Re: Anne/Trials of birth and aftermath/Immune System Damage.

[Guest guest]

Anne,

Hear, Hear, I second and admire your stamina. I also went through the rough road

of infertility meds, Danacrine is a high powered steroid, I don't every want to

use again because of the side effects. It dried up all the tissue in the uterus

that wasn't supposed to be there, I had only one tube and ovary and my tube

would go into spasm any time something tried to go up it.

Fortunately. as my fertility doctor said, my husbands sperm could go thru a

brick wall. Not to be visual but when I was artificially inseminated , I got to

check out my husband's sperm on the microscopic slide and they were like

tadpoles on amphetamines. It is so amazing the things that can be done now but

when I back overseas where my husband was it was to close to know if my Nurse

Practitioner or my husband assisted in getting my son here.

After my delivery, my placenta did expel, and they ripped it out creating me to

bleed out requiring eight units of blood and a D & C, they were going for

hysterectomy. The Doctor left some of the placenta in there unknowably (I don't

know how you do this unknowingly) and it walled of , preventing infection. I

could have gotten sepsis and I am so thankful I did not and I expelled the rest

five weeks later. The Doctor that did my surgery was suspended for causing

infections.

My gift is 6'4'' and twenty-three years old. Why do I bring this up on a pain

group ? Anne has a visual picture of what she encountered but repeated

surgeries, laproscopes, steroids, procedures, cause scarring and body changes

but we took that chance for a reason.

I believe we all need to make sure our immune systems are at the best. I do this

by research and without lab tests we cannot truly know. I was surprised my

Vitamin D was so low and most of us have other health issues we have to monitor

and if are immune systems are at our bests.

How many of our Doctors discuss this subject or provide therapy or instruction ?

I would like to know. I know Lori (sp), I think is getting immune support but I

think it is because of her Lyme's.

If she could share some of her immune support procedure testing even if it is

for Lymes, I would appreciate it.

I brought up the immunologist appointment to my Doctor, and I had to cancel due

to conflict and then he canceled due to conflict and now this is one of those

doctors I need to make appt for.

I have to have a lumbar CT/ mylogram Monday because my recent pain bout was

after pressing down on a shovel with my right foot and getting swollen foot, SI,

coccyx pain (my PT verified it was deviated and nerve endings swollen badly). My

rectum on rt side is numb and effecting bowel habits.

I called the pain clinic, this has been three weeks ago and they stated there

was nothing they could do until my next appointment in three weeks. Since I had

just started going to this doctor I did not want to be pest. So I wait until day

of appt, they call me two hours before my appt and ask me if I could come in

early and I stated my husband has to drive me as I cannot drive and he is 45-60

miles on job and is on way and I would try.

I called them back and told them no way I could make it and if the NP wait the

twenty minutes and since my original appt was forty minutes later, they should

not mind, Well the scheduler states that my original appt has been given away. I

said you told me the Doctor had to leave because she was sick and that was my

original appt and I am calling you guys on this, I cannot make it at the new

time, it is unprofessional to do this to me especially since I have an injury

and had been waiting for three weeks ! So they say they will call and let them

know and will be okay.

I get to the clinic and I am withering in pain, use a walker (FIRST TIME), and

the receptionist (one of those young untrained girls that know nothing about

pain) says, You appointment was thirty minutes ago, Ms and I will have to

ask the NP IF she will see me. I said Oh she will she me, I called and got it

approved. She goes well it is our policy that patients that are more that

fifteen minutes late have to be approved. People like this should not be the

first person a pain patient sees. All she had to say is, Let me check . That's

IT,

I feel pain patients already feel dependent on their pain management doctor and

I don't like feeling I have to jump through all these hoops to get pain relief.

Then they take my blood pressure and it is 240/114 and they act like its nothing

.. The first thing out of the NP mouth is " Boy you are on a high dose of

Morphine " This time I had it. I stated I have been on this for six years and

your staff keeps saying this and not what they what to do about it or what

dosage is not " HIGH " for them. I then stated the PDR (Physicians Desk Reference_

which is accepted Reference for Dosage,

that 1600 mg a day is maximum dose. I also stated that saying that statement

over and over does not help my pain, I always take the lowest break-thru.

