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Re: CRPS/RSD Diagnosis

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---Lyndi wrote:

>

>> I have been diagnosed with CRPS/RSD in my lower right leg and foot.

I'm so sorry to hear this, Lyndi!

But I know if there's any chance you could beat this thing early with hard work,

you'll do it! I've got my fingers crossed that you'll see some results.

Cheryl in AZ

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> Lyndi wrote:

> The last thing I need is a fourth thing wrong with my damned foot!

LYNDI,

Do you think our bodies are getting us back for all those times we bossed them

when they were telling us to relax, don't lift that, Uh Yeah Maybe

But just know give your big toe a kiss (which is a good back exercise) then the

lower right leg and rub them with candy that they never got to have.

Just wanted to try to get you laugh. Keep telling your body three times is all

the body is allowed and program the brain and the foot brain.

Love you, Hang in there. Pleas don't force it so it will heal and take your

time. Bennie

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Bennie wrote:

> Lyndi

> Do you think our bodies are getting us back for all those times we bossed them

when they were telling us to relax, don't lift that, Uh Yeah Maybe.

I think my body is genetically screwed right up. I was just a tot when

the first of the chronic pains started. Or, perhaps it started at birth

and I just don't remember. I had just turned three, when I recall the

first round of migraines. Little did I know what lay ahead of me.

I sometimes worry about the genetics I've passed on to my kids and

grandkids. My eldest son seems to be doing great. He's had about a

dozen migraines in his entire life. But, my youngest has knee, foot,

and migraine problems. (He'll be 38 next week).

I hope the gene pool is diluted enough that my grandkids don't run into

very many problems. The two eldest are eight now and neither of them has

experienced a migraine. I hope it stays that way!

I mentioned to my husband that it was a good thing I was the youngest

child in my family. My parents are now both deceased. My Mum died when

I was quite young, so she didn't get to see more than the migraines and

arthritis in me when I was a kid. Dad got to see a whole lot more and

apologized for his role in it. I've apologized to my kids too. <grin>

Lyndi

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Lyndi,

Our family it was always calf muscles in the legs cramping up. I have had muscle

cramps as long as I remember and my whole family (alll of them) have night

cramps. I, like you, can remember this from way back and maybe that is why I

stayed on my feet all the time.

We were told it was " myotosis " when in fact, I believe it is fibromylagia.

Although, my Dad is 94 and his Sister is 102 so it just means I suffer longer.

Fortunately for my Dad, he did not have any health problems until five years ago

even recovering from a quadruple bypass. He is down in his back and weak as of

six months and he didn't believe I was on the level with my back telling me just

get up, I wasn't using my willpower.

I would not fake the pain I have nor ever wish this pain on anyone and doubt any

pain patient would but we have to listen to some toxic remarks about our pain.

Sad people. Take care and I believe your good genes will kick in soon. I hope

the best for the gradkiddos and know they have the good genes also from you : )

Please take care of yourself. Bennie

Lyndi wrote:

> I think my body is genetically screwed right up. I was just a tot when

> the first of the chronic pains started. Or, perhaps it started at birth

> and I just don't remember. I had just turned three, when I recall the

> first round of migraines. Little did I know what lay ahead of me.

>

> I sometimes worry about the genetics I've passed on to my kids and

> Grandkids. My eldest son seems to be doing great. He's had about a

> dozen migraines in his entire life. But, my youngest has knee, foot,

> and migraine problems. (He'll be 38 next week).

>

> I hope the gene pool is diluted enough that my grandkids don't run into

> very many problems. The two eldest are eight now and neither of them has

> Experienced a migraine. I hope it stays that way!

>

> I mentioned to my husband that it was a good thing I was the youngest

> child in my family. My parents are now both deceased. My Mum died when

> I was quite young, so she didn't get to see more than the migraines and

> arthritis in me when I was a kid. Dad got to see a whole lot more and

> apologized for his role in it. I've apologized to my kids too. <grin>

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Bennie wrote:

> We were told it was " myotosis " when in fact, I believe it is fibromyalgia.

When I was 16, I was told I had Fibrositis. The doctor said the only

thing he knew that helped was gentle exercise. Considering that was 43

years ago, it appears the man was 'way ahead of his time.

> Take care and I believe your good genes will kick in soon. I hope the best for

the gradkiddos and know they have the good genes also from you : )

What good genes? I'm the oldest living woman in my family - going out

to fourth cousins. After fourth cousins, we've pretty much lost touch.

The men get to go on and on like energizer bunnies, but the women go

poof! If I live for a few more years, I'll hold the ladies' longevity

record - going back six generations. I'm gonna try for it!

Lyndi

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