

work it is doing more harm than good. My Dad told me I am just doing this to get

attention even though I have three vertebrae gone, BAK cages in my back and

screws.

Pain management should be multiple treatments and this changes as your pain

changes and no Doctor should tell you " I won't give you medications, unless you

have injections and this is common "

Physical Therapy with a myofascial physical therapist (or others), heat, topical

creams, home physical therapy exercises, stretches, anti-depressants, alternate

treatment (positive feedback, counseling) AND checking labs. Your internist

would probably do this better and last month my Vitamin D was a 13 lab value and

it is is supposed to be over 30 and i was aching all over, cognitive abilities,

swollen knees, joints, weakness in my legs and I fell three times.

I am being sent to a endocrinologist now to adjust my supplements and build up

immune system. You have to feel comfortable but make sure your new Doctor

meets YOUR expectations.

A good place that has articles on these subjects are the American Pain

Foundation and under Learn About Pain and Publications, they have brochures on

how to choose a pain management Doctor and treatment plan

http://www.painfoundation.org/learn/publications/.

I am signed up for their newsletter which is excellent, their pain notebook is

great, and the lobby for pain patients. Also, the old standby, Survival Guide

for Intractable Pain Patients by Dr. Forest Tenent, is a great resource and my

previous Doctor has all his patients read it. It can be downloaded at Pain

Topics. Org. I have found this two information sites to be the best for me.

I am really not one to ask as I was excessively injected without the Doctor go

over the extensive side effects and they seem to skip that part. From E med

article "

Multidose vials of Depo-Medrol contain benzyl alcohol, which is potentially

toxic when administered locally to neural tissue and may increase the risk of

arachnoiditis or meningitis.

Thus, for epidural injections, many physicians prefer to use steroid

preparations without such preservatives. One option is to use only single-dose

vials of the corticosteroids, because these generally do not contain benzyl

alcohol.

However, for some steroid products, even the single-dose vials may contain at

least some preservatives or antimicrobial additives, so physicians should be

aware of all of these factors when deciding on the steroid to be used for the

injection.

My Doctor has me on an anti-inflammatory diet and we are trying to get the

inflammatory response down. Cortisone can be taken orally and I will not allow

them to inject me and if I need cortisone, I will take it orally.

Most pain patients have other conditions along with what causes the pain and

this past month with Vitamin D on fritz (Vitamin D decreases pain) I have had

hell also.

Check those sites out and they have examples and even a medical staff to guide

you if you want to ask them (American Pain Foundation) . Wish you less pain.

This group is a life saver and members don't mind whining, we know it is venting

and wish we didn't have to whine . Bennie

[Guest guest]

Re: How do you keep on smiling?

If you are in pain, you NEED pain medicine. When pain first hits you, there is a

period of time when you go exploring for a doctor or clinic where you can get

the help you need. You will in a short time find the right place. You can not

give up. The help is there. You will find it.