Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 I called the Mayo Clinic and I may not fit their criteria to be a patient there for my AVN (Avascular Necrosis... dying bones) they will get back to me in 7-10 days after they look at my name basically in their review committee. They didn't ask for any records, MRIs, Xrays, etc so I am not sure what the review committee is going to review other than my name? The next closest places that specialize in treating it are Duke or somewhere else in Baltimore. I can't afford to drive to Duluth which is less than 200 miles away... how can I afford to go to the East Coast? I did call and make an appt for Wednesday with my current orthopedic surgeon and Terry is going to leave work to come with me because no one is listening me or helping me with the pain. So until then I guess I am staying bed until then... how can I be a Mom and not be able to walk the length of my trailer without extreme pain and then basically crying myself to sleep? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 i am sure you are a great mom, and you don't need to walk to be that. there is so much more. teaching them empathy for a starter. prayers coming your way. Cathie in Ct > Anne R wrote: > how can I be a Mom and not be able to walk the length of my trailer without extreme pain and then basically crying myself to sleep? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Anne. Being male I can't say I know how you feel but I do know how it feels to be a bad dad. Most of the time I feel so useless, incapable and a bad parent. I hate it when I can't do things for the kids that need doing. I hate it when I can't do the housework to keep the place clean, tidy and safe for them. I hate it when I CAN do bits and the kids are there 'cause I just hate myself and get angry at everything and everyone and sometimes this includes the kids. It's a horrible feeling, or feelings, but you have to understand that with a bit of luck this will be a passing phase, at least I hope to hell it is! You are not a bad mum, just a mum in pain. Sometimes it helps to know sometimes it doesn't but anyway, I know a number of people on here, just like me, feel your pain. You are not alone hun. Ken. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2012 Report Share Posted April 24, 2012 Anne, Keep on making noise to your doctor, be firm. You are entitled to be treated for your pain and your disease. I don't know enough about your illness to advise you but if you can find others who are dealing with it and have doctors who are helping, or can advise you who to contact, that should help somewhat. I understand about traveling to see specialists and don't have any idea how I would find a way to go far from home for any length of time. We barely can afford to drive to our specialists now and they are less than 60 miles from home. I just know you will find help if you keep seeking. Jennette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2012 Report Share Posted April 24, 2012 The ONLY thing i'm grateful about my pain is that when i was injured my daughter was older. I raised her from a very young age to cook, clean, laundry (she actually likes to do laundry, huh?) as i worked long 12hr night shifts most of her life. Now that i can no longer do things around the house my daughter has taken over. She is 24yrs old and a really good, responsible young woman. You are NOT a bad mother, just another person in pain who has children. Start now be allowing your children do little things for you like, getting you something to drink, or a book, or a snack (if they're old enough that is) Kids usually like to help and this will only help with bonding between you and your kids. Quote Link to comment Share on other sites More sharing options...
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