She says she will add Etolodec, an anti inflammatory, and increase my Nuerotin

to 600mg, until we get the results of my test and would I mind calling and

scheduling my CT/MRI.

Well, my husband picks up my scripts because I had to go lie down in the hallway

and not sit in a seat. I went into the pharmacy in their building and when we

opened the Nuerotin prescription, it was the same as I had already been taking

(no increase), when I went to schedule my exam, the order sheet states on CT

exam so I have to go and call them the NEXT DAY as it was after five.

I told them my blood pressure stayed high all night long, I cannot take the

Etoledec as they hold it for the procedure I have and I would like 5 mg valium

as that is what helps me in the past for my BP. Well, they come back and say,

yes it is mistake that only CT, I need CT myleogram. I told them, then YOU have

to fax the order into the lady I spoke to and what do I do about my BP ?

Call you family physician, I stated okay, you are not going to ding me on my

contract for getting these meds from another Doctor ? No.

Well these doctors are so concerned about us peeing in the cup and taking to

much when the focus is supposed to be on pain control. I am going to make appt

with their counselor and complain there as they have weekly meetings to adjust

treatment plans to meet the patient's needs and mention, my family practice

physician NEVER let me go out of the office with that high of a blood pressure

and that the tech was so surprised they did not get me in when I called three

weeks ago with injury.

Also, I listed the Etolodec that I was taking two months ago and they did not

write prescription for it and I was still in the office and the tech stated, you

have the Volatran cream and it has anti inflammatories in it. Well, Volatran

cream is quit being made by the manufacturer and when I told him that , he said

it is on back order. Thank Goodness, some other staff member stated that

it was not being manufactured. The point being, I am not on an inflammatory and

no matter how much they wish it so, they have not provided it for me.

I also am going to start putting my Morphine dosage that is a timed dosage over

a 24 hour period and works out to less than 10 mg an hour and they give Kadian

60 mg every 6- 8 hours with no problem and they look at total dosage, 120 240mg

and think I am getting that ! How Stupid. This hysteria comes from this

epidemic of Washington State adopted the guidelines that pain patients should

not be administered over 120 mg per day. These are a bunch of guidelines that a

group of people got together and made law to deter opioid overdoses, decrease ER

visits, and teach doctors to calculate pain meds.

It is worth you reading as other states are looking at adopting it (Virginia)

and they are only guidelines and state this is not the dosage manufacturers

state. Here is one statement that will explain when Doctors dismiss you if you

are not getting better :

Tapering or discontinuing opioids if an opioid trial fails to yield improvements

in function and pain. An opioid trial is a period of time during which the

effectiveness of using opioids is tested to see if goals of functionality and

decreased pain are met. A trial should occur prior to treating someone with

long-acting opioids and should include goals. If trial goals are not met, the

trial should be discontinued and an alternative approach taken to treating the

pain . So if you put your opioids are not helping, they can drop you as a

patient and say, " I cannot help you " So watch what you write on you med sheet.

Here is the introduction to explain by the group why this was done (Many of

these guidelines go against most of our current care and they are into

" streamlining " care " ).

These guidelines are being presented at every Pain Doctor Seminar and spreading

throughout to make sure drug seekers do not od but pain patients suffer.

Here is the introduction :

The Opioid Dosing Guideline for Chronic non-cancer Pain was originally published

in March 2007. Sponsored by the Washington State Agency Medical Directors�

Group (AMDG), the original guideline and this updated version were developed in

collaboration with actively practicing providers with extensive experience in

the evaluation and treatment of patients with chronic pain. It is intended as a

resource for all opioid prescribers treating adult patients for chronic

noncancer pain. It does not apply to the treatment of acute pain, cancer pain,

or end-of-life (hospice) care.

link: http://www.agencymeddirectors.wa.gov/opioiddosing.asp

Although it is states it does not apply to acute pain and does not address

intractable pain which can been seen in the same cateogory as cancer pain as it

has been diagnosised it will ever go away and have been diagnosised that

prognosis is poor. Which I have even been certified for that . Didn't mean to

write a book but my recent experience prompted it. I hope they find what is

causing me this new pain. Bennie

> Anne wrote:

> I had necrotic muscle in my legs for 2 years (started out as a side effect of

injectable fertility drugs, injectable meds to keep me pregnant and benadryl to

keep me alive due to my allergies